Medications and Diet for Ataxia Symptom Management with Dr. Susan Perlman

There are a number of medications and dietary changes that can be used to address symptoms caused by Ataxia. Dr. Perlman will review things that her patients have found helpful. Use these ideas to discuss options with your physician.
Speaker: Dr. Susan Perlman
Speaker Bio
Dr. Susan Perlman is a graduate of Cornell University and the State University of New York at Stony Brook School of Medicine. She did an internship in medicine, her residency in neurology, and a two-year fellowship in Friedreich’s Ataxia at UCLA Medical Center. Dr. Perlman is currently a Clinical Professor of Neurology and Director of the Ataxia Center at the UCLA Medical Center in Los Angeles, CA. She has been head of the Ataxia Center at UCLA since 1983. She has worked in Ataxia diagnosis for over 30 years and has networked with other “Ataxologists” across the country and around the world, trying to build better collaboration in the development to treatments and ultimately cures.
For more information on Ataxia, please visit our website: www.ataxia.org
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As interest continues to grow from the pharmaceutical industry in developing drugs to treat Ataxia, we believe that collaboration among researchers, clinicians, pharmaceutical companies, and Ataxia patients is at a critical moment. Each of these groups must work together, as partners, to advance progress toward better patient care and more effective treatments for Ataxia. 2023 AAC was a place to connect, learn, and take action toward accelerating treatment development!

[@sheldonf]

Thank you! Ataxia is a serious condition that is mostly overlooked by the medical industry. I started immediate symptoms of Ataxia after a stroke in 2020. Terrible, bad balance in both legs and my right arm no longer works properly. Cannot stand with eyes closed or eyes covered. Difficulty walking, can't bend my legs, squat, kneel, write or touch my feet anymore. Rheumatologist had no idea after extensive testing. The neurologist misdiagnosed me as having neuropathy. Much appreciation!

[@ataxiafoundation]

We hope this resource was helpful. We have a webinar coming up later this month on April 30th at 11:30 am CDT about Ataxia Caused By Stroke. During this webinar, clinical expert Dr. Jeremy Schmahmann will give us insight into the causes and symptoms of the disease, the typical diagnostic journey for those affected, & what to expect for clinical care.
Register here: us02web.zoom.us/webinar/register/9817087071211/WN_N-FO9KGURNm8wdlON0aspA

[@sheldonf]

@@ataxiafoundation Thank you!

[@SathishKumar-rr1ii]

very good speech

[@Rajveergillcom]

Which type pf diet helpful in ataxia

[@VernonRhem]

I would like to try this drug going to call pizer had a bad stroke, and I 16:17 was still suffering a year 😢 nerologist, though

[@VernonRhem]

I had a stroke ataxia is the reason i am in rehab

[@ataxiafoundation]

We have a webinar coming up later this month on April 30th at 11:30 am CDT about Ataxia Caused By Stroke. During this webinar, clinical expert Dr. Jeremy Schmahmann will give us insight into the causes and symptoms of the disease, the typical diagnostic journey for those affected, & what to expect for clinical care.
Register here: us02web.zoom.us/webinar/register/9817087071211/WN_N-FO9KGURNm8wdlON0aspA