I know I'm late to your story but I felt compelled to post anyway. I worked as a pediatric nurse for several years in the past, I know how stressful and overwhelming caring for sick children can be. HOWEVER, you both have left me amazed! The sacrifice, selflessness and care you provided for your sweet little guy surpasses anything the medical community can offer. I'm sure it is so difficult to try to prepare for your baby to pass and I'm certain that you're still heartbroken... but, as time passes, you'll both be so thankful yours were the arms who held him, yours were the smiles he saw, your voices were the ones who sweetly sang to him and it was your touch he felt each moment of his precious life. You should be so proud, not many parents can successfully do all you did🥰🧑💙
You can hear the pain in their voices. After my little 3 year old brother died from a rare leukemia, my parents displayed that same heartbroken speech. They became old overnight at the young age of 23 and 24. Parents who have to watch their children die, are true survivors with ptsd... and understandably so. R.i.p. sweet baby boys...
Having a sick child will do that to you. I'm a Special Education teacher (severely disabled, often sick children) and my students parents are like rocks. It's almost like God knows who to give these angels to for their short time on Earth.
Your baby was very beautiful, those big brown precious eyes. My heart is so very sad for your loss. But, my faith knows that he is in Heaven with God. Peace be with you two.
so sorry for your loss such a lovely gift from god you were such loving parents your are so brave to go thru such horror the child looked like he could feel your love and so glad you were for him 😢😮😢
Much love ❤️ to these brave educated well informed parents. Quality of life trumps quantity 💙 Quality time with their baby was a gift - but I wish they could have watched their boy grow up healthy and happy.. Heartbreaking 💔
Agreed. My sister law had juvenile huntingtons in her family, and ended up pregnant. She was a bit irresponsible(age 22) and newly married. She was also very religious. She ended up getting an early abortion and her tubes tied as her brother and 3 cousins all ended up with JHD. Same with her sisters oldest kid. Life like that is not always the best option
Breanne Dixon Did she check if she had it (though not everyone wants to know) because if she didn't have it she could have had children with zero risk passing on to them. So awful to know that your children risk getting a horrific disorder and strong of her to decide to not have babies to try to break the circle of a horrific genetic disorder in your family.
Until recently, there wasn't much they could have done. Today, there is a treatment that can save kids with SMA but it costs 2 Million dollars for that one shot and it has to be given before the age of two.
What a wonderfully brave decision born of the deep love you held for jordan. Much love to you ... In my thoughts Jordan 💙....love from England xx 2021xx
Thank you for sharing your story. It was obvious that Jordan was loved - and KNEW he was loved. I pray God would continue to comfort your hearts and draw you even closer to Him. ❤
I’m one to avoid kids and I don’t have any maternal instinct…but when I consider children suffering from illness, I can’t hold back my emotions. I was only crying last night, thinking about why children have to suffer and what this does to their parents. I am so sorry for the loss of this baby. This baby was so incredibly beautiful…he was protected from this harsh world and was surrounded by love. His little face was just perfect. I am so sorry to his wonderful parents and wish them well xxxxx I know they’ll be proud of their little boy…but hope they’re exceptionally proud of themselves too 💖
So very sorry for your loss. I am amazed by the love and strength you had for your son. You let him have the best life he could with as little distress as possible. You truly did what was best for your baby.
He was so cute beyond words. I admire your strength. I don’t think I could deal with this loss. Babies, children are not suppose to pass, they are not suppose to be sick. He looked so perfect. Bless his heart.
You are the best✨, wisest parents✨ giving your lovely baby 😇son, the best most caring life 💖and treatment choice with an excellent hospice service. So glad you've shared, it may help others make the kindest choice for their babies when in parallel situations❣️
I followed a family with a Trisomy 18 Baby named Jonah. He was born with insurmountable obstacles and boys have a shorter life span when born with that deficiency. He was very tiny due to his condition but adorable. It broke my heart to see him go, but he is in Heaven now with all the little Angel babies having a blast. So sorry for your loss. He was so beautiful. ..so was Jonah!
