Conjoined Twins With Fused Brains Separated After 27 Hours Of Surgery | Good Morning Britain
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- Опубліковано 29 лис 2024
- We talk exclusively to the amazing surgeon Professor Owase Jeelani who's performed a modern medical miracle, separating twins conjoined at the head. He's been reunited with the boys and joins us live from Rio de Janeiro.
Broadcast on 27/02/2023
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I wish these two boys and their parents all the best. They were bright and lively while fused and very hampered in their mobility. Hopefully they can be helped to catch up with lots of therapy.
I just watched this for the first time and while looking at the comments I see that many are distressed that they seem badly damaged by the separation. So I did some research for more recent news and happily, there is more out there. These boys had lived in a hospital nearly their entire lives before being separated so they were not living the happy go lucky life that some seem to think. By the time this surgery happened, they had already had 7 surgery attempts, causing a lot of scar tissue and making this separation even more difficult. Yes, the parents were informed of all the possible outcomes. Bernard is still in a wheelchair as of the beginning of this year but Arthur can stand and is learning to walk. Still in therapy of course. Arthur has been declared ready to attend school but they will delay it because they have not yet had immunizations and having lived in a hospital all of their lives, their immune systems need a boost. They both look happy in the pictures I've seen and are able to go out on family outings, etc.
What four year old wants to sit quietly in front of a camera for however many minutes. Presumably they were sitting there whilst the interview was being set up too.
Thank U for the update.
@@lesleywilliams1210A normal 4 year old would be attempting to engage with the people around them. But they are clearly abnormal. What is sad is that with prenatal care the birth could have been avoided. I know some would say that I am horrible. But I don't see their future being fully functioning persons. 7 attempts at fixing their situation. One was also born with a harelip. How much else is wrong?
Thank you for the update. It was distressing to watch. Although the reality is they needed to be separated. God bless this brave family ❤️
Oh thank you. I was worried.
Sad situation before and after.
You can see the reality in the father’s eyes. So sad.
yes.....I thought so too
From a more recent article about the twins 10 months after this interview, the kids are doing a lot better. Arthur can walk and is ready to attend school but needs to get caught up on his vaccinations first. Bernardo is more delayed and remains in a wheelchair. At least both were smiling and interacting, unlike in this video. A lot of the initial shock was due to the fact that they'd lived all of their lives in a hospital before the separation, so had never seen any of the normal world. Or even each other.
Actually found this distressing to watch. I feel it was more about what the doctors could learn and achieve rather than the outcome for the boys. It’s not a miracle. One child seems in great distress and both seem to have been changed by the operation. It’s so difficult as what was the alternative. I pray for them.
🙏🏼🕯🕯
I was thinking they don’t seem right but I don’t know what they do we like before tho either
Spot on sadly😢
The alternative not to perform the separation would have left the boys in a great deal of struggle in life based on the earlier footage of their movements before separation.
Healing from brain surgery is usually slow & I pray that the boys will recover and be in a better state.
The doctors were helpful….they did their best.
There are worse things than death. This is one of them.
Agreed. It looks like they both suffered some amazing brain damage. One more than the other. But a normal life, I doubt they will lead.
How is this successful . What quality of life do these children have ? So. Heartbreaking !
They are learning to walk and communicate. Their quality of life is not decided by you! Astonishing arrogance to think you know better than the parents or surgeons and medical team. You need to re-watch - if indeed you actually watched and listened carefully at all.
Also, if you were genuinely interested, you could look up their progress. I have. They are doing well and can see each other - just imagine a brother or sister joined to you at the head but you cannot actually see them. That was what they faced otherwise, all their lives.
@peacenow42 No. You have taken care of these particular kids, have you? I doubt that. Well maybe you need to do better in the USA then.
What do you think should have happened? Left them, attached by their heads? That's a great way to live isn't it.
@peacenow42 you doubt wring???
Exactly!
