Neil, I am just a Texas girl from the States who you don’t know. But, we get to “know” you through your videos. How do I feel about you two beautiful humans? I so care about you both. Your emotions are powerful through this video. Feel like my heart is breaking to see you going through such a hard time. And, it sounds like Teresa is having issues well. There are days when my magic wand and lasso just don’t work. So, I want you BOTH to know how much I care for you and I do pray for relief. I missed T’s laugh today. I so hope you get to see the Dr. tomorrow and your appointment goes well. Peace and caring for you 🦋 P.S. I am not a stalker😎
Neil/Teresa-Sending you positive vibes that you see the Professor and not another Nurse. Hoping you do walk away with solutions and a solid answer on what is going on. I'm sorry you are declining again, lots of prayers my friend!! Ask all the questions you can!! Looking forward to a post doc vlog on what you found out.
Hi Neil. I’m so sorry you’ve been doing so crummy. I really hope this new doctor will have some answers for you. I look forward to hearing what he has to say.
I understand Neil. Twice I have had to see my husband going off to hospital in an ambulance and not being to go with him and he is so vulnerable because of his massive memory impairment. Being home bound really is awful. Hoping for some resolution tomorrow for you💚
Hi Willow, that must have been heartbreaking for you. It really does break me not being able to be there for Teresa. And when I try to be, she tends to worry more about me than herself. Bless her. 💚
Sorry to hear your getting worse my friend but at least your seeing someone tomorrow and may soon get some answers to your MS non MS!. It's obviously been a long time and without a diagnosis what could it be? Maybe Lupus or something similar. I hope that it can be treated and you get some more life back. Well don't want to gone about me but had my spinal nerve blocks put in and so far it's a positive brilliant but supposed to be a quick fix so shall see. Also the next day Friday had my gallbladder out supposed to be day surgery but came put late Monday! Was challenging and non straightforward I should of known. Good luck for tomorrow and you and your good lady take care.
Thanks Adrian, I do recall you saying about all the upcoming treatment you are having. So pleased to hear a positive outcome for the nerve block. Brilliant. Also, good to hear the surgery went well.
Good Luck at your appt. tomorrow Neil, I hope you get some definite answers on your condition! I'll keep my fingers and toes crossed until we hear from you. You and Theresa are always in my prayers.
Hello you two. Best of luck today and will be thinking and praying you get some answers and most of all treatment. I can't believe you have been left with nothing until you see the professor. Shameful. I hardly leave the house and find this heat makes me feel worse. Good luck and wishing you both good health.
Hey mate, you seem really positive at the moment which is great considering your at your worst. I really wish you well for tomorrow and I'm sure the professor will want to see you himself as your such a unusual case! And that's not even including the MS lol. Only joking. Good luck mate hopefully some answers soon
Thinking of you Neil. Whatever this is for me it’s had a progression. I’m still waiting for neuro consult - August. Long consult - re-evaluation consult. I’ve got movement tremors and weird stuff - scratched my nose with my index finger and all fingers started scratching too. 🥴🥴. Waiting with anticipation for your professor consult.
I seem to be just like you. My balance is real bad now, I can’t stand up without leaning on things and walking is hard if not impossible. I’ve been trying with an FES device, so you never know it might help with the walking...
Hello Bill, it’s just horrible isn’t it. I literally cannot stand alone for more than a few seconds without wobbling and falling. Good luck with the FES device, never give up trying different things. Sometimes hope is all we’ve got.
I hope you can get some help. I can relate to much of this. I've reached a point where I'm not sure I'm willing to even continue trying for medical help.
Good luck for tomorrow you need answers it is awful not knowing...I looked at a video you made April 2016 to check and you look very thin now, show them the difference in just three years..
Hi Frances and thank you.. yes I’ve lost a lot of weight. I’ve just looked at that video and compared, it’s quite visible isn’t it. I don’t seem to have much of an appetite lately.
I not only have MS but I have heart disease and I'm a type one diabetic. The low blood sugars are the worst and they come out of nowhere. It terms of mobility I equally dread getting up. It's to the point I put off eating or going to the restroom. The steroids also throw me off because they make my blood sugars go quite high. I hope you can get get some useful help from your doctor's appointment. Take care both of you.
Hi Neil, sorry to hear you’re having such a hard time. I haven’t watched all your videos, what are you supposed to get from your appt tomorrow? A second opinion on MS? Or treatment? Are you on a DMT? Anyways, I hope it goes well🥰
Hi Lynn, it’s a second opinion. I was diagnosed in 2013 with MS after they found lesions in my spinal cord. However recent scans both brain and spinal cord have come back completely clear. Also, more mysteriously so has my spinal tap result, all clear. 85 - 90% of people with MS test positive for MS with the spinal tap! Not me though. So they don’t know what to do with me. They won’t treat me at all until I’ve had this second opinion. Meanwhile I just get worse and worse. Thanks for the well wishes.