God bless you both. I too lost my first baby. It was a tragic drowning. I totally believe in God. N heaven is filled with these beautiful angels 👼🏻. He goes and prepares a place for us. Our babies only felt love in this life n than in one breath they were in the presence of our Jesus. The are safe in his arms ! They will not return to us but we will someday go to them🙏🏼♥️👼🏻👼🏻♥️🙏🏼
That wee boy is so beautiful and precious, His eyes say it all ! People equate Hospice=Death. It’s so untrue Hospices are full of life love and laughter. Jordan’s parents are so strong, I wish all the family good luck.
I am 65 years old I. The last year my health has gotten increasingly worse I nearly died last year. When I look at these videos it makes me realize what a blessed life I've had god has ALWAYS seen me through each challenge I've had and I've had MANY. But I look at these precious precious babies and realize even more how blessed I am. I was lucky enough to marry have children and grandchildren and I'm still here!!! I look at these because they give me hope I know that sounds odd but they do. Though tragic and heart rending for these parents this beautiful little man came into their lives even if for a very short time sharing their grief is so admirable to me.
Kathleen Tyson; God bless u. I'm glad the Lord blessed u to continue in this life to enjoy ur loved ones. I personally am not a stranger to death. So many of my loved ones hv gone on to be with the Lord. I get peace knowing someday we will all reunite again someday. Thanks for ur story. Again God bless.
my dad was a docter of the mind and he didn't belive in god he said ,,we are remebere by others and we go back to dust,,,,heaven sounds so much better,,but!! we all really don't no where we will go.I belive in god higher power .because when im down and out it helps to talk to him...funny that god is a man..im 63 years old and pretty healthy ..controlled bp dibetic-2 controlled need to lose wt..ok thnks
@@yvonnespearing Please accept Jesus before it is too late. Yes, as a Christian, I know where I am going. And God is not a man. I will be praying for you. God loves you. .
@@irisheyesofbelfast I'm not a believer but envious of those that are. Never would I chide someone for beliefs that give them comfort & peace. Shame on you for that.
What a beautiful baby to such beautiful parents. I'm so sorry your time here was short but at least know that you'll see him again in a little while...
I am astounded at the strength you guys are showing. It's amazing. What a devastating tragedy. That beautiful baby boy, or any children for that matter deserve to go through this. Nor do the parents. So sorry for your lost.
You, as Jordan's parents, gave him THE BEST life possible while he was here. I know that wasn't easy to do even though you knew it was the right thing to do. Most people don't understand Quality over Quantity or that dying is a part of living too. Bless you both & I hope you're doing well all these years later. ❤
Thank you for sharing... Lost my son last month he was just 2 days old and watching you say you oky with your son being an angel in heaven has really helped me accept that my son is gone too...be blessed
Poor little baby boy and poor mommy and daddy, my heart goes out to you. I have two beautiful children, grown up now but my first one died at 18 hours old, but I have never forgotten her and I never will. You heal in time but they always have a little place in your heart no matter how many others you may have. God Bless you.
Such a sweet family!!! I could tell they are good people!!!! And he had the biggest eyes and sweetest smile!!! I am so sorry for your loss!! May God give you the peace that passes all understanding !!! May God Bless this family and hospice!! My grandmother was on hospice and they made the nursing home give my 83 year old grandmother that had a broken back in 2 places was crying in pain give her the pain med under her tongue as often as needed. we love them!!
Death is not the enemy. Death guarantees life. They are opposite sides of the same coin. You fight the illness the best way possible and leave the results to omnipotent and omnipresent Higher Power who takes our body-form when He ordains it and these parents-along with Hospice members -did just that and showered majestic heartfelt LOVE by making this beautiful video of their precious angel. Love never dies and this short but emotionally impactful video proves it. Thank you, parents. All love to all, Al
Such a beautiful little boy. You gave him the best gift by not pushing to have every intervention and allowing him do die a peaceful deal that surround by your love.
I wish I could meet these parents & give them a hug. How they dealt with their son's upcominging death was the ultimate example of what parental love should be. They put what was best for their baby before their desperate need to hang on to him. As hard as that decision had to be, it was the right one. My heart goes out to them, I too lost a child. I hope that their memories have helped to sustain them through their grief & helped them to find some measure of peace & comfort.
