Thank you, this was so helpful! It's been 2 weeks since my stroke & the first week I was able to relax & let my family pamper me but now I'm starting to feel pressure to "get back to normal". Thanks for helping me find a balanced, reasonably paced plan for creating a new normal. 🙏❤
@leslovesliberty1776 Of course! It's especially hard after a brain/neurological injury because they're relatively "invisible." It's not like looking at someone with a broken leg where the injury is obvious. But I'm glad to hear that you've been able to find balance in creating a new normal for yourself. ❤️
I love cooking. Pre-stroke, I used to be chef. Post-stroke 3 years, I am cooking. After cooking, Neuro Fatique set in. Thank you for your idea. When setting up ingredients, do it while sitting down. Thank you
A realization for me is that maintaining my balance, particularly while standing still, consumes a lot of spoons. Obviously, it is not the most physically taxing activity. But it does take a lot of computational power; involves a variety of senses; and is fatiguing in itself.
@jamesalles, Absolutely! Balance is usually one of those things that's automated by our brains and we typically don't have to make a point to maintain our balance. But when it becomes something we have to focus on, it takes up a lot of brain space and power!! You're bound to become more fatigued! Have you found that anything in particular has helped you with this?
@@PostStrokeOrg not directly. 1. No alcohol - it only makes things worse. 2. sitting instead of standing. 3. walking instead of standing. 4. A walking stick or cane does give me more confidence I am happy to lean against things, as well.
I'm getting confused from your videos on this topic. In one video, you talked about how we should be constantly moving, walking, etc. But this video and the spoon video seemed to say that we need to conserve energy. Always moving seems to make more sense to me. When I'm walking and doing things, my left side numbness seems to get better. It's when I'm not moving like sitting at my computer or watching TV, everything tightens up.
I'll be the first to comment :) Great video, I do my best to prioritize & plan. For instance if I have a Dr's appt & have to do grocery shopping I will map out my "route" so to speak, if groceries can wait I do my shopping after my dr's appt. for the laundry I have a hospital bed table that I use to transport my laundry, before that I used my wheelchair, just a few suggestions.
Neurofatigue sounds like a mild topic for stroke survivors with central neuropathic pain! I wonder if you have already covered this topic as well. All the Best!
Good afternoon! I have an interesting idea for a post. Please tell us about the taping techniques associated with taping the mouth, I saw photos with them from different specialists, but there were not enough normal explanations, as I understand there are some reasons to do this) It would be great to tell and show about this even in video format on someone, you can make it with humor and informative
Hi @nikitabard! Thanks so much for your suggestion. I'll be honest, I'm not well versed in kinesio taping the mouth. The techniques I've learned are primarily for the arm, some for the legs, and a few techniques for low back pain. If I end up learning a technique, I'll be sure to share it! And if you have any other suggestions, I'd love to hear them! Thanks again! :)
@CliveKempson, great question! What don't I like to cook? haha Pretty much anything! I learned how to make sushi during the peak of the pandemic last year, homemade pizza, simple past dishes, and I love to bake bread! :)
![Lp. Сердце Вселенной #60 РОЖДЕНИЕ ЛОЛОЛОШКИ [Финал] • Майнкрафт](http://i.ytimg.com/vi/YoR0pAV9FVQ/mqdefault.jpg)
Thank you, this was so helpful! It's been 2 weeks since my stroke & the first week I was able to relax & let my family pamper me but now I'm starting to feel pressure to "get back to normal". Thanks for helping me find a balanced, reasonably paced plan for creating a new normal. 🙏❤
@leslovesliberty1776 Of course! It's especially hard after a brain/neurological injury because they're relatively "invisible." It's not like looking at someone with a broken leg where the injury is obvious. But I'm glad to hear that you've been able to find balance in creating a new normal for yourself. ❤️
I love cooking. Pre-stroke, I used to be chef. Post-stroke 3 years, I am cooking. After cooking, Neuro Fatique set in.
Thank you for your idea. When setting up ingredients, do it while sitting down.
Thank you
A realization for me is that maintaining my balance, particularly while standing still, consumes a lot of spoons.
Obviously, it is not the most physically taxing activity.
But it does take a lot of computational power; involves a variety of senses; and is fatiguing in itself.
@jamesalles, Absolutely! Balance is usually one of those things that's automated by our brains and we typically don't have to make a point to maintain our balance. But when it becomes something we have to focus on, it takes up a lot of brain space and power!! You're bound to become more fatigued! Have you found that anything in particular has helped you with this?
@@PostStrokeOrg not directly.
1. No alcohol - it only makes things worse.
2. sitting instead of standing.
3. walking instead of standing.
4. A walking stick or cane does give me more confidence
I am happy to lean against things, as well.
@@PostStrokeOrg yes the brain automates it (amazing calculations) so we don't realize that the process does consume spoons.
I'm getting confused from your videos on this topic. In one video, you talked about how we should be constantly moving, walking, etc. But this video and the spoon video seemed to say that we need to conserve energy. Always moving seems to make more sense to me. When I'm walking and doing things, my left side numbness seems to get better. It's when I'm not moving like sitting at my computer or watching TV, everything tightens up.
Positioning = standing -> sitting eg cooking sit when fold laundry
Pacing eg laundry. Places where u can take a quick break.
Plan.
I'll be the first to comment :) Great video, I do my best to prioritize & plan. For instance if I have a Dr's appt & have to do grocery shopping I will map out my "route" so to speak, if groceries can wait I do my shopping after my dr's appt. for the laundry I have a hospital bed table that I use to transport my laundry, before that I used my wheelchair, just a few suggestions.
@dianakane I love these tips! Thank you so much for sharing!
Insightful. Thank you.
@jjohnson, You are so welcome!
Neurofatigue sounds like a mild topic for stroke survivors with central neuropathic pain! I wonder if you have already covered this topic as well. All the Best!
it is a huge thing
Neurofatigue follows me around everywhere i go
Good afternoon! I have an interesting idea for a post. Please tell us about the taping techniques associated with taping the mouth, I saw photos with them from different specialists, but there were not enough normal explanations, as I understand there are some reasons to do this) It would be great to tell and show about this even in video format on someone, you can make it with humor and informative
Hi @nikitabard! Thanks so much for your suggestion. I'll be honest, I'm not well versed in kinesio taping the mouth. The techniques I've learned are primarily for the arm, some for the legs, and a few techniques for low back pain. If I end up learning a technique, I'll be sure to share it! And if you have any other suggestions, I'd love to hear them! Thanks again! :)
#1 - why didn't I think of that?
#3 - saves on fuel/transportation costs as well.
putting make-up on might be a little stressful for me, tho!
thanks
@jamesalles hahaha you do what’s right for you 😁
❤️❤️❤️❤️❤️
What is your favorite thing to cook?
@CliveKempson, great question! What don't I like to cook? haha Pretty much anything! I learned how to make sushi during the peak of the pandemic last year, homemade pizza, simple past dishes, and I love to bake bread! :)
@@PostStrokeOrg do you have a bagel recipe? Could you email it to me
@clivekempson I’ve only made bagels once but they turned out pretty good! I’ll email you!
@@PostStrokeOrg look forward to attempting to make them
*
tough to do when ur poor