@@sarac.3259They don't look as if they're living a great life now do they? They're completely unaware of their surroundings!
To me the most troubling thing is that this entire interview is about the surgeons and their "success", with, as far as i could tell, zero discussion of prognosis and the kids' future. As if the children werent even there.
I guess it was just an experiment
Spot on
Exactly !! I hated it ! It looks like they went backwards!!! I would have left them as God made them if it was medically possible.
@@leanneadams2549 it sounds like they would have died. There’s just no good answer for a situation like this. So sad.
It looks like the surgery resulted in severe neurological injuries.
My hopes and prayers that they will recover and do amazing in life❤
These children will be recovering for a long time and will have to learn a whole new way to live. I wish them the best and much respect and love for their parents.
they had to be separated, but the result is devastating.
Why do they have to be separated? There are other sets of conjoined twins that are attached at the head that are not separated.
I noticed these boys are always crying. Maybe it is a fluke. Or maybe they are always in pain. Or freaked out because they are no longer attached.
@@brendalg4 And you think it's a good solution to live attached from the head with another person? is it worthliving? is it human?
Agreed! And the way they were joined was extremely difficult. Personally I wouldn't have carried. I hope the best for them.
@@brendalg4 so because there are other conjoyed twins attached by the head that are NOT separated, these shouldn't be separated either??? It's such a comfortable life to live attached by the head so let's not help them!?
@@mrsTraveller64Be quiet, Karen. There is always one 🙄
Both children have lived . The boys and the parents have a long and difficult road ahead of them. I wish them all the best.
I actually feel sad watching them now. Maybe they'll get better but now it's hard to see them
These are beautiful children ,check yourself !
This is a tragedy! This family is being used and exploited! The original diagnosis of not being able to separate was the right one. I feel so bad for the parents, because they were desperate but I know now regret their decision, because their boys are are lifeless and worse off!
Very difficult situation, No quality of life before or after. This is a year later,😢. It’s not marvellous to see, it didn’t work, what are these reporters talking about.
Those poor parents. Imagine having to listen to your child cry out like that, for what I imagine is constantly while he is awake. I see no miracle here. Just because they could do the surgery. Should they have ?
I am Brazilian and I watched many interviews with the parents and not only they were fully aware of the possibility of them dying during surgery , but also about the consequences of it. AND STILL they saw it as the only solution for trem to have any chance of some kind of life . They lived their first 4 years in the hospital , couldn’t ever stand , look at each other and so on .
Not only that but at age four, they barely talked because they spent most time pulling the other one head in constant agony.
Their brain now can develop and reconnect the missing links and no matter what happens , they at least have a chance.
I would not call that a success! Both heavily disabled now... what kind of life will that be for both kids and parents!!!
Well, we don’t know of it was the surgery that caused that. Also, wouldn’t it be worse if you can’t even get up?
What kind of life would they have if it had not been done? Imagine the many difficulties as they grew older and larger!
Disabled people still have lives. And are still worthy of life.
@theshinylunatone3966 exactly! Which is why keeping them conjoined would've been fine, with a mobility disability, sure, but living fine without the need to give them a different kind of disability just because. This is very cruel, in my opinion.
@@yaq-yaqYou mean the surgical intervention done to get them out of such a severely restricted mobility is cruel????? Your comment is too below the belt! If for nothing at all, commend the surgeons' efforts at least, in trying to better the lives of these poor kids.
New chance at life? What is the reporter even talking about they looked fully capable and able to move and now they are paralysed and likely intellectually disabled. Crazy how positively they talk about the surgery and then the children look severely disabled, if I was the boys parents I would feel scammed and heartbroken.
You know young brains have massive potential for recovery, right?
YES YOU'RE RIGHT, I'VE BEEN SCREAMING THAT SINCE I FOUND OUT
How would you know? Just based on what you see? What are taking into consideration? Are you taking into consideration that the boy on the left as the one on the right have been joined all of their lives and thus know no reality where they could move without the burden they've experienced which can be influencing how difficult it appears for the boy on the left to be experiencing something so different. No one knows the results of this surgery until a few years pass.
