This video really hits home for me. I am trying so hard to get well from LC. God bless you and your wife. Been doing your roadmap for 7 weeks. I have not lost faith, and still believe I can get well. Please continue sharing your recovery journey. There are many of us whom are financially limited and your free advice and recipe is a blessing to us all.
The light at the end of the tunnel is there! it feels like forever and if you’re never going to get there but you will. Thank you for watching, we know how it feels to search for help but with a large price tag
Im so sorry to hear this.........I cant imagine have gone through all this without the help of my wife and my parents. do you have any questions maybe I can answer that can help with your recovery?
Thanks to both of you for sharing your remarkable experiences and leading by example. You are making a difference in people’s lives and showing us how a family can pull together through challenges and heartache. Keep up the good work.
Thank you so much! Sometimes it can feel weird recording on a camera and not sure if these videos are helping anyone so thank you for saying this ❤️❤️❤️
I laughed when you said you heard him doing laughter yoga in the shower Actually first time I’ve laughed for ages I used to do this in a group before I was sick, we would walk around in circles clucking like chickens Crazy af 😂
Thanks for sharing the hope. Let’s hope this channel stays positive in the comments. Telling us you’ve had CFS for 100 years and gets worse everyday helps no one.
@@Roberto-Escobar thank you. I’m sure most comments are positive but I can’t risk reading them as there’s always that person triggering us with bad news.
A supporting life partner is one of the best thing which can help in long covid recovery, long covid becomes extremely difficult especially when long covid patients are dumped by their respective life partner, i faced the similar situation, living and supporting LC patient really requires dedication so I can’t blame anyone for it
Yeah Long covid is a team sport. It requires a team to get through this. My wife for a long time held it all in. Im just happy I made it out on time and hopefully this info helps others.
What a great unique idea to share your wife's experience too in the video . These videos are very helpful .Greetings from NY as a fellow New Yorker and healthcare worker . I hope you are doing better these days ! Keep up the good work !
I’m doing great! Thank you! Welcome to the channel. Thanks for watching. We wanted to try something different. Wife perspective is so important in this journey. Thank you for serving as a healthcare worker ❤️🙏
Was RN for 39 yrs when after resp illness in 2016 had all sx of LC couldn't work or even drive, was told all the discounting things you can imagine, had neuro dx given and taken muscle biopsies, breathing was less effective so had to use biipap and O2 at night, lived on $650/mo from savings til finally got SSDI in 2020 after had covid and things got even WORSE. Couldn't talk on phone,walk more than 1.5 lots from door and back, getting dressed was twice a wk, got trapped in tshirt trying to pull it off. MD simply said buy bigger size. Was terrified was going to die and son who is on spectrum wouldn't do the right thing. Son was also dealing with LC while going back to work and worrying he would kill me bringing something else home. We haven't spoken for 3 yrs now. I am doing better with Mestinon though no antibodies so withheld diagnosis. I can now breathe 20% better, walk 22 lots, lift gallon jug, shower AND go somewhere that day and haven't fallen in 19 mos. You are so right about the toxicity of nursing culture and the ageism is more fierce than you can imagine and pay rate tops out at 25yrs. It totally sucks. If a kid is reading this and it applies to your parent, stop and think, understand terror of losing career, health, financial stability and a free floating terror is incredibly overwhelming. Forgive and love us.
Cheryl thank you for sharing your personal story. Reading this gives anxiety, you were in an extremely scary situation. I am happy you are feeling better. Nursing is rough. Especially the bedside. I am actually applying for an NP program. I hope you continue to improve. 🙏
Fabuloso estimado Rob. El viaje se hace menos pesado y oscuro cuando tienes a alguien firme que te brinda su apoyo incondicional. Tu esposa es una persona muy especial!! Ya estoy trabajando en la teoría Polyvagal. ¡Muchas gracias!
The laughter yoga feels so freaking awkward and feels so forced. I keep trying to stay consistent with it. I'm embarrassed to do it when my husband is home, even when I warn him ahead of time 😂 Much love to you and your wife, and your baby! ❤
I’ve been doing this for so long and so frustrated that I can’t recover yet. This video gives me hope, thank you. Also, do u have a playlist of polyvagal theory and laughing yoga!?! I’m willing to try anything!
This week I am working on the exercises I recommend. Should be published this Friday or Saturday. Keep an eye out on them. Im happy I was able to give you some hope and inspiration. ❤
im sorry. yeah being alone is tough. I have spoken to people who are going through this alone.....hands down it is harder. I am very blessed to have had my wife through this journey.
Hey Rob. Thank you and your beautiful wife for taking the time to share your journey x I wonder if I could reach out and ask for a little help. Ive come along way with my healing and now need to make the final step. I love your take on polyvagal and wonder if I can reach out for some guidance on what to do to to improve the PV. How best can I contact you x
Just generally laughing either attracts people to you or pushes them away the more you do it the better quality your relationships will be starting with the relationship with yourself We should do a collab video my dude, it would be fun
I have seen them and spoke with people who used them but it's not a cure. if your mind and thoughts are stressing you out, when you stop using the machine your nervous system will begin to activate. For sustainable healing you need to work on the hardest part of this, your mind, your beliefs and then the Polyvagal exercises will work.
