The EDS UK Helpline: Meet Asya!

Our free telephone and email helpline is available to everyone, including people with EDS, their families, friends, carers and healthcare professionals.
The helpline (0800 907 8518) is open 09:00 - 17:00 Monday to Friday. Please leave a message outside these hours and our Helpline Manager will call you back. The helpline is staffed by one person so at busy times it may take up to five working days to return your call.
Additional languages currently spoken on the helpline are Urdu, Punjabi and Hindi (Tuesdays and Fridays only).
Please call our helpline for information on the following:
Getting a diagnosis
Advice on managing symptoms
Understanding what EDS is
Referral procedures for EDS specialists
Access to ‘friendly specialists’

[@MelissaChapin]

So lovely to meet you, Asya! Will definitely spread the word in the Zebra community about support being available in Hindi, Urdu and Punjabi-how blessed are we to have you to explain the genetics of EDS and support us in four different languages! Welcome on board and I can’t wait to speak with you in the near future. ☺️🙏🏼✨

[@la-ur4472]

This is an awesome video, Aysa! It's Lovely to meet you (virtually) and thank you for the continued support that you and all the team at EDS UK keep on giving

[@selina3373]

Is this line still open?