EDS webinar: Resolving symptoms of hypermobile Ehlers-Danlos syndrome - Ross Hauser, MD
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- Опубліковано 21 лип 2020
- Understanding and resolving the symptomatology of hypermobile Ehlers-Danlos Syndrome - EDS webinar with Prolotherapy and joint instability specialist, Ross Hauser, MD. This talk was originally featured on Facebook Live on July 20, 2020.
To learn more about our approach to diagnosing and treating cervical and other joint instabilities, as well as EDS, please reach out to us directly through our CaringMedical.com site. www.caringmedical.com/conditi...
You can also email directly at drhauser@caringmedical.com.
Or, call us at 239-308-4773 to speak with our team asap.
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*DISCLAIMER: As with any medical treatment, no guarantees or claims of cures are made as to the extent of the response to treatment that every person experiences. The video represents only the featured person/people’s experience or opinion. Every therapy/treatment has patients who experience varying levels of success and failure. Results may not be the same from patient to patient, even with a similar diagnosis, as the body’s internal status is unique to each individual patient.
Thanks for watching! - Фільми й анімація
so amazing how one nerve can cause so many issues. it’s also insane that so many doctors dont know how to check for this when fixing one problem could solve so many symptoms that a person with eds would be suffering from.
They do know, it's in their interest not to share it with you.
The ama would not want us to know how to help ourselves using the wise ones He created. The ama... crime against Americans. Dr. Hauser, wise man, man of God, educating.
As someone who troubleshoots electrical problems, it's common sense that the main wire being pinched will screw up the whole system. The nerves are basically the body's wiring harness. When your car's computer (your brain) throws a check engine light, its rarely actually an engine problem. It's almost always an electrical problem. Step one is always to check your wires and sensors. Make sure they're getting constant voltage. Sometimes it's fine while the car is parked but put it in gear and let it start moving around... this guy would make a good mechanic.
@@misterbulger Yesss!!! Love this statement. Perfect👏🏽🙂
Look at all these intelligent young gorgeous people. Thanks for the hope.
MY GODDD!!!…finally a Medical Doctor who has answers that make a truck load of sense. A medical doctor who treats ‘THE CAUSE’. Love the technicality and logic! The critical thinking of Dr Hauser, as well as his compassion, is unmatched by any doctor I’ve ever seen in all my years on this earth, prior to 2022. All my adult life I’ve carried symptomologies into doctor’s offices only to be told that test results are normal, and that my issues are ‘all in my head’. Truly though, they WERE all in my head😮…cervical instability and resulting vagopathy.
Thank you! Thank you! Thank you! I prayed that if a miraculous healing for my daughter was not God's will for some reason, that he would send a person to us that could help her...and 2 days later he sent you! So thankful for all the details! My 20 yr old daughter has suffered with many crazy medical things happening to her for 9 years. 5 years ago they said she has POTS but nothing has ever improved, and lately she asked to be tested for EDS, but they brushed her off again. So many Drs have been no help, my daughter has almost lost all hope..Your video was so informative and makes so much sense in my daughters case, I definitely enjoyed all of it! And thank you mostly for not hiding or being ashamed of your faith! It's rare to hear that from doctors or anyone these days especially here in CA. Who knows we may be meeting you all one day! Thank you again!!!!!❤
Wow - God is working!! We are so blessed to be a part of your daughter’s regenerative medicine healing journey! We would absolutely love to have you in our office to get to the root cause of your daughters symptoms, in the meantime, know that we are praying for her complete healing💛
You are saying EXACTLY WHAT I’VE BEEN SAYING ALL THE TIME BUT NO ONE LISTENS TO ME (I am living in Sweden) 🇸🇪
Glad you were able to make a connection to your case and hope that you will be able to find a Prolotherapist who can assess you in person and make some recommendations soon.
tyvärr det är sant Pernilla
Satisfaction
I have sent people to see you.
Same here. I also live in Sweden. I started seing RGB halos around light sources back in 2021. It also came with double vision. Pulsating low pitched tinnitus and spasming of the jagular veins as well as confusion/memory loss. Rotation vertigo and nystagumus. I was sent home from the ER multiple times and written of as suffering from somatization syndrome. All symptoms didn't occur at the same time. Some developed slowly one at a time over a few weeks.
