Personal Perspectives: Krystal - Coping with the Marfan Diagnosis
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- Опубліковано 21 бер 2022
- Krystal Camire shared her story as part of our Coping with the Marfan Diagnosis panel on February 16, 2022.
To view the entire panel presentation, visit: • Personal Perspective P...
For more information on Marfan, visit Marfan.org.
To ask medical questions about Marfan, please submit them at Marfan.org/Ask
TY so much for sharing. I have a friend who has Marfan Syndrome.
Probably a silly question, but does everyone who has Marfan have a sunny and lovely personality? Only asking bc my friend with Marfan is one of the most special people I've ever met, who lives life in a state of gratitude and joy. And Krystal Camire seems to share a similar warm and graceful spirit.
My daughter Sophia who is 11 has the same personality 😊 my others kids not so much and neither do i..I believe there are certain special people with Marfans!!!