Hi Hayley, thanks for this. Yes we did, Teresa and I were tired when we got back yesterday, so we are hoping to put a video together very soon. So watch this space🤔xx
Ahh really, so you are in the UK also😊. I agree, the QMC is a very old hospital now and needs seriously updating, but it’s just too big! Much prefer Derby.
@@NeilBradleyMSI clicked on your videos cus I've been having strange symptoms for years XX painful burning legs vision problems and numbness also I get a sensation that hot water is being poured down my legs and arms..like I've applied deep heat lotion on if that makes sense..got the doctors on weds for my MRI results. Hope you get some answers XX
Totally understand all the sensations you’ve been having Hayley. Good luck with the Dr’s and MRI results. I hope you get some answers, I’d be interested to know how you get on.
sounds like you and I are right about in the same stage of the game. would you mind a phone call at some point in time? I hit the point where fatigue is gaining on the ability to do a little exercize. the result is decline or at least it seems that way.......
Hey Tom, it’s just gone 2am here in the UK and I just caught your message whilst checking my phone. Sounds like you’re having a rough time. Sure we can chat at some point, maybe video call perhaps. Look after yourself.
@@NeilBradleyMS hope you made out ok with professor. the rough time i am going through is explained very well by your videos. yup i can relate especially to the limbo and not knowing what to do.......
Hi Michelle, not so great in all honesty. Suffering a lot with blurred vision, a side effect of the Prednisolone steroids I have to take. So, I reduce the steroids and what happens, the pain increases and mobility worsens. I just can’t win. How are you doing?
@@NeilBradleyMS sounds like you have not doing great..so sorry 😐 since I had 2nd vaccine I have not been doing great..my mobility is not great...take care of yourself and your lovely wife 😘
Dr. Timothy Vollmer one of the top MS dogs in the states says rituxan for progressive.......US Doc. it is the older version of the not so new ocravis. both do the same.
Hello there, it’s a thought isn’t it. I brought one of those Boot Scooters that disassemble and go in the car. But it’s actually too difficult to assemble, even though it’s meant to be easy. It’s still quite heavy.
Neil Bradley Yes it would have to be something that is light portable and easy to assemble that would get you from point A to B and then after you whiz around hopefully it will be fun you can get up and enjoy your destination The way you described wanting to be there for Teresa touched my heart you are a lovely couple
There are some great boot hoists which can lift chairs... mine gave me so much more independence with my chair. I use a manual chair... tomorrow my motorised wheel comes for it as fatigue was going against me! I'll be posting a first thoughts video once it comes. X
Hi there, yes I know the hoists you’re talking about and they’re excellent. Unfortunately my car has a Boot (saloon) as opposed to a Hatch so it would never work for me. We would have to change our car, which we may have to consider.
Neil, I am just a Texas girl from the States who you don’t know. But, we get to “know” you through your videos. How do I feel about you two beautiful humans? I so care about you both. Your emotions are powerful through this video. Feel like my heart is breaking to see you going through such a hard time. And, it sounds like Teresa is having issues well. There are days when my magic wand and lasso just don’t work. So, I want you BOTH to know how much I care for you and I do pray for relief. I missed T’s laugh today. I so hope you get to see the Dr. tomorrow and your appointment goes well. Peace and caring for you 🦋
P.S. I am not a stalker😎
Hello Diane, and thank you for your kind words. Lol I know you’re not a stalker, don’t worry.🙏
Neil/Teresa-Sending you positive vibes that you see the Professor and not another Nurse. Hoping you do walk away with solutions and a solid answer on what is going on. I'm sorry you are declining again, lots of prayers my friend!! Ask all the questions you can!! Looking forward to a post doc vlog on what you found out.
Thank you Avril, hopefully it will go well. I’m quite well prepared. Will let you know in another video, watch this space.
Hi Neil, hoping you can get some answers tomorrow. I’m keeping everything crossed for you 🤞🏻
Thank you very much Carole, appreciate it. 👍
Hi Neil. I’m so sorry you’ve been doing so crummy. I really hope this new doctor will have some answers for you. I look forward to hearing what he has to say.
Thanks Amber, I’ll let you know what happens as soon as. I hope all is well with you at the moment.
