Things I wish I knew before starting Chemotherapy
Вставка
- Опубліковано 30 сер 2023
- Chemotherapy and going through cancer is a scary thing, after having it twice I consider myself a cancer beating pro. So these are my tips and adivce for chemotherapy and cancer!
My Socials
/ alex1leg
www.tiktok.com/@alex1leg?lang=en - Розваги
Despite the fact that I have never had cancer, I can relate a lot to your story with the hospital smells which are really disgusting, training nurses Foods that remind me too much of the hospital etc.I could also relate with the fact of not really saying how I feel and that humor helps
I swear I see a picture of the hospital and I just know how it smells hahaha
@@Alex1Leg I do to
3 REPLIES
cleaner and puke@@Alex1Leg
God bless all
My mum was diagnosed with cancer recently and it's been really tough, her survival odds are looking pretty good from what I've been told (she's starting chemo in a few weeks so I'll probably show her this video) but it's still really scary for everyone. Thank you for your videos, your positivity and love of life is inspiring and makes it all a little less intimidating
That you for sharing this! I have the same type of cancer as you and I'm around the same age you were the fist time (Im 14) ! I actually discovered your channel only a couple of weeks before I found out so your videos have been very helpful! ❤
Good luck with treatment, you've got this! ❤️
You’ve got this, I’m wishing you lots of luck on your journey. Sending love 🫶
Gl man, hope you get through it❤
I had cancer once. Stage 2 testicular cancer. Luckly, they caught it quick and I got a quick surgery. But, if it wasn't caught quick enough, I was told I would've started chemo. I could not have imagined such a thing, and I have always been so grateful that I've gotten to never experience that. You guys who actively get chemo are the bravest and strongest people and you go through what most people couldn't even imagine. To all of you currently taking chemotherapy ❤ hope you all get better, you all truly deserve the best in life
Hey bud, thank you so much for sharing this. Even though I haven't gone thru chemo and only did radiation treatment for my type of cancer, unfortunately the radiation didn't kill the tumor. I'm scheduled for surgery next week and hoping they get it all this time. On the off chance that it does come back for the 3rd time and they do decide to put me on chemo, this info is good to know. Keep up the positivity and great content. 💪🏻🤙🏻🎗️
Hoping for the best :)
@@Dulp1 thanks so much, I appreciate it.
Fuck cancer man, wish you the best ❤
@@Sietse2202 thanks so much and hell ye, f**k cancer.
@@Ro11erDemon 🤓🤓🤓
Cancer sucks. It took the life of someone close to me away from me. The person I am talking about was my mentor. He had transitional cell carcinoma, I would go daily to visit him. But, unfortunately, cancer took his life away.
I hate the disease of cancer, and what it does to the families. My family has become so much dysfunctional after the passing of my grandma's brother. He was a rock for us, a steady rock. He held us together. And now, we all are drifting away from each other. I hate it, but that's cancer.
I am so glad that you overcame cancer. I am so happy for you. Keep making positive content, dude. The world needs it.
My condolences to you and your family. My family experienced something similar especially a drift at times but we were able to come together. Sending all the love to you, don't let cancer get in the way of you and your family hoping for the best!
@@Alex1Leg Thanks man. I believe in time. It’ll heal us.
Alex what an amazin guy you are‼️Appreciate you're CANDID honest thoughts on your tough journey‼️ I have Leukemia, thankfully level zero.
I hope u are doing well man! god bless u
6:15 I was taking upwards of 50 pills per day at one point... Your videos genuinely put a smile on my face, hearing everything you describe being so incredibly similar to my experience with chemo is really comforting for me. It's so easy to feel almost alienated because your body just becomes almost unrecognizable. Also I can really confirm what you say at 7:47, I started writing notes on social media, so that not only the people around me knew how I was feeling, but also so I knew how I was feeling. Looking back I'm so incredibly happy I did that, because I just don't really remember much. Fatique and as you say "chemo brain" was just so overwhelming that I never really stopped to think about what was actually happening.
