Sarcoidosis update 2: After topical steroid treatment

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  • Опубліковано 9 січ 2025

КОМЕНТАРІ • 12

  • @anka_lost
    @anka_lost 6 місяців тому +1

    So sorry you’re going through all this! Thank you for keeping us up to date. I have many health issues and I appreciate you being open. You definitely help at least me feel less lonely🖤

    • @ToneSabro
      @ToneSabro  6 місяців тому +1

      That means a lot. Thank you 🌹

  • @natalieh2025
    @natalieh2025 6 місяців тому +1

    I know this might sound dumb, but I suffer with eczema and what helps me with painful, red and dry skin is the classic Nivea cream. I know that you don't have eczema, it won't cure it, but it might help a bit with the pain

    • @ToneSabro
      @ToneSabro  6 місяців тому +2

      Thanks for the tip! I actually have eczema too! 😂 So I have countless different creams to treat ichiness and sore skin.. 🙈 It sucks.

    • @natalieh2025
      @natalieh2025 6 місяців тому +1

      @@ToneSabro oh no, that sucks big time :D . I also used to have many creams, but for some reason Nivea (not soft, the normal dark blue one) helps so much more than the expensive ones from pharmacy. Feel better soon!:)

  • @jeaniejean8200
    @jeaniejean8200 5 місяців тому

    I have sarcoidosis (for over 10 years) in my skin, lungs, and bones. My skin was most affected, i had it in my arms, both, abdomen, legs etc. Instead of methotrexate (chemo) i went on hydroxychloriquine (Plaquenil). It has way less side effects than methotrexate, which I've done as well. It settled my skin right down, maybe ask about that.
    I'm heavily tattooed, and if i get new ones i have to do it during a period of my sarcoidosis being settled, as mine comes back when i get sick or very stressed ( and getting tattoos can trigger this.)
    Fyi when I have a flare up of sarcoidosis, my hair starts dramatically falling out, methotrexate stops it.

    • @ToneSabro
      @ToneSabro  5 місяців тому

      Thank you for sharing! 🌹 I’ll look into it.. Hope you get well soon. ♥️

  • @See_you_next_timee
    @See_you_next_timee 6 місяців тому +1

    Have you tried sudocream and take seven sea cod liver oil with omega 3

  • @bradleyjamesyoga851
    @bradleyjamesyoga851 6 місяців тому

    Yikes is this from the blackout work and white afterwards? I've been thinking about getting my arm blacked out, but this is making me reconsider

    • @ToneSabro
      @ToneSabro  6 місяців тому +1

      You should watch the previous vids and get informed before you jump to conclutions.

  • @HenriqueLima026
    @HenriqueLima026 6 місяців тому +1

    🇧🇷🇧🇷