A Day in the Life of a Stroke Survivor with Spasticity

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  • Опубліковано 21 жов 2024

КОМЕНТАРІ • 47

  • @markreynolds3850
    @markreynolds3850 4 роки тому +3

    Nice video about spasticity, this is hard to deal at times, things usually don’t go the way you want them to. Even after several months of therapy. There are physical and emotional boundaries that need to addressed also in attaining the right attitude.

  • @jihadhaddadin1586
    @jihadhaddadin1586 3 роки тому +3

    My case exactly same as your situation, I would love to learn from you,thanks.

  • @gribsonchan3095
    @gribsonchan3095 3 роки тому +3

    From the video, I did not see any exercise to deactivate your finger spasticity. If so, it means your brain has not being trained to send signal to deal with spasticity. If this is the situation you are facing, likely you still have spastic issue with you and your finger movement may greatly affected.
    Hope that someone could train up your CNS system to interfere that.

  • @larrymckinney8599
    @larrymckinney8599 Рік тому

    This video gives us hope!

  • @garywalling4341
    @garywalling4341 Рік тому +2

    Blah, blah, blah am now 2yrs 4mnths post hemorragic stroke (still haven't learned to spell hemmorhagic yet). Don't need help with spelling from Mr or Mrs pedantic by the way. Spasticity has decreased and have re-gained some more movement/control but, everything is still a bloody nightmare. Still no advances in post stroke treatment as far as I can find out/gather. Been using 'Sativex' (CBD) for about 6 months it helps with the spasticity, pain and anxiety, that's if you can get it prescribed (GP cannot prescribe it, only a neurologist) it helps but it's definately not a cure. Plus if you've got stuff to do (in any context) don't take Sativex or you'll get nowt done. Until the real problem is addressed (brain damage) we're doomed to a non-life of hardship. If more time, effort and money was spent on perhaps, medication to promote axon re-growth or neuron re-generation now that WOULD be helpful. But whilst there's wars to be fought and pockets to be lined that's never gonna happen.

  • @alimakame5645
    @alimakame5645 3 роки тому +2

    How can I get these devices. I'm from Tanzania

  • @GdUpG2Gmafia
    @GdUpG2Gmafia 10 місяців тому

    In this video he speaks on where to insert "see journal" in the paperwork, if you don't have a journal but you have RFC forms, can you replace the "see journal" with "see RFC forms"?🤔

  • @gregzeng
    @gregzeng Рік тому

    Australia. Car accident created severe Traumatic Brain Injury, aged 34. Now 39 years later aged 73, very similar to the man in this video. Left side spastic, with contracture of the left hand and arm.
    Did the Botox injections and hand splints. Still on Bacolofen tablets. Now using EMS machine (from $20 USD) to retrain the left hand to try to re-learn, especially "relax".
    Sleep with a tennis ball sized object in my contractured left hand. Often also have this during the day as well. Soon perhaps, Bacolofen pump below my belly button, injecting into my spinal column?
    Currently CPAP machine nightly, and electric scooter for long distances. Walking stick everywhere. Autonomic systems also collapsing: neck and lower plumbing systems. So the usual Incontinence treatment procedures. Costs paid totally be our Australian federal government, for the last 39 years since the car accident.
    Did attempt a few years at returning to full or part-time employment, but fatigue in everyway (cognitive, emotional, physical) forced that to stop

  • @susana9967
    @susana9967 2 роки тому

    Fisiatra Neurologica Tara Tobias cientos de videos de excelencia para el daño neurologico.

  • @christopherking8526
    @christopherking8526 5 років тому +7

    6 YEARS after my stroke the spasticity is worse!

    • @bradleyparsons3261
      @bradleyparsons3261 4 роки тому +1

      I know what you mean, man I woke up with this like arm and right foot gone, all the darn time,...

