Two Years with Aggressive Multiple Sclerosis
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- Опубліковано 28 вер 2024
- Sorry for the weird light in this video! Also hope you all liked the video if it liked you haha... p.s. it did
But yes I can't quite believe it has been 2 years since my first MS attack! Time really fliiiiiies. I have worked so hard in these two years and pushed myself to keep moving forward when at times I just wanted to bury my head in the sand - and I am SO glad I pushed through every hard time as here I am, reaping the benefits two years later.
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Izzy, glad to see you're feeling well. I can definitely relate to your description of MS fatigue; I used the same description I relayed to my nuerologist. I'm now on Ocrevus for my RRMS, and it has really helped reduce the fatigue. Although, I notice I'm less symptomatic, the MS is still on the march. This disease is relentless and has now made it's way to the left side of my body. I am grateful for the medication, because I'm a second generation MSer; my Mom had an awful relaspe after I was born. She never regained her ability to walk or vision. Seeing your video gave me hope that the MS journey is filled with more help than what was available during my Mom's life. Please continue to share your journey and personal insights. May your future be blessed with happiness, strength and resilience.
Thank you so much for sharing this, Izzy. My first episode (and, consequently, my diagnosis) was on August 25, 2018. I am still struggling with balance and am frustrated with what I consider to be my lack of progress, but you have given me hope. Thank you for that!
You are lucky!!! I had RRMS and had two big attacks in the first year. I now have moved to SPMS and have an attack at least once a year. Counts your blessings and stay strong.
Honestly, I just enjoy that you update that you’re doing well. My partner was diagnosed ten years ago and they are doing well, and it just gives me more comfort to see others doing alright or emotionally how they are dealing with MS. So many people don’t talk about it.
Black Barbie glad he’s doing well
Thank you for this video! It has given me hope, as I'm nearly a year from my first relapse. I wonder if its possible to recover fully and your account has made me see it's still early days☺️x
It took me a little over a year to recover i did 99 percent you just need to make yourself work the parts that don't work right i had to learn to walk and feed myself as well as writing it takes time don't over do it my friend
Hi Izzy- It is really good to see you. I understand but I wish you could talk about MS more. Do you have symptoms still?Are you RRMS? That's awesome you are doing so well!!
Love that u share what u go thru i go thru the same n im so happy i found u cuz u make me feel great cuz go thru alot with this ms
Great to have you back :)
Hello, I want to ask all of you who has MS and doing well, my mother has MS for 12 years and now unfortunately she is on her wheelchair and we dont what to do more. We tried I think everything, and please tell me some experience...
za tebe olgić try to look for Dr Whals protocol
She was using a wheelchair too and now she can run and ...
I really hope ur mother will get better soon
My nephew had MS, it cost £40000 but he is now CURED
He got HSCT? Where he got it done at?
malena millan Russia, dr fredrenko. You can find him on you tube, they are now have several places in UK but I think 100k up against 38k in Russia plus a nice holiday
£2000 for first blood test , if you fail that you cannot have treatment I think, there is a face book following of several thousand
malena millan also strichting “stop MS now” on face book
Great to have an update from you. Realize that you are a new phenomenon: A young person who contracted MS early AND has had treatment AND has changed her life style accordingly; You might be worth studying (medically) because you might find you recover better than predicted and do not relapse severely again as long as you maintain your healthy balanced lifestyle. Good Fortune!!
it’s good to see you feel good 👍👍
So so happy I've come across you on UA-cam... I was diagnosed 2 months ago and I've just been at a loss... so thank you xx
It takes at least a year to find your groove. Some people struggle less, but that probably has a lot to do with how individual our experiences are.
Advice: eat more veggies and cut/reduce red meat, dairy, sugars, and caffeine. Exercise is absolutely necessary as well. I've also been advised 5000 UI of D3 and time in the sunlight
Missed you Izzy! You really helped accept my diagnosis💗
Thank you so much for uploading Izzy. I was diagnosed with MS about 5 months ago and seeing your videos gives inspiration and hope. Glad you’re doing so well. Being so recent I’ve found having or hearing positive thoughts is very helpful, thank you
Izzy i'm glad you are fine. I have MS since 2002 i had 16 years free from attacks, i had a few months ago an attack, after a 5 days of med, and in 2 or 3 months i recover and getting stronger, i used to praticed sports, not anymore . Hope you get fine every day and enjoy live!
