Hi. I had 3 blood clots in my lungs May 2019. I have never been the same. On blood thinners for the rest of my life. The damage has left me easily fatigued and I finally had to give up work August 2023. I regularly become short of breath and with other on going issues I will never work again. I'm only 55. Keep fighting and best of luck.🥰
Thank you for all your valuable info, experience and support!! I was diagnosed this week and this is my first day day home.. so glad I found you. 💕🙏😊🌞🌸
So sorry you are going through it! I'm glad my videos have helped, I plan on doing some more but I've recently travelled back to the UK to visit family so there will be a delay. Maybe check out my top tips for recovery video as there's some useful things in there I wish I'd known from the beginning! Good luck in recovery, I hope you feel better soon :)
@@MelsHealth Thank you so much for the information. Did the doctor say you will stay on the blood thinner also the doctor say what was your d-dimer was?
@@marjn1030 Hi, I am on blood thinners for life so currently taking Warfarin everyday. I had a ddimer around the 3 month mark but I believe but I don’t know what the result was without looking into my medical notes.
I’m also like an old person shuffling around. I wish I had so many reviews I have not seen a doctor in person since. I feel the same as you I pushed myself at the start as I thought it would be a quicker recovery. And now I feel like I have hit a plateau for the last two months . It’s so depressing
It's a horrible time and it just keeps going. I think after a certain amount of time the docs just don't have answers and can't offer anything further so we just end up plodding along.
Thanks for all you put into your channel. I can hardly believe nobody told me about the recovery and even a hint about how long I'd feel symptoms post P.E. I am 1 month post P.E. Thanks for the info hope you and yours a Happy New Year
Review, what review?! You’re very lucky to have had any review at all...I had one day in A&E with a large PE and was sent home with Apixaban for, supposedly, three months. After many calls and nagging my Dr surgery finally organised a blood test after three and a half months but wouldn’t see me. The result of that, after now seven and a half months is that I finally have received a letter from Haematology at the local General saying I should be given an appointment date within TWO MONTHS! Just a date, so who knows how long it will be before I actually get to see anyone! No one in UK gives a stuff anymore, unless you have Covid. Hope your appointment went well and thank you so much for explaining all the stuff my doctors should be! Good luck with your ongoing recovery and love from England!
Ugh that sounds frustrating. It’s amazing to see how everyone is treated across the globe and how different the processes are. I think I was indeed lucky to be referred to a thrombosis clinic nearby and have ongoing regular support. Hopefully you get some more involvement now you have the haematologist onboard.
I’m the same large pe in November I was told I was dying as I could not be treated as I’d just had major surgery. Luckily I got through it . I was told I had strain on my heart . I have heard nothing I can’t work I’m so tired and still breathless my gp just says oh you poor thing and signs me off. I had a review last week over the phone with the consultant who didn’t have much advice. I am having a follow up echo in a few weeks time but I have not seen anyone since it’s been a very frightening time xx Thanks for these videos mel
So I figured that most of my pain is psychosomatic. The pulmonologist, gave me Xanax and Methylcolabamin (active Vitamin B12). When I used Xanax all pain went away after 20 minutes and came back after 1-3 days. The Methylcolabamine is for nerve damage, which support the nerve recovery. Now after 1o Month of pain, In 1 Month all my pain was gone (because it was not real).
❤hi here's some sound advice to consider. What is causing your ongoing pain in your neck and breathlessness and walking is,nt your recovery time its your medication Eliquis and three other DOAC,s called direct oral antiguagulants the sise effects from these drugs are responsible for all your pain l used to be on warfrin for a dvt l had then one day my doctor rang me a said hey Martin there's this new drug blood thinner l think you should swap to you just pop one drug a day no blood monitoring or appointments at the clinic for blood inr testing l thought great then my nightmare began these doacs caused hives skin rash breathlessness walking differ ulties hair loss tightness pain in chest back and shoulders dizziness to name a few l suffered these for over a year with no improvement l demanded that my doctor return me to warfrin with some differculty he did since then everything has inproved no more side effects yes its a hassle going to the clinic every month taking blood to check INR but hey better that then those side effects for sure did l also mention spasm of tightness in lower calves when walking Go onto warfrin if you can pet you,ll be safe and most of your side effects will go wishing you well from england
Hi, thank you for the comment. Not sure which videos you’ve seen on my story but Warfarin is actually my prescribed medication. I’m a lifer on warfarin and have been on it for over 3 years. My dad is also a warfarin lifer and has taken it for around 30+ years so I’m in agreement with you that it’s the better choice as it’s over 50yrs old, tried and tested. I’ve made some videos specifically on Warfarin too. I started on Apixaban/Eliquis when I was first diagnosed and in hospital but due to my dad’s history taking Warfarin and the success there I was switched over after 6 months. Unfortunately that means my on going pain etc isn’t due to one of the newer DOACs.
