ALS Update 20 January 2018

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  • Опубліковано 31 жов 2024

КОМЕНТАРІ • 133

  • @utkphilobio
    @utkphilobio 3 місяці тому +1

    I think you're entirely correct that cultural norms and money play a large role here. I've been watching a number of your videos and I've found an immense amount of wisdom in your words. Thank you for putting this out there for the world.

  • @PenelopePitstop-i5i
    @PenelopePitstop-i5i Місяць тому

    You are such a strong lady! God Bless You! ❤🙏💙🇺🇸

  • @teflonmagnet
    @teflonmagnet 6 років тому +9

    You are such a beautiful woman and lovely soul. I pray for you and your family.

  • @10bigrob10
    @10bigrob10 6 років тому +3

    God Bless You! I lost my mother 2 months ago after caring for her 24/7 for 3 years. My mother’s decisions were all based on her family. I pray God gives you peace in your love.

  • @biancakarteron5620
    @biancakarteron5620 3 роки тому +1

    I wish I could be like her in her spirit. I never want ALS but her stability in her faith us amazing

  • @gratebrian4541
    @gratebrian4541 6 років тому +10

    Unconditional Love ✝
    Lord Jesus, Heavenly Father God, I lift this sister of faith up to You and ask Your guidance, direction and Love over her in the Name and Blood of Jesus Christ, Amen.

  • @natasha687able
    @natasha687able 6 років тому +5

    I'm usually just a lurker. I appreciate the honest videos you make. Thank you for sharing your journey.

    • @natasha687able
      @natasha687able 6 років тому

      If you watch tv see if you can watch the show called the healer. It’s pretty amazing.

  • @GreenSaverVal
    @GreenSaverVal 6 років тому +4

    You can't be more accurate about trying anything possible ... keep, keeping on Warrior ! Missed you on here .. was so glad to see a update . Much Light and Energy always

  • @kimspring8275
    @kimspring8275 4 місяці тому +1

    Children change everything!! You’re so right…

  • @hannahbruce9056
    @hannahbruce9056 6 років тому +6

    God bless you for your perserverence in such a difficult time. There are many rewards for those such as yourself who keep the faith even in the unthinkable and the hardest of times. You have encouraged me in my walk with Jesus, I pray for your healing. What a example of strength, faith, hope and preserverence for your children. That is one of the beautifulest gifts you can give them in this life. May God heal and bless you today.

  • @ajs5031
    @ajs5031 6 років тому +2

    Thank you so much for sharing your time and thoughts...I needed to hear this.

  • @charlye1607
    @charlye1607 6 років тому +7

    you are so beautiful.. Being a mom myself, I understand your decision. They need you.. sick or not. And you never know about research and treatment. People forget Stephen Hawkings... Life can have quality... I wished you lived in California. Honestly, I would help you if you needed help.

  • @sammy11232003
    @sammy11232003 6 років тому +5

    keeping you in my prayers lovely lady.

  • @hotina100
    @hotina100 6 років тому +1

    Always thinking of you! Good bless.

  • @ATVMinistries
    @ATVMinistries 6 років тому

    Laura, Thanks for keeping us updated on your condition. We are eager to hear more updates. It helps us to be more focused in our prayers for you.

  • @Anastashya
    @Anastashya 6 років тому

    I will keep you in my prayers. The world needs more beautiful souls like you in it. x

  • @tiffanyjade6024
    @tiffanyjade6024 6 років тому +2

    Praying for you...

  • @thelifeofzoe9201
    @thelifeofzoe9201 6 років тому

    I wish You and your familie all the love and support in the world. Seeing one suffer like this breaks my heart.

  • @LupusPositiveLife
    @LupusPositiveLife 6 років тому +11

    There are no words but soft hugs God has the last word and through Jesus we can be with God

  • @gregorybrowning8950
    @gregorybrowning8950 2 роки тому

    Ur awesome very strong I wouldn't be able to talk about it God bless you

  • @BootedTech
    @BootedTech 6 років тому +2

    I know you haven't posted for awhile, I just want give you hugs and wishes, I miss you.. ❤️❤️❤️

  • @ohmeowzer1
    @ohmeowzer1 6 років тому +5

    Love you , do you have a Facebook page ? You are my hero, I’m a RN and I love your courage and your beautiful spirit shines through ... you are always in my thoughts and prayers 🙏🌹🌹🎈🎈

  • @openureyes929
    @openureyes929 6 років тому

    My dad died of ALS about 15yrs ago. Watching that process was a SOB!!! To say the least!! I have a brother who supposedly found out he does not suffer from the same DNA but to which I was appalled anyone would want to find out.!!! If that could or would be in your future!!! There are not many diseases I despise but this is one of them.!! You hang in there!! Wish you the BEST!!!