The halos persisted since. Then I got a relapse back in october with the exact same progression of symptoms. And this time the halos covers half my vision if I try to drive at night time so I had to stop doing that. I also have a worsening of tinnitus, the sensation that I will go blind. Telangiectasia all over the nose. Hyperadrenerg POTS with severly elevated diastolic BP. Erectile dysfunction. Chronic hip and back pain. And my voice has changed. I was a singer now I can't open up my sinuses which is needed for singing. I can't play computer games in 3D because I've lost the sense of dept. I used to compete in Quake Champions but had to quit that as well. So no more music, no more sex, and no more video games. And a hell of a lot visual disturbances.
I was diagnosed with ME/CFS back in 2016. In 2019 my thumb all of a sudden went completely numb. I got an MRI which showed bone growth between vertabrae. A spine specialist thought I had "a hidden degenerative spine illness" directly translated from swedish. But my GP doesn't understand this.
I have also developed issues with mast cell activation becsuse my tachycardia get worse with histamine rich foods. I feel like I'm slowly dying.
You guys are the superheroes we need “now”. You have been around forever, but now you are heard. . . Thank you, thank you, thank you for offering hope for a system that needs serious corrections for a healthier humanity 🙏⚛️💥I’ll see you soon💝
Thank you for your very kind words, Rose. We agree that EDS patients have been underserved, and often unacknowledged altogether, for so long by most mainstream medical systems, and we're doing what we can to raise awareness of hopeful options that may be explored. Sending you much love back and wishing you all the best in health!
Videos like this are beyond helpful. I'm 22 and was recently diagnosed by the Mayo clinic with Ehlers Danlos Syndrome , Fibromyalgia, ME/CFS, and a couple different Autonomic Neuropathys including Pots. As you continued to say in your video we have hope 🙏
when I was 4 I was diagnosed with hyper-mobile Eds, and then when I was 9 I was diagnosed with Pots
@@pianoistic5548 How old are you now and how are your symptoms?
@@juicedcactuz1738 im 13 and i do dislocate my knee caps, but i do see a joint doctor every 3 months and a cardiologist every 6
@@pianoistic5548 I'm sorry you've gone through that at such a young age but I'm glad you've found a channel like this one 🙏
For me/cfs how were you diagnosed? Was it based
on any imaging or lab result
This might be the most important video I’ll ever watch in my life. God bless
Thankyou so much for this video. What a relief to hear an expert on Ehlers. I have this condition along with my son and other members in my family.. What shocks me is that the medical profession still have no clue about this condition.. Whenever I'm in hospital I feel like I'm in a circus when doctors hear I have Ehlers and all they want to see is how far I can bend my joints or stretch my skin. I'm the expert in my condition thankfully and although I suffer relentlessly with pain and joint instability I have enough knowledge to never agree to surgeries. I'm surprised I'm still educating doctors on how surgeries will fail and are not the fix. It makes me sick how the medical field only sees Ehlers as some bendy, lax joint, stretchy skin condition.. They have no clue how living in an ehlers body is a torturous struggle daily.
This gave me so many "ah ha" moments! Gives me hope as well! Bless you for taking the time to share your knowledge. 🙏♥️
I am so glad to have found you! ..will be calling!!
Thank you! truly top notch information.
It's so crazy being told everything is all in your head your whole life, then seeing a doctor talk about this and address immediately the seriousness of it.
Pain is all in the head, literally. I said this at my pain management course when the course leader was talking about how pain works. I was half joking!
Dr.hausee you've got a wonderful personality for educating
I wish I could see you doctor. You are just a true healer. Thank you so much 😊 yellow for you
This is the best EDS video I’ve ever seen (and I’ve seen a lot 😂). It’s my dream to get to go to this doctor. God willing 🤞
Hi Amber, Thank you for your very kind feedback. Wishing you all the best on your health journey and finding a great doctor. If you feel that you would like to come to our center in the future, you are welcome to reach out to us directly to start looking more closely at your case. Take care, Amber. Blessings!