Discharged today with multiple same meds I’m scared for my life Iv abused my body for a lil time and got clean 4 months ago but relapses today I feel like I’m slowly committing pain slow suicid I’m scared
@@jaykay7120 sorry to hear about your situation. It’s definitely a scary time and has to be taken seriously. Hope you’re getting the support you need and if not I hope you can reach out to local services for help.
@@MelsHealth thank you I’m in the hospital again they have found e some bacteria in my blood, and yesterday I was assaulted in the uk with 2 lads with knifes a fight broke out and they kicked me in the head and gave me adm eyes in just happy I wasn’t stabbed… I seem to be having a wonderful time at the moment they also took all my money that was to last me the month so now I’m in a position we’re I’m stuck and at my worst end the hospital have offered no dirtier support regarding my blood clots so when I get seen today I will ask them what support they can provide …. S
@@jaykay7120 everything going on back home at the moment seems horrendous. I watch a lot of the updates on X (twitter) as it’s the only way to see what’s happening. Getting assaulted whilst on blood thinners is awful, make sure they check for internal bleeding. As for local services, not sure where you are but I used to work for CGL back when it was CRI in the UK. The services in Sussex were abundant so hopefully there is something similar wherever you are.
Interesting, I had a PE and they kept me 9 days on oxygen and injections and told me I also had severe COPD then sent me home with Eliquis and an appointment in a year for follow up. After a year she lowered the dose of Eliquis but told me it was for life because they don't know why I had the PE. No other information except don't fall and hit your head.
Hi. I had 3 blood clots in my lungs May 2019. I have never been the same. On blood thinners for the rest of my life. The damage has left me easily fatigued and I finally had to give up work August 2023. I regularly become short of breath and with other on going issues I will never work again. I'm only 55. Keep fighting and best of luck.🥰
Thanks. I had a PE just 9 days ago and found this video reassuring.
Just left ER with this problem. Thank you for your information shared!!!
Make sure you keep up with what your bod is tell you . I am in month 11
Thank you for all your valuable info, experience and support!! I was diagnosed this week and this is my first day day home.. so glad I found you. 💕🙏😊🌞🌸
So sorry you are going through it!
I'm glad my videos have helped, I plan on doing some more but I've recently travelled back to the UK to visit family so there will be a delay.
Maybe check out my top tips for recovery video as there's some useful things in there I wish I'd known from the beginning!
Good luck in recovery, I hope you feel better soon :)
@@MelsHealth Thank you so much for the information. Did the doctor say you will stay on the blood thinner also the doctor say what was your d-dimer was?
@@marjn1030 Hi, I am on blood thinners for life so currently taking Warfarin everyday. I had a ddimer around the 3 month mark but I believe but I don’t know what the result was without looking into my medical notes.
I’m also like an old person shuffling around.
I wish I had so many reviews I have not seen a doctor in person since.
I feel the same as you I pushed myself at the start as I thought it would be a quicker recovery. And now I feel like I have hit a plateau for the last two months . It’s so depressing
It's a horrible time and it just keeps going. I think after a certain amount of time the docs just don't have answers and can't offer anything further so we just end up plodding along.
Thanks for all you put into your channel. I can hardly believe nobody told me about the recovery and even a hint about how long I'd feel symptoms post P.E. I am 1 month post P.E.
Thanks for the info hope you and yours a Happy New Year
Review, what review?! You’re very lucky to have had any review at all...I had one day in A&E with a large PE and was sent home with Apixaban for, supposedly, three months. After many calls and nagging my Dr surgery finally organised a blood test after three and a half months but wouldn’t see me. The result of that, after now seven and a half months is that I finally have received a letter from Haematology at the local General saying I should be given an appointment date within TWO MONTHS! Just a date, so who knows how long it will be before I actually get to see anyone! No one in UK gives a stuff anymore, unless you have Covid. Hope your appointment went well and thank you so much for explaining all the stuff my doctors should be! Good luck with your ongoing recovery and love from England!