    • @rajulvasa1155
      @rajulvasa1155 4 роки тому

      U can help ur self and remove spasticity completely by working on your brain through your paretic body coupled with gravity such that brain. Recognizes that the need of spasticity is obliterated and it must not waste its energy any longer in developing or sustaining spasticity

    • @rajulvasa1155
      @rajulvasa1155 4 роки тому

      R u serious to get rid off spasticity????
      Go on to rvfindia. Org,
      You take care of your stay and food, rvf will empower you how to get rid of spasticity, NO MONEY involved directly or indirectly, no hidden agenda, pure sake of humanity and for suffering from spasticity to end.

    • @johnmariano9275
      @johnmariano9275 Рік тому

      Me2

  • @raulruizruiz9608
    @raulruizruiz9608 11 місяців тому

    Only one problem what if your dr. does not know what spasticity is aand is clieless about syroke survivors? I'm basically screwed.

  • @jamesmatheson9624
    @jamesmatheson9624 Рік тому

    does ice help at all,

  • @susana9967
    @susana9967 2 роки тому

    Siempre ayuda mucho usar el metodo Perfetti es rehabilitacion Neurocognitiva donde ayuda a la reconeccion del cerebro con el lado afectado .Esta metodo no aumenta la espasticidad.El botox no es bueno en absoluto.Hay una fisiatra neurologica con cientos de videos que te ayudaran mucho a normalizar movimientos con los ejercicios especificos para controlar la espasticidad.Eres un guerrero y lograras todo lo que te propongas fuerza y fe.

  • @vy6289
    @vy6289 3 роки тому +1

    Hi dear I just have a question so I do have a stroke and my finger they keep curl in the hand so anyway can you recommend for me where do I can ask the botulinum injection or even the name of the medicine for my muscle relax please thank you so much 😊

    • @baybay4968
      @baybay4968 2 роки тому

      Thank you for the info

  • @garywalling4341
    @garywalling4341 3 роки тому +3

    Ok so we know what it is, what causes it etc. So why is it not getting cured? Hemmorageic stroke 1 year ago 2day, have stretched, slept ate well, going to the gym, passive exercises, subtle exercises, visualization, electrical stimulus etc. Spasticity getting worse wtf?

    • @garygallant5390
      @garygallant5390 2 роки тому +1

      I am close to one year hemorrhagic stroke. I’ve done all the therapy. I do daily exercise and stretching. I found the spasticity getting worse.

    • @garywalling4341
      @garywalling4341 2 роки тому

      @@garygallant5390 I've recently had a couple more botox injections which have helped with the worst of my spasticity. I had 19 jabs in a row in the early weeks after my stroke. Not a very pleasant experience and, it was a bit too early for me to tell if it made any difference at that time. However these recent ones did help. I know, injecting poison into your muscles is not only painful and, is just a relief not a cure but, am going back for more. If you have access to this treatment it does help. It wears off eventually but that brief window of mobility/spasticity relief is worth it.

  • @jalilmohammed7760
    @jalilmohammed7760 Рік тому

    I want to buy tell me how

  • @briangode1381
    @briangode1381 3 роки тому

    I had a small stroke January /2014 my left problems raising my left arm very bad use of left hand if walking is bad not using hemi aid neck should on left well on off bed toilet is ok eating right hand only can I use left arm at all well now as I type this my neck on left side is well since very young my spine sitting up straight posture is well shoulders chiropractors were well now told see orthopedics problem is I live in a nursing home sinc maybe last 18months no visitors or outside world as my senorita and I would do in the past I have no way to go see her maybe in ten years more or less when we last dated I can not say I have so called rehabilitation in gym here but it does what for me as I see on this I pad my left wrist hand are not working as is my right side hand heavy arm on left I can not raise I have not been on my front side when who knows dressing is well some problems socks not fallen lately but have or have in my past passed out from hig blood pressure my nerves are wellLli grew up at home my dad well mom dad called me physiology local not normal I was somewhat different from others as society approves of my senorita says all she ever knew me loco nuts never my dad was miserable over me mom well he had it wrong as do others just because most volks are one way they all are we 2 in our dating love the simple things plain but nice no over fancy dinning or booze drugs valintines or what is no ones business but ours well Some spend we can not do it penniless but very nice if more were like this I d say be healthier more time to enjoy yourselves it is later than you think easy does it if I lose her then what most senoritas are well gold diggers in my scavenger hunting trash picking once 425 worth of gold big piece I love using I pad so much I see learn on life volks the world society or more you could never get from college why I donot see so much said over college education at a very high cost for what for some well others well do they really get high paying jobs I love my self business dinero varies but it depends on what I do more sensibly than most doing it life can be what you do or make of it how done not what you do or each day one never knows other than the usual what will be if we see what dinero most waste on doing things make changes different as I have learned over years my past then how to say it any how have a nice day if possible my other comments were some ways to do with less thank you I am sick of complainer or those who say I can’t do it or there is nothing to pick up it takes patients drs nurses can’t live with out