I have an appointment with a physio soon, and I am 80% sure I have heds. I’ve been diagnosed with hypermobility, but I have all the symptoms for heds, and I’m sure it’s more in depth problem. I use mobility aids already because I struggle severely with chronic pain and injuries. Thank you so much for this informational and validating video. It really does give me hope that I’ll get to understand what’s going on with my body. And I only hope everyone who reaches this video has the same experience
My give away symptoms that I had EDS. Or just Hyoermobility syndrome
My soft velvety skin that bruised so easily ,
Needing 6 x more injections , dentist , numb me up
Lack of saliva ,
Blood noses when a teenager
Chest pain
Profuse sweating
My skin was the absolute and recent exposure to Black mould
The huge red rashes
Hot flushing
Big mast cell activation for sure
I swear by clinical Pilates for strength especially if pain. Is in low back or pelvis
Good luck
@@merrilynstanger7241 I’ve been diagnosed :) since this comment also diagnosed with fibro and POTs
Thank you for such great information as a massage therapist I have been running into this more and more
Thank u. Such new and fantastic info.
I ended up watching this video because I was trying to understand why I keep dislocating my knees, wow this video is amazing I have many of the symptoms he mentioned and I never thought would be related with joint instability. Thanks for sharing this great knowledge
What a remarkable teaching! Timely and confirming and affirming for me. I have not received EDS but I have basically all symptoms in my body. Seeing my holistic primary soon. I think this is the root cause for me. So many whiplash experiences earlier in life. As I have aged, now everything even worse. I, too, am a Christian. I so appreciate this valuable video. Makes sense. Praying for wisdom, timing, and next steps. Thank you. Hope renewed 💜
I’m under lots of stress I have dystonia,gastroperesis ,cervical stenosis,dysphasia ,sleep apnea, tachy Brady syndrome,IBS. Cancer twice,anxiety, nafld,dizziness ,fibromyalgia,ect people wants me to do what I use to but my emotional stress and anxiety and I was always helping people and joyful and peaceful now they want me to see a councilor.i listen to you and you seem to talk about me. I had neck surgery with a plate and screws then was dropped . NUmbness has increased even to saddle numbness and other problems. I want so much to see you but I can’t afford it. I miss blessing and praying for people. I can’t even drive do too numbness.
Powerful, I totally will be visiting you soon.
Hi Joseph, Thank you for your feedback. We look forward to helping you. Wish you all the best.
Why doesn’t the average MD in the USA know this stuff? This sounds like common sense medicine and the doctors we’ve seen never heard about hEDS.
Dear Doctor I want to thank you on behalf of our whole community at the Coalition for Terminally Ill Disabled and Elderly for all that you do to lessen pain and give hope. Sending Love Light and Thanks
I love this lecture. I always learn so much more each time and it gives me even more hope. This should be renamed EDS Compulsory Course.
Thank you for all you share continuously.
My god, when you quoted your patient, saying oh well my angiogram came out fine, and then you said well DUH you had it laying down - thats verbatim what I tell physicians. Everything you say, is exactly what ive been self researching for the past 5 years.
I cant believe it took me so long to find you.
You are exactly who i want to mentor under after school.
Would you accept me during my clinical rotations?
I have a long story about what ive been going through after an injury i received during my time in the army. While it has sucked, all this pain and research has led me straight to you.
Dr Hauser is truly amazing.
Thank you, Michelle. Our team thinks you're amazing too! Have a beautiful day! :)
Thank you, that was a great webinar
Glad you enjoyed it! Appreciate the feedback.
So awesome 👏🏼 Thank you
I appreciate you so much!
Thanks for posting this excellent video! My doctor recently started me on Mestinon (Pyridostigmine) to stimulate my vagus nerve; and it's been a miracle in treating my hEDS gastroparesis, intestinal dysmotility, dysautonomia, POTS, fatigue, and brain fog! Somehow the severe pain and coldness in my toes instantly went away as soon as I started on Mestinon as well.
Thank you for sharing, Dulcimerist. We hope you will continue to have relief from your symptoms, and we wish you all the best in health!
