I just watched this and I can totally relate! I went to Mayo Jax for three years. Its a three hour drive. They treated me the same way. I left feeling lost and unheard. I got no real answers or advice on what to do with the info I got from them. I just quit them and am quite upset! After three years i still struggle with no advice on how to do what they told me I ought to do. About to start over from scratch. I am complex like you. Its like...how do I do all that if I am unable to...duh! I felt exactly what you were saying. Not sure what to do next. Its just so upsetting! Hope all is well. I am a new subscriber.
I'm so sorry you've had to go through the same thing. Specialist hospitals are so frustrating when they think they have all the answers but can't help manage all your conditions at one time. It's like where else am I supposed to go???? I'm hoping both of us find better answers soon!!!
I just watched this and I can totally relate! I went to Mayo Jax for three years. Its a three hour drive. They treated me the same way. I left feeling lost and unheard. I got no real answers or advice on what to do with the info I got from them. I just quit them and am quite upset! After three years i still struggle with no advice on how to do what they told me I ought to do. About to start over from scratch. I am complex like you. Its like...how do I do all that if I am unable to...duh! I felt exactly what you were saying. Not sure what to do next. Its just so upsetting! Hope all is well. I am a new subscriber.
I'm so sorry you've had to go through the same thing. Specialist hospitals are so frustrating when they think they have all the answers but can't help manage all your conditions at one time. It's like where else am I supposed to go???? I'm hoping both of us find better answers soon!!!