God bless you and your family and all
I have such respect and admiration for you Alex! How bravely you taken on these life altering challenges with noble perseverance and determination with a bit of humor!! So awesome and inspiring! God Bless You Alex!! 🙏🙏❤️
This was super helpful my chemo starts in two weeks and I was really scared worried about what can I happen but this really helped
are you okay
I'm so happy I stumbled onto your yt shorts content a while ago. You are literally my favorite cc you're so positive and uplifting but also real. Your drive especially with the marathon to fight for others is incredibly admirable. people like you are so rare to come by, so keep doin you man love your stuff!!
Im actually really happy to hear about someone’s experiences with cancer, especially since on both sides of my family i have a higher chance of getting it. So thank you and I will very much take this to heart if this does happen to me or another loved one. 💖
Wow! Thank you Alex for sharing your deep and personal story. When I see your videos I smile! You are so positive and joyful, encouraging and affirming. Your journey through the difficult dark moments led you to new hope and new peace. You have walked through darkness and now dance in the light!
god thi video is beauiful i had cancer a few years back i would of loved to of had this video back then your last message at the end is what i needed im glad you are okay now iv been cancer free for 2 years now i lost my leg from above the knee as well i love your content and what you do i would love to make content like yours as well but i have no idea what i would talk about but thank you for always sharing your story and making funny and sometimes dark jokes i cope the same way people around me sometimes cant handle the jokes but dark humor is the best way to sometimes just make yourself laugh
Thank you so much for your story and being open about everything. Definitely felt the same “frog in my throat” going through stage 2 TC and 4 months of chemo, but it’s so much easier to talk openly about it. Chemo is the F-ING WORST, and definitely wanted to give up plenty of times, but it made through the worst of it hopefully. I’m currently struggling with post-chemo “depressive” mood swings and slowly figuring it out. Not sure if you or anyone here has experienced this before, but would greatly appreciate any advice. Appreciate you
I’m almost 17 and I’m from Alberta, Canada. I go through the same depressive mood swings that you are talking about. I got diagnosed with a brain tumour May 31st 2022, got invasive brain surgery, 5 months of chemotherapy, 2 months of radiation to my brain and spine. It’s getting closer to a year after everything but I’m still processing what’s happened to me after months of trying to avoid and block out my feelings so I could just get through it. What’s happening to you happens to a lot who has been through such a traumatic experience. I certainly can relate 100% to what your saying about the depressive states, I get them all the time. My personal advice to you would be to keep on pushing forward and to do whatever brings you joy. Chemo definitely f*cking sucks.
@@ChiefSuperior thanks so much for your reply and sharing your story! Can totally relate about bottling things up to make it though, and maybe that’s what it truly is; coming to terms with everything you went through and being overwhelmed by those feelings. I’m 5 months out of chemo and 11 months since orchiectomy, so still pushing through these latent physical and mental symptoms. I wish you the best of luck!
@@TDestrempsYou as well!
Hey man I was in a similar spot to you not too long ago last December I was diagnosed with stage 2B TC and had around the same chemo period. My lowest was definitely after chemo from the mood swings and from finding out I had more surgeries to do in June. Today I am still here and so far I am cancer free. When it comes to combating those feelings I had a lot of help, I sat with a lot of different family members, friends, and others to try and move past them. It took me a while because when I tried to do things I used to enjoy a lot, I found I didn't enjoy them anymore. So I just decided to read a lot, not just about people with similar experiences but about others who are struggling in different ways. I also tried to pickup new things to fill my time that I might enjoy, like cooking. None of this may be of use to you and sometimes you get overwhelmed a lot by emotions you don't fully understand, but I think you should just try to remember that you've been through hell and back and whatever comes next is something you can handle and you don't need to do it alone.
Hope the best for you man.