I would love to know who your doctor is so I can get help for this issue too. Thank you.
@@gardenia7098 My prescribing doctor is in the remote town where I live, but her decision to prescribe Mestinon was based on research articles by doctors who prescribe it from large medical facilities and wrote research studies about it. Dr. Adil E. Bharucha at Mayo Clinic in Rochester, MN wrote articles about it with digestive issues. Dr. Satish Raj at Vanderbilt Dysautonomia Center in Nashville, TN and Dr. Sanjay Gupta at York Cardiology in York, England wrote articles about Mestinon in treating POTS and dysautonomia.
@@Dulcimerist Recently came across this Rx for possibly my needs, so grateful that you gave some research info. Best to you in your healing journey. 🙏❤️🌈🪶
Thank you so much for this video, it has been so helpful and confirming. Am awaiting mri for impingement in shoulder and finally after many joint issues, (including popping, cracking, clicking, over extetending, spinal disk bulges and degeneration L4/L5 & L5/S1)stomach problems (esophageal hernia, gerds, food intolerance, swallowing, constipation, slow motility to completely stopping and needing enemas after 10 days of no bowel motion to mention just a few) migraine, gynie stuff (endometriosis, cycsts, prolapsed cervix and pelvic floor, despite exercise) gall bladder removal (stones and disease) my g.p (dr) has agreed that it's probably not just fibro but probably EDS (I tick every box except I don't have actual pots but pots like symptoms ) so am watching some videos so I can explain better different symptoms that I experience but didn't realise were related to EDS. I feel terrible pain that I try to elevate through strapping and braces and tape (which helps) but just deal with it and try to take things slowly but it gets you down sometimes. It seems crazy that no one has put all these symptoms together before rather than just feeling like a hypercondriac who's always tired and moody. It made my day that you said you would read scripture and pray with patients as this is what helps me; but to have a health practitioner to do this is a miracle in itself. I thank God for my life that I can still help others as it distracts from myself and there's always someone worse than me. Sorry for such a long message just felt like sharing. (Excuse spelling and grammar lol)
May Yah strengthen you in every way needed for the endurance and much love to you on your journey.
Wow.. Dr hauser is the best.x way cool
Im gonna get checked out im having alot of the symptoms you mentioned, it is really debilitating I appreciate your work it had gave me hope
Hi Tommy, Thanks for your kind words. Glad you have found some possible ideas of what could be happening. Wish you all the best in health and navigating your options.
These videos help me so much recently during my little hiccup I’m having, it sucks that Ed’s affects everywhere in the body that just means I need prolo literally everywhere
I Appreciate this webinar so much and it could be as long as you are willing to teach us thank you so much.
Thanks for watching! We are so glad that it is helpful :)
Thanks for this information
Thank you for your Informative educational videos. It's amazing that Other physicians don't look at these syndromes and conditions.
Hi Datahound, Happy to help in any way. Thanks for your kind feedback. Take care.
That is why I love videos on TV more than the phone.
o my goodness I really think I need to come see you guys.
Your a genius ! My partner was diagnosed with dystonia complex regional pain syndrome swallowing brain fog problems . Constantly nauseous Dizziness curved spine EDS3 Pots Trigeminal neuralgia TMJ dislocated jaw fingers knees hips ankle Migraine dibble vision flashing lights . Bladder issues. Yeah she has popping joints all over . So many joint replacements and jaw surgery left her Constance pain in all her joints . Club foot . Cysts on her Ovaries. Her stomach is so swollen like a pregnant women . Her surgery left her with her leg 8 inches shorter she can’t walk on her heel in her right heel . She don’t have stretched skin . Shame we live in the U.K. Thank you for educating people . Definitely the U.K. doctors don’t seem to understand this condition like you. She’s been to so many professors. Sadly they told her can’t do any more for her . She on so much painkillers and antidepressants. They make her sick. 🙏🙏🙏
Hi Eamon, Thank you for your very kind words. Glad the video was helpful in any way. Sounds like a tough situation. We know there are not many specialists for EDS. We wish you and your partner all the best in health and finding the best doctor possible.
