I am so happy to found this video. I found out that i have acoustic neuroma by accident. Done mri scan for sinuses infection and doctors told me i have tumor in my head that is pressing on brain stem and have surgery schedule. I'm a absolutely terrified and was already told i will loose permanently hearing on my left side. This video gave me so much energy. Thanks
Thank you for sharing. I was diagnosed with a large AN tumor in Jan 2022. I had my surgery Apr 2022 and recovering now. 96% of the tumor leaving a little against my brain stem. I lost my hearing on the effected size. My approach was the translabyrinthine approach. I was in the hospital 4 days! I am a career firefighter and am returning to work on limited/light duty this coming Monday! I have a follow up w my Dr coming up to discuss a BAHA device! My experience and support system was awesome! 3 fire department families and my close family w my wife taking care of me afterwards!! My surgery was at VCU Health in Richmond VA! 🤗🙏🏻🙏🏻🙏🏻
I have this condition ringing in 1 ear and now I feel nerve sensation discomfort sometimes on face , head or back and sometimes stiffness on side heads keeps changing no pain but this daily discomfort, went to chiropractor after adjustments 1st session all went fine for 1 month now itsback again, pls advice or anyone with same problems, pls help, thanks
Was great to see the post surgery pics and video walking, gives me at least an inkling of what to expect after tomorrows surgery, and that is huge (thank you). Been told I have a 50/50 Chance of losing my hearing so I’m expecting it. Hard to imagine going from how I feel today, Perfectly fine other than a bit of hearing loss to barely able to walk in a day. But hey, it has to come out. Surgery will be in Boston and I ready to be done and start my recovery. Wish me luck.
@@oliverv291 I consider it a success, they got 100% of the tumor, I am now 4 weeks post and able to walk 3-4 miles unassisted. Lost my hearing in that one ear and have some minor facial paralysis which seems to be gradually fading. Dry eye is most difficult part of the facial nerve issues. Still a bit of dizziness but hoping the vestibular PT can help with that.
Awesome, good to see you had successful treatment and recovery. im in the uk, suffer severe tinnitus, facial numbness bouts of vertigo and dizziness and balance problems I am also now recently diagnosed as deaf on the side of the tumour, all I hear on that side is a very loud whooshing with a high pitched whine and a bonging that repeats endlessly. I am told that surgery will be offered should it ever become life threatening.
Thanks for sharing your story! I too have been diagnosed with a large acoustic neuroma, but unfortunately do not have the same support system. 😕 it's ok though, I'm a fighter 💪. My complete hearing is threatened due to being almost deaf in one ear, and now this ear...
This is so inspiring. I too have been diagnosed with an Acoustic Neuroma and am awaiting a surgery date. I'm in limbo land at the minute and having all the same symptoms as you had especially the fatigue and dizziness. Im hoping this goes away or at least reduces after surgery, im 40, but feel about 70 most days lol. Hope you are back to yourself now x
I was not expecting such a large scar for her from a translab approach, I wonder though why she did not have a brain surgeon as part of the team considering the brain stem indentation. I am having my 3rd brain surgery in a few weeks and translab also, but expecting 1/2 the size scar. Glad she is ok.
I am 2 mo out from my surgery. It went well; they got it all. Hearing is gone on the affected (left) ear, but that was expected. Mine was the retrosigmoid approach. The facial nerve was perfect immediately upon waking up from anesthesia, but then swelling caused near total paralysis on the left side about 8 days after. Now, at 2 months, the facial nerve function is slowly returning, and I hope to regain normalcy. For most purposes, the present state of it would be sufficient, but I am a musician, playing woodwinds, so the requirements are a bit higher for me. I believe it will come back, but it will take time. I was told that the best indicator of long term prognosis for facial nerve function is how it is immediately, before the swelling, bc if it's good then, that means the surgery itself didn't damage it, so it will almost always return after the sqelling subsides. As for balance, it turns out that my balance nerve had withered away almost completely before I even knew about my acoustic neuroma (aka vestibular schwannoma), and I had already figured out how to adjust for it, so I have experienced very little need for further adjustment. In retrospect, I remember a time when my balance was off, about ten years ago, and I worked through it in my running and walking, never learning the cause of it til recently.
I have this condition ringing in 1 ear and now I feel nerve sensation discomfort sometimes on face , head or back and sometimes stiffness on side heads keeps changing no pain but this daily discomfort, went to chiropractor after adjustments 1st session all went fine for 1 month now itsback again, pls advice or anyone with same problems, pls help, thanks
Hello, couple days ago, I have been diagnosed with a large acoustic neuroma, which came as a blast of shock to me, I have calmed down and seaching for the right steps and any help I can find relating to this matter. I came across you video any advice would be apreciated.
Having you as my doctor is also a positivity that I don't really have to bother about any sickness or virus because your herbal medicine to cure herpes has shown me that you are a real Doctor and your product work like magic. Thank you so much! Dr Pius you're the Best one of them!....