I understand Neil. Twice I have had to see my husband going off to hospital in an ambulance and not being to go with him and he is so vulnerable because of his massive memory impairment. Being home bound really is awful.
Hoping for some resolution tomorrow for you💚
Hi Willow, that must have been heartbreaking for you. It really does break me not being able to be there for Teresa. And when I try to be, she tends to worry more about me than herself. Bless her. 💚
Sorry to hear your getting worse my friend but at least your seeing someone tomorrow and may soon get some answers to your MS non MS!. It's obviously been a long time and without a diagnosis what could it be? Maybe Lupus or something similar. I hope that it can be treated and you get some more life back. Well don't want to gone about me but had my spinal nerve blocks put in and so far it's a positive brilliant but supposed to be a quick fix so shall see. Also the next day Friday had my gallbladder out supposed to be day surgery but came put late Monday! Was challenging and non straightforward I should of known.
Good luck for tomorrow and you and your good lady take care.
Thanks Adrian, I do recall you saying about all the upcoming treatment you are having. So pleased to hear a positive outcome for the nerve block. Brilliant. Also, good to hear the surgery went well.
Good luck Neil , hope you get to see the professor today. Keep us updated, Grace
Thank you, and will do.
Good Luck at your appt. tomorrow Neil, I hope you get some definite answers on your condition! I'll keep my fingers and toes crossed until we hear from you. You and Theresa are always in my prayers.
Thank you Rona, that’s very kind of you. 🙏
Hello you two. Best of luck today and will be thinking and praying you get some answers and most of all treatment. I can't believe you have been left with nothing until you see the professor. Shameful. I hardly leave the house and find this heat makes me feel worse. Good luck and wishing you both good health.
Thanks Marc, appreciate it. I only leave the house now if I really have to. I find it so difficult getting about now.
Hey mate, you seem really positive at the moment which is great considering your at your worst. I really wish you well for tomorrow and I'm sure the professor will want to see you himself as your such a unusual case! And that's not even including the MS lol. Only joking. Good luck mate hopefully some answers soon
Thanks Ian, yep I’m definitely unusual 😂 for sure. Thanks mate, appreciate it. Hope you’re doing ok at the moment?
Hi Neil, my thoughts with you. I wish you get good treatment and support from the professor tomorrow.
Thank you Abeer. 🙏
Thanks for the update, Neil. You've been on my mind lately. Best wishes tomorrow.
Cheer John, appreciate it. Will let you know what happens.
Thinking of you Neil. Whatever this is for me it’s had a progression. I’m still waiting for neuro consult - August. Long consult - re-evaluation consult. I’ve got movement tremors and weird stuff - scratched my nose with my index finger and all fingers started scratching too. 🥴🥴. Waiting with anticipation for your professor consult.
Thanks Murphy, appreciate it. Definitely sounds like you have something neurological going on. Good luck with your consult.
Thoughts with you Neil. Best of luck tomorrow!
Thanks Laura 🙏
So sorry your having a hard time , with your walking and such. I’m praying for you both and keep your head up 🤗
Thank you very much. 🙏
Praying for you! Hope you get good news!
Thanks Beth🙏
Goodluck at the Hospital Neil, hope it goes ok xxxx
Thanks Sue. 🙏
Great you're finally going to get some clarity! All the best at your appt! Cheers xx
Thanks Carisa, yes finally!! I’ll let you know what happens. xx
I seem to be just like you. My balance is real bad now, I can’t stand up without leaning on things and walking is hard if not impossible. I’ve been trying with an FES device, so you never know it might help with the walking...
Hello Bill, it’s just horrible isn’t it. I literally cannot stand alone for more than a few seconds without wobbling and falling. Good luck with the FES device, never give up trying different things. Sometimes hope is all we’ve got.
Good luck for tomorrow
Thank you very much 🙏
Best of luck for tomorrow Neil, Hope you get some answers.
Thank you very much. 👍
Wishing luck tomorrow. Hopefully you will get some answers and guidance of what you can do improve.
Thank you very much for that. I’ll let you know.
Hey buddy. Stay well! ❤️❤️
Thanks Linda. x
I hope you can get some help. I can relate to much of this. I've reached a point where I'm not sure I'm willing to even continue trying for medical help.
Thank you, the thought has also crossed my mind also.🙏
Good luck for tomorrow you need answers it is awful not knowing...I looked at a video you made April 2016 to check and you look very thin now, show them the difference in just three years..
Hi Frances and thank you.. yes I’ve lost a lot of weight. I’ve just looked at that video and compared, it’s quite visible isn’t it. I don’t seem to have much of an appetite lately.