@@CaringmedicalProlotherapy Thank you my friend 💛
I have only come across one other specialist who can really speak to HEDS like Dr. Hauser. I pray every day to save enough money to start treatment. Even a chance it can effect my pain is enough to keep me going!
Thank you for your kind words, Stephanie. We wish you all the best in health! Hope to talk with you more soon.
Thank you!!!
😎 Ty We have inherited VEDS, Much of this video applies to us. I self cared most of the issues and trauma to make it to 72 YOA. Both of my children live with multiple symptoms. EDS is so very complex. This Warrior Hauserian is a Hero. xoxoxox
Wow, Barbara - we are praying for your complete healing! Keep pushing!
DOCTOR WE NEED MORE DRS LIKE YOU. START TRAINING PLEASE.
AMERICA NEEDS DRS THAT HAVE YOUR KNOWLEDGE.
I PRAY THIS KNOWLEDGE BECOMES EPIDEMIC-LIKE.
GOD HELP US ALL.
I LIKE YELLOW TOO! 😃
Thanku thanku thanku for this incredible well explained video Dr. I'm slowly finding my way through this nightmare. I'm so grateful for your videos I wouldn't have got as far as I've got so far as in understanding what's going on. I'm from New Zealand. I recently was told bout that Dr Burling.
We are praying for your healing Grace - keep fighting!
@@CaringmedicalProlotherapy thanku so much for your prayers. Wishing u and ur team all a very merry Christmas from New Zealand :)
I have too many thoughts on this, all positive. I have adhd and for whatever reason you held my attention through entire webinar, your funny quips helped and your nature.
Just recently diagnosed with hEDS and was planning on speaking to my GP regarding POTs due to there often being a link, however It was confusing me as It was constant like those I have seen, I do however identify with the vagus nerve connection, I have arthritis of neck and lower back. I have been told my neck has instability. I am now going to raise this with my GP.
This was so interesting and informative. It baffles me that these things have not been raised from others I have seen.
Thank you for the comment - we are so glad that you were able to learn from this video!
Thank you
I cant wait to see you
Thank you! I was diagnosed with EDS and I wish they would have found it sooner!
Same here
Yes I was diagnosed at age 30, after 18 years of pain, failed back and neck surgeries and disabled at 28. I'm 40 now and pray I can come across the provision to get this treatment.
Seems to answer so many questions and to be exactly what I need. I just wish I could afford it.... 😕 plus I live in TX
Im flying from South Africa to Florida to come see you please
I’m also going to fly from sacramento to Florida to see you
Thank you so much for giving me hope💖⚘🕊 I've been suffering from medical PTSD for years now. I need to move to Florida I'm sure the humidity will kill me though .
Wow I have all those..
It feels like impending doom
I need to go here
🙏 🙏 🙏 🙏 thank you 😊
If you have Eds try frequency specific microcurrent FSM. Also neurological acupuncture can stimulate vagus nerve.
god bless you dude
Thank you, wasimganchi, and God bless you too.
I've only just started the video, but are we going to speak to the accompanying pain?
This gives me a lot of hope. I have been deconditioning rapidly and have been misdiagnosed for 32 years. What a loss to learn during a pandemic. I have lost 30 pounds and am very underweight and haven't gotten my type confirmed yet, but every sign points to hypermobile. not going to list my medical issues here, but I've been to the ER twice in the past few months and it's life threatening but my healthcaare has been incredibly poor. Do you take people from out of town? I'm in California but would go across the world to get help for this disability.
Hi emily, So sorry to hear about your long-term battle with being misdiagnosed and now having to resort to the ER for care. It sounds like you've endured a lot! Glad that you have found some of the content in our webinars helpful and hope-filled for new avenues to explore in your case. We do treat patients from California, and from all around the world. We take on a lot of severe cases, however, we cannot accept every case and we also understand that it is not feasible for everyone to travel/live here for care. In the most severe cases we take, patients have to live in Florida to be nearby the center for 2-3 months during the initial treatment phase. If you would like our team to review your case in more detail and see if you sound like a good candidate and what the next steps would be, we are always happy to talk with you about your case. Feel free to reach out anytime: www.caringmedical.com/conditions/prolotherapy-neck-pain-cervical-instability/#get-help-now
We wish you all the best in health and finding a provider who can work with you to get to the root causes of why you are in a rapid decline. Hang in there, emily.
