Starting Vyepti & a story from the ICU
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- Опубліковано 9 січ 2024
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How to Have an Incredible Life with Very Real Challenges | Warriortude - • How to Have an Incredi...
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🎵MUSIC: Artlist.io
🎥FILMED: Novembery 09, 2023
[Visual Description:
Text Found in all of Kelly's videos:
Text Beginning of the Video: Tiktok + Instagram: @IncredibleAnway
Text At The End of the Video: During the closing music, the end card has a photo of Kelly standing with a blue cane in her right hand and holding onto a handle on Golden Retriever Benevolence's green service dog cape. Kelly is wearing a blue T-shirt with Anna from Disney's "Frozen" on it that says"Live Your Truth." Service dog Benevolence is standing on Kelly's left side. Pet dog Dash is laying on the ground next to Kelly with his head on the ground next to Kelly's cane. The screen reads" Subscribe to Incredible Anyway with an arrow pointing to where the Subscribe Button is. Above Kelly's head is her Tik Tok and Instagram Handle.]
![ОРБАН приехал к ПУТИНУ и "отчитался" о поездке в Киев 😁 [Пародия]](http://i.ytimg.com/vi/_0ukDovOWq8/mqdefault.jpg)
I hope to start Vyepti soon. I was supposed to get it two days ago but I had Covid.Still waiting for a rescheduled appointment. I also have a service dog. Thank you for your video.
Oh no! That is terrible you have had Covid adn that interrupted getting Vyepti! Are you feeling better? I’m so happy to meet you! I HOpe you and your SD make it to get the infusion soon. Please tell me how it goes for you if you’d like.
I love your joy when BTS is on. ❤😀.
I still get that smile on my face when i watch my old Caught in the Act (boyband from the 90's) dvds.😀
So what a good idea to take your ipad to keep yourselve comfortable during infusions. 👍
Yes! Indeed it is very important to advocate for yourselve when in contact with healthcare personel. I shure try to do that to. For myselve aswell as for my husband. You know the best what you want or need on or in your body and how they need to do things.
😂 Super friend that girl! (Shanna) at least you can be sick in style, right. 😁❤
Hugs Marloes❤ oh haha oeps i whas still logged on on this accound. 😉😘
Aw thank you for sharing my joy. I love that you had a band that gave you the same smiles! Way to go for advocating for yourself and your husband too! Healthcare providers won't know what we are thinking or the problems we are having if we don't speak up. Hehe yes! I can be sick in style with that purple bag. Hugs back to you my friend.
That’s so crazy. They always scan bracelets but i guess if they were down computers that wasn’t working either ❤ 13:57
Yeah, something was really messed up with their computers. The hacker was holding the system for ransom and asking the hospital system to pay an exorbitant amount of money to get the system back. But the health system didn’t want to give into the hackers and decided to rebuild their system from the ground up instead of paying the money to get their system back. Was not the best time to have brain surgery, but of course I didn’t know until after.
I hope it helps. Migraines are hell. I dont know what will help me but i cant live like this. It's every second. Also good on you for advocating. Its so hard sometimes. We have to advocate for ourselves so many times.
I'm so sorry to hear you are struggling. I really understand how hard it is to have one every second of every day. Are you seeing a migraine specialist? Migraines are hell and you are a true warrior for enduring. There is hope - keep holding on. Rooting for you. Please let me know if I can be of any help.
@@IncredibleAnyway Thank you so much 🙌 I've gone through different neurologists. Had so many meds that didn't work, supplements, electronic devices. I put off injections cause I'm prone to reactions. But am probably gonna give Ajovy a go. I'm wheelchair bound now in part due to the migraines being so severe. Can hardly move from my bed other than using a walker or cane to the bathroom and back. My equilibrium can't handle it so I can't stand for more than a minute. Been bed ridden for a long time now. It's been this and breathing issues. I hope things get better.
@@Ashsplashofcolor Ugh, I hate you have gone through all of that. I really hear you because I have gone through all of those medications and supplements and devices too. It can be so disheartening when the suffering is so severe every single second. I wish I could give you a hug because I really get it and I know what it takes to get through it but also how wearing on the soul it is. I really hope that the injections don't give you a reaction. That's a great idea to try a CGRP inhibitor since you haven't found relief yet. I found relief from nothing for 12.5 years before Aimovig came out in 2018. And it really was shocking to me when it helped me some. I hate that Migraines have limited your mobility so much, but I get it. Being in bed all the time really drains the muscles of strength. I'm sorry you have breathing issues too. I also hope things get better. The CGRP inhibitors help so many.
