Hello! It took nearly 2 years for my neurologist to figure out that I had autonomic small fiber neuropathy. Almost all of my symptoms mimicked multiple sclerosis, but the MRI did not show lesions on the brain as somebody with MS normally has. Over time multiple systems in my body began to fail. For example, I was diagnosed with adrenal insufficiency, neurogenic bladder (I have to use a Foley now.), sweating too much especially on my face, dizziness if I stood up or bent over, Sjögren’s and now my bowels have slowed to a crawl. The pain is so bad. It feels like I am walking on broken glass with every single step I take. The pain is also like someone is inside my legs scraping with a razor to get out. I have numbness and dizziness too. I broke my heel bone and didn’t even realize it. The orthopedic surgeon had to surgically fix it because it was broken that bad. I was tested for autonomic dysfunction and of course I tested positive for it, but it was before my bladder stopped working and everything else I listed too. Another weird thing is happened to me now, I wake up in the middle of the night with intense itching on my upper thighs and the back of my head. This disease is pure hell to live with.
Autonomic neuropathy is the most poorly diagnosed form of Peripheral Neuropathy! Often symptoms go undiagnosed for years (or sometimes are never determined).
@@NeuropathyDoctor Have been listening to your videos since I just found you. I wrote a descriptive comment on a different video and hope to hear from you if you have a moment. I was just diagnosed with small fiber neuropathy after decades of "fibromyalgia". From the info gathered here, I think I may have the autonomic type (GI symptoms, excessive sudden skin dryness after having oily skin my whole life, temperature regulation issues, urinary retention, arrhythmia, genital burning and sexual dysfunction, etc) Please review my other comments if you can. I would appreciate it more than you know.
@@Rollwithit699 Let me invite you to our FREE Challenge - The Neuropathy Secrets Masterclass next week. This will give you a great deal of information and also give you a roadmap to managing your neuropathy. Join at www.NeuropathySecrets.net/masterclass
There are ways to access the knowledge I have been able to obtain over the years. In fact, we are running a new Neuropathy Masterclass to help people create a roadmap to getting their life back: www.NeuropathySecrets.net/masterclass
starting this road of finding out wat i got , first guess they gave is FND . got a rdv in 2 weeks ,ill def ask about this as much of it fit into my issues
You need to get a diagnosis of Small Fiber Sensory, Large Fiber Sensory, Motor and/or Autonomic Neuropathy. It can be any combination of those and they all should be treated if they are a problem.
The exact prevalence has been listed as "unknown" in many articles, but it is rare. Autonomic Neuropathy, however, is not rare and the treatments for autonomic symptoms ae usually effective if you create a good plan.
Thanks for the the info
Hello! It took nearly 2 years for my neurologist to figure out that I had autonomic small fiber neuropathy. Almost all of my symptoms mimicked multiple sclerosis, but the MRI did not show lesions on the brain as somebody with MS normally has. Over time multiple systems in my body began to fail. For example, I was diagnosed with adrenal insufficiency, neurogenic bladder (I have to use a Foley now.), sweating too much especially on my face, dizziness if I stood up or bent over, Sjögren’s and now my bowels have slowed to a crawl. The pain is so bad. It feels like I am walking on broken glass with every single step I take. The pain is also like someone is inside my legs scraping with a razor to get out. I have numbness and dizziness too. I broke my heel bone and didn’t even realize it. The orthopedic surgeon had to surgically fix it because it was broken that bad. I was tested for autonomic dysfunction and of course I tested positive for it, but it was before my bladder stopped working and everything else I listed too. Another weird thing is happened to me now, I wake up in the middle of the night with intense itching on my upper thighs and the back of my head. This disease is pure hell to live with.
Autonomic neuropathy is the most poorly diagnosed form of Peripheral Neuropathy! Often symptoms go undiagnosed for years (or sometimes are never determined).
@@NeuropathyDoctor Have been listening to your videos since I just found you. I wrote a descriptive comment on a different video and hope to hear from you if you have a moment. I was just diagnosed with small fiber neuropathy after decades of "fibromyalgia".
From the info gathered here, I think I may have the autonomic type (GI symptoms, excessive sudden skin dryness after having oily skin my whole life, temperature regulation issues, urinary retention, arrhythmia, genital burning and sexual dysfunction, etc)
Please review my other comments if you can. I would appreciate it more than you know.
@@Rollwithit699 Let me invite you to our FREE Challenge - The Neuropathy Secrets Masterclass next week. This will give you a great deal of information and also give you a roadmap to managing your neuropathy. Join at www.NeuropathySecrets.net/masterclass
This was very helpful to me, thank you!
Wish I had you for my DR
There are ways to access the knowledge I have been able to obtain over the years. In fact, we are running a new Neuropathy Masterclass to help people create a roadmap to getting their life back: www.NeuropathySecrets.net/masterclass
starting this road of finding out wat i got , first guess they gave is FND .
got a rdv in 2 weeks ,ill def ask about this as much of it fit into my issues
You need to get a diagnosis of Small Fiber Sensory, Large Fiber Sensory, Motor and/or Autonomic Neuropathy. It can be any combination of those and they all should be treated if they are a problem.
So what can you do for your autonomic neuropathy to get better, what vitamins, diet or medicine should i be looking at? Thank you.
It is a stepwise process that I discuss more here: ua-cam.com/users/livebqf5AH93Bvs
HSAN2A is a one in one hundred thousand variant I've heard.
The exact prevalence has been listed as "unknown" in many articles, but it is rare. Autonomic Neuropathy, however, is not rare and the treatments for autonomic symptoms ae usually effective if you create a good plan.
Hi! Are night sweats or oily skin a symptom?
That's how I first noticed it before I was diagnosed. I am type 3c diabetic though.
Autonomic Neuropathy can cause over or under sweating.