Have you heard of dr. John Bergmann from Huntington beach California?
Very invaluable information Doc. Thanks for taking the time...I’m assuming a lot of things can cause severe cervical instability. I wonder if regular chiropractic care is good for this condition or should the person stop?!
And too a lot of same symptoms you talk about are also present in Porphyria. Could the inducement of Porphyria cause severe spinal/ligament instability and even EDS, or would it be the other way around? With Porphyria it’s said to be found that the vagus nerve has been de-myelinated, therefore if it has no nerves then the vagus stops firing/functioning...could this be the root behind all what you talk about or is it just another effect of all the instability?
Thanks again!
Thank you, AdamRising, for your kind words. In our experience, a chiropractor can be a wonderful practitioner for cervical instability as far as analyzing the curve and helping patients restore a proper curve along with a Prolotherapist who is working on strengthening the ligaments in order to restore and maintain that stability. We would also look for the cause of the porphyria or other nerve damage to see if there is a structural reason in the neck that is causing it, like cervical instability or dysstructure. Wish you all the best in health!
Caring Medical just one more question, if you have vagus nerve problems, digestive issues, neurological due to cervical instability or tendon laxity...can restoring the curve with chiro/stretches and strengthening these tendons be done without prolotherapy or are you saying prolotherapy is the ONLY way?!
Can anything else tighten up these loose/lax tendons...for people who can’t afford the treatments or are concerned about side effects or reactions from the prolotherapy.
I’m talking about neck instability/tendon laxity only...not for people with EDS. Can simply stopping cracking your own neck stop this if the curve is restored and tendons restored?
Thanks!
Do you still have the Illinois office.? Thank God for prolotherapy. Great video.
Hi Faith F, Not anymore. We are in Fort Myers, Florida with 2 great Prolotherapists and Chiropractor. Thank you so much for your kind words. Wish you all the best in health!
Do you guys offer online appointment with people outside of the U.S? I am in New Zealand. I am so desperate!
Please, where can I find a clinic like Caring Medical in Queensland, Australia?
Is there a way to see you from Destin Florida?
Can instabiltiy in any joint cause neuropathy as I have neuropathy in my legs and i have issues with dislocations in both my legs and I have issues in my arms and neck .
You guys need to open a place here in california
I'm from Scotland do you have any recommendations for clinics over here? siffer classical eds and pots and need help
Dr. Houser and team. You are the the hottest thing on u tube for me. The relaxed delivery and profession information gives me hope. After treating 1000s of patients, you make me want to treat many more.thank you
Thank you, Dr. Greg william Rice, for your very kind feedback. Wishing you and your patients all the best in health!
Will this show up as a thin endometrium of the uterus as well?
Would upper cervical chiropractic like NUCCA helps with cervical instability?
Thanks thanks 🙏🏻 this is the first time I have ever heard of prolotherapy!!! And I have been crippled by pain for 12,5 years, I can’t do ANYTHING!!! I have pain both day and night. AND I have a mutation that makes me “immune” to pain medication so no pain medication works on me!!!! 😱😱😱😱😱
I can’t explain how much pain I’m in!!!!! 🤮🤮🤮 the pain causes me to vomit, that’s how painful it is!!
You are welcome and glad that there was some new information here that may be helpful for your case. Our hearts go out to you. We understand how absolutely horrible the pain from EDS can be. Hang in there.
It took 5 years to figure out my knees were fine. I ran for 13 year in the military. It started with patellar dislocations. Mri normal. Subluxation seen on xray. Steroid shots. Whatever. They figured out I could hyperextend out of my braces. Had to stop running. Later, IT band itis so bad I couldn't walk. Visible swelling. PT helped a little. But Noone would talk about why. A rheumatologist diagnosed me with EDS and left it at that. Thank you for some hope.
Oh and I've had idiopathic intracranial hypertension, multiple sports injuries, and bendy party tricks galore.
