Sickle Cell Anemia: "The Pain is Always There"

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  • Опубліковано 2 січ 2025

КОМЕНТАРІ • 26

  • @deezel19
    @deezel19 7 місяців тому +5

    Often the pain is debilitating and at times I wanna give up but I try to be strong. I pray your journey is long and successful.

    • @gabiausten8774
      @gabiausten8774 4 місяці тому +2

      I’m a chronic pain patient through intestinal surgery that went horribly wrong, my pain easily reaches an 11/10 when in breakthrough (contorting on the floor, vomiting, screaming, passing out, not being able to take it one more moment.) and I had it since I was 17/18. It comes randomly, sometimes at home when I’m lucky, sometimes in public and it’s hard, very very hard, BUT you are incredibly strong if you have to deal with chronic pain, stronger than the majority of people, stronger than most will ever believe possible and I KNOW, we want to give up sometimes, we don’t wanna take the fear, the pain, but we DO, WE CAN AND WE WILL!
      You and I will fight, every single day, for the rest of our lives. We accept it, we can, we WILL! You’re way too strong to give up now. Crying, breaking down, being afraid, being hopeless sometimes is totally ok, it’s totally ok, but we WILL ALWAYS get the fuck back up!

    • @deezel19
      @deezel19 4 місяці тому

      @@gabiausten8774 🙏🏿🙏🏿🙏🏿

  • @youni_dosmonky
    @youni_dosmonky Рік тому +14

    The pain is indescribable I’m feeling it right now while I’m typing this it hurts a lot I can hardly breath on top of the fact I have sickle cell anemia I have SVT and asthma and I got my spleen removed I’m in serious pain where I feel like ima die 😂 wish me the best and I wish everyone with sickle cell to have a wonderful life

    • @lavanyasahu3960
      @lavanyasahu3960 Рік тому

      Wish you the best

    • @youni_dosmonky
      @youni_dosmonky Рік тому

      @@lavanyasahu3960 thx

    • @QuareebOyinloye
      @QuareebOyinloye Рік тому

      How you doing now?!

    • @youni_dosmonky
      @youni_dosmonky Рік тому +1

      @@QuareebOyinloye I’m good thank you recently I had a chest crisis and now if I get another sickle crisis or chest crisis I will be spending my whole life in the hospital which no one wants 😂 ye but hopefully that doesn’t happen

    • @allensuniverse
      @allensuniverse 2 місяці тому

      i feel u homie
      stay strong gang🤍🤍

  • @angelcoolin3693
    @angelcoolin3693 Рік тому +4

    It's crazy hearing you describe the pain because as a child that was how I would try to explain the pain as well, but the pain is indescribable. 🙏🙏🙏

  • @cajunscorpion
    @cajunscorpion 2 роки тому +6

    The pain is indescribable..it’s insane!

  • @jessicamiguelramirez9989
    @jessicamiguelramirez9989 3 роки тому +1

    Would love to hear your thoughts on the keto diet and sickle cell

  • @americandad4864
    @americandad4864 Рік тому

    I am sorry that this is a part of your life.
    Good luck 🇺🇸

  • @nokhutulasiwawa8809
    @nokhutulasiwawa8809 2 роки тому +5

    How many times do you have a crisis

    • @koolkalmkiki2613
      @koolkalmkiki2613 2 роки тому +2

      It comes at random. I went to bed Monday, I developed a sharp pain in my bad randomly after I got out the shower Tuesday. Just like that.

    • @yurineri2227
      @yurineri2227 4 місяці тому

      it varies from person to person, but cold or stress can act as trigers

  • @mactaegooden4688
    @mactaegooden4688 29 днів тому

    I have it too

  • @1999BORINGGAMERS
    @1999BORINGGAMERS Місяць тому

    My scac pain is like stabbing pain

  • @antwinehurst9546
    @antwinehurst9546 Рік тому +1

    😔🙇🏿‍♂️🙇🏿‍♂️🙇🏿‍♂️🤗🖤

  • @J_Starr007
    @J_Starr007 3 місяці тому

    The pain is not only incomprehensible if you don't have SC it is frowned upon by doctors and nurses which makes it even worse to have to deal with that and have to fight for relief. Support system is a necessity!!!!