Invisible Symptoms of MS
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- Опубліковано 30 вер 2024
- Originally posted by MS Australia on 30 May 2019.
Many symptoms of multiple sclerosis are invisible, or can be hard to notice. Sonia, a woman living with MS, talks us through an animation of the different invisible MS symptoms.
The video was produced in close consultation with people with MS, incorporating their own words.
To read more about MS, visit MS Australia's website here: www.msaustrali...
This video was produced by MS Australia for MSIF's World MS Day.
My aunt has MS. I'm a teenage girl. We're really close. She is in a nursing home. I pray for her every day because of all the things she's struggling with. I've had to help her more times than I can count. I will always love and support her. I'm trying to learn more about MS, so I know how to help her.
That’s very kind of you! People should learn about the diseases that impact the ones they love. She’s lucky to have you!!
Good girl ❤
Yes, yes, yes
I have been living with MS since 1996. I am 74 now. Sometimes I am grateful that my symptoms are invisible.
Other times it’s worse.
My NEED is to accept myself and forgive myself for having MS.
Fatigue and depression are getting worse.
Any insights to looking back how you wish you dealt with it? Treatment wise ect? I’m in a really hard place trying to figure some stuff out and given the track record to getting here medically speaking being diagnosed and over my life thus far (I’m 41) I don’t trust the medical field but know there are good drs out there so finding them is the task.
The skin sensitivity thing>yes! The ms hug is around my legs between knees and ankles. The factor of fatigue/exhaustion Infuriates me when others who are healthy complain of it after a long highly busy productive week, when I have debilitating fatigue from DOING NOTHING.
That’s part of my mental anguish and breaking down. Is powering through and finally getting to a point where I can’t take it anymore yet others are fine and don’t understand what I’m dealing with. Especially if I go from a relatively good point to bad in short time. I’ve noticed this is a stress disease so the more that’s dealt with the better things can be. But good luck avoiding all stress
I don't have the symptom where I feel like my house is full of fleas, thank God
Ee und die Arbeit im Home Premium oder die unbefugte Weitergabe dieser E-Mail als Datei die ich habe eine Frage zu dem Thema zu finden und die anderen beiden sind ja auch noch ein paar Bilder von der Firma und die anderen
That’s just a variation of sorts. There’s a sort of paranoia to anything really.
I have all of these symptoms… I have for a while now, but I’m treated for mental health anxiety, insomnia I’m very sick and it’s getting worse.. pain, burning,pins and needles shock feeling on top of my head… the pain is almost unbelievable.,, I didn’t have insurance before so, I couldn’t get diagnosed and nobody held .,, 😭😭
I have ms and i can understand all these symptoms😢
What it meant by house full of fleas how it feels???
Do your bones hurt or feel aches
I was diagnosed in 2013... Just had a baby and was all over the place with the discovery. Im still in a struggle as of today! It has gotten progressive and I have seen myself change into something I feel that I wasn't suppose to be. It's like paying a debt you never owed! So 🫡 SALUTE to all my MS COUSINS 🧡 we got this 💩
Ok, i have no idea if i have MS, to be honest i don't think i do, but. I always have a stiff or sore neck and back, my joins randomly ache and throb, i have twice now fallen from simply walking. All of a sudden my ankle will just give out causing me to hit the floor hard, it just comes out of nowhere. I also some times get sensitive patches of skin, normally on my arms that when touched feel like a few days old burn injury does. I tend to get cramp mainly in my legs from time to time but more than other people. If i'm walking up hill for too long i get an intense burning feeling in my shins, my leg muscles turn to stone and i can barely walk. All this shit could just be me getting old, who knows lol.
All sounds familiar to me , my ankles give way , one day , three years ago, it happened and I ended up breaking my ankle , now have two plates and 17 screws in it , doctor said I have no reflex in my ankles , will need a crutch the rest of my life , I also suffer with the rest of your symptoms, life is cruel 😢😢
@@karldonald8150 Yep, life is a bitch and then we die .
The US lacks talented diagnostic MDs...and many top notch Neurologists 😢😢
I’m the odd case of MS. I’m a 68 year old male who was just diagnosed! Mine presented last fall when I developed optic neuritis in my left eye. I guess just because you’re not in the typical demographic doesn’t mean you can’t get it. Started a series of Rituxan infusions yesterday (I also have leukemia, that Rituxan should also help)
Bless you 🙏
If only we ms people could and would Unite with each other... spread love and just talk with each.
My own fam don't understand what I am going through.
Surely yours too are not.
I do not want to end up harming myself to death.
You are loved no matter what, the entire universe gathered together to create you, don't humanity's darkness get the best of you. Stay strong ❤
@Namaste Namaste If it wasn't for Islam and Allah's mercy and blessing, I would have literally with no bullshit I would have seriously stabbed myself to death, so I say all praise and thanks be to allah.
MS. After 16 yrs bad redden...My head hurts on top the size of half dollar...broke hips a yr apart. Cracked tail bone...Brain breed icu bamc military hospital via ambulance..ran over legs...WITH MS...WE GET TO FEEL WHAT IT MEANS..WOUND CARE.
DEBRIDED.. LOVE TO ALL..❤
When I see my kids..How did they grow up to love me more everyday. Son 49 has own family calls me2
Or 3 times a day....My daughter 44yrs has been my caregiver.. I can move my legs..she fixes my breakfast.. married 51 yrs.....so you are right we to talk
To MS. people😮 My kids raising their own family like they were raised .. I'm blessed if I took my life .. thought about it... i would Never hurt them.
