I completed my first full dose of Ocrevus | comparing my first and second half of the dose | MS
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- Опубліковано 16 лип 2022
- Hey everyone!
Thank you so much for clicking on this video.
Now that I have completed my full dose of Ocrevus, I wanted to make a video on my experience with it. The first dose is split into two separate infusions so your body has time to adapt to the drug. I have a video when I got my first half of the dose, linked below. I wanted to make this video as the second half of the dose was a different experience. I go through the symptoms I had with each of the infusions.
If anyone has any questions just leave them below 😊
I’ll do a follow up video in about 3 months when I fully settle into the treatment.
Thanks so much for watching, hope you enjoyed the video 🥰
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First Ocrevus infusion: • My first Ocrevus infus...
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MS Ireland: www.ms-society.ie/
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Video edited with Wondershare Filmora X software: filmora.wondershare.com/video...
Camera used: cannon G7Xii: store.canon.co.uk/canon-power...
#multiplesclerosis #ocrevus #infusion #chronicillness #autoimmunedisease
I had a scarily similar experience on Ocrevas, from the tight throat, drinking loads of water, weak legs...
Thank you for sharing ❤
-- I'm always surprised when someone else describes their MS experience and it aligns closely to mine. Then I think, "huh! So perhaps my MS journey isn't so unique after all?!"
- I'm always surprised, but then again, perhaps I shouldn't be so shocked.
-- Really great to hear you be so honest and straight forward ❤❤❤
...Here, have all one more subscriber to your channel ❤
Thank you so much!
I know, it feels soooo weird hearing someone else describe symptoms that you’ve had. Just to know that there’s actually someone else in the world who’s felt what you’ve experienced. Madness.
Hope you’re doing okay on Ocrevus.
Thank you for subscribing 🫶🏻💛
Thank you for sharing your experience with us! As someone who was just recently diagnosed with MS in June, I wasn’t looking forward to these Ocrevus infusions but after watching some of your videos it’s really made the whole process a lot less scary and I just wanted to thank you for that! For me I have RRMS and just had my second half does about 3 weeks ago and honestly feel about the same as far as MS symptoms go, but hopefully after we get our third infusion maybe they’ll improve to some degree! Definitely looking forward to your first full dose and update videos! Please keep up the good work and stay strong we’re MS warriors!! 💪✊♥️
Thank you so much for the lovely comment. It's so nice knowing my videos are helpful. I'm sorry to hear of your diagnosis, it's not easy. I hope Ocrevus works out well for you. So far I'm really liking this treatment compared to Techfidera. I'll definitely document the next dose, I'm interested to see how different it will be. Sending you strength and positivity 💛
thank you so much for sharing! you were one of the first people i found on yt when i was diagnosed and your videos really helped me get through that initial wave of panic. i'm on ocrevus now! my symptoms also "returned" after my first two infusions, like your leg weakness. hopefully that wont be normal for either of us with the other infusions. rooting for you!!
Awh amazing! I'm so glad my videos have been helpful 💛 that's so interesting about your symptoms coming back with your first infusion. Fingers crossed it only gets easier for us! All the best 💛 we got this 💪🏼
Thank you so much for sharing your experience and being vulnerable! I haven't been on this medication but it's always great to be informed. I hope you're doing sincerely well. 💓✨
Thanks so much for your comment and for watching the video 💛 yeah it's always interesting hearing about different treatments and people's experience with them.
Yeah I'm doing really well now thanks! 🧡
Thank you for sharing your journey with MS ❤️🔥 this disease sucks..
Thank you so much for sharing, I hope you’re doing well. I had my MS appointment this morning and my neurologist suggested I switch from Plegridy to Ocrevus. I’m going to make the decision after my next MRI scan. Xx
You are such a lovely person x
Thank you so much 🥹💜
I was diagnosed in 2007. I’m three doses in to Ocrevus. I refer anyone with MS to follow Dr Aaron Boster here on UA-cam. I’ve seen many neurologists the past 17 years- he is truly incredible. Best wishes to all.✨🙏🏻💕
Hi Jessi I’m following your story prayers all the way 😘❤️🙏🏻🙏🏻
Thank youuuuu! Appreciate this so much 💜
Thank you for these videos. I start Ocrevus on Sunday 😁
Ah best of luck with your first dose 🩷🩷
Thanks for sharing your journey and sharing both the ups and downs, its important to see other's go through the same journey and feel less alone with my diagnose.
