Akathisia & antipsychotic drug withdrawal survival story
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- Опубліковано 27 вер 2024
- If you want to contact me my email is
Mishalucia@gmail.com
To connect with others in akathisia find
Living With Akathisia facebook group.
In the video I clearly say it is on ‘facegroup’ - but of course I meant Facebook. There’s no such thing as facegroup lol.
AkathisiaAlliance.org website has some useful info to give to friends and family about the condition. Stuff I couldn’t find elsewhere on google.
SurvivingAntidepressants.com website can give you info specifically about tapering psych-meds carefully.
Do not underestimate yourself.
Antipsychotic drug withdrawal is horrendous and EVERY single person with akathisia states categorically that it is by far the most difficult thing they have ever encountered.
The horror - terror - torture - hell -nightmare - agony - utter destruction of everything recognisable is what we face every moment.
And you - you - are are surviving it.
You are somehow finding your way through it.
And for that you have my respect.
you’re the best mum i could possibly ask for. i’m so glad you’re surviving❤️
It's been 2 years of akathisia for me. On and off, triggered by different things or sometimes nothing at all. Currently in a long haul taper of benzos and I get so angry when I hear people complain about trivial things. Like they have no idea the hell that is actually in this world. And it's always there...bubbling under the surface...waiting to rear its ugly head until you finally give up. But I am fighting and I am educating and I thank you for your story. I tell people the same thing, just survive that one second. Don't think about anything else. Just that one second. Then the next. My prayer is that one day this horror will cease to exist forever x
Hi I don’t know your name but I want to tell you…I had a friend who had akathisia. One time when I visited him he showed me one of your videos. And said ‘look, this is a strong woman’.
He didn’t make it. But he would have wanted me to say hello to you 💔
I can only imagine how many endless seconds you’ve survived these two years.
Respect from me to you. I know you will taste this beautiful freedom on the other side 💪🏻
@@mishanova4904 This breaks my heart 💔 I know your friend is free from the suffering now but It just isn't fair. It will never be fair. Thank you for saying hello for him 💔
I am 18 months, 4 months drug free.
We will make it.
@@DiogoSantos-ix5sl I hope you feel already better. It's an indescribable suffering .
I experienced akathisia for a month and you're right about it being almost impossible to understand that a level of hell like that even exists.
None of us could have known such a thing exists, and none of us can find the words to tell others who haven’t experienced it. But I’m really so glad for you if yours has passed and I hope your life never includes such hell again xxx
What helped you how did you get through it what are the do and don’t please I’m going to kill myself in at the end of the month if I’m not any better or maybe sooner did it just go away I Been taking a lot of Benadryl and it barely barely helps
Please help
I don’t want to die but this pain is unreal and I’ll do anything to make it stop
@@corbinsmith9605 I understand. It’s impossible to cope with the level of suffering. But somehow you have endured this far and I promise it does get better.
Please do reach out to me on my email mishalucia@gmail.com and we can at least talk x
You dont know how beautiful this message is... Maybe you do, actually.
And also, your music is great 👍
Well done Misha, you're brave and strong, so glad to see this. Thanks for your words of encouragement xx
It breaks my heart to know what you and others are going through
Thank you I feel brave and strong and I see the bravery and strength in every single person who is destroyed by this monster
@@mishanova4904hey. Are you still around? Alive? Can we hear from you?
I'm so glad you were able to survive. Not many doctors know what akathisia is. I had to do all the research but my doctor believed me when I took the info in to him. There are over 100 drugs that can cause aka. When I discovered what caused my akathisia and got off the meds, it was 2 years for healing to take place. The suffering is the worst hell you can imagine. It felt like electricity in my brain and legs and it went on and on. The culprit drugs were Lisinopril and Amlodipine for bp. But a decade before I had taken Paxil, so that played a part in it. My doctor did prescribe Ropinirole which really did work for me, I took it as needed, usually twice a day. I'm off the ropinirole now and I've been healed for about 3 years. You've done a great job describing your experience. I had a set back from an antibiotic, so we have to be very careful with a variety of meds. Have a great day and again, it's good to see you're on the mend.