![ОРБАН приехал к ПУТИНУ и "отчитался" о поездке в Киев 😁 [Пародия]](http://i.ytimg.com/vi/_0ukDovOWq8/mqdefault.jpg)
I know I'm late to your story but I felt compelled to post anyway. I worked as a pediatric nurse for several years in the past, I know how stressful and overwhelming caring for sick children can be. HOWEVER, you both have left me amazed! The sacrifice, selflessness and care you provided for your sweet little guy surpasses anything the medical community can offer. I'm sure it is so difficult to try to prepare for your baby to pass and I'm certain that you're still heartbroken... but, as time passes, you'll both be so thankful yours were the arms who held him, yours were the smiles he saw, your voices were the ones who sweetly sang to him and it was your touch he felt each moment of his precious life. You should be so proud, not many parents can successfully do all you did🥰🧑💙
I lost my 1week old son 33yrs ago from a heart defect it's something you never forget you just learn to live with it xx
I'm so sorry you lost your baby.
You do, lost my 18 year old son to cancer 27 years ago. The pain softens but the missing never goes.
I'm so deeply sorry.
@@molossergirl2 I'm so sorry for your loss.
How right you are. People say that time heals the pain, it doesn't, it teaches you to live with it. ❤
Jordan was the most beautiful child OMG in his parents are so strong I'm speechless 💔 I'm so very sorry for your loss
You can hear the pain in their voices. After my little 3 year old brother died from a rare leukemia, my parents displayed that same heartbroken speech. They became old overnight at the young age of 23 and 24. Parents who have to watch their children die, are true survivors with ptsd... and understandably so. R.i.p. sweet baby boys...
That is one of the most beautiful baby boys I have ever seen
Beautiful parents, perfect baby.
Such a beautiful son. His life was filled with love and nurturing. I wish I could hug you both
Those are the most amazing strong parents I've EVER SEEN!
Having a sick child will do that to you. I'm a Special Education teacher (severely disabled, often sick children) and my students parents are like rocks. It's almost like God knows who to give these angels to for their short time on Earth.
Bobbie Dooley wow your a real piece of work.... and o so bright w the bite me comeback.
@@vernell445 ；；；；；；；；9；；；；；；；
Your baby was very beautiful, those big brown precious eyes. My heart is so very sad for your loss. But, my faith knows that he is in Heaven with God. Peace be with you two.
That baby was too perfect for this world.
Taylor Anstrom yes i agree. what a beautiful child. god bless your family.
Taylor Allen John Anstrom agreed
I agree. My prayers are with you.
All babies are perfect. It’s just sad that some of them don’t get to live long and others do
Rebecca Brown yes all babies are perfect, but some are so perfect that they don’t need to go through the trials of life. In my opinion
omg that last photo with those beautiful bright big eyes. RIP little one. I am so sorry for the parents loss. They are so strong to share their story
You are a true angel little baby boy 🙏🏼❤️rest in peace
so sorry for your loss such a lovely gift from god you were such loving parents your are so brave to go thru such horror the child looked like he could feel your love and so glad you were for him
😢😮😢
Much love ❤️ to these brave educated well informed parents. Quality of life trumps quantity 💙 Quality time with their baby was a gift - but I wish they could have watched their boy grow up healthy and happy.. Heartbreaking 💔
Soooo glad you went Hospice and didn't make that sweet baby endure needle pricks and tubes and surgeries all to delay the inevitable
Amen to that
Agreed. My sister law had juvenile huntingtons in her family, and ended up pregnant. She was a bit irresponsible(age 22) and newly married. She was also very religious. She ended up getting an early abortion and her tubes tied as her brother and 3 cousins all ended up with JHD. Same with her sisters oldest kid. Life like that is not always the best option
@@breannedixon9712 Wow you legit just threw your SIL business out there like that
Breanne Dixon Did she check if she had it (though not everyone wants to know) because if she didn't have it she could have had children with zero risk passing on to them. So awful to know that your children risk getting a horrific disorder and strong of her to decide to not have babies to try to break the circle of a horrific genetic disorder in your family.