Hi I'm trying so hard to find help , I'm having problems I'm my eyes heart and stomach huge pupils , flashing lights etc. Please I'd love to do a zoom meeting I'm in Kentucky
Where can I find the Chart show @ 37: 12?
I started having spasms on my left side only. Doctors didn't know what was causing this. Fast forward to a couple of weeks ago, I started physical therapy and he informs me that I am hypermobile. I have chest pain and my c2 was twisted.
Hi Sheena, Thanks for sharing your story and glad that you were able to find some help from your physical therapist and understanding of what may be happening in your case to cause the spasms. We wish you all the best as you work together on relieving your symptoms. Hope the webinar was able to provide some additional insight. Take care.
Do you know someone in Boise, Idaho that can help with this condition.
I was diagnosed with POTS by my cardiologist a few months ago.. but I have a suspicion I’m dealing with EDS and/or MCAS as well but I don’t know where I should go get tested. My joints have always every easily popped just from walking/doing activities etc, I’ve struggled with constipation my entire life, I’m allergic or at least VERY sensitive to sunlight as it gives me a rash.. last few years I’ve had to start wearing glasses, each year it’s worse. There’s so many issues.
Same with me…
Get treatment with Hauser at Caring Medical Florida, I'm doing it
I’m 39 with a skull-C2 fusion and I still get a 9/9 Beighton.
I am finding this so interesting because my doctors still don’t think of that as anything other than an incidental sign of hypermobility.
And they think the multiple sclerosis diagnosis is just another unlucky thing I have acquired. They don’t want to see it as related to the neck issues. But it is.
Is there anything else that could cause full body joint instability? I don't think anyone in my family has had eds, but it feels like I do. Started with my neck, and now it's slowly spreading everywhere. Thanks
Or can you do consults to Australia online?
Hi Becca, Thanks for asking. We do not know of anyone with a similar clinic or doing upper cervical Prolotherapy there. We have patients who travel here from Australia, but understand it is not possible for everyone, nor can we accept all cases. If you would like us to review your case and see if it sounds like a good fit for our center, you are always welcome to reach out. Wish you all the best as you navigate your options.
I even have pain in my left back shoulder 😩.
Do we have to be diagnosed with EDS before seeking out treatment at your clinic?
Hi Lorraine, Good question. No, in fact, some patients do not know that they may have EDS prior to coming here because their other doctors had not thought to evaluate them for it, usually because they just are not familiar with EDS. But more often, patients who come to our clinic have already received the diagnosis and are looking into options for the musculoskeletal pain/subluxation aspect of their case. Either way, we are happy to evaluate someone's case to help determine if this might be a good fit for their case.
😆 housarian? This is great. You have your own tribe! If you are looking for t- shirt ideas Housarian is a good one! And you can even add a website or book title on a T-shirt to advertise!
Any chiropractors you can refer to in florida? Tampa specifically.. im pretty sure i have cervical instability
Did you find anyone?
he's the one
Oh my goodness I always thought that was just normal
Is anything like this available in Australia
My question also. -I am in Sydney.
Suspect a lot of very sophisticated equipment wd b necessary.
Any updates????
I'm 34 and have been misdiagnosed for 12 years .
Do I need a referral to be seen at your clinic? I've suffered for over 20 years, and I'm only 27. I'm tired of doctors dismissing me. I am willing to travel to be seen by someone who will listen and actually develop a comprehensive treatment plan.
Hi jbirdhere11, So sorry to hear how long you've been suffering with pain. Patients do not need a referral to be seen here, but there is a case approval process. We have a very detailed case intake form to start, so you can tell us the details of your case in your own words and what your goals are, as well us upload any pertinent imaging reports or other medical records. If you seem like a good fit for our clinic, we would love to help you! Feel free to reach out to our team for a case review anytime you're ready. www.caringmedical.com/conditions/prolotherapy-neck-pain-cervical-instability/#get-help-now
We wish you all the best in health!
