If many there are calcificates and SVC trombosis and some other vessels are pushed by the fibrosis, bronchies obstruction , is there any medication threatment to shrink it if there is fungi causing it for example, or only surgery high risked? I read that there is study at mayo cliinic to reverse fibrosis will be finished at august, it was some dopamine D1 receptor based study, is there a way to cure this
How fast does the scarring grow and progress in the lung. Will it keep growing or does it ever stop? I have the disease and I’ve been diagnosed since 06/2021
It is hard to predict. Some cases don't really progress significantly, others do progress, but usually slowly. Most patients get follow up imaging (chest CT with contrast) 6 months after diagnosis to see if there has been change.
@@ThoracicRadiology Oh ok. Back in June, my mass was 3.2 cm, and I got another ct scan in Oct and it grew to be 5.6 cm and that was within months. Do you think that’s significant within the timeframe? I’m not sure if it’s grown much since then but I’m due for another scan in March. I’m asking because I’m nervous because where the scarring is located and how’s it affecting my every day life. What happens if it growth keeps getting bigger?
@@kaylahall3510 hey Kayla I see this comment is a year old but I have unilateral fibrosing mediastinitis the growth of that mass is extremely quick and I hope your doing well now I have a 3cm that hasn’t grown much and calcifications in my right hilar region they hurt like hell and have been hurting sense 2021 hope your condition is ok and your healthy
Histoplasmosis patient here with right unilateral/ calcification. Thank you for this illustration.
Excellent video, thank u so much.
My brother has the same diagnose
Fibrosing mediastinitis CTEPH and pulmonary vein stenosis
AMAZING !
Fibrosing mediastintis is not curable?
Thanks
Thanks a lot
If many there are calcificates and SVC trombosis and some other vessels are pushed by the fibrosis, bronchies obstruction , is there any medication threatment to shrink it if there is fungi causing it for example, or only surgery high risked? I read that there is study at mayo cliinic to reverse fibrosis will be finished at august, it was some dopamine D1 receptor based study, is there a way to cure this
How fast does the scarring grow and progress in the lung. Will it keep growing or does it ever stop? I have the disease and I’ve been diagnosed since 06/2021
It is hard to predict. Some cases don't really progress significantly, others do progress, but usually slowly. Most patients get follow up imaging (chest CT with contrast) 6 months after diagnosis to see if there has been change.
@@ThoracicRadiology Oh ok. Back in June, my mass was 3.2 cm, and I got another ct scan in Oct and it grew to be 5.6 cm and that was within months. Do you think that’s significant within the timeframe? I’m not sure if it’s grown much since then but I’m due for another scan in March. I’m asking because I’m nervous because where the scarring is located and how’s it affecting my every day life. What happens if it growth keeps getting bigger?
How are you now ? My brother has the same diagnose.
@@kaylahall3510 hey Kayla I see this comment is a year old but I have unilateral fibrosing mediastinitis the growth of that mass is extremely quick and I hope your doing well now I have a 3cm that hasn’t grown much and calcifications in my right hilar region they hurt like hell and have been hurting sense 2021 hope your condition is ok and your healthy
I'm suffering from fibrosing mediastintis? Please give me advice which medicine is treated for this disease?
It's a good job 👏
Thank you! You’re an amazing teacher! 😊
Very nicely explained. Thank you sir. Keep up the great work.
Amazing and wonderful explanation… thx
such clear explanations, and wide knowledge 👍🏻
Amazing .. thank you
Rishi sir, so much love for sharing 😍❤️❤️
Thank you so much
many thanks
Danke schön