Until recently, there wasn't much they could have done. Today, there is a treatment that can save kids with SMA but it costs 2 Million dollars for that one shot and it has to be given before the age of two.
This baby is an angelic one. Parents you u did a superb job. Thank you.
What a wonderfully brave decision born of the deep love you held for jordan. Much love to you ... In my thoughts Jordan 💙....love from England xx 2021xx
What a beautiful, loved, smiling, happy little boy
That little baby was so precious and so loved.
What a beautiful tribute!
I'm so sorry for the loss of your precious baby. You are so courageous for sharing. Thank you .
What an absolute doll.
Thank you for sharing your story. It was obvious that Jordan was loved - and KNEW he was loved. I pray God would continue to comfort your hearts and draw you even closer to Him. ❤
My granddaughter has SMA. So thankful to God there are treatments. She is 2 and doing well. Has her own fancy wheelchair.
What a sweet, beautiful baby boy...so very sorry for your loss. :*( Much love and peace.
I am soooo sorry for the loss of your precious baby. May God continue to comfort your hearts.
What a wonderful family, and a beautiful baby. Hospice is a wonderful way to go when someone is dying, what ever the age.
What a beautiful baby boy. Such amazing parents . I do want to wish them well. My prayers are with this family, Rest In Peace little Jordan 💙
I appreciate the parents for sharing their story. He was blessed to have them as his parents during his short but precious life.
Jordan is an exceptionally cute baby! I know he brought you much joy. And you gave him the love he needed to move on.
Beautiful story of love, and caring. Jordan is precious, his beautiful eyes were stunning and you could only see love in them!
He's so beautiful. Rest in piece angel.
Such a heartrending, but still a beautiful story. Bless them.
Omg he was such a freaking adorable heart stealer. Cute as can be. Wishing you many blessings for the future.
I’m one to avoid kids and I don’t have any maternal instinct…but when I consider children suffering from illness, I can’t hold back my emotions. I was only crying last night, thinking about why children have to suffer and what this does to their parents. I am so sorry for the loss of this baby. This baby was so incredibly beautiful…he was protected from this harsh world and was surrounded by love. His little face was just perfect. I am so sorry to his wonderful parents and wish them well xxxxx I know they’ll be proud of their little boy…but hope they’re exceptionally proud of themselves too 💖
So very sorry for your loss. I am amazed by the love and strength you had for your son. You let him have the best life he could with as little distress as possible. You truly did what was best for your baby.
He was so cute beyond words. I admire your strength. I don’t think I could deal with this loss. Babies, children are not suppose to pass, they are not suppose to be sick. He looked so perfect. Bless his heart.
You made the right decision for your baby..but so sorry you lost your little boy..he was so cute..now an angel in Heaven..❣️😪😘💐🌠🥀🥀
You are the best✨, wisest parents✨ giving your lovely baby 😇son, the best most caring life 💖and treatment choice with an excellent hospice service. So glad you've shared, it may help others make the kindest choice for their babies when in parallel situations❣️
No words for the pain, strength, love, joy and wisdom of these amazing parents.
Beautiful baby. Wondrous parents❤️
I followed a family with a Trisomy 18 Baby named Jonah. He was born with insurmountable obstacles and boys have a shorter life span when born with that deficiency. He was very tiny due to his condition but adorable. It broke my heart to see him go, but he is in Heaven now with all the little Angel babies having a blast. So sorry for your loss. He was so beautiful. ..so was Jonah!
God bless you both. I too lost my first baby. It was a tragic drowning. I totally believe in God. N heaven is filled with these beautiful angels 👼🏻. He goes and prepares a place for us. Our babies only felt love in this life n than in one breath they were in the presence of our Jesus. The are safe in his arms ! They will not return to us but we will someday go to them🙏🏼♥️👼🏻👼🏻♥️🙏🏼
That wee boy is so beautiful and precious, His eyes say it all ! People equate Hospice=Death. It’s so untrue Hospices are full of life love and laughter. Jordan’s parents are so strong, I wish all the family good luck.