@@tylindell927 that depends, will they be able to understand what you're saying, what was done to them? Will their brains ever be capable of gratitude, as opposed to before, when they were assured a future where they could make their own decisions?
@@nothingposted9056 Those are quite profound questions. I certainly wish them the absolute best case scenario.
As a parent, how can you decide what's best in such a challenging situation? My best wishes to all involved.
It's apparent that the boys had some damage to their brains from their surgery. That's so sad to see, heartbreaking. That's an impossible choice for the parents leave them as they were or take a huge risk separating them that they'll have some sort of damage when they're operating on their brains. The father looks to be almost defeated, in this journey, but I could be wrong. Yes the Dr separated their twins but at what cost? They look to be about the size of a 5-year-old. Bless their hearts & souls Jesus, may they have strength & peace as they go foward! ❤ ❤ ❤ ❤
🫤 I wonder if the parent feel it was the brain damage. Now they have two high special needs children in a different way. I hope this family is okay
I understand what most see as not successful. The interesting thing is that the brains are not necessarily the way the outcome will be. If you have watched or known someone with a traumatic Brain Injury…..patients routinely have to relearn most everything like physical movement, cognitive development and the great thing about the brain is that the vascularisation is such that the brain can basically be rewired with time. Adjunct vessels can perform and stimulate area of the brain by taking a kind of shortcut.
It will be interesting to see if their cognition and emotional agony will decrease as success is made when it works.
They don’t look ok yet…
Absolutely awesome!!! I pray the two boys continue to recover fully by God's grace...Amennnn ❤
They looked to better off mentally before the operation..
Praying for them.
Why is Everyone negative about the operation both boys were already suffering with Brain damage conjoined entwined fused together both boys have grown and having the greatest care from Mum Dad Family and the Medical profession I truly wish that with love and care both will flourish 💜🙏💜
they were not brain damaged before the surgery
you can see the suffering is wayyyyyyyyyyyyyyyyyyyy more now...........are u blind???????????????????
What were they supposed to do? Continue to live the way they were before the surgery? How would that have worked for them? The way their heads were fused together wasn't exactly liveable either.
So they have disabilities now. Im sure that was explained to the parents before the surgery.
People with disabilities deserve to be here and to live life, just as much as able-bodied/ neurotypical people.
Having a child with a disability isnt horrible. I have one with serious, complex, medical issues.
It is because of my kiddo, that I am a far better human than I was before she was born.
I don’t see how those boys could have walked being fused the way they were, they would’ve been stuck in a twisted position for their whole lives. Yes, they have brain damage but the parents have otherwise healthy boys.
❤
Exatamente! Antes da cirurgia eles nem podiam ir pra casa, viviam no hospital.
Well said
There was no perfect answer or outcome.
Archangel Michael, bless these people. Thank you.
Why the archangel
I'm still curious
@@EthanKorea It's Catholicism, you can pick and choose who to ask for blessings
Does Michael hang out in the UA-cam comments often?
They seem to be extremely agitated and perhaps in intense pain. How old are they now ? When was the surgery performed. I have mixed emotions about their separations. What are the supposed outcomes, do they have any positive outlook for these little boys to have any normalcy in their age progression; from now on sand into their future. It seems like they have tremendous difficulty with even supporting their heads, alone. What strides have they accomplished since their most recent surgery? I wish their parents all the strength, they will need to help their Sons thrive to the fullest ranges possible. GOD BLESS THESE Precious GIFTS .
Thank you for helping this family 👏👏👏
The twins Shared a brain so actually both would be thinking the same. I believe the brain can regrow. GOD can do the impossible.✝️🙏🏻
GOD bless these twins and their parent's abundantly AMEN 🙏🏻✝️♥️
I love the twins and the parent's.❤️♥️🫂🫂♥️♥️🫂🫂
Thank you to the Doctors, if the twins had been left the way they were they would not have survived.