2-Time Pro Cancer Beating Champion is one of the most badass titles possible
I genuinely haven’t seen a more positively inspiring channel before
I love how even though how sad Alex's story with cancer is, he always is happy and accepts it. Its really heartwarming to see.
Your experiences vrey much reflect a lot of my own recent fight with cancer.
I've just finished my chemo for a sarcoma on my knee.
I was lucky in that I only had 3 x 3 week cycles (Doxorubicin and Ifosfamide) and am finally starting to feel like things are getting normal. I had a PICC line which I'm hoping to have removed on Monday. I'm about to start radiotherapy and should be finished by Xmas.
I totally agree that a postivie attitude makes so much difference.. not only as a way to get yourself through it but also it helps support those caring for you.
Watching people like yourself and others who have documented their journey is really helpful, knowing you're not alone in the journey is a massive morale boost.
Glad you’re here. I love your energy.
Youre such an inspiration of how to always be joyful, live you! ❤
You are a gorgeous human being! Appreciate you so much ❤
I love your attitude towards life!
Youve got amazing story alex, im glad everything works out well for you.
God Bless Alex and Thank You for sharing these messages with us because it could be hard for you to talk about it but Thank You so much take care and God Bless 🙏🏻😊💐👍🏼❤️♥️🫶🏻
You are VERY good articulating what has happened to you. It must be painful to speak about but your zest for life, helps others x
Ughhh your attitude is so dang beautiful 🥺🥺🥺❣❣
All I can say is cancer is very different in each case. No matter, cancer is such a serious life change and survival is such a blessing. The experience of living in the complete uncertainty of your health ever returning is In unusual way a honor…you will learn who’s really inside and your true colors will be exposed which in many ways is totally freeing.
Coming up on two years since my second bone marrow transplant. Before that it was 8 rounds of week long chemo infusions that alternated between 3 different chemotherapy drugs, two major surgeries and 5 minor surgeries to keep my kidneys functioning.
I recurred in the middle of all the treatment which was kinda a blow mentally. There were many times it was just so surreal.
All this to say that is has been hard to describe how having a serious health condition like cancer can and in my case took complete control of my life in my early 30’s…it still is something that I don’t talk about and wished I could but at the same time if you get to be treated and have the opportunity to live on you just do that…keep living.
One thing I don’t think is talked about enough is the road after treatments end and the mental and physical side of returning to normal….I’m just getting to that point now…
Found out 7 years ago I had stage 4 Hodgkin's Lymphoma. Went through 3 months of chemo and 3 months of radiation. A year later, I had a recurrence and did radiation. Then, in 2020, I had another recurrence and did a stem cell transplant. So far so good. I don't talk about this most of the time for some reason, and I've never felt like a survivor per se. Your story is an inspiration to many, myself included. And I hope you have everything in life you've ever wanted. ✌️
❤️❤️❤️❤️👍🙏. I Love the way your hair came back. Love the curls ❤️👍
I had leukemia, had methotrexate too, and didn’t know pulling out your hair in clumps is a common experience, glad to see you’re doing good
Professional Survivor ! 🎉❤ the way you decide to take on your emotional roller coaster..i hope you know that you are truly an exceptional being, thank you for inspiring us all. . I feel the same every time I even see a bottle of Snapplez..I can’t drink it and still can’t stand needles. Happy to see you and to hear that you are doing what you can, to enjoy life to the fullest. #ProfessionalSurvivors💪🏼✌🏼💕
Although I've never had cancer, I've had a lot of other serious health issues, and there are things I can no longer eat/drink because it was the only thing I could handle at times when I could barely take in any food or fluids. There are things I can't watch anymore, because it was what I was watching when I was at my worst health wise. And it sucks, because they are things I'm still interested in, but it just reminds me of the pain I was going through, having no control over my own body. I was at the mercy of whoever was taking care of me, and I had no good friends to lift my spirits. There were times I was told I should be in hospital, but they didn't have any beds, so I had to make do at home. Trouble was, my mother resented having to take care of me, so that just added to the negativity I already felt about being so unwell in the first place.
