Listened to your podcast. Was interesting especially when you said only 1% of ppl worldwide have epilepsy. I am a 70 yr female (younger physically and mentally). Severe seizures happened after 3 covid vaccines. I don’t know if there is a connection but it was frightening. I did end up unconscious in the hospital in a coma for 5 days. Following that the horror continued. Multiple eegs, in hospital, at home eegs…that showed nothing. Seizures continued. I was on meds. Seizures were mostly awake but auras so I could find safety. But I did have clusters. Carry emergency meds for that. Once in awhile I’ll have a bad one where I lose bladder control. Going to movies will throw me into a major seizure. I have a M.Ed. Ppl seem to have epileptic s thrown into a room of low IQ ppl. Judgement is sad 😞. I stay away from ppl now. The neurologist said I have “ictal seizures “. He moved his hand all over his head and said it’s everywhere! WTH ! He’s the head of the neuro dept of the city I live in. I had a VNS placed one month ago. Idk if it will help. So here I sit. Wondering if only 1% of ppl have seizures, WTH do I have ? Any response would be appreciated. Oh , btw , he said I never had a stroke or a brain tumor, which is interesting bc I never had an MRI or any tests for a stroke. Just saying. 😮
Please know that you are not alone. The road to finding the best treatment options for an individual's epilepsy can be long and difficult, but research is driving new therapies and discoveries every year. If you are interested in seeking additional opinions, the American Epilepsy Society has a great tool to help you find epilepsy specialists: my.aesnet.org/FindaDoctor Also, it may be helpful to seek medical guidance at a Level III or Level IV Epilepsy Center, which is an option you can learn more about here: www.naec-epilepsy.org/
What kind of meds can / are used to calm these patients? It kinda looks like "anxious attacks" + "hysteria like": Diazepam / midazolam ? Or psyk meds like zyprexa etc? What about pain meds (oxycontin etc), are those relevant?
Just listened to a very interesting physician yesterday. She said epilepsy is suddenly on the increase from ppl aged 55 +. It’s great news. Bc epilepsy has always been aimed at children. So , my belief is this is certainly not to psychiatrist. If there is a sudden increase , something is going on. I’m thinking Covid. I never had this until Covid. Millions have all kinds of disorders now. If they don’t know , they always throw ppl to a psychiatrist . It’s wrong !!!
Our newest Seizing Life podcast episode was on the topic of epilepsy in older adults. You can watch or listen to the episode here: cureepilepsy.org/seizing-life/older-adults-and-epilepsy-the-causes-the-signs-and-the-treatments/
Thank you for this informative presentation.
Listened to your podcast. Was interesting especially when you said only 1% of ppl worldwide have epilepsy. I am a 70 yr female (younger physically and mentally). Severe seizures happened after 3 covid vaccines. I don’t know if there is a connection but it was frightening. I did end up unconscious in the hospital in a coma for 5 days. Following that the horror continued. Multiple eegs, in hospital, at home eegs…that showed nothing. Seizures continued. I was on meds. Seizures were mostly awake but auras so I could find safety. But I did have clusters. Carry emergency meds for that. Once in awhile I’ll have a bad one where I lose bladder control. Going to movies will throw me into a major seizure. I have a M.Ed. Ppl seem to have epileptic s thrown into a room of low IQ ppl. Judgement is sad 😞. I stay away from ppl now. The neurologist said I have “ictal seizures “. He moved his hand all over his head and said it’s everywhere! WTH ! He’s the head of the neuro dept of the city I live in. I had a VNS placed one month ago. Idk if it will help. So here I sit. Wondering if only 1% of ppl have seizures, WTH do I have ? Any response would be appreciated. Oh , btw , he said I never had a stroke or a brain tumor, which is interesting bc I never had an MRI or any tests for a stroke. Just saying. 😮
Please know that you are not alone. The road to finding the best treatment options for an individual's epilepsy can be long and difficult, but research is driving new therapies and discoveries every year.
If you are interested in seeking additional opinions, the American Epilepsy Society has a great tool to help you find epilepsy specialists: my.aesnet.org/FindaDoctor
Also, it may be helpful to seek medical guidance at a Level III or Level IV Epilepsy Center, which is an option you can learn more about here: www.naec-epilepsy.org/
What kind of meds can / are used to calm these patients?
It kinda looks like "anxious attacks" + "hysteria like":
Diazepam / midazolam ? Or psyk meds like zyprexa etc?
What about pain meds (oxycontin etc), are those relevant?
Just listened to a very interesting physician yesterday. She said epilepsy is suddenly on the increase from ppl aged 55 +. It’s great news. Bc epilepsy has always been aimed at children. So , my belief is this is certainly not to psychiatrist. If there is a sudden increase , something is going on. I’m thinking Covid. I never had this until Covid. Millions have all kinds of disorders now. If they don’t know , they always throw ppl to a psychiatrist . It’s wrong !!!
Our newest Seizing Life podcast episode was on the topic of epilepsy in older adults. You can watch or listen to the episode here: cureepilepsy.org/seizing-life/older-adults-and-epilepsy-the-causes-the-signs-and-the-treatments/
@@CUREepilepsy Just joined. Very b interesting! Thanks