No, it does not mean that they are thinking the same thing. There was even one set where one of them was transgender
If there were a god they would have been born separated!
@@marshamarsha8669 you're assuming if there was a God, He would never let anything bad happen. Why should He have to protect us from every bad outcome? He doesn't promise to do that. God did not spare Jesus from being crucified. Matthew 26:39 "And after going a little farther, he fell face down and prayed, saying, "My Father, if it is possible [that is, consistent with your will], let this cup pass from me; yet not as I will, but as You will." (Amplified Bible)
You can tell that they had brain damage as a result of this. Look at how much they changed before being separated. They were so lively and full of smiles. Now there are just zombies and can barely move. Bad call to separate them.
@JoeyXSmith. I agree about the brain damage, even the shape of their brains after the operation was weird. But what kind of life would the children have led without it? If one child was on his back the other child was face down on the bed. They were condemned to lying on their sides. It's so sad, and I feel an enormous compassion for the parents who have a long and difficult journey in front of them. ❤❤
Mil vezes assim. A mãe cuida de um cada vez.agora são individuais podem ganhar carinho abraço colo. E se desenvolver. Agora há esperanças
I saw the same thing. 😢😢
@@patriciahadley2374Lor and Beth managed to live conjoined for many years-until their death recently-and so do other sets of conjoined twins. Fortunately, they were better off and were able to function than this set if twins.
@@virginiaconnor8350 But those sisters were attached at the SIDE of the head so they could stand and sit down virtually normally. How could these boys ever function being attached at the very top of their heads?? No walking, no sitting, just being horizontal your entire life
Wow just wow. Incredible
I wish them well ! May God bless the whole family!it was a brave and courageous surgery!
I really don’t know how the children will recover from brain damage. They have been severely disabled by the operation. There should have been an interpreter for the parents so they could share their story.
The situation with these conjoined twins was a double edged sword. Either result means not having a fulfilling life for these boys.
Interesting follow up interview from January 2024 where the doc explains that separating conjoined twins before a year gives them the best chance for the brain to grow and recover to give them normal development long term. In this case the boys were brought to Great Ormond St when they were almost 4 years old but he went ahead with the separation because 7 previous attempts had been made and aborted and their skulls already had surgical dividers and other things inside. His mission was to complete the process to separate and salvage as much as possible. They knew (including the parents) that they would likely have some degree of disability but leaving the separation unfinished would have given them a poorer outcome. Here is the UA-cam title : Conjoined Twins Remarkable Recovery After Separation ... UA-cam Good Morning Britain, Jan 2,2024
One of the cases you could say " Operation went well - Patient dead"
Poor sweet boys...both now with brain damage.
It's like if a patient with bad eyesight had surgery to correct it. After the surgery, they came out blind but it's a success because they're alive.
the biggest decision should have been made before the birth plan. perhaps the specialists could use this result to help parents make more informed decisions before and after birth. Just so very difficult and sad
I feel sad for this family. I don't think this is the outcome they were hoping for. I don't know if this was fair to the children. Will they ever be able to live any kind of "normal" life? God Be With This Poor Family! 🐢🇺🇸
From difficult to easier these doctors really saved them
How much did the parents really understand? Their children were guinea pigs. I doubt that they will improve much more. They can't communicate. Devastating.
someone commented they already had brain damage though before the surgery
@@catea2551I have washed other videos about them. I never saw any mention of brain damage except in the comments. You can see that they appear normal in the videos before separation
They are separated but will they live a normal life
At what point is it better to have a somewhat normal life as conjoined twins than to lose mental and physical faculties as "singletons"?
No
Both brain damaged , probably, whole life on anti seizures medication, anti rejection, etc . , on lots of support.
Un milagro y las manos de los médicos, Dios sigan dándole sabiduría...