@@Roberto-Escobar bth, I am not a person who feel like being stressed out, I don't think I'm type A or any type... I don't think that it's what causing me to struggle from longcovid. I have neuropathy, fibromyalgia, dysautonomia I'm 100% sure that it is caused by nerve damage just like people lose their smell and taste (nerve damage in upper nose) it is very much a mechanical issue, a damage to the nerve system more than any approach that you can put on top of that. I do not think that an approach will 'cure' it, it may just affect it... I have difficulty swallowing, pins and needles. sometimes when I am with friends or mildly exercising so maybe when you force the system to be de-stressed completely it has an effect to it but the damage is still there and I feel all the debilitating symptoms no matter what I do they take their spot again after a completely de-stressed moment. I do think that it is mechanical more than emotional.
@@dbulathow is your neuropathy now one year on? I ask because I genuinely thought mine was a mechanical issue too but brain retraining reduced it and when I do all this polyvagal stuff consistently along with stress reduction healthy diet etc, it goes away! It flares with anxiety and stress
@@Roberto-Escobar I love you’re videos rob, it’s funny how long covid might actually be the saving grace for chronic fatigue people, they have legit prove noawdays, and UA-cam videos like this showing it
This video really hits home for me. I am trying so hard to get well from LC. God bless you and your wife. Been doing your roadmap for 7 weeks. I have not lost faith, and still believe I can get well. Please continue sharing your recovery journey. There are many of us whom are financially limited and your free advice and recipe is a blessing to us all.
The light at the end of the tunnel is there! it feels like forever and if you’re never going to get there but you will. Thank you for watching, we know how it feels to search for help but with a large price tag
Don’t give up. If you ever need to chat just reach out on IG. I’m willing to answer any questions. All free. Don’t lose faith.
@@Roberto-Escobar Thank you so very much. Really-really appreciate it.
Single full time dad with ZERO support..hardest shit of my life
Im so sorry to hear this.........I cant imagine have gone through all this without the help of my wife and my parents. do you have any questions maybe I can answer that can help with your recovery?
Thanks to both of you for sharing your remarkable experiences and leading by example. You are making a difference in people’s lives and showing us how a family can pull together through challenges and heartache. Keep up the good work.
Thank you so much! Sometimes it can feel weird recording on a camera and not sure if these videos are helping anyone so thank you for saying this ❤️❤️❤️
Thanks a lot, so good to hear the conjoint perspective. They are so important in our Journey ! And they are going througt tough time too
Yes they are! They take this burden on themselves as well on this journey.
I laughed when you said you heard him doing laughter yoga in the shower
Actually first time I’ve laughed for ages
I used to do this in a group before I was sick, we would walk around in circles clucking like chickens
Crazy af 😂
LOLOL!!!! its about having a good time and just being joyful. it can feel childish but thats a good thing. laugh more. smile more.
Thanks for sharing the hope. Let’s hope this channel stays positive in the comments. Telling us you’ve had CFS for 100 years and gets worse everyday helps no one.
Those people who say that should be ashamed, they are legit making other people sick with those comments
I will monitor for those comments. I will do my best to not allow negative comments. This is a safe place but also a positive place.
@@Roberto-Escobar I’ve come to believe rob that comments from people like this can legit make you sick and prolong the illness
@@Roberto-Escobar thank you. I’m sure most comments are positive but I can’t risk reading them as there’s always that person triggering us with bad news.
@@Wds__99 yeah remember this is a stress illness too, those people who makes those comments will make you sick,
Beautiful Rob. Thanks for this great interview with your wife! I immediately shared it with mine❤
Awesome! I hope they find it insightful.
A supporting life partner is one of the best thing which can help in long covid recovery, long covid becomes extremely difficult especially when long covid patients are dumped by their respective life partner, i faced the similar situation, living and supporting LC patient really requires dedication so I can’t blame anyone for it
Yeah Long covid is a team sport. It requires a team to get through this. My wife for a long time held it all in. Im just happy I made it out on time and hopefully this info helps others.
What a great unique idea to share your wife's experience too in the video . These videos are very helpful .Greetings from NY as a fellow New Yorker and healthcare worker . I hope you are doing better these days ! Keep up the good work !
I’m doing great! Thank you! Welcome to the channel. Thanks for watching. We wanted to try something different. Wife perspective is so important in this journey. Thank you for serving as a healthcare worker ❤️🙏
Was RN for 39 yrs when after resp illness in 2016 had all sx of LC couldn't work or even drive, was told all the discounting things you can imagine, had neuro dx given and taken muscle biopsies, breathing was less effective so had to use biipap and O2 at night, lived on $650/mo from savings til finally got SSDI in 2020 after had covid and things got even WORSE. Couldn't talk on phone,walk more than 1.5 lots from door and back, getting dressed was twice a wk, got trapped in tshirt trying to pull it off. MD simply said buy bigger size. Was terrified was going to die and son who is on spectrum wouldn't do the right thing. Son was also dealing with LC while going back to work and worrying he would kill me bringing something else home. We haven't spoken for 3 yrs now. I am doing better with Mestinon though no antibodies so withheld diagnosis. I can now breathe 20% better, walk 22 lots, lift gallon jug, shower AND go somewhere that day and haven't fallen in 19 mos. You are so right about the toxicity of nursing culture and the ageism is more fierce than you can imagine and pay rate tops out at 25yrs. It totally sucks. If a kid is reading this and it applies to your parent, stop and think, understand terror of losing career, health, financial stability and a free floating terror is incredibly overwhelming. Forgive and love us.