  • @annedoyle9246
    @annedoyle9246 6 років тому +1

    Science is cold. You’re right- it’s Not king. So good to see your update. Thank you.
    PS great shirt. 💙💙praying for you always.

  • @ca87m
    @ca87m 6 років тому +4

    I don't pray but you'll be always in my mind from now on, hopping you to get better, to get cure!!! Stay strong, there has to be a cure, there has to be a way to stop those symptoms at least.

  • @shazzer1976
    @shazzer1976 6 років тому +1

    Good to see you. Was thinking about you last night. Sending good wishes to you and your family.

  • @nickybaker1338
    @nickybaker1338 6 років тому

    Just found this video....may you have peace that passes understanding in your heart & soul xxxxxxxxxxxxxxxxxxxxxxx

  • @berengereful
    @berengereful 4 роки тому +1

    I love your spirit

  • @connor8048
    @connor8048 6 років тому +2

    I remember seeing your fist video about your journey all that time ago, and I carry you in my thoughts ever since. Keep being happy and passionate. p.s. I love your theoretical and spiritual aspects of your videos. So interesting and inspiring :)

  • @lydiamoore142
    @lydiamoore142 2 роки тому

    You are so amazing.

  • @omaopa6923
    @omaopa6923 6 років тому

    As a mother myself that went through breast cancer I couldn't agree with you more about spending more quality time with your children, in an ideal world no one would get sick but it's not and honesty some doctors need to understand that yes we'd love to follow their plans for us to a T but we are mothers,wife's fathers,dads or others that have others we need to put first, wishing you more days that are better so that you and your family spend more quality time together 💖🙏🏻😘🇦🇺

  • @coleraintwp.ohio.policeeye4630
    @coleraintwp.ohio.policeeye4630 5 років тому

    God speed!!!!! God bless you!!!!! You are awesome!!!!!

  • @rcmetz
    @rcmetz 6 років тому

    Thank you for your insight, as I have medical insight , I am looking into this aweful disease . I am having many syptoms of ALS and figuring how to approach my pcp, in ordering the tests needed. I love you upfront realism. God Bless!

    • @sycamoreblue7398
      @sycamoreblue7398  6 років тому

      Robert Metzler that is the difficult part of the Journey to be in. Not knowing is difficult for me. May you have peace and wisdom to ask good questions

  • @dutchman6379
    @dutchman6379 6 років тому +16

    God bless you

  • @MarthaSue
    @MarthaSue 6 років тому

    Hello Laura. I check from time to time to see how you are doing. I want you to know that your story has been very helpful and inspiring. When I start thinking why me, I think of you, a young mother going through this. I am not so young, but I was strong, active and healthy. One day, I noticed a strange limp. I had no clue about ALS, but almost a year later that is the diagnosis I received. For the longest, I kept thinking the doctors were so wrong. I still think it once in a while. It is so very, very difficult to wrap my mind around this disease. People ask me if I am in pain. I am not in in physical pain and I am thankful for that.
    Sending prayers and love for you and your family.
    Sue

  • @jeaniecoudriet1887
    @jeaniecoudriet1887 6 років тому

    I do not blame you for wanting the track ! Spelling may be wrong! But you have those 3 gorgeous kids! And wanting to see them grow up as long as possible, how could anyone fault u for that choice! Your faith also I believe that if he didn't want u to have it he wouldn't of made it be out there for you! Your still looking and sounding so good! I do think about how u are doing twhen we haven't heard from you! I love your singing and it's so pretty to hear you! You do what you need to do to help you with this change in your life and Illness! Honestly if I lived near you I have taken care of all sorts of people and with me no longer working I would seek u out to help! My grandfather had this so I know the hardships and the illness itself! I am praying for you and your family! X X and hope to hear from you soon on how u are!

  • @joellalindlbauer4347
    @joellalindlbauer4347 6 років тому

    I hope you are doing well. Thinking of you

  • @sharebear1129
    @sharebear1129 6 років тому

    Missed you. Keep up the fight. God bless you and your family 😊☝

  • @davidkellar6732
    @davidkellar6732 6 років тому

    No matter what disease I don't care to what tolerance u can take is always beneficial. Your tolerance

  • @Martha-LaMexa
    @Martha-LaMexa 6 років тому +6

    My heart is with you and your family.Stay with Jesus and no matter what everything and everyone will be ok .xoxo please keep posting when you can.Im spearing these videos so we can spread awareness we must find a cure !