I not only have MS but I have heart disease and I'm a type one diabetic. The low blood sugars are the worst and they come out of nowhere. It terms of mobility I equally dread getting up. It's to the point I put off eating or going to the restroom. The steroids also throw me off because they make my blood sugars go quite high. I hope you can get get some useful help from your doctor's appointment. Take care both of you.
Thanks you Mathew. I totally understand where you’re coming from.
Your very brave
Ahme Shaz Thank you 🙏
Hi Neil, sorry to hear you’re having such a hard time. I haven’t watched all your videos, what are you supposed to get from your appt tomorrow? A second opinion on MS? Or treatment? Are you on a DMT? Anyways, I hope it goes well🥰
Hi Lynn, it’s a second opinion. I was diagnosed in 2013 with MS after they found lesions in my spinal cord. However recent scans both brain and spinal cord have come back completely clear. Also, more mysteriously so has my spinal tap result, all clear. 85 - 90% of people with MS test positive for MS with the spinal tap! Not me though. So they don’t know what to do with me. They won’t treat me at all until I’ve had this second opinion. Meanwhile I just get worse and worse. Thanks for the well wishes.
Hope you got some answers today at the qmc,😮 xx
Hi Hayley, thanks for this. Yes we did, Teresa and I were tired when we got back yesterday, so we are hoping to put a video together very soon. So watch this space🤔xx
@@NeilBradleyMS I will be waiting lol..I'm at qmc in a week for an iron Infusion 😶 not keen on the place derby royal is much nicer..
Ahh really, so you are in the UK also😊. I agree, the QMC is a very old hospital now and needs seriously updating, but it’s just too big! Much prefer Derby.
@@NeilBradleyMSI clicked on your videos cus I've been having strange symptoms for years XX painful burning legs vision problems and numbness also I get a sensation that hot water is being poured down my legs and arms..like I've applied deep heat lotion on if that makes sense..got the doctors on weds for my MRI results. Hope you get some answers XX
Totally understand all the sensations you’ve been having Hayley. Good luck with the Dr’s and MRI results. I hope you get some answers, I’d be interested to know how you get on.
sounds like you and I are right about in the same stage of the game. would you mind a phone call at some point in time? I hit the point where fatigue is gaining on the ability to do a little exercize. the result is decline or at least it seems that way.......
Hey Tom, it’s just gone 2am here in the UK and I just caught your message whilst checking my phone. Sounds like you’re having a rough time. Sure we can chat at some point, maybe video call perhaps. Look after yourself.
@@NeilBradleyMS hope you made out ok with professor. the rough time i am going through is explained very well by your videos. yup i can relate especially to the limbo and not knowing what to do.......
Sorry Neil
🙏🙏🙏
Thank you Lelia 🙏
How are you and your doing?
Hi Michelle, not so great in all honesty. Suffering a lot with blurred vision, a side effect of the Prednisolone steroids I have to take. So, I reduce the steroids and what happens, the pain increases and mobility worsens. I just can’t win.
How are you doing?
@@NeilBradleyMS sounds like you have not doing great..so sorry 😐 since I had 2nd vaccine I have not been doing great..my mobility is not great...take care of yourself and your lovely wife 😘
I’m so sorry to hear also, that you’re not doing so good Michelle. You take care also, sending healing thoughts. 🙏xx
All the best for tomorrow, finally 🙏🏽🙏🏽🙏🏽
Thanks Rosemary. 🙏
Dr. Timothy Vollmer one of the top MS dogs in the states says rituxan for progressive.......US Doc. it is the older version of the not so new ocravis. both do the same.
It is a pain in butt
Would you consider using an electric wheelchair as a tool so you can accompany Teresa
Hello there, it’s a thought isn’t it. I brought one of those Boot Scooters that disassemble and go in the car. But it’s actually too difficult to assemble, even though it’s meant to be easy. It’s still quite heavy.
Neil Bradley Yes it would have to be something that is light portable and easy to assemble that would get you from point A to B and then after you whiz around hopefully it will be fun you can get up and enjoy your destination The way you described wanting to be there for Teresa touched my heart you are a lovely couple
There are some great boot hoists which can lift chairs... mine gave me so much more independence with my chair. I use a manual chair... tomorrow my motorised wheel comes for it as fatigue was going against me! I'll be posting a first thoughts video once it comes. X
Hi there, yes I know the hoists you’re talking about and they’re excellent. Unfortunately my car has a Boot (saloon) as opposed to a Hatch so it would never work for me. We would have to change our car, which we may have to consider.
Wonder Drugs? Ohh, and I’ve just subbed to your channel 😊