Cheryl thank you for sharing your personal story. Reading this gives anxiety, you were in an extremely scary situation. I am happy you are feeling better. Nursing is rough. Especially the bedside. I am actually applying for an NP program. I hope you continue to improve. 🙏
yeah I had MCAS and POTS. POTS symptoms were probably the most debilitating for me.
@@Roberto-Escobar congratulations.please always listen with your heart. Hershey kisses help after dementor interactions iny experience
Me too, don't feel bad. You don't know what it's like until ist your health that goes down the tubes.
Health is wealth. You tend to not appreciate it until you lose it.
Fabuloso estimado Rob. El viaje se hace menos pesado y oscuro cuando tienes a alguien firme que te brinda su apoyo incondicional. Tu esposa es una persona muy especial!! Ya estoy trabajando en la teoría Polyvagal. ¡Muchas gracias!
Muchas gracias mi amigo. Ojalá que te esta mejorando. sigue adelante.
The laughter yoga feels so freaking awkward and feels so forced. I keep trying to stay consistent with it.
I'm embarrassed to do it when my husband is home, even when I warn him ahead of time 😂
Much love to you and your wife, and your baby! ❤
I’ve been doing this for so long and so frustrated that I can’t recover yet. This video gives me hope, thank you. Also, do u have a playlist of polyvagal theory and laughing yoga!?! I’m willing to try anything!
This week I am working on the exercises I recommend. Should be published this Friday or Saturday. Keep an eye out on them. Im happy I was able to give you some hope and inspiration. ❤
This was very helpful...Thank you
I’m happy it helped 🙏❤️
i cannot watch it (nervous system reacts), i did all this alone and still do, but appreciate the topic, very good for other people
im sorry. yeah being alone is tough. I have spoken to people who are going through this alone.....hands down it is harder. I am very blessed to have had my wife through this journey.
THANK YOU FOR THIS VIDEO♥️ from Italy ✨♥️
You're very welcome Adriana, I hope they help.
Hey Rob. Thank you and your beautiful wife for taking the time to share your journey x
I wonder if I could reach out and ask for a little help. Ive come along way with my healing and now need to make the final step. I love your take on polyvagal and wonder if I can reach out for some guidance on what to do to to improve the PV. How best can I contact you x
Thank you so much! In the video description I have my instagram. If that doesn't work I could create an email. Just let me know.
Just generally laughing either attracts people to you or pushes them away the more you do it the better quality your relationships will be starting with the relationship with yourself
We should do a collab video my dude, it would be fun
Laughing and feeling joy is key in our physical/mental/and emotional health. Would be cool to make a video.
Does America not have automatic direct payment for recurring monthly expenses yet? What’s up with that
yeah but if one misses through glitch you are unlikely to be forgiven
What do you think about VNS devices (TENs devices) do you use one?
I have seen them and spoke with people who used them but it's not a cure. if your mind and thoughts are stressing you out, when you stop using the machine your nervous system will begin to activate. For sustainable healing you need to work on the hardest part of this, your mind, your beliefs and then the Polyvagal exercises will work.
@@Roberto-Escobar bth, I am not a person who feel like being stressed out, I don't think I'm type A or any type... I don't think that it's what causing me to struggle from longcovid. I have neuropathy, fibromyalgia, dysautonomia I'm 100% sure that it is caused by nerve damage just like people lose their smell and taste (nerve damage in upper nose) it is very much a mechanical issue, a damage to the nerve system more than any approach that you can put on top of that. I do not think that an approach will 'cure' it, it may just affect it... I have difficulty swallowing, pins and needles. sometimes when I am with friends or mildly exercising so maybe when you force the system to be de-stressed completely it has an effect to it but the damage is still there and I feel all the debilitating symptoms no matter what I do they take their spot again after a completely de-stressed moment. I do think that it is mechanical more than emotional.
@@dbulathow is your neuropathy now one year on? I ask because I genuinely thought mine was a mechanical issue too but brain retraining reduced it and when I do all this polyvagal stuff consistently along with stress reduction healthy diet etc, it goes away! It flares with anxiety and stress
Long Covid or Vacs injured?
Long COVID… he didn’t get the vax at that time
Long covid but during being sick with long covid I was vaccinated 3 times. I need to keep my job status.
Are you running again rob
Yes I am. I’m doing more riding my bike because I enjoy it more than running. But I do both. Finished a half marathon a month ago.
@@Roberto-Escobar I love you’re videos rob, it’s funny how long covid might actually be the saving grace for chronic fatigue people, they have legit prove noawdays, and UA-cam videos like this showing it