Our PDA (Pathological Demand Avoidance ) Journey- Diagnosis
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- Опубліковано 25 лис 2024
- What is it like pursuing and getting a diagnosis of Pathological Demand Avoidance (PDA) with a child? We discuss openly and honestly what our experience was like pursuing a diagnosis, and how it felt to be told our son had PDA
Here is the link to the radio programme that introduced us to PDA
www.bbc.co.uk/...
#pathologicaldemandavoidance #pda
I'm so glad I found you guys it's like hearing you describe all the thoughts and fears I have as a parent to a PDA child. You have such a great way of talking about your experiences and making them real but not completely negative. Thank you x
We are so happy to hear that Daniel, hearing things like that help us too. We hope our other videos continue to help you too.
My son is 11 and I am certain has pda. School have just begun thinking about an asd assessment ( I asked for this through school and our gp over 6 years ago and was told no way). I had known he was different from a very early age and when I had my second child 3 years later I realised how much. I was sent to parenting classes and for sessions for me with a psychologist because everyone felt his behaviours were learnt in response to poor parenting. I stopped searching/ reading for info on pda because I was made to feel like I was making excuses and that he ‘wasn’t naughty enough’ to have pda, and not far enough behind at school to qualify for extra funding support. I’ve discovered your wonderful videos now as I am sure that we need more support and understanding. Thank you
I’m just so sad at the moment that I wasn’t confident enough to push for this years ago and that I’ve let him and my other children down as my husband and I have just struggled on doing the best we could.
This breaks our heart, even more so because our experience was exactly the same as yours for so long. We were told similar things, despite knowing in our heart it wasn’t true. It was only a chance radio interview that changed things for us.
Try not to feel hard on yourself. You have not let anyone down. And you are in a better place being educated and more knowledgable than you were. Please feel free to DM us on Facebook if there is anything you want to know about, or just to talk to.
Well done for doing your best!
Excellent information. Our family has also been blessed by “at peace parents information by Casey Ehrlich. I highly recommend her podcasts and videos on UA-cam.
Will check them out
Hi I’m maxes friend I subbed and hit the notification bell liked
Thank you, means a lot to him 😊
Almost all doctors in the US don't even know what PDA is. It's an isolating feeling.
That must be incredibly hard and lonely. We hope with our videos to raise more awareness and things begin to change for the better. I believe there is a North American Pda conference at some point but we are unsure when it is. If there are any videos that would be helpful to you for us to do please do let us know. Please know that you aren't alone and there are many Facebook pda groups you can join for support.
It’s hell to be married to a grown man with PDA.
Who diagnosed him?
A consultant who specialised in autism