Thanks so much for your good wishes and for sharing your story. And hey - so glad that you survived too and are out the other side. Truly, it is great to hear that you somehow navigated that nightmare and got your life back.
I will definitely be very careful taking any kind of meds from now on. Like you say, even antibiotics. Its a sad fact that most doctors don’t know the first thing about this life threatening condition that is caused by the medication they hand out, and hate to be told that they don’t know. Really good that you found one that would listen.
Hi, sorry, can I ask you why Paxil taken 10 years ago could have had an effect on the akathisia 10 years later?
im glad you healed, i feel like im cursed with this crap, hopefully time heals me.
I’m truly sorry to hear that you’re going through this. Cursed is right, feels otherworldly, straight from the depths of hell.
I know there’s no words I can say to reassure you that this will one day be just a memory, and that you won’t be stuck in it forever, but it’s true.
It passes.
One endless moment at a time.
If you’re anything like me your broken brain is spewing out a lot of terrible thoughts that aren’t true. They seem so convincing but they’re not the truth. You CAN do this.
How are you now?
@@ashleychristie5023 pretty much healed thanks to benztropine and time. time heals all!
@@Zhogaun how long did you have it for? I'm going into month 7 with no windows, totally off all meds for 6.5 months. I'm so exhausted. :(
@@ashleychristie5023 for almost 1.5 years. fully off meds now and im good. hang in there. you can ask for clonozepam and stuff to help out with it. goodluck.
Thank god you are better now and got through it,sometimes prescription meds can be so much worse!
Thanks Florence ❤️ you’re not wrong sometimes prescribed meds can be so much worse than anything on earth
Thank you. ❤️ This is what I've been going through for the past year.
How are you now?
Thank you for your service to humanity. This video has already helped over a thousand people…we need to hear this. Much Love. ❤
Welcome to the awakening ...no one's coming to save us
My son lost his battle to this but I don’t consider it a loss tbh he fought for months and years and just couldn’t bare it anymore ❤
As someone who has experienced this as a young man, I send all my condolences to you and your family. It was not his fault, and I hope that if there is a God he has found some respite. I'm so sorry for your loss.
@@abe1996 🩵 he she thought for nearly 1000 days he had gotten better for about 3 to 4 months maybe even a bit more and things are starting to turn around but then she went to a treatment center to heal his. You know underlying emotional trauma that got him on the Benzo‘s in the first place and he was like I’m ready to start healing that like he was so motivated and then all the sudden he just comes home from the eating disorder program and he’s like I feel awful come to find out that they gave him melatonin there, which really fucked up his system and forced him to eat gluten even though it made him feel like crap so he had to massive setbacks and aggravation‘s that really just jacked up his system again, and he had wrote in his letter that he was so frustrated because he had tried so hard and had fought so hard to keep going, and he was finally ready to move on from it and start the next chapter of his life in a new home in a new environment away from Benzo’s away from trauma, and then to have this happen he just couldn’t Barrett. He couldn’t bear the idea not that it would’ve taken as long as Benzo‘s, but he still couldn’t bear the idea of having a setback and having to heal from that he just couldn’t do it anymore and it’s sad as I am I don’t blame him I really don’t.
I’m so sorry. I remember some of his comments on other channels over the years. I see you use his channel?? I’m so sorry, it’s excruciating to endure
@@Waves353 yea he was a fighter he tried so hard! Ty 🩵
I am really sorry to hear that. My condolences. Something must be done, it can't continue like this
I am just witnessing my mother going through this hell, and i dont know what to do, how to help... misdiagnosed on antipsychotics that messed her up completely , she describes it like she wants to crawl out of her own body .... We give her all support we can, she was on meds for only few months and thats the only possitive thing that we hang on that this wont last too long, but its just horrific what doctors can do to people
Yup very horrific. What you can do to help is have a conversation with her more. That will relax her and reduce the symptoms. Also get her to engage in things she loves to do most. Could be gardening, drawing or playing board games. Lastly walking around helps too. With her being off the meds, it'll only take few months for it to go away.