  • @samanthasims7123
    @samanthasims7123 2 роки тому

    Thank u maam

  • @virtuosoproductions4589
    @virtuosoproductions4589 4 роки тому +3

    Clonus is worst condition than spasticity.

    • @Nelle_LaLa
      @Nelle_LaLa 3 роки тому

      I have clonus, and spasticity. How is Clonus worse?? I just had brain surgery.

    • @virtuosoproductions4589
      @virtuosoproductions4589 3 роки тому +1

      @@Nelle_LaLa when one has a stroke or brain surgery, the muscles connected to that area of the brain looses connection and to prevent muscles from getting hurt spinal cord takes over and pulls your limbs close to the body. Unlike the brain, it's one way communication only. It's like a windows computer going into safe mode after a crash. With neuroplasticity reconnects when patients do repetitive therapy. However, spinal cord hates to loose the control, so there's a fight between brain and spinal cord.That causes clonus. Actually, clonus means things are getting better as two way communication between muscles and brain is being established. Spasticity is somewhat related. As long as you keep doing therapy to restablished list connection between brain and muscles, both clonus and spasticity will taper off. You should do therapy and get lots of sleep. If you dont sleep for at least 6 to 7 hour a day the new movements you learn will not be permanent. Only formula is, do therapy and get lots of deep sleep. I know someone who was not getting sleep due to clonus, he started taking CBD oil to calm the nerves he started getting better. Hope this helps. I have read lots of research papers as I was in research once. Ask me if you're not sure about my explanation. TC.

    • @Nelle_LaLa
      @Nelle_LaLa 3 роки тому

      @@virtuosoproductions4589 Thanks for the explanation!! It makes sense now. I just started coding as well.

    • @virtuosoproductions4589
      @virtuosoproductions4589 3 роки тому

      @@Nelle_LaLa no problem, we're all sharing our experiences. Are you talking about program coding?

    • @Nelle_LaLa
      @Nelle_LaLa 3 роки тому +1

      @@virtuosoproductions4589 I meant CBD lol. Darn auto correct

  • @ringkhangbasumatary4906
    @ringkhangbasumatary4906 2 роки тому

    Thank you to all.

  • @strokesurvivor2367
    @strokesurvivor2367 3 роки тому +1

    I survived A stroke 2years ago. I used to be half paralyze. but now I can move my arms and legs. thank God I can walk again. Follow my page I put all things that I do to help me recover. maybe it can help us survivors.

    • @__BharathS
      @__BharathS 2 роки тому +1

      My fingers are not opened can you tell me any suggestion.

    • @strokesurvivor2367
      @strokesurvivor2367 2 роки тому

      @@__BharathS at first I tried a squeeze ball with the help of my unaffected hand.

  • @victormodesto9545
    @victormodesto9545 2 роки тому

    I have spaticity i was fine until i put botox. Instead of loosing my fingers it got tighter.big mistake with botox.

  • @林添秀
    @林添秀 4 роки тому +1

    無法聯絡請留聯絡資訊

  • @nagarajannagaraj1762
    @nagarajannagaraj1762 2 роки тому

    Amon

  • @nagarajannagaraj1762
    @nagarajannagaraj1762 2 роки тому

    Amon