I was on qulipta but taken off because the nausea caused me to start losing weight rapidly and it wasn’t working so they started me on ajovy and I’m not sold on it.. I’m giving it one more dose but so far it hasn’t helped so I’m adding nerve block to my Botox next month out of desperation and I’m currently taking a steroid pack in order to avoid the depacote she wants to push on me now bc I really really don’t want that… feeling defeated
I'm with you. May start Ajovy soon. Migraines 24/7 I can't stand for more than a minute and bed ridden now. Migraines are so horrible.
@alisa8229 That is too bad qulipta caused such severe nausea and wasn't working. How long have you been on the ajovy? I'm sorry it isn't helping. That really sucks. Have you tried any of the other CGRP inhibitors (aimovig, emgality, vyepti)? Sometimes people have better success with one more than the others. I really hope that the nerve block helps you with the Botox. I can understand wanting to avoid depacote. And I *really* get feeling defeated. Going through the Migraine prevention trial and error roller coaster is a nightmare and sucks hope dry. I'm thinking of you. There is hope. Keep going. You're not alone - I really understand. Sending hugs
@AshRaeplays (((hugs)))
Was your surgery a success? Do you get dizzy anymore? Are you able to drive yourself?
Recovery for the surgery is long and I’m still healing - the brain is still healing. BUt I’m doing SO much better than I was. I have zero Meniere’s attacks which is Fabulous! Still have challenges with balance and less so with vertigo, though it is still there at times. But the vertigo is definitely a result of my brain healing from the surgery. I will get to a place of 0% vertigo - the brain just takes time. I am not able to drive yet. But I will. I’m still getting vestibular physical therapy adn that is really helpful. I’m really thrilled!
@@IncredibleAnyway that's amazing. I'm so happy for you. They thought I had meiners and so I was looking for treatment to stop it. And then woke to a sore jaw. And come to find out, I have TMJ which also causes, ringing ears, dizziness, nausea and headaches.
So I had wisdom teeth pulled and treatment for TMJ and ringing ears gone, dizziness gone. Its amazing!
I was told by my oral surgeon that so many are misdiagnosed and it's often hard to diagnose because the ears,jaw are all connected.
Anyways I'm glad it helped you. Your fur babies are beautiful and you are a beautiful soul.
Thanks for Sharing your story! It helped to know that there is hope out there even with dibilitating illnesses.
@@russellmania4542 Oh my gosh, thank you so much for sharing!! I am over the moon hearing that the TMJ treatment and having your wisdom teeth pulled (ouch!) lead to the dizziness going away. That is Fabulous! I hate you have had TMJ, but so happy that it isn’t Meniere’s. Thank you for the kind words. That means so much to me. I’m so glad my videos brought you hope. That is my goal - that even one person feels less alone and knows there is hope. Cause we’re truly in this together -life is hard sometimes. So many people have helped me know I’m not alone that there is hope and life with chronic illness.
Sending you so much support and love Kelly. I’m also a fellow chronic migraineur and Meniere’s survivor and thriver!! I’m so thrilled to hear that you’re doing better from the surgery and healing and getting better and better every day. So sorry to hear about the severe migraines though. As crazy as this sounds, my Meniere’s diagnosis was actually the key to getting my most intractable migraines more under control so it’s been a big of a godsend for me getting diagnosed after it being missed (the vestibular Meniere’s) for a long time. Hoping I’ll be able to keep the Meniere’s under control well, but will be educated and prepared if it gets bad. That’s the one benefit of being a long term migraineur. The only way I’ve been able to get good treatment is being my own advocate. Like you said, it’s critical!! Gotta speak up when you know what you need and don’t need. Hope you’re doing better and your pain level is down now. ❤
Kelly so glad you’re doing so much better, thank you so much for sharing your story and keeping us updated on your progress. You are so right about speaking up if things don’t seem right. You’re such a gem, love your teachable moments. Glad you got BTS as your go to comfort. Take care and as always this Prayer Warrior says Continued Prayers for Recovery Kelly! ❤Helen