Antipsychotics kill. Best way to healing is through psychotherapy. Activities and conversations with love ones. Hope is she said is the cure.
Please keep helping her. Don't leave her alone. There is, unfortunately, not much one can do. I went through this, and I managed to make it to the other side.
Hi I hope you’re still feel good doing well please let us know how you were doing and say hi you are loved and very much thanks for this video
Thank you so much yes I am doing good and I hope you are too. I hadn’t thought of making further video but maybe I will and let people know that I continue to do well. Lots of love to you xxx
You are very beautiful and thank you again for doing this video it helps calm me down my finger was Latuda in 2019 then the doctors kept giving me more and more antipsychotic saying it was just more psychosis and more anxiety hospitalising me in forcing me to take drugs then Nicole turkey them all including the benzodiazepine that I had been on for 12 years I am surprised I am still alive can you give me Hope I hope you do another video Sunday just to show that your life is good and to see what you’re doing now maybe art or something I haven’t checked your channel maybe I should check it real quick to see if posted new content I hope you have a great happy Halloween and thanks
I would like to contact you but I'm french and my english level is so low to have a fluid conversation. Thanks a lot for your testymony.
Yeah it’s hard enough to talk about this stuff even in the same language. But maybe give it a go 🤷🏻♀️I have a I little French and google translate. Reach out and say hi if you want. Mishalucia@gmail.com is my email and we can go from there to WhatsApp or whatever x
You probably get a lot of questions from anxious overthinking minds so I'm only going to ask 1. I had 4 years of akathisia and I'm in year 6 now. I still sleep horribly, my stomachs totally f****d up and I can't control my mood swings at all. I just switch from numb to raging to terrified constantly. (Some days are way woolrse than others) I can go out every now and then but Its still so damn hard. Any advice for someone like me? I cold turkeyd an antipsychotic and ssri and if it wasn't for my sister I would have given up in year 3.
keep on surviving!
Thank you I will ❤️ you too
Im slowly tapering off abilify . I have akathisia. Ive been on it 3 months. Im ready to get off it.
How are you?
How are you? How you live with the fear of setbacks?
I have had it for 17 months from abruptly stopping and medication
Honestly my heart just goes out to you cos 17 months is so long to be in that hell 💔. You must be such a strong person - and you KNOW I’m not just saying that - incredibly strong, and you have my utmost respect
💔💔💔💔ty
💔💔💔💔😔
How are you now?
Thanks a lot for your video. Because of DP/DR I was unable to make a video. Now that I feel better, I must do something for the community. I hope one day what happened to us won't happen anymore.
The terror, the insomnia, the pacing, the non stop pacing. For 20 hours a day I paced my house around and around. For 5 1/2 months. I paced all night and all day. I paced at the lake house while on vacation. Ha, vacation.
The over riding doom that hangs with you all day and night. Death is preferable but not the way to fix anything. I am done with this finally. I hope it never comes back.
I never thought I would be that person to think, just survive for the next minute. I did it though.
I'm m so glad to hear you have recovered, you are so brave
So blessed❤
She is very brave and a strong person . Hope you are doing okay.
Thank you yes I am doing very ok these days.
@@mishanova4904 that's amazing inspiration really is well done getting off them . Keep on keeping on.
@@danielcarney3487 I appreciate your kind words and solidarity only those who’ve been on them or have known someone close who’s been on them could know what a nightmare it is coming off. I hope you are doing ok on your own path 🙏🏻
@@mishanova4904 no problem you seem a very nice person glad you are at the other side . Starting my taper in june . Wish you all the best . Hope you have a really good life you deserve it.
@@danielcarney3487 yeah well good luck with your taper. Lots of respect to you for making that decision to do it and I really hope it goes smoothly for you 🤞🏻🤞🏻💪🏻
The symptoms can kill. It get's you to feel out of your body.
How are you doing now.
She’s still good
You are an absolute hero, it’s obvious the pain you’ve been through ❤❤❤your humanity helps, thank you thank you. I’m in hell but I just keep educating myself and keep on keeping on, YOU HAVE MADE A DIFFERENCE ☘️🇮🇪from a fellow guitar player