  • @jaassil
    @jaassil 6 років тому +1

    Please let us know how you are. God bless you! 😘

  • @josephfilm73
    @josephfilm73 6 років тому +2

    Having been involved in research as a patient, I understand more the side of doctors. They take an oath to do no harm. There was one nurse who said that their evidence was clear on one thing (this I remember distinctly), she said people who do nothing seem to do better than the rest (referring to herbs and alternative therapy). I do not think they would have lied about this point, and having watched them work, knew enough that they knew what they were talking about. But that was a terrible bargain as doing nothing means giving up hope. Hope is one of those topics beyond science. Also purpose in life. This is just my opinion, but those two things along with adaptability, were the biggest things that helped people. Also, they do have something that rules over science, medical ethicists and philosophers on IRB. They spend their whole lives studying those topics to apply that knowledge to medical problems. Quite frankly they were much more strict about ethical concerns than I would have been. The historical reason for this was one drug that was taken by women which caused all these ghastly birth defects and early deaths. It was widespread in use in Europe, but the US largely escaped the carnage because they had stricter laws and a more deliberative process. From that one incident, medicine at least in the US, has been very controlled and conservative in practice. The number of victims was high and the medicine was for something simple like upset stomach, if I remember right.

  • @LaurenThompsonIsMyRealName
    @LaurenThompsonIsMyRealName 5 років тому

    You are so right about science! People think I am a total lune when I tell them I dont believe in science, I believe in the truth! Smart, good people, ---smarter than me, but they dont get the concept that the truth does not require science. If science and the truth are in agreement that is nice, but science does not equal truth! It does not have to be scientific to be true.
    You inspire me, not only because of your bravely in the face of such a heavy burden, but because of your faith. I have seldom seen or heard such a way of speaking like yours, even in your typed replies to comments. I am not sure of my salvation, (that is the understatement of all understatements but I digress) but I am a believer in Christ. I dont even feel worthy of saying such things, but what I find truly inspiring, is what I believe to be the Spirit of Christ in you.
    I hope that you are able to be as you want to be with your loved ones. 💗

  • @Bra01ndy
    @Bra01ndy 6 років тому

    I'm an RN and after 30 years involved in the medical community I can say MONEY is the most important force behind the FDA funding scientific studies on treatments for disease. If there's not money in a medication or alternate treatment, it probably won't be funded.

  • @marieannevangool4962
    @marieannevangool4962 6 років тому

    Hello sweetie may God bless you and I pray that you be well ❤❤

  • @reneelegault8911
    @reneelegault8911 6 років тому

    Hope you are doing well keep fighting

  • @fourshore502
    @fourshore502 11 місяців тому +1

    i wonder if fasting does anything for ALS? cancer and alzheimers both have to do with messed up mitochondria, and i wouldnt be surprised if ALS does also. and they are mitigated by fasting through autophagy and other things. mitochondria basically starts working again. some cancer patients have reported miraculous recoveries with fasting.

  • @badcarma69
    @badcarma69 6 років тому

    And check out Kiran Krishnan's (Microbiologist) and his 'Just Thrive' endospores they've been using in Europe since 1958 to cure these autoimmune diseases. He speaks a lot on this LPS (Lipopolysaccharide) being the root cause of all autoimmune diseases. Colostrum LD will seal the gut if you take enough, and Apolactoferrin will bind to LPS.

  • @RenegadeTimes
    @RenegadeTimes 6 років тому +1

    Cheap therapy is not part of the medical industrial complex. As J.P.Morgan declared to Tesla about his free enrgy, "If you can't meter it we don't want it." Meaning the ruling class must profit always above everything else.
    My heart goes out to you.

    • @whiteyfisk9769
      @whiteyfisk9769 5 місяців тому

      The rich have turned America into one huge consumer slave camp corporate nightmare.
      "You will live to see manmade horrors beyond your comprehension" Nicolai Tesla

  • @davidfleck9635
    @davidfleck9635 2 роки тому

    So 2022 how are you .I lost my husband two and a half years with ALS he went fast when he was diagnosed

  • @boazzaob
    @boazzaob 6 років тому

    man is over science, man created science. How can a creation be over the creator.

  • @kiwipics
    @kiwipics 5 років тому

    I think the UK patients are limited by the NHS, and how it is funded in different regions. It's a very difficult choice ....