Medical miracle my eye. Maybe for the doctor's resume. Now the parents are saddled wirh two developmentally disabled kids for the rest of their lives. Sad.
This is not a success
It’s truly amazing
To everyone who made such negative (& some, hateful), they have a more recent video of how both of their lives are progressing.
They don’t seem to be normal. Poor kids and parents
Success this wasn't except to separate them but now they are even more challenged due to brain damage from it.
And what is their mental capabilities at the moment?
Hard to watch…wow call this success.
They don't seem to be doing very well
They spent 4 years living life completely differently. They’re obviously still recovering and it will take a long time for them to just adjust to even sitting upright. Also, kids have bad days.
Yeah I was surprised how positively they talked like it was a successful surgery when the children look severely disabled and lot more capable before the surgery. I'm afraid they would have had better chance at life without being separated, sure it would be difficult to live conjoined at the head but at least they would have been able to use their brain and together, there are lots of amazing things they could have done. It's sad to see that all the children I have seen so far who have been conjoined at the head and operated seem to have a pretty bad outcome, so not sure I would do this if I was the parent. But what kind of makes me angry I kind of doubt the parents have been made fully avare of the risks, they probably think now their children will be able to live like everyone else which is completely false and it almost feels like the doctors are experimenting on the children and wishing for the best, I mean must be really exciting and educational surgery for a surgeon.
@@teijaflink2226I think you can live a much more normal life disabled than you can connected at the head. It’s unknown if they are or will remain disabled in this video anyways. They now have so many more opportunities than they ever could’ve had if they stayed conjoined. Also, it is an incredibly exciting thing for science.
@@evelynvslife buy them doing that surgery these babies have brain damage they didn't look like they had brain damage before the surgery they can move their arms and legs really well and now they can't definitely probably have some strokes by the way one of the hands is it's too bad that this happened but I'm pretty sure the parents knew the risk of those babies having the surgery that brain damage could happen and brain damage very well did happen to these babies and there's no amount of recovery that that could change because if they're still like this a year out then more than likely it's going to be like this forever
@@kristahathaway9308 the way a child’s body can heal is extremely impressive, and the way the brain can make new pathways to function after trauma is the same. So we really won’t know how lasting this is as they’re still so young and learning how to exist. I don’t like people talking down on the parents and doctors for trying to give these children the best chance at a good quality of life. Some conjoined twins can live full lives without being separated, but I don’t think that would’ve been possible for these boys.
Apparently they can't talk and appear blind. 🙁
So sad
The children have obviously been brain damaged from separation. They were so robust before separation. Tragic. The doctors shouldn't celebrate this.😢
Looks like the surgery cause them to have some brain problems they didn't look like before the surgery that they were mentally ill and now they look like they're mentally the way they're acting the surgery probably caused them do you have a brain swelling in brain problems I feel awful for the parents they love their kids and they're going to take care of them for the rest of their life and its really sad
These boys were a tragedy while fused in such a miserable way but they were bright and aware. Now this special ed teacher sees severe cerebral damage that probably will not get any better.
Amazing.💙💙
Wouldnt surgically working on a prepubescent brain cause major long term disabilities and problems?
Especially a conjoined brain..
I feel like it would have been easier if the surgery was done when they had atleast fully developed.
But even still seperating a brain by perfectly removing more than 200 billion neurons without a single mistake is a long shot in todays advancements.
Something very important wasn’t said , that being that the Brazilian free heathcare system ( SUS) PAID for all the operations and has been paying all the health expenses from the start .
What a horrible lose/lose situation. Leaving them would have meant a life of great hardship, but separated they are left with profound brain damage and very poor life prospects. Very strange that the parents chose not to speak. Obviously they could have had a language interpreter present, this was not an impromptu interview. This appears to be more of a medical “learning opportunity” rather than a success story.
Perhaps their lives and care may be easier to handle now that they’re separated, but it seems they have cognitive challenges ahead. Sending love and good wishes for their future.