I've been on Copaxone since early 2021 (after finally getting a proper diagnose, which was 4 years in the making), but basically I'm looking to change medication as I'm currently experiencing previous symptoms play up a bit again. I'd like to know my options in case there's a new lesion. So thank you! I heard Ocrevus got mentioned in a positive way at the ECTRIMS conference last weekend, very interesting indeed. Good luck in your MS journey, I"ll be on the lookout for your update vid.
Thank you for the lovely message. I completely agree, it's good to hear other people's stories because you can really relate to them.
Can't believe you had to go through 4 years to get a diagnosis. That's so tough and unfair 😔
I'd really recommend Ocrevus, I feel so much better on it compared to Tecfidera. And it's every 6 months so I feel like I can live my best life in those months.
Best of luck with your MS journey too, hopefully you get sorted with a new treatment 💛🧡
@@jessiebarry279 ❤️
Thanks, we rewatching in preparation.
Amazing 💛
I’m from Ireland as well
GOT my 1st half dose Nov 30th, 2022 Very itchy and broke out bad, throat was closing up. They gave me Claritin. It subsided within 20 minutes.
Next morning ( DAY 2) the steroid they gave me was still in my system.. LOTS OF ENERGY. I cleaned and put on Christmas music.
Starting a journal of it. Will keep you posted.
Yeah the itchy throat and tightness is uncomfortable 🤯 yeah actually my Ocrevus nurse said that some people have loadsssss of energy the next day and then some people are drained. It just affects people differently. It's mad
I will have my first dose soon.
Very informative, even though it doesn't apply to me, it's interesting to see how people react to different medications that are on offer for their ilnesses. Is this the only thing you take for your MS now?
I'm weaning off one medication and about to start another for my ilness, I had to go back on it for the weekend because it was making me dizzy coming off the meds and I needed to drive, so had to go back up a dose and will go back down now I don't have to drive for a few days lol
It did make me chuckle when you said if you come back in a year il let you know how I feel lol a long wait to see if something is working. Fingers cross for you 🤞
Random question, but is your hair naturally curly or do you have a perm?
Thanks for watching and I'm glad it was informative. Yeah this is the only medication I take for my MS. I take supplements aswel but no other medication. Which is great as it's every 6 months.
Awh honestly dizziness is one of the worst symptoms to experience. It's so debilitating and a horrible feeling. Hopefully it eases and your new treatment works well 🧡
Yeah that's my natural hair. I love my curls but they're hard work to maintain.
Thanks for sharing
💛💛
Thank you
Finished my first dose and it's actually made me shakier in my opinion I have primary Progressive multiple sclerosis and most of my lesions are in my cerebellum I constantly feel dizzy like I'm on a freight train
Have you heard if this type of ocrelizumab therapy is effective for teenagers?
ty vry helpful
TYSM 🥰
Why did you stop taking tecfadera? If you don’t mind me asking?
Yeah course, I stopped taking it because I had a new lesion on my brain. It wasn't strong enough against my MS so I needed to go up the ladder of treatments.
@@jessiebarry279 Were your lymphocytes levels good from your blood work? They didn’t drop drastically the entire time you were on them. You no the thing that could trigger PML.
@@ChrisBrullo no my lymphocytes were absolutely fine. Yeah I was terrified of PML and I've tested positive for the JC virus. But my lymphocytes were always at a normal level thankfully 🙏🏻
How many lessons had you before and currently?
I had 3 definite lesions and 2-3 "potential" lesions before hand. And then I had 1 more lesion after my scans
I get my 1st dose tomorrow
Best of luck with it 💛 every dose gets easier 🫶🏻
@@jessiebarry279 thank you so much cause I'm scared I've been diagnosed in March and still in shock
@@lauraluffman6177 I know, it’s so scary at the beginning. I found it really tough too. Just couldn’t understand how I was fine one day and then all of sudden I have MS. I totally get you 🫶🏻 over time it gets easier. Just take all the time you need to try and process it 💛💛
@@jessiebarry279 thank you so much for the support
@@lauraluffman6177 of course 💛 it’s always good talking to someone else in the same situation because they fully know what you’re going through 💛
Where u. From
Dublin 💚
Ok. U single. My. Grandfather was from Dublin
U single n looking for good American man
Ur very pretty
How ru honey
U single. N looking luv ur tattoos