  • @elizabethsmith9624
    @elizabethsmith9624 6 років тому

    If you do decide on a trache then be aware that people with tracheostomies can experience constant extremely painful infections that require continual visits to the hospital... it can be hell. Look up Catherine Scott on facebook, she has ALS, a trache, and currently has had Acinetobacter Baumannii for awhile and there is only one more antibiotic left to try at this point. After that it is pretty much over.

    • @applejellypucci
      @applejellypucci 4 роки тому +2

      She's had ALS since 2002 and is still alive, pretty incredible.

  • @dawndouglas922
    @dawndouglas922 6 років тому

    Your children wil lbe your light for sure

  • @tharassajackson899
    @tharassajackson899 5 років тому

    Thanks for video hope you are ok

  • @nitroxsam66
    @nitroxsam66 6 років тому

    I agree with what you say about Love and God being King. Unfortunately, many in "modern enlightened society" have turned their backs on God. They worship the intellect, but only if the exercise of the intellect leads to money. The dollar is their king and their god.

  • @moniqueh7948
    @moniqueh7948 6 років тому +2

    Please try high doses of magnesium, evening primrose oil, liposomal Vit C and vitamin D. Cut out all gluten and dairy products. Try eating the Wahls protocol of grass fed organ meats and high sulfurous green vegetables.
    Much love to you.

    • @sycamoreblue7398
      @sycamoreblue7398  6 років тому +1

      Modyssey thank you so much for your suggestions. I have tried all of those, although I have to admit I only tried the organ meats in small doses :-). I really appreciate your input

    • @howbigisyourlove
      @howbigisyourlove 6 років тому

      you do not try lipsomal vitamin c.. you take mega doses of it .. it will cure this .. it is the only cure

  • @scottbarrow1846
    @scottbarrow1846 6 років тому

    YOUR NOT ALONE.....HERE IF NEED TO TALK

  • @dk_playzgamez
    @dk_playzgamez 6 років тому +1

    GodBless

  • @warriorbody8015
    @warriorbody8015 6 років тому +2

    No god would give anyone this horrible disease. My grandfather died of ALS.

    • @catman8670
      @catman8670 3 роки тому +1

      God doesn’t give a disease, he promised heaven for his followers.❤️

  • @badcarma69
    @badcarma69 6 років тому

    If you have ALS or any other autoimmune disease, you are suffering from an underlying condition known as 'Leaky Gut Syndrome' that is allowing Lipopolysaccharide (LPS) from dead bacteria in the gut to get through the tight junctions and into the bloodstream, which causes a low-grade systemic sepsis that presents itself differently in everyone (ALS, MS, RA, IBD, IBS, Crohn's, Myositis, Lupus, Parkinson's, etc.). They are all the same disease - leaky gut and LPS endotoxin getting into the serum.

  • @annekelly9959
    @annekelly9959 6 років тому

    Hang in there.

  • @emanuelmartinez7975
    @emanuelmartinez7975 6 років тому +5

    Have you thought of stem cell treatment?

    • @sycamoreblue7398
      @sycamoreblue7398  6 років тому +4

      Emanuel Martinez everybody who I have heard of who have tried it have reported limited gains in ability, followed by continued progression. Given the high cost tag (usually $10,000-$30,000) and lack of permanent improvement, it's not something I'm going to try. If permanent improvement is achieved, I will consider it

  • @davidkellar6732
    @davidkellar6732 6 років тому

    Don't sting yourself save your energy

  • @mom2tdks2012
    @mom2tdks2012 6 років тому

    Why not have your spouse take care of you! Or have a student nurse come into your home help you out. My daughter helped a lady in Peterborough for free rent for taking care of her and her kids!

  • @Maka453
    @Maka453 6 років тому

    Stay strong,you are lovely mum,please fight try steam cell treatment

  • @Bohemianbella1
    @Bohemianbella1 6 років тому +4

    Have you looked up dr Robert Morse’s protocol on UA-cam? You don’t have to if you don’t want to but I think it may help your condition immensely. All the best x

  • @lorrettaeve1735
    @lorrettaeve1735 6 років тому

    Have you heard of The Deanna Protocol? I'm sure you get so many suggestions for your health. :) It shows great promise and is currently undergoing scientific research.
    Blessings to you. ❤ Your beautiful spirit is inspiring.