It looks like a desaster because they seems very handicaped
Just because something can be done doesnt mean it should be done
Thank you Christ Jesus our Lord and savior what a blessing for the babies.
how dare u call this a blessing. shame on u
Success???? I think both are mentally damaged
Very sad! These children were apparently "normal" before and then they are harmed!
Their vocalizations in the background, the complete lack of attempt to reassure them... distressing.
Poor bairns ❤
Kinder to abort. Poor babies.
❤❤
séparés mais encore plus handicapés !!!
The babies seemed much much more happier and bubbly babies BEFORE that surgery now they are just in pain and not enjoying life. God made them. Should have left them as they were. Happy !
All this surgery is fine but what life will these twins have? Is it experimental? I would hate it if these boys were brain-damaged and could not lead a normal life.
Es ist Wissenschaft
Praying these children live a complete long healthy life full of joy and love 🤗😘💕
One twin seems to have far more potential than the other. But that view is based on this short, limited clip.
Damaged and unhappy just a bid for donations shame on the doctors. Do no harm. Look at them. They're harmed real bad.
Well they were conjoined twins. They finally got separated. But shame on those other doctors for not separating them. But their brains are damaged. But atleast they don’t share a brain or any vital organs. But yes shame on those other doctors that said: nothing can be done.
I say let’s sue those other doctors for not performing the separation surgery on those infants.
@@mike197714or maybe they wouldn't do it because it shouldn't have been done. Would you rather have a normal brain and be attached to another person, or be brain damaged and separated?
@@brendalg4 hmm separated.
Nossa isso não deu certo só foram separados mas ficaram extremamente sequelados
I want to cry fr these boys. Look how sad and disappointed the father is. These surgeons just want to make money I would know I attended school to become one. I left because of things like this
In Brazil, healthcare, hospitals, vaccines, ambulances are completely free! They carried out the operation through the SUS. And completely free!
Now I don't know what type of contract the government makes with foreign doctors
C'est bien beau tout ça, mais que deviendront ces enfants une fois adultes ?
🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼
Conjoined twins have so many risk espically skull attachment. These boys could not have walked if not seperated. Its sad but physicians see the physical, medical, and parents who are caregivers 12/24/365.
Yes some live being conjoined as these twins were is unsustainble.
Sad sad sad situation I wish the parents health, patience, and help from the government, to be able to care for the twins. Good luck 🙏
There's no "safely" about this.
Obviously the children and parents have a long way to go.The boys must get used to being not attached, therefore their necks must adjust. It would become unbearable as they grow up and get larger and longer to move around. If you don't have any idea what that family had to go through, don't accuse the doctors. A few years back, there was no cure, now at least there are some choices
It looks like the children are worse, then before, unfortunately 😢😢
They had a better quality of life before surgery. Sad
Bravi dottori avete fatto vivere 2 larve
Are both these children have weak necks, but more important, how do you divide a brain, where was it attached and will it effect speech, learning, memories for rest of life. Not sure if they could vocally respond prior, etc.
Physically these boys were very normal. With the elasticit my of the braib, will they be able to catch up developementally now!
I feel they are just as disabled now as they were before just in a different way. Very hard decision to have to make ( Mum to disabled child )
Ooh, my God thanks for a big job it was terrible time for the children's.
❤
I am against abortion, but if I had gotten their diagnosis during pregnancy I would have ended the pregnancy! This is heartbreaking to watch!
There are conjoined twins that live successful lives.... Even in the case of twins joined at the head.
What have they told you the baby was going to have downs syndrome? Or something else. Would you abort for any disability?
@@brendalg4 I’m a 75 yr old grandma now, and I never had to make that decision, but it would have been a decision I would’ve had to make if there was a diagnosis!
Now they have two defective kids. Win.
Would have never did that.
Sad situation..if these 2 have a normal life it will be wonderful..Doesn’t look promising tho
Sadly they are in bad shape