2021 Outpatient Medical Management in vEDS - Dr. Fleur Van Dijk & Dr. Glenda Sobey

This presentation is from the 2021 EDS ECHO Summit: Vascular Ehlers-Danlos Syndrome (vEDS). vEDS is a genetic connective tissue disorder that causes the blood vessels and organs to be fragile and prone to tearing. The complications of vEDS can be life-threatening and include aneurysm, dissection, and rupture of the arteries and rupture of organs. vEDS may also cause a variety of other symptoms, including extensive bruising and spontaneous pneumothorax. www.ehlers-dan...
Fleur van Dijk combines patient care and research in her profession as consultant clinical geneticist. She focuses on clinical and genetic aspects of hereditary connective tissue disorders. She leads the national diagnostic Ehlers-Danlos service in London which is a tertiary service aimed at diagnosis and follow-up of people with monogenic types of EDS.

[@Notperfecttonya]

Has the study Dr. Sobey mentioned been published? Thank you for this helpful information!!

[@TheEhlersDanlosSociety]

Hi there, yes it has been published: www.ehlers-danlos.com/diagnosis-and-management-of-vascular-ehlers-danlos-syndrome-experience-of-the-uk-national-diagnostic-service-sheffield/

[@Notperfecttonya]

@@TheEhlersDanlosSociety thank you!