Thank you soooo much. Your story is so close to mine. I cried when you said I have to let go of the other person. How can I let go of her? She could work 50 hours a week(I am a nurse) raise three girls alone to adulthood....hike mountains run an easy 8 miles, run a rescue farm. Now at 50 I struggle working 32 hours a week and use a cane at home. I have no life outside of work as it takes all my spoons away. I have an appt with a naturopath as the rheum meds were destroying my liver. Thank you for your hopeful thoughts on acupuncture. I want to take walks again like you are. I want a little slice of life back. Thank God for my supportive husband or I would really be screwed. Thank you so very much for sharing !!
This was helpful to see. I’ve been trying to push through as I stubbornly hold on to distances and backpack weights that I need to let go of. It gets harder and harder to recover because I’m ‘overdrafting’ spoons. This analogy was like a revelation. I need to work on acceptance of what I can do now.
I just got diagnosed 2 weeks ago and your words hit home. "none of the words we have can" describe what it's like. My feet have been a big problem for years and no doctors caught until two weeks ago
This was so beautifully said. With words when words can't explain. The curse of our PsA, and it is a curse I would relinquish tomorrow, comes with a bitter blessing of enforced mindfulness. Who you are, is clearer. What you can give is deeper. And what you take, is with gratitude.
I have PsA and it is incredibly difficult to lose weight, but not impossible. Our metabolism slows along with our activity levels. I eat a very healthy diet and am still slightly overweight due to this disease.
Thank you for making this video. My PsA is almost identical to hers and she worded this beautifully. My heart goes out to my fellow sufferers. ❤️
Thank you soooo much. Your story is so close to mine. I cried when you said I have to let go of the other person. How can I let go of her? She could work 50 hours a week(I am a nurse) raise three girls alone to adulthood....hike mountains run an easy 8 miles, run a rescue farm. Now at 50 I struggle working 32 hours a week and use a cane at home. I have no life outside of work as it takes all my spoons away. I have an appt with a naturopath as the rheum meds were destroying my liver. Thank you for your hopeful thoughts on acupuncture. I want to take walks again like you are. I want a little slice of life back. Thank God for my supportive husband or I would really be screwed. Thank you so very much for sharing !!
I’m 13 years past her. I’m basically dead and I’m losing all hope.
Don't ever lose hope
Please keep trying you are worth it.
This was helpful to see. I’ve been trying to push through as I stubbornly hold on to distances and backpack weights that I need to let go of. It gets harder and harder to recover because I’m ‘overdrafting’ spoons. This analogy was like a revelation. I need to work on acceptance of what I can do now.
I just got diagnosed 2 weeks ago and your words hit home. "none of the words we have can" describe what it's like. My feet have been a big problem for years and no doctors caught until two weeks ago
So true and sooo good:)
This was so beautifully said. With words when words can't explain. The curse of our PsA, and it is a curse I would relinquish tomorrow, comes with a bitter blessing of enforced mindfulness. Who you are, is clearer. What you can give is deeper. And what you take, is with gratitude.
Question.....would weight loss improve her condition?
Almost certainly
Perhaps. Maybe try keto diet.
Imagine losing weight when your joints hurt idiot.
-a guy that’s 6ft 180
@@wr6897 Worked for Steve Jobs. Oh wait.
I have PsA and it is incredibly difficult to lose weight, but not impossible. Our metabolism slows along with our activity levels. I eat a very healthy diet and am still slightly overweight due to this disease.