Hey izzy, I'm glad you're still improving, and growing stronger each day. I've followed you for the past couple years since being diagnosed at 22 with aggressive rrms myself. Your channel has kept me positive and feeling less alone. Your story was very close to mine and I feel your pain and at least we never have to go through the spinal taps again. They stabbed me with that thing five times, and call themselves pros. But I digress. Here I am nearly two years later and my Dr couldn't be happier with my results. I too have grown stronger each day and have been viewing life completely different. The damage to my noggin will be there forever but at least it's not getting worse so far. Keep moving forward, and keep the positivity. Thanks
Spooky 2 could probably help because it also can be used on almost any other health challenges. It has worked well for us over the last few years.
Happy to see your doing so great!!!!! You went through so much and you came out on the other side !!!! SooooGlad to hear your feeling better ....all you videos are very helpful
😘 you're amazing! Go you! Definitely celebrate! Xxx
I got diagnosed this summer. Im on copaxone and not feelin as good as you. Still feeling the symptoms your describing. And I live in Sweden but please keep posting videos like this. Makes me feel som much better. 🙏keep well 💪 your such an inspiration!
Hey, did you change your eating habits?
Gergana Milusheva
Hi, no I have not done that. Less sugar and pasta. Thats all. ☺
@@m10p0125 hey again :) I would advise you to read about the swank diet :) Very valuable information! I also did a blood test for allergies and the results were quite interesting! It turned out that I was allergic to a lot of things, as well as milk, which is viewed as a big irritant for MS.. I wish you all the best!
Definitely change your diet. It's very important. Will still take some time. One year for me, but diet changes made late as well. Everyone is different and has unique experiences with the disease. Exercise, and lots of vitamin d if you can. I know fatigue is a huge hurdle, but try small things first.
I’m so happy that you made a new video!
Your videos are still inspiring to me. Thank you so much for taking the time out to do them.🧡
Glad to see and hear that you're doing pretty well! It's amazing how much this disease can change ... and often for the better. Keep hanging in!
Keep strong girly
Great to see you that you are doing so well👍🏻💪🏻
Hello, do you have relapsing remitting or primary progressive kind of MS? Thank you 😊
Relapsing remitting
I just wanted to say thank you so much for sharing your story. I was diagnosed in January after losing vision in both eyes and experiencing paralysis of my left side and my core. I lost the ability to walk, could barely move and spent four months in the hospital. Listening to your story and hearing your improvements and strength we're so inspiring to me I'm really did help give me the hope and optimism to fight through it. I'm not fully recovered yet but I have come a long way, I am close to being able to walk again and my vision is about halfway returned. The doctor said I also have optic neuritis in a rare instance where it affected both eyes, but hopefully as the inflammation of that optic nerve goes down my vision should return.
I just wanted to let you know how much listening to your story and what you have been through and how far you have come have helped me to keep the hope and optimism that I can get through this too. Even if it's sharing accomplishments like this, it is so so helpful and inspiring the people like me. Thank you so much for having the courage to share your story and everything you went through, so that people like me who are going through something similar know that they are not alone and can see that recovering is possible and that there is so much to look forward to.