Ugh that sounds frustrating. It’s amazing to see how everyone is treated across the globe and how different the processes are. I think I was indeed lucky to be referred to a thrombosis clinic nearby and have ongoing regular support.
Hopefully you get some more involvement now you have the haematologist onboard.
I’m the same large pe in November
I was told I was dying as I could not be treated as I’d just had major surgery. Luckily I got through it . I was told I had strain on my heart . I have heard nothing I can’t work I’m so tired and still breathless my gp just says oh you poor thing and signs me off. I had a review last week over the phone with the consultant who didn’t have much advice. I am having a follow up echo in a few weeks time but I have not seen anyone since it’s been a very frightening time xx
Thanks for these videos mel
So I figured that most of my pain is psychosomatic. The pulmonologist, gave me Xanax and Methylcolabamin (active Vitamin B12). When I used Xanax all pain went away after 20 minutes and came back after 1-3 days. The Methylcolabamine is for nerve damage, which support the nerve recovery. Now after 1o Month of pain, In 1 Month all my pain was gone (because it was not real).
❤hi here's some sound advice to consider. What is causing your ongoing pain in your neck and breathlessness and walking is,nt your recovery time its your medication Eliquis and three other DOAC,s called direct oral antiguagulants the sise effects from these drugs are responsible for all your pain l used to be on warfrin for a dvt l had then one day my doctor rang me a said hey Martin there's this new drug blood thinner l think you should swap to you just pop one drug a day no blood monitoring or appointments at the clinic for blood inr testing l thought great then my nightmare began these doacs caused hives skin rash breathlessness walking differ ulties hair loss tightness pain in chest back and shoulders dizziness to name a few l suffered these for over a year with no improvement l demanded that my doctor return me to warfrin with some differculty he did since then everything has inproved no more side effects yes its a hassle going to the clinic every month taking blood to check INR but hey better that then those side effects for sure did l also mention spasm of tightness in lower calves when walking Go onto warfrin if you can pet you,ll be safe and most of your side effects will go wishing you well from england
Hi, thank you for the comment. Not sure which videos you’ve seen on my story but Warfarin is actually my prescribed medication. I’m a lifer on warfarin and have been on it for over 3 years. My dad is also a warfarin lifer and has taken it for around 30+ years so I’m in agreement with you that it’s the better choice as it’s over 50yrs old, tried and tested. I’ve made some videos specifically on Warfarin too. I started on Apixaban/Eliquis when I was first diagnosed and in hospital but due to my dad’s history taking Warfarin and the success there I was switched over after 6 months.
Unfortunately that means my on going pain etc isn’t due to one of the newer DOACs.
Discharged today with multiple same meds I’m scared for my life Iv abused my body for a lil time and got clean 4 months ago but relapses today I feel like I’m slowly committing pain slow suicid I’m scared
@@jaykay7120 sorry to hear about your situation. It’s definitely a scary time and has to be taken seriously. Hope you’re getting the support you need and if not I hope you can reach out to local services for help.
@@MelsHealth thank you I’m in the hospital again they have found e some bacteria in my blood, and yesterday I was assaulted in the uk with 2 lads with knifes a fight broke out and they kicked me in the head and gave me adm eyes in just happy I wasn’t stabbed… I seem to be having a wonderful time at the moment they also took all my money that was to last me the month so now I’m in a position we’re I’m stuck and at my worst end the hospital have offered no dirtier support regarding my blood clots so when I get seen today I will ask them what support they can provide …. S
@@jaykay7120 everything going on back home at the moment seems horrendous. I watch a lot of the updates on X (twitter) as it’s the only way to see what’s happening. Getting assaulted whilst on blood thinners is awful, make sure they check for internal bleeding. As for local services, not sure where you are but I used to work for CGL back when it was CRI in the UK. The services in Sussex were abundant so hopefully there is something similar wherever you are.
May I ask, did your clots ever clear? Thanks
Hi, yes they did. After I was switched to Warfarin I had another scan 3 months later and the clots had gone.
@@MelsHealth Wow.. Congrats to you. I guess warfarin was the difference for you, I will check your video on that subject. Thanks.
Interesting, I had a PE and they kept me 9 days on oxygen and injections and told me I also had severe COPD then sent me home with Eliquis and an appointment in a year for follow up.
After a year she lowered the dose of Eliquis but told me it was for life because they don't know why I had the PE.
No other information except don't fall and hit your head.