What an absolutely beautiful little boy. I’m so sorry you had to lose him. 💔💔💔
Heart breaking. I will be praying for this sweet and loving couple. May God comfort them and bless them. ❤🙏🏼❤
Whar a beautiful baby! I commend the hospice people! They are angels just like this baby!
Those big eyes are beautiful
R.I.P. BABYBOY. XOXO ❤
Im so sorry for your loss. I love the choices you made to benefit your child. May his memory be a blessing.
I'm so sorry for your loss. Thank you for sharing your beautiful baby boy with the world.
Some people can handle anything! Lucky Jordan! Your parents did good! RIP LITTLE ONE!
Appreciate your precious sharing on UA-cam. May God bless your family.
I would choose exactly the same way you chose, seems easier on the child …he’s beautiful and God bless
He was such a beautiful boy..I can’t imagine the pain of losing him. But you will see him and be with him again believe that.🌈🦋🌈
I couldn't stop my tears from falling. He was such a beautiful little boy.
Just hearing yr story, Thank you for Sharing such a sensitive situation. Angels never sleep. 🕊 Bless u Jordan.
I am 65 years old I. The last year my health has gotten increasingly worse I nearly died last year.
When I look at these videos it makes me realize what a blessed life I've had god has ALWAYS seen me through each challenge I've had and I've had MANY.
But I look at these precious precious babies and realize even more how blessed I am.
I was lucky enough to marry have children and grandchildren and I'm still here!!!
I look at these because they give me hope I know that sounds odd but they do.
Though tragic and heart rending for these parents this beautiful little man came into their lives even if for a very short time sharing their grief is so admirable to me.
Kathleen Tyson; God bless u. I'm glad the Lord blessed u to continue in this life to enjoy ur loved ones. I personally am not a stranger to death. So many of my loved ones hv gone on to be with the Lord. I get peace knowing someday we will all reunite again someday. Thanks for ur story. Again God bless.
my dad was a docter of the mind and he didn't belive in god he said ,,we are remebere by others and we go back to dust,,,,heaven sounds so much better,,but!! we all really don't no where we will go.I belive in god higher power .because when im down and out it helps to talk to him...funny that god is a man..im 63 years old and pretty healthy ..controlled bp dibetic-2 controlled need to lose wt..ok thnks
@@yvonnespearing Please accept Jesus before it is too late. Yes, as a Christian, I know where I am going. And God is not a man. I will be praying for you. God loves you. .
@@anniehall8474 you don't know where you are going any more than the rest of us do. How do you know God isn't a man? Oh yeah.....you don't.........smh
@@irisheyesofbelfast I'm not a believer but envious of those that are. Never would I chide someone for beliefs that give them comfort & peace. Shame on you for that.
He was perfect, if love could have kept him alive. He would have lived forever. Sleep tight beautiful boy. 💙🕊
What a beautiful child! My heart breaks for his family!
He was absolutely adorable. To watch them suffer like this tears your heart out and I would rather they be in peace than suffer.
He was a beautiful baby and God gave him the best parents for him. God knew what he was doing when he gave them that beautiful angel. God bless them.
That baby was too perfect for earth. ♡
I'm so very sorry you went thru this. But, thank you for sharing Jordan's life and struggles with us.
He's an Angel!!!! You will see your son again one day!!! That's Our Lord's Promise! God Bless you Both!!!!
Oh what a Beautiful baby boy 💙💙💙.
These parents were very loving to their son.
What a beautiful baby to such beautiful parents. I'm so sorry your time here was short but at least know that you'll see him again in a little while...
I am astounded at the strength you guys are showing. It's amazing. What a devastating tragedy. That beautiful baby boy, or any children for that matter deserve to go through this. Nor do the parents. So sorry for your lost.
Gosh what a beautiful little boy, there is one beautiful angel in heaven now
The most beautiful place to pass is in your mothers arms
Thank you for giving his life meaning
You, as Jordan's parents, gave him THE BEST life possible while he was here.