I have to use the voice to text feature to comment as my vision has not fully returned yet, so I apologize if there are any weird words in this I sometimes the voice to text makes mistakes haha. Anyways, thank you so much and I wish you all the best you're super inspiring
💜
You MS video was one of the first videos I watched when I was first diagnosed with MS, it helped me a lot and kind of took my fear of this disease away, thank you very much. I learned from your videos that nutrition is key, I bought the supplements you recommended, please keep making videos about MS and life in general, we need more people like you in UA-cam , you seem like such a wise gentle soul, I wish you the best
Just talk about ordinary stuff. Sort of like a journal. Other MS warriors with connect with that. It’s the little things that give us hope. Namaste 🙏🏻
Hello Izzy. Thank you for your video about MS. My boyfriend just diagnosed with MS. He received the news just today. He's emotionally break down right now and I shared your videos to him. Hopefully it would give him a positive view on how to deal with it. Thank you very much. God bless you
Glad you've not relapsed and are symptom free! I've past my one year anniversary for my first attack and am approaching in a couple of months my diagnosis anniversary; however still have balance issues and parethesia. Hoping to move onto lemtrada though since it seems to have done you wonders!
Thank you for your vids, and I hope things continue to go well for you.
All the best
I’m so thankful for this video! I know you wondered and I’m here to say YES! I’ve been struggling and going down hill for 4 years at least! Everyday is different! I have a chair and stick! I have decided just this year I’m so done with drs and all of it bc I’m going to live my life! I only get worse not better and I am determined to make myself better!
I would love to see what you eat recipes and exercise and please don’t stop you inspire me! I’m blessed to have found you on here!
The différence that you felt when you were going to gym is a protein called BDNF the central nerves systeme release this protein to protecte and regenerate neurones ! Yeah the humain body is a very intelligent machine !!
I am glad you are doing well and feeling good.I remember when I spent about 4 weeks between two hospitals with a brain biopsy and tons of meds and CT scans too.i recall the Doctor came in a Dead Panned it for me.Well. . .you got MS bud. I couldnt see straight walk straight or anything.6 years on no hospital visits for MS.Good Luck to you Izzy,you look really good.The Body is an Amazing thing.I keep shifting every year.I am glad your able to workout.Just keep up the Good diet.Help tons. :) :) :)
Third year anniversary is next month. I had Very aggressive MS. I had HSCT this year. There have been some improvements and hoping for more. Some things are permanent I fear. I hope the dragon has been killed. HSCT is available through NHS I heard. You might consider it. Good luck with everything.
Neurogenisis baby!! Love you loads Izzy, I can't tell you how much you've motivated me through my diagnosis. Yes please do post more, just so we can see how you are x
I've missed you!! Congrats for your recovery!!! It's so nice to see you so happy!!!😘
I'm going to create an account on Instagram just to follow you and stop stealing my boyfriend's phone😉
Your amazing may God bless you and bring you good health and well being I admire you I got diagnosed June 2018 im 23 I watched your video seeing you do this video gives me hope thank you xxxx
Forgot to add I'm 29.. I would love you to do more food and getting back into exercise / work out. You are such an inspiration.. xx
Thanks for you videos and posts on Instagram, I've recently finished my first round of Lemtrada and find your post really helpful and a reminder to keep living well xx
Thank God for your recovery and why not celebrate it. Lovely to hear your voice again and will thank Jesus this evening at adoration for the gift of your life to mankind.
As someone who also has ms I'm rrms it's always good to see someone talking about it my first relapse was bad two years ago in two months i was numb from the neck down and terrified it took me about a year I've recovered 99 percent had to relearn to walk feed myself hopefully you continue doing as well as you are ☺☺
Thank you for this so much I go for an MRI sometime soon because they think it’s is MS I have been going through a lot lately and following your story has really given me hope that I’m not gonna be like this forever and that hopefully I will be in your shoes one day two years from nowSo I just want to thank you again for making this video I needed to hear this today
Pretty, articulate and brave. So very glad to hear that you are doing well. Please continue to keep us posted. Thoughts and prayers.
Thank you for the upload. It helped me to see some perspective😊
Well done Izzy
Great video.
Keep us updated
Peter
I'm so happy that your doing well.
Beautiful 😔💘
🙏🏻🙏🏻
I like you so much
THIS IS AMAZING LEMTRADA IS A MIRACLE ISN'T IT? KEEP UP THE GREAT WORK!
I agree!
Have you changed your diet?
Yep :) I don't eat dairy or meat, but eat fish
Great courage whishing all the best in the world ...Whats the name off your neurologis?t... All the best