  • @teflonmagnet
    @teflonmagnet 6 років тому

    I’m not hear to claim any knowledge of this disease beyond anyone else; however, I do think it best if you start bipap therapy as it is supposed to markedly increase quality of life if not so much quantity. I also think high quality fats (avocado oils, organic meats, krill oil, walnuts, salmon, etc.) should be incorporated into your diet. They are all excellent brain-food.

    • @sycamoreblue7398
      @sycamoreblue7398  6 років тому

      teflonmagnet I have been using a BiPAP at night since a few months into the diagnosis. Totally agree with the hi fat/good fat foods

  • @livingstrong6408
    @livingstrong6408 6 років тому

    dont get one yet sis start taking l-argenine in powder gnc 10 mg 4 scoops a day
    i had this for 4 years still take about 25 to 30 supplements a day

  • @shawnmcanthony5724
    @shawnmcanthony5724 2 роки тому

    Hi how are you now??

    • @sycamoreblue7398
      @sycamoreblue7398  2 роки тому

      Still trucking. : ) ua-cam.com/video/CU8iOsXPPGQ/v-deo.html

  • @GaZonk100
    @GaZonk100 5 місяців тому

    such a babe

  • @boazzaob
    @boazzaob 6 років тому

    I wonder if it's a virus as well. So do many others.

  • @deborahtofflemire7727
    @deborahtofflemire7727 5 років тому

    What does the bee stings do

    • @sycamoreblue7398
      @sycamoreblue7398  5 років тому

      Deborah Tofflemire There is a little evidence that bee venom works against the Lyme disease bacteria and is also possibly antiviral (Studies for HIV) so if either of those play a role in the development of ALS it could perhaps be a helpful therapy. This is definitely experimental. www.mdpi.com/2079-6382/6/4/31/htm

  • @maritaoscarsson1719
    @maritaoscarsson1719 6 років тому

    Laura, how are you?

  • @yennguyen-uj3ri
    @yennguyen-uj3ri 6 років тому

    Vitamin c cure yeast infection instantly. I tried and it works

  • @michalikjoanna3714
    @michalikjoanna3714 6 років тому

    Hi Laura.Is there a way to privately contact you.Please let me know!Thank you so much

    • @sycamoreblue7398
      @sycamoreblue7398  6 років тому

      Michalik Joanna if you have a Facebook account, message me there Laura Jean Pulscher

  • @winsdylamontagne9559
    @winsdylamontagne9559 6 років тому

    Hi Laura Jean! How are you? ❤️

  • @Africanfrogs
    @Africanfrogs 6 років тому +1

    Try mega doses of cbd, lots of people in Colorado and California could help you find very cheap or free products if you explain your situation.

  • @boazzaob
    @boazzaob 6 років тому

    Do you use marijuana at all?

  • @badcarma69
    @badcarma69 6 років тому

    Google this "lipopolysaccharides, ALS" and read the study.

  • @geraldineowens7001
    @geraldineowens7001 4 роки тому

    I admire you very much but you need to think about how your children will feel about seeing you in a nursing home with a trachea is that far on them its obvious how much you love them but they shouldn't have to see you suffer

  • @JUFFAIR101
    @JUFFAIR101 6 років тому

    My heart is so so so broken You have a good soul and heart i can see it and feel it please read about Yusuf Estes and purpose of life i hope it make you feel better

    • @JUFFAIR101
      @JUFFAIR101 6 років тому

      I have absolutely no benefit from this just trying to help and its up to you ua-cam.com/video/2LtCLWjyeqo/v-deo.html

  • @MOJORAPSCALLION
    @MOJORAPSCALLION 6 років тому

    Check for undiagnosed chronic neurological Lyme disease late stage but proper testing IGENEX, Armin Labs, BCA,

  • @lorendisney6573
    @lorendisney6573 5 років тому

    Go see Doctor Richard bedlack

  • @charlye1607
    @charlye1607 6 років тому

    and your science ISN"T poor

  • @MOJORAPSCALLION
    @MOJORAPSCALLION 6 років тому

    Some ALS is Lyme but not all..

  • @chronically_healing9403
    @chronically_healing9403 6 років тому

    Check out Dr. Morse on you tube. He discusses how changing your diet to all fruit can and help with ALS. There is hope out there!!!! 💕

  • @lidyalu5371
    @lidyalu5371 6 років тому

    I'll keep you in my prayers to Jehovah God exodus 6:3
    Through His Son Jesus!!!
    As we await the new earth 🌏 coming free of pain n suffering we pray for that to come in our Father prayer Mathew 6:9,10
    Isaiah 65:21 n on describes new earth
    Mathew 5:5