⏰ 24 Hour Urine Testing for Mast Cell Activation Disorder 😷 (9/7/18)

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  • Опубліковано 21 жов 2024

КОМЕНТАРІ • 132

  • @janicebird610
    @janicebird610 6 років тому +6

    I love how Harlow gets the couch and you sit on the floor!

  • @mikki1212
    @mikki1212 6 років тому +7

    I recently had to do my first 24hr urine test myself. You aren't alone in the awkward struggle of that, Jaquie! Your outlook on life honestly helps me keep my chin up on days that I don't feel well, and I admire your strength. Warm wishes to you, Judd, and Harlow!

  • @chickennugget5154
    @chickennugget5154 6 років тому +27

    Jaquie, I love your channel so much! Harlow makes me laugh with her crazy antics, and you always cheer me up with your good attitude! ❤️

    • @pammym190
      @pammym190 6 років тому +2

      Chicken Nugget I agree nothing but a great channel!! I love Harlow’s antics as well!😃✌️

    • @ChronicallyJaquie
      @ChronicallyJaquie  6 років тому +4

      Awe thank you, really happy to know Har and I can help cheer you up when you need it 💕😊

  • @alecwinner
    @alecwinner 6 років тому +1

    "My health and my quality of life are worth it" I need that like, idk, cross stitched on a pillow or painted on a mural over my bed. Because truer words have never been spoken.

  • @joyce755able
    @joyce755able 6 років тому +3

    Two things I wasn’t aware of yet, that you lived in Florida and that you were up to driving.... Awesome!

  • @ZacVenture2248
    @ZacVenture2248 6 років тому +2

    I’m glad that Harlow is always with you, even through your toughest times. You are one amazing person Jaquie.

  • @dee-annegordon5959
    @dee-annegordon5959 6 років тому +9

    Believe it or not, that white urine collection thing is called a "Texas hat" 😄. I've also had the joy of making room in the fridge for those orange containers 😕.
    Completely understand the difficult stick issue. My veins are small and deep. Going for blood work is like playing Russian roulette. Sometimes they get in first try (feels like winning the lottery!), sometimes it's 5 sticks, 3 different lab techs and technicolour bruising, lol.

    • @cori8489
      @cori8489 6 років тому

      I have the same issue being stuck. My only good veins are really deep, and all my surface veins blow, literally.

    • @emmeison3028
      @emmeison3028 6 років тому

      Dee-Anne Gordon the phlebotomists at the university hospital I live near are really experienced. I’ve had more good experiences than bad there. For outside lab draws my go to phlebotomist gave me their cell phone when they started floating around so that I can check when and where they are working. Otherwise blood draws are a nightmare since my veins are small, deep and easily collapsible 😵

  • @hollyosgerby1901
    @hollyosgerby1901 6 років тому +1

    🙏🏻🙏🏻🙏🏻🙏🏻🐕❤️❤️❤️❤️ It is such a privilege to keep you, Judd, & Harlow in prayer.

  • @avidscrapper1
    @avidscrapper1 6 років тому +5

    Hahahaha refrigerated!!!!!!!!! Just love your interaction with Harlow, she's priceless.

  • @kaylathomasson9619
    @kaylathomasson9619 6 років тому +2

    I'm in the hospital currently for a bladder rupture ( 3rd in 10 years) and was very sick. Been here a month already. I'm discouraged because I don't know when I can leave but I know I need to be here still. Love u Jacquie

  • @carolinesantos1165
    @carolinesantos1165 6 років тому +3

    Praying for you always 🙏 Many blessings to you , Judd, Harlow and your family 💗

  • @susanlevine779
    @susanlevine779 6 років тому +8

    It's so cute the way Harlow takes care of you. Incidentally, you have a beautiful smile and fabulous teeth. Your videos are uplifting.

  • @marthaberg9061
    @marthaberg9061 6 років тому +40

    I ❤❤ the way Harlow laid on the floor with you it made me laugh

  • @kinseybay97
    @kinseybay97 6 років тому +5

    I feel this test would be pretty easy for me since I could just attach a foley bag and have movie marathons for a couple days. Bladder extrophy is unfortunate but I've found a few 'super powers' that come with the territory which I try to focus on :) focusing on the positive about the situation definitely helps get through chronic illnesses

  • @bethl4674
    @bethl4674 6 років тому

    Hippo was BEYOND adorable when he was laying with you on the floor ! He was just giving his mommy some loves :)

    • @amberk1840
      @amberk1840 6 років тому

      Harlow's is a she. Not he. She's a female

  • @taylorandgraphite4772
    @taylorandgraphite4772 6 років тому +11

    Harlo is the cutest puppo.

  • @heidihokes7789
    @heidihokes7789 6 років тому +8

    Silly Harlow, she's SO cute!!

  • @lynnrose7562
    @lynnrose7562 6 років тому +1

    Hi Jaquie, Happy Saturday! Awww Harlow loves you so much. That positive attitude will always help you. :)

  • @Bananas904
    @Bananas904 6 років тому +2

    I'm a difficult stick too. I feel your pain. So glad your port cooperated.

    • @sophieamarant1536
      @sophieamarant1536 6 років тому

      TheGinnaWinna me too. Even an anesthesia assistant could not get one in.

  • @coloryourstripes9498
    @coloryourstripes9498 6 років тому

    I'm actually bedbound and I love you're videos

  • @EdieBrown
    @EdieBrown 6 років тому

    I love Harlow. She's so funny. Sitting on the couch, her eyes say it all.

  • @alyssasalinas9489
    @alyssasalinas9489 6 років тому +4

    Harlow was like “I’ll give you face pets too”

  • @abbyeastland
    @abbyeastland 6 років тому +7

    When I did this test a few months ago, my husband put a cooler with bagged ice in the bathroom to keep it cold. I’ve always thought that was so funny! Good luck Jaquie! I had a 23 hour brain surgery (for a vestibular schwannoma) on August 16th. I’m hoping to go home tomorrow.

    • @bethl4674
      @bethl4674 6 років тому +1

      I said a prayer for you Debbie... I pray your recovery is blessed :)

    • @meganlovesdisneyandcrafts4780
      @meganlovesdisneyandcrafts4780 6 років тому

      Debbie Eastland Well wishes for a smooth recovery😂

  • @jaclynkritzar2567
    @jaclynkritzar2567 6 років тому

    My golden is not a trained therapy dog but provides amazing therapy everyday. Love watching Harlow

    • @helperdogvader4171
      @helperdogvader4171 6 років тому