But I do have positives to balance out the negatives, and I focus on those to pull me through the hard times. I know how strong I have to be to have come out the other side. Sometimes, just the fact that I'm still alive is enough. I know my strengths, and I know how to manage my weaknesses and my low points. I can help others to recognise theirs, too. I have more independence than I ever thought I'd have. I'm living alone when I never thought I'd be able to, and I love it, when I thought I'd hate it. I'm working to build my fitness and strength, which is another thing I'd thought I'd never be able to do, but I won't let being disabled stop me trying.
I really appreciate when people, such as yourself Alex, talk openly and honestly about the things they have gone through, without sugarcoating things, but whilst keeping positive, with a smile on their face.
Alex your a Warrior ♥️
You could go home when off chemo? I have to lie in a hospital for next 3 months or so (Im on 4/6 chemo and 4 of them (methotrexate is fine) but two of them are hell on earth (doxorubicin)).
And i am surprised how you can stay positive and be on chemo (not on some but still) is very impressive. Also have osteosarcoma, stage 1, maybe earlier in area of my shin. In the hospital there is a nice community of people here.
I hope that after the surgery and chemotherapy i will walk and just be a human being and cancer not returning back.
You are a chad for surviving, make every moment amazing.
A few weird/interesting/cool facts about chemo: (I’m a med student)
-one is extracted from yew tree …. Yep weird.
-there are special cooling caps that cool your head so you get less hair loss (bc blood vessels constrict so less chemo gets there)
-at the hospital I work at 95% of chemos are done in ambulatory settings (meaning the patients have like appointments once a week for 1-2h or so to get chemo and then return home)
You seem like such a lovely young man! Thank you for sharing the info.
I just found your channel. I am on my third go with cancer and a lot of this is stuff you think you knew until you found out you didn't. My hair falling out - great shave it. But I was in the hospital the first time waking up in clumps of hair, miserable, and the only person who could shave my head was on vacation. I sent my significant other to get clippers, a hefty bag and I did it myself. The one thing that caught me completely off guard was the mouth ulcers and lack of salivating. Drank OJ one morning and was not a happy camper. I kept a bag of hard candy (jolly ranchers) and always put one in my cheek to promote salivating
Alex and Cancer are like the Kens in the Barbie movie, where they're like "I'll beach you off"
We look very similar which is funny. Your videos have helped me change my view of the world and has made me live like life is limited. I used to treat it like I had time but I will never know what is to come so I will do what I want and need to do.
Olá, me chamo Gabriel. Sou do Brasil e estou acompanhando sua jornada. Assim como você também sou amputado acima do joelho por causa de um câncer e também tenho praticado bastante esportes da forma que consigo.
Há pouco tempo comecei a correr pois tenho uma meta: Meio IRONMAN. Eu sei que parece muito hahahaha mas tenho certo condicionamento e experiência pra isso. O meu único empecilho está sendo a corrida mesmo. Consigo literalmente trotar. É a forma que me adaptei para correr, contudo percebo que sou bastante lento com um rendimento de 1km a cada 10min mais ou menos. Andando rápido 1km a cada 12min 😢. 2 minutos de diferença apenas entre o trote tranquilo X andar o mais rápido que consigo. Contudo percebo a diferença do desgaste entre um ou outro.
Trotando: Quadriceps e Pectnio cansa. Andando rápido: ombro e quase toda as costas.
A segunda opção não me parece muito agradável pelo simples fato que usar um músculo que não foi feito para isso não me parece uma boa escolha por mais que na prática a diferença em tempo seja pouca. Acredito que condicionar a perna para trotar é melhor do que usar as costas e ombros para uma maratona.
