This February marked 10 years since my diagnosis. A LOT has changed since then, both within my own body and in the treatment of MS in general. All we can do is take each day one at a time and make the most of it. You've obviously come quite a long way since one year ago. Your choice to express yourself through your artwork has clearly helped get you back on your feet. I wish you nothing but positive energy and progress as you continue on this journey with MS.
Thank you so so so much for the kind words!!🥺🧡🧡 and wow your MS is almost old enough to start middle school (at least in Germany) how have you been these past 10 years??
August 1st will be my 6th anniversary for diagnosis, September 1st will be the 6th anniversary of my two week hospital stay after a major fall during the flare-up. I week in the main hospital and the following week in the rehabilitation wing relearning how to walk and use my hands again.. Good job making it this far! Remember, you are not alone.. there are many of us with you in heart and mind! We are Legion? 😂
I know what you mean... my first flare up was super harsh as well. I had vision problems, balance issues, vertigo, extreme fatigue... took me months to feel like myself again 😣 but now almost 6 years after your start of MS... how are you today??
I'm generally 'ok', at least as much as I can be. First year was pretty rough because they hadn't determined that my case was Primary Progressive MS yet so they started me on Gilenya (fingolimod) but after that year the MRI's showed further lesion formations meaning all it was doing was stimming the tides. They switch me over to the Ocrevus, which is really the only thing for PPMS and the lesion formation slowed dramatically until my results in February showed no new lesions and one spot that they thought was forming on the last MRI had cleared up. My biggest issues now are the extreme fatigue and for me, short-term memory problems and lack of focus. and for someone who has one of those over analytic minds that runs at extremely high TPS (thought per second) I can easily start something and within seconds get distracted and not remember what I was doing or thinking the moment before. Its just very frustrating for me because I had always had excellent memory both short and long-term. I still have great long-term if I can get the memories to that point. Unfortunately we will never be what we once were, even if they ever found a cure we would maintain the damages we already have. The key seems to be acceptance. Not by or from others but of ourselves. Once you start to do that, you will start looking back and noticing things from your past that was most likely related too or caused by the MS. Sometimes that can clear up some of those 'WTF' moments and/or questions about events and decisions that happened in our past. It's very important to see and focus on the little victories that we have each day and to remember that if that day you feel like there weren't any, that you remember that Tomorrow is another Day!
Unbelievable it's already a year, but also it's amazing what you achieved in this time! 👏👏👏
Thank you!!🧡
This February marked 10 years since my diagnosis. A LOT has changed since then, both within my own body and in the treatment of MS in general. All we can do is take each day one at a time and make the most of it. You've obviously come quite a long way since one year ago. Your choice to express yourself through your artwork has clearly helped get you back on your feet. I wish you nothing but positive energy and progress as you continue on this journey with MS.
Thank you so so so much for the kind words!!🥺🧡🧡 and wow your MS is almost old enough to start middle school (at least in Germany) how have you been these past 10 years??
August 1st will be my 6th anniversary for diagnosis, September 1st will be the 6th anniversary of my two week hospital stay after a major fall during the flare-up. I week in the main hospital and the following week in the rehabilitation wing relearning how to walk and use my hands again..
Good job making it this far! Remember, you are not alone.. there are many of us with you in heart and mind! We are Legion? 😂
I know what you mean... my first flare up was super harsh as well. I had vision problems, balance issues, vertigo, extreme fatigue... took me months to feel like myself again 😣 but now almost 6 years after your start of MS... how are you today??
I'm generally 'ok', at least as much as I can be. First year was pretty rough because they hadn't determined that my case was Primary Progressive MS yet so they started me on Gilenya (fingolimod) but after that year the MRI's showed further lesion formations meaning all it was doing was stimming the tides. They switch me over to the Ocrevus, which is really the only thing for PPMS and the lesion formation slowed dramatically until my results in February showed no new lesions and one spot that they thought was forming on the last MRI had cleared up. My biggest issues now are the extreme fatigue and for me, short-term memory problems and lack of focus. and for someone who has one of those over analytic minds that runs at extremely high TPS (thought per second) I can easily start something and within seconds get distracted and not remember what I was doing or thinking the moment before. Its just very frustrating for me because I had always had excellent memory both short and long-term. I still have great long-term if I can get the memories to that point.
Unfortunately we will never be what we once were, even if they ever found a cure we would maintain the damages we already have. The key seems to be acceptance. Not by or from others but of ourselves. Once you start to do that, you will start looking back and noticing things from your past that was most likely related too or caused by the MS. Sometimes that can clear up some of those 'WTF' moments and/or questions about events and decisions that happened in our past. It's very important to see and focus on the little victories that we have each day and to remember that if that day you feel like there weren't any, that you remember that Tomorrow is another Day!
4 years and my lower body hurts
So sorry to hear that.. hope you're, besides of your back, okay nonetheless 😣🧡🧡
Lucifer Is Here For You^^
Pshhh Lucifer is only my lover, Samael is my significant other😉
@@adamslilith-art I Forgot That I Had Already Told You My Name LOL.