I fighting most of these problems , i deal with Migraines bad to mild. Do ya know why I get like a severe Brain Freeze , like eating Ice cream too fast. But comes when neck is compressed most. Have 5-8 Fused and DDD in 2-3-4. So tired of Brain Fog, also forgot I got a convertber Spore pushing on spinal cord at 4-5. D.D.D and OsteroArthritus Bad in Throrasic with have Fused and DDD in Lumbar With S1 Fused and now a new compressed disc. Know one understands why pain is in my whole spine. Sleep barely does any good. Also sharp bain in middle of brain towards the top. 54 yrs old.
I haven’t been diagnosed with ehlers-syndrome but I’m 66 and real flexible but now I’m breaking down fast, I leaned on my rib the other day and I felt like I was having a heart attack the pain was so bad, the next I had a bruise on me chest, could that be caused by a subluxation on my rib.
Glad you lived till 66 you gave me hope! Just think of your misery as someone else's Victory!
What are some events that would make someone’s cervical spine out of alignment???
😅
I tried prolo last summer, gave it a good shot, maybe 6 visits, then my pain Doc quit me, since I wasn't responding correctly. What ended up happening was my neck got so tight and painful I couldn't turn it, and a year later, I'm looking at trying botox to get the last muscles to let go, they are solid knots. What happened?
Hi Shannon, Thank you for sharing. That does seem like the opposite affect, as Prolotherapy is used to help tighten the ligaments so the muscles can actually relax more and not need to keep activating due to the ligament-muscular reflex. Without knowing anything specific about your case or the exact treatment method/solution used, we couldn't shed too much light on anything. We hope that you and your doctor are able to find something to ease your chronic neck pain and tightness. If you felt that you wanted our team to review your case more thoroughly in the future, and possibly see you in our office for a Digital Motion X-ray and/or second opinion on Prolotherapy, you can reach out to us directly. We wish you all the best in healing!
So much of this information is useful. However, as someone with chronic pain who is also in poverty - who has no access to healthcare in this country - it's pretty depressing to hear that there's hope, that all I need is prolotherapy and to open my bible.
Where are the at-home therapies? Where are the gentle, strengthening exercises? Does my body not have everything it needs to heal within itself, provided I know what to do to help it heal? It's so good to know the inner workings of all my medical issues, but I'll definitely need to seek supplemental knowledge on exercising and joint strengthening, and hopefully be able to find someone who discusses that with structural hypermobility and joint instability in mind.
Hi Sam, we hear you and are sorry that you are experiencing this. There are things that can be done at home like diet, light exercise to strengthen, working on your HRV, however if there is degeneration, the only thing that can help heal it is regeneration which is why we do Prolotherapy. Instability is a degenerative disease that happens over time and if left untreated it only gets worse.
@CaringmedicalProlotherapy So I'm screwed without health coverage. This country is so sick and twisted.
How much does a consultation cost. From NZ
About $1660-$2000 out of pocket.
can instability also cause uncontrolled high bp?
Hi Sirri Niba Fon-Akkum, Thanks for the question. Yes, it can. We discuss this in our vagus nerve webinar series in more detail as well as some future videos we'll have coming out.
does collagen help regenerate cartilage or ligaments?
No
In my case it is countless foods that cause joint pain + many issues. Food, chemicals + smells + products. React horribly to corn derivatives. So my joints feel OK if I eat only 2 foods (plus take corn free vitamins which are expensive but well worth it) but eating only 2 foods is a problem in itself. I guess most whole foods these days have too much junk on it like pesticides (even organic). 😞 suspected MCAS and I do have hEDS + autism.
Check out DNRS. It may help you with a lot of these sensitivities
How do you work with patients that are difficult to treat due to phobias?
Hi Chris, They may not be a good fit for our center, if their phobias are preventing them from obtaining certain testing/treatment. We cannot accept all cases, and we do a detailed clinical case review before having a patient travel here for testing or possible treatment. Thanks for the question. Take care.
Why was this procedure not been approved by FDA in 27 years?
Hi Ruben, The FDA does not approve procedures. The FDA approves the medications/ingredients used for injection. Thus, all ingredients used in a treatment like Prolotherapy or devices used to make PRP solutions, etc. are FDA approved.