I appreciate n amaze for how you express your condition , wowww... I wish that Cancer gone n you survive somehow aameen
Alex,
I get everything youve said in this video. Cancer, took away my mother when i was 14. She had Pancreatic Cancer late stage 4.
One thing for sure: You are NOT lesser than anyone! I'm sorry that you experienced that from others. Ugh. You have a lot to give the world!
i had stage 1 MDS or lukiemia for the non-cancer folks, two months ago, it was a rollercoster were nothing really good happened. like i have a message, i feel that lots of different cancers are ingored because they dont seem that dangerous, but thats wrong. you see when you chemo or radiation you dont have a choice, you cant fight back it only beats you down and it is hard to get up, my cancer was a blood cancer, and its just as deadly if not more, the thing about blood cancer is it kills your immune system without chemo, it slowly manifests in your bloodstream and bone marrow and it attacks your organs from inside out, the problem is when it goes into the bone marrow it makes it so the bone marrow makes the blood turn into the canerous cell that slowly overtakes your blood stream then goes into to your brain were it kills you effiecently. i was lucky, im alive and well but i will never fully recover, you never forget the pain and sadness it never goes away.
same with the gatorade thing! i never had cancer, but when i was little my mom would bring me yellow (probably lemon lime) gatorade when i was sick. at the time, i thought it was delicious. about a year ago i came across some and i was like “ooh! i loved this as a kid!” i literally spat it out. to me, it tasted like being sick. all other flavors are ok tho
You should write a book.
You are an inspiration
Hello sir, I just watched your video and I wanted to say thank you.
I was born with Diaphragmatic Hernia, and have been sick all my life. I'm 29 yo now, almost 30, and nearly died many times. Pulmonary embolism, many bowel obstructions, and some other stuff, and finally two years ago : a stroke. I have no idea how I made it alive but hey, apparently I've been doing that for 30 years now, I guess I'm becoming an experienced sick lady !
Weirdly (or not), there isn't a day going by where I don't think about death. I'm not that scared, though, I'm living my best life, and in fact, reminding myself of reality of death makes my life more intense. We will die. We are not dead yet. Let's live our best life before it's over.
I just wanted to say thank you for putting words on your journey and your feelings. It helps sharing that with other people, even if we're strangers on the internet. It helps feeling less alone in the strange world that is illness.
I'm wishing you the best in life, and lots of happiness, to you, and all the internet strangers down here.
Best regards
Protect this man, by any means necessary.
When I went in for chemo, I had the exact same chemo drugs. Methotrexate was the big yellow bag and the "Double dose" that you are talking about was doxorubicin and cisplatin.
Danke für deine guten Videos. Ich verlor das gleiche Bein wie du bei einem Unfall
I can really relate to everything you said, I've had a 10 year go of it with a extremely aggressive Acute lympoblastic Leukemia from the ages of (7-17) Had cancer more than I didn't in those years, beat it for the 3rd and final time in 2017... made it to see 21 years old!
You're amazing, really.
Love you Alex, inspiring me everyday
I am watching this just in case. My cancer does not respond well to chemo, but if traditional treatments don’t work, then they will probably try chemo. I have a 200% increased risk of a second cancer from the treatment for the cancer I have now. While I can remain hopeful, I like to be realistic and prepared “just in case”. Good tips, thank you.
My mom just finished chemo therapy and honestly I think the most important tip is to have a good support. so friends and family to help take care of you
Hello there, I'm actually going to go through chemo soon. Your videos especially about how you felt at that time was exactly how I feel now.
However, I don't take them into heart because honestly most of them, they are not going through it.
The intention is there but I guess they just don't know how to exactly react to it.
Wow you're a fighter friend ! Keep up the god fight there my prayers with you. And the videos looks great you in control :-) indeed ! What camera are you using ? looks really awesome !
Not being able to shower would be one of those "1st world problems" that really gets you down. After every operation as soon as my epidural have worn off I'm like I need to shower off the OR smell 😂 I had one 10 day stay and my mum brought me nice smelling Moisturiser and it made everything so much better lol.