I know that wasn't easy to do even though you knew it was the right thing to do.
Most people don't understand Quality over Quantity or that dying is a part of living too.
Bless you both & I hope you're doing well all these years later. ❤
I just heard your story. What a beautiful baby. God bless you and your family. I agree, hes in the right place, a perfect little angel.
I never knew such alternative care for an infant was possible. What a beautiful family, and such loving compassionate parents.
Mommy and Daddy's little angel. Rest in paradise little one ❤
Thank you for sharing... Lost my son last month he was just 2 days old and watching you say you oky with your son being an angel in heaven has really helped me accept that my son is gone too...be blessed
So very sorry you're having to walk this devastating journey. Prayers for comfort, strength and peace to you!
@@pamelag6673 thank you..stay blessed
Consolata Irungu i lost my son on July 5th this year just 5 days after birth due to duodenal atresia .
@@hiranyaperera9478 hugs n lots of hugs we r moms of angels....stay strong our rainbow babies will come
I’m so sorry. May God fill your heart with comfort and warm hugs from your new angel
What a beautiful child!
grace hardiman yes. im so sad. i know he is an angel. maybe he was so perfect that god needed him. im sure god will send u more blessings.
grace hardiman and u
And p
Love, hugs, and prayers.
I am covered in goosebumps.. you guys are so strong!
He’s adorable! I think hospice is great. My mother was on it and now I am. Thank you for sharing your video. So sad.
The strength these parents have... the love they have for their child, no words.
Awe he was a beautiful little boy RIP little jordon 💖💖🌷🌷🌷🌷🌷
Sorry for your loss. He was very beautiful. May God bless you.
Poor little baby boy and poor mommy and daddy, my heart goes out to you. I have two beautiful children,
grown up now but my first one died at 18 hours old, but I have never forgotten her and I never will. You heal
in time but they always have a little place in your heart no matter how many others you may have. God
Bless you.
I couldn't hold back my tears.
What a beautiful baby! I am so sorry for your loss. Bless you both and Jordan!
He was so beautiful. What strong parents. God bless them.
He is just so perfectly beautiful!!!!
Such a sweet family!!! I could tell they are good people!!!! And he had the biggest eyes and sweetest smile!!! I am so sorry for your loss!! May God give you the peace that passes all understanding !!! May God Bless this family and hospice!! My grandmother was on hospice and they made the nursing home give my 83 year old grandmother that had a broken back in 2 places was crying in pain give her the pain med under her tongue as often as needed. we love them!!
Omg. He's the cutest baby ever! RIP
What a beautiful boy. God Bless you angel. 💙
that last pic was too adorable !
Bless you for illuminating the path for others .
😢such a beautiful child. God bless these brave and loving parents
Such an absolutely beautiful baby.
Death is not the enemy. Death guarantees life. They are opposite sides of the same coin. You fight the illness the best way possible and leave the results to omnipotent and omnipresent Higher Power who takes our body-form when He ordains it and these parents-along with Hospice members -did just that and showered majestic heartfelt LOVE by making this beautiful video of their precious angel.
Love never dies and this short but emotionally impactful video proves it.
Thank you, parents.
All love to all,
Al
Such a beautiful little boy. You gave him the best gift by not pushing to have every intervention and allowing him do die a peaceful deal that surround by your love.
Such a beatuiful baby his mom dad give him the best gift by not pushing to have every intervention and allowing him to died at home
I’m sending so much love and prayers to y’all he was so sweet and precious
Thank you for sharing 🛐 peace be with you and the family ♥️♥️
Keeping the integrity of life. Thankyou. I kearned something today. Little Jordan is in Heaven
Such a beautiful little boy. God bless the strong parents who lived through this.
I wish I could meet these parents & give them a hug. How they dealt with their son's upcominging death was the ultimate example of what parental love should be. They put what was best for their baby before their desperate need to hang on to him. As hard as that decision had to be, it was the right one. My heart goes out to them, I too lost a child. I hope that their memories have helped to sustain them through their grief & helped them to find some measure of peace & comfort.