All my problems. I gave them to God.. My fear & tears are gone..❤ love from Texas...
@@terrykelley1855thank you. This helped me.. love to you ❤
Its so hard to explain my symptoms here even in rl, my fatigue is extremely debilitating that focus is like a chore, walking is like a chore and a stair is like a constant challange-
Yep this is my reality but I’m not about to pull a victim card and am under the belief that I can cure myself
I have all these symptoms including drop foot. However, in America they won't diagnose you with MS without a spinal tap, which can leave you paralyzed if something goes wrong.
i did not know that omg im scared
Hey! I was terrified too, but I got a spinal tap at 15 and it went perfectly fine! Just make sure you go to a reputable doctor and have a good support system, and you should be fine :)
Anything to torcher is more,sounds like medical battery to me and the fact you could be left paralyzed if something goes wrong is terrible.
The chances of paralysis from a spinal tap is almost zero. Most people the worse thing is a slight headache. The chances of Disability if you do have ms and don't start treatment is do much higher. You need to weigh up risk vs benefit. I hope things go well for you.
Yes and it was absolutely painful. I was sore for several weeks after. Still don't really understand why they need that. So dumb. Blood test would have ruled out everything else anyway
I’m 18 and have this it feels like my life is over I genuinely don’t know what to do
🙏❤️
Coping with the heat it what I struggle with.
The worst
email this to my managers at work
I dont have the skin or eye symptoms, I dont know if its M.S. or not. I have had trouble with vertigo,mi am usually tired sometimes exhausted, i have tremor which have had for years, have bowel problems,cannot go loo even thr matter is soft i can hardly😮 empty my bowel,same with bladder, can so some maybe not feel like it all day. If I wait I do more but never feel empty. I had many falls seem to have passed through that despite being wobbly, feel ill most of the time. Long ago had anhead xray which came out black, thry said no sign. Never had spinal tap or other investigations, have been left to it. I am77 andnhave had M.E badly thirty years ago, of was it? This doesnt seem like old age related symtoms. Husband doesnt want mr havung spinal tap doubts its M.S. but as bowel and bladder get worse I wonder.
Trust me I have herbal medicine for MS
It's worth looking into..
Guys, vitamin C, vitamin D and CDP choline REALLY help.
I teally hope i dont have this. But i do experiance mostly all of these symptoms
Same.
@@dewritos2068And? How are feeling?😢
I have all these symptoms but was diagnosed with fibromyalgia 13 years ago. Now really getting worse after I got back from a over seas vacation but cannot get into the doctor for 5 months. No one believes me. Thinks I look fine but I can’t even lift my arms some days and constantly tripping on my own feet and just running into things. I feel like a prisoner in my body and no one believes me or is hearing me. 😢
thank you so much for this video, i will show this video to help me explain things :)
I’m also victim of ms it’s very hard to walk like a normal people and what’s the treatment of ms can you plz tell me 😢
My son is 2 years old and has MS. I honestly don't know what to do
🙏Praying for your son and your family. May the Lord bless and protect you all.
I would make sure that is what he has. Get another opinion from a good neurologist. Did the doctor get a spinal sample from your 2 year old? Many other illnesses mimic MS.
por boy i hop he does better :(
I can relate
Omg definitely need to talk to my doctor
I'm waiting to find out if I have ms at 37
I am 68 years old and I can relate to all that.
MS sucks!
You r Strong and Brave!!! Such an inspiration...Bless u🏵️
My mom has this I feel bad
I feel like im constantly bitten in the face legs head also affected my memory balance and im severely fatigued😊
I'm going through a attack 😢😢😢😢😢😮😮😮😅😅😅
Thank you for sharing this information with us all. Amen ✝️ 👍 truthful ✝️ 👍 KJV bible is my doctrine. Amen ✝️ 👍
Thank you so much Dr Igudia for your treatment and your consultations. I’m forever grateful to you. You’ve been such a kind and caring doctor for me during my hard time of genital herpes virus. Thank you for doing everything that you do and helping me during a hard time. I’ll definitely spread this to the whole world.
Very, very true, you've summed it up well!
yep
I have MS recently diagnosed and I suffer from some of these symptoms as well
😹😹 😹 I used to feel like am going to fall and my legs are not strong 🤣 so funny right?
This sounds a lot like Lyme disease symptoms
I think untreated Lyme disease can lead to neurological issues like MS. I wish there would be more research in this area.
Right on! I know mine is untreated lyme, but ruling out ms once again, 17 yrs latter, & a whole lot worse.
Light intolerant, 2 hr. Trip🙏
@@timhayden2763does MRI show lyme?
Thank you!
Look into the HPA axis and the lymphatic system during REM sleep. People are being treated with oxytocin.
Thankyou
thansk
This is me! Totally 🫤🙃😔
My sister is 32 years old and she has suffered from meniere disease 🦠 for years and she always complains to me that I had to bought her Dr Madida herbs I saw on UA-cam and she is telling me last month that she is cured completely and don’t long have the symptoms like vertigo or dizziness, feeling of fullness in the ear or ringing, hearing loss, imbalance, motion sickness, nausea, or nystagmus…