Love your sense of humour
YOU HIT 500K!!!!!
6:27 - I cope through commedy too... Do not tell a joke about a hearse to the person who just had multiple of there family members die when you are at the funural... It does not go well...
God bless you and your family and all
Some people beat thier wife
Alex beats cancer
They are not the same
Alex is such a based sigma cancer beater 🗿
Me sitting wide-eyed in the corner, researching cancer amputees for a book I’m writing: *ah*
I took methotrexate for my ulcerative colitis and it was horrible. I’m so glad I stopped taking it because it caused nausea and pain when I was already feeling it from my body attacking itself.
I find that sooo relatable. When I was having chemotherapy I ate some hot chips, and now every time i eat those chips or most hot chips I just feel sick like im going to throw up...
The food part is so true. I cannot eat chick-fil-a, coconut things, jolly ranchers, or this peach flavored water drink anymore. I couldn't even think of them without getting sick
what would you recommend I say to friends who have cancer? I never know what to do and I feel bad for it. I have been watching these to try and be a better supporter for them.
I don't have an answer, but the fact you're here tells me you're already doing a great job and you really care. I'm sure your friends can see this too!
At the time it wasn't really words, or waiting to hear something from someone. Mainly just having someone to listen to me vent, and to be there for me. Im sure if you show your friends that have cancer the same support that you have always shown them it would mean the world!
Bruh I had jaw length braids. I was so depressed when my hair started falling out
I have a bone marrow problem in my left femur. because of this I subconsciously walk dominantly on my right leg. I developed a skeletal imbalance where my right shoulder visibly sits lower than my left. have you had any struggles with structural issues associated with your prosthetic leg?
Consider yourself touched by GOD❤
For some reason I didn't realise they took out the Hickman line (port)
I really want to know how you feel about Fullmetal Alchemist.
0:05 my grandma beating cancer 4 times now: Pathetic...
(this is a joke ofc lol, but seriously man your tough as hell for going through all this and still being this positive, stay strong man!)
You talking about Methotrexate
Me who took it for JIA 😭
Where do you get those covers. I have A cleg4. Will they fit mine
❤ 9:30 never give up
when i got chemo for my kidney cancer a doctor put my iv wrong and when i wanted to go to the restroom results my laeft arm was as big as popeye the sailor and i couldnt extend it for a long long while but now although its back to normal its skinier then my right arm what a funny thing to expierience
EDIT After that they trusted him again and they had to put me a Catheter then he was never ever trusted to put ivs in me ever again
do shanbhavi mahamudra & watch sadguru and osho, bucket list is not the right way
How do you like a video twice 😭😭
i saw you on a commercial
How did you get a prostetic leg... Cancer?
How did u lose your leg
How much weight did u lose during chemo
Wait... Camilo Madrigal is that you?
(He litteraly looks like Camilo but at Bruno's age... Right?)
277 views after 1 hour ??
Be awara but act stupid towards cancer, It's a weird way to loophole it like out of mind out of sight lol 😊❤
Recently my pet duck has had to get a leg amputation and since I don't have enough money for a leg made by a professional I'm going to make a prosthetic leg for her, do you know the material that the sock (that you have shown in previous shorts) is? I want the prosthetic to be as comfortable as possible. (Sorry if I have bad punctuation I got a writing disorder).
How did you know, that you have a cancer ?
@alex1leg The double dose with osteosarcoma is cisplatin and doxorubicin, my two year old had been diagnosed with stage 4 osteosarcoma but doing very well and currently rocking his prosthetic.
Hello, Alex! Please make video about your immunotherapy. Your story about why it was not chemo, but immunotherapy 🩷🙏🩷
Man i never had cancer but i sufferd because of it. It made me appreciate life. Someday i really want to be help people who are going through this. I want to be famous so i could make people happy who have cancer