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Survivor since 2013
I am so happy to found this video. I found out that i have acoustic neuroma by accident. Done mri scan for sinuses infection and doctors told me i have tumor in my head that is pressing on brain stem and have surgery schedule. I'm a absolutely terrified and was already told i will loose permanently hearing on my left side. This video gave me so much energy. Thanks
Thank you for sharing. I was diagnosed with a large AN tumor in Jan 2022. I had my surgery Apr 2022 and recovering now. 96% of the tumor leaving a little against my brain stem. I lost my hearing on the effected size. My approach was the translabyrinthine approach. I was in the hospital 4 days! I am a career firefighter and am returning to work on limited/light duty this coming Monday! I have a follow up w my Dr coming up to discuss a BAHA device! My experience and support system was awesome! 3 fire department families and my close family w my wife taking care of me afterwards!! My surgery was at VCU Health in Richmond VA! 🤗🙏🏻🙏🏻🙏🏻
I have this condition ringing in 1 ear and now I feel nerve sensation discomfort sometimes on face , head or back and sometimes stiffness on side heads keeps changing no pain but this daily discomfort, went to chiropractor after adjustments 1st session all went fine for 1 month now itsback again, pls advice or anyone with same problems, pls help, thanks
Was great to see the post surgery pics and video walking, gives me at least an inkling of what to expect after tomorrows surgery, and that is huge (thank you). Been told I have a 50/50 Chance of losing my hearing so I’m expecting it. Hard to imagine going from how I feel today, Perfectly fine other than a bit of hearing loss to barely able to walk in a day. But hey, it has to come out. Surgery will be in Boston and I ready to be done and start my recovery. Wish me luck.
Hello sir how did you make out ?
@@oliverv291 I consider it a success, they got 100% of the tumor, I am now 4 weeks post and able to walk 3-4 miles unassisted. Lost my hearing in that one ear and have some minor facial paralysis which seems to be gradually fading. Dry eye is most difficult part of the facial nerve issues. Still a bit of dizziness but hoping the vestibular PT can help with that.
Awesome, good to see you had successful treatment and recovery. im in the uk, suffer severe tinnitus, facial numbness bouts of vertigo and dizziness and balance problems I am also now recently diagnosed as deaf on the side of the tumour, all I hear on that side is a very loud whooshing with a high pitched whine and a bonging that repeats endlessly. I am told that surgery will be offered should it ever become life threatening.
Thanks for sharing your story! I too have been diagnosed with a large acoustic neuroma, but unfortunately do not have the same support system. 😕 it's ok though, I'm a fighter 💪. My complete hearing is threatened due to being almost deaf in one ear, and now this ear...
I think my husband has the same problem, you just gave me hope. God bless you
I was diagnosed two days ago.
Hope you are well
How are you doing?
Hope you are doing well. What were your symptoms and did you have surgery?
This is so inspiring. I too have been diagnosed with an Acoustic Neuroma and am awaiting a surgery date. I'm in limbo land at the minute and having all the same symptoms as you had especially the fatigue and dizziness. Im hoping this goes away or at least reduces after surgery, im 40, but feel about 70 most days lol. Hope you are back to yourself now x
Its a bad brain tumor. Good luck.
I was not expecting such a large scar for her from a translab approach, I wonder though why she did not have a brain surgeon as part of the team considering the brain stem indentation. I am having my 3rd brain surgery in a few weeks and translab also, but expecting 1/2 the size scar. Glad she is ok.
I am 2 mo out from my surgery. It went well; they got it all. Hearing is gone on the affected (left) ear, but that was expected. Mine was the retrosigmoid approach. The facial nerve was perfect immediately upon waking up from anesthesia, but then swelling caused near total paralysis on the left side about 8 days after. Now, at 2 months, the facial nerve function is slowly returning, and I hope to regain normalcy. For most purposes, the present state of it would be sufficient, but I am a musician, playing woodwinds, so the requirements are a bit higher for me. I believe it will come back, but it will take time. I was told that the best indicator of long term prognosis for facial nerve function is how it is immediately, before the swelling, bc if it's good then, that means the surgery itself didn't damage it, so it will almost always return after the sqelling subsides. As for balance, it turns out that my balance nerve had withered away almost completely before I even knew about my acoustic neuroma (aka vestibular schwannoma), and I had already figured out how to adjust for it, so I have experienced very little need for further adjustment. In retrospect, I remember a time when my balance was off, about ten years ago, and I worked through it in my running and walking, never learning the cause of it til recently.
Survivor here schwannoma
Why the fatigue? I have some dizziness but a lot of tinnitus & hissing. Really can't stand this.
Where in Chicago did you receive surgery?
❤I got diagnosed with acoustic neuroma
Symptoms
I have this condition ringing in 1 ear and now I feel nerve sensation discomfort sometimes on face , head or back and sometimes stiffness on side heads keeps changing no pain but this daily discomfort, went to chiropractor after adjustments 1st session all went fine for 1 month now itsback again, pls advice or anyone with same problems, pls help, thanks
How are you now?
Hello, couple days ago, I have been diagnosed with a large acoustic neuroma, which came as a blast of shock to me, I have calmed down and seaching for the right steps and any help I can find relating to this matter. I came across you video any advice would be apreciated.
How many days you will do walk properly after surgery,
Having you as my doctor is also a positivity that I don't really have to bother about any sickness or virus because your herbal medicine to cure herpes has shown me that you are a real Doctor and your product work like magic. Thank you so much! Dr Pius you're the Best one of them!....
Hello is this cover by assurance ? How do I get in contact with help ?