Chandra Wilson announced the Adult Treatment Guidelines
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- Опубліковано 14 жов 2024
- Chandra Wilson, who plays Dr. Bailey on Grey's Anatomy, has been an amazing spokesperson and a great advocate for cyclic vomiting syndrome. Having a personal tie to cyclic vomiting syndrome (CVS), Chandra helped the Cyclic Vomiting Syndrome Association (CVSA) announce this landmark project that involved the first and only of its kind clinical treatment and management guidelines for adults with CVS.
Originally posted in 11/2018: See cvsaonline.org for the released guidelines link.
We just finally after 3 years of fighting found out today that my 8 year old daughter has this and because of the way this has been going the doctor does not think that she will be one of the kids that will grow out of this but we have finally gotten an answer after so many many many different doctors and appointments and I cannot tell you how much of a weight was lifted from me the moment our doctor said “we finally have a diagnosis!” It was so overwhelming in a happy way that now we know and can try to fight this thing, this monster, with the right weapons and get her back to being a normal 8 year old little girl! Thank you Chandra Wilson for being an advocate for this and in the coming weeks while watching everything you have put out there about this I cannot wait to learn more about it.
The number of times I was told this sickness was from smoking pot. Even tho I wasn’t smoking pot the first 20 years I suffered with this before I had to go to the er. I have ptsd from the crappy drs I’ve had to deal with about this.
I began last year when I was 25
I’ve been treated as though it’s: celiac, endometriosis, food poisoning, and others
Glad I found this video
🎉 I’m still waiting to be diagnosed. I’m 44 and have horrible episodes four times a year. Thank you for advocating!
If you haven't already, reach out to the CVSA office to see if they can recommend a knowledgeable physician near you. Find info or a form to request on the cvsaonline.org website!
Thank you!!!! I only started cycling a little over 2 years ago and I'm a woman in my mid-50's. It's awful! Thank you! xo
Me too girl. Do you have a hiatal hernia?
Anyone suffer with cycles of horrific nausea but can’t be sick? My cycles last up to two weeks and I’m totally fine in between.
The nausea isn’t just “feeling a bit sick”. It’s EXTREME. The only way I can describe it is as such a severe discomfort that you can’t think straight, you’re lying on the floor squirming and begging for it to end, trying to make yourself sick for relief, and if there was a button to end it all you would press it! No anti emetics work. It’s a living hell.
I just asked if that was possible in another comment! My 17-year-old daughter will spend a week feeling extremely exhausted extremely nauseated to the point that she can barely eat. And every now and then she will actually throw up but mostly it just feels like she wants to throw up. The first time was 2 years ago.that lasted for a week. Then it happened about 6 months ago, now she's going through it again. Each time less about a week.
@@joes-girl4eva291I finally found my cure, at first I'd take a Zanax and go to sleep. I'd sleep it off. Then I took Topamax daily, it worked. Also Vyvance has worked. It took me 6 docs and many years for a diagnosis. I had to find my own meds to solve it. When I was in a desperate situation, urgent care gave me IV Valium.
Thanks you so much.
Thankyou. Much luck.😅
My 17-year-old daughter has had all the symptoms for the last two years. It comes and goes. The only thing is, she doesn't vomit all the time. She will occasionally vomit. But not non-stop. Could it still possibly be CVS?
Take her to a gastroenterolist, he was my 6th doc and diagnosed me in 5 minutes.
Are there groups where people share their experiences? After being sick for seven years I was just diagnosed with CVS, but after years of no answers I still feel skeptical. I guess I am seeking validation of having the disease from others who suffer.
Check out support group option on cvsaonline.org or look for our social media pages!
Hey. I just saw your comment. I'm 37, been diagnosed since 17. I'm a very severe case and I have so much experience. My mother and I have been doing extensive research on top of 20 years of living through it. I'd be happy to share my contact information to help you. I was at a point of being hospitalized at least once a month but my GI started me on Topirimate in September of 2023 and it's changed my life. I'm on a mission to help anyone and everyone I can. CVS once controlled my life but not anymore. I'm here to help if you want and I really wish you the best.
@@KyraLucia I would contact the Cyclic Vomiting Syndrome Association to see how you can use your experience to support others! Check out their online support groups and interact with others there! cvvsaonline.org
@cyclicvomitingsyndromeasso8646 thank you, I will definitely do that. I feel like I have so much to share and so much support to offer after so many years of suffering. I never thought I could feel the way I do now and I just want to use my journey for good. I know what works for me might not work for all but there's hope for all of us. Thank you kindly 🙏
Unnecessary surgery for me. ✌️
💖💖