Treatment Brings Hope to Children Facing Spinal Muscular Atrophy, a Disabling, Often Fatal Disease

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КОМЕНТАРІ • 25

  • @pruineylee415
    @pruineylee415 5 років тому +6

    It’s a miracle drug, but the miracle does not happened in all SMA families yet.

  • @kindergartenteacherglad7311
    @kindergartenteacherglad7311 3 роки тому +1

    Amenerrasulû bi ma ûnzile ileyhi mir rabbihi vel mû’minun, kûllûn amene billahi ve melaiketihi ve kûtûbihi ve rusûlih, la nûferriku beyne ehadim mir rusûlih, ve kalu semi’na ve eta’na gufraneke rabbena ve ileykel masir (2/285)
    La yûkellifûllahu nefsen illa vûs’aha, leha ma kesebet ve aleyha mektesebet, rabbena la tûahizna in nesina ev ahta’na, rabbena ve la tahmil aleyna isran kema hameltehu alellezine min kâblinâ, rabbena ve la tuhammilna ma la takate lena bih, va’fû anna, vağfir lena, verhamna, ente mevlane fensurna alel kavmil kafirin (2/286)

  • @irfansaeed8479
    @irfansaeed8479 3 роки тому +3

    My child is ten years and he has that disease. He can't walk on his own but he can perform all other activities as normal. Any treatment to improve the condition or to eliminate it at this age.

  • @sabahattinkalya927
    @sabahattinkalya927 3 роки тому +2

    ALLAH YAR VE YARDIMCINIZ OLSUN

  • @mohammadabiruddin6194
    @mohammadabiruddin6194 3 роки тому +3

    Please help duchcne mascular dystrophy patient of i India Treatment

  • @hulm
    @hulm 3 роки тому +1

    up up up

  • @oldstudentlungtszin4495
    @oldstudentlungtszin4495 2 роки тому +5

    Their first daughter suffer from sma type 1 and that means the healthy parents have one disease-causing gene respectively. According to genetics, their next child will have 25% to suffer from sma type 1 again. I cannot understand why the parents ignore the risk of giving a birth to a ill baby

  • @user-wi4cf4xu3l
    @user-wi4cf4xu3l 4 місяці тому

    I am suffering from spinal masqular astrophi plz help me to qure my health condition

  • @DianaKazimiera-
    @DianaKazimiera- Рік тому

    ❤️🕊️

  • @samjhanarayamajhi1691
    @samjhanarayamajhi1691 3 роки тому +1

    Plz help nepali baby siyona shrestha she’s suffering from same disease we need help for treatment plz plz help 😭😭😭😭🙏🙏🙏🙏🙏🙏🙏🙏🙏

  • @Islamicvideomakkah88
    @Islamicvideomakkah88 3 роки тому +1

    Please help me my son age eight months please please

  • @AudreyAsh420
    @AudreyAsh420 Рік тому

    What went through their mind to continue having children after they passed down SMA to the first daughter.. now their son has to live a life a misery because they were too irresponsible

  • @scallawagon713
    @scallawagon713 3 роки тому +1

    These parents taking chances with their children’s lives. Tsk!

  • @haykuhigabrielyan8054
    @haykuhigabrielyan8054 5 років тому +3

    If we need to make sure we can send the baby's analyzes to everyone.

  • @haykuhigabrielyan8054
    @haykuhigabrielyan8054 5 років тому +3

    he is still 2 months ... if you can help with something that is getting worse day by day ... There is no such organization in Armenia ... there is no cure for this disease in Armenia

  • @haykuhigabrielyan8054
    @haykuhigabrielyan8054 5 років тому +4

    We live in Armenia ... we have a request if we can help with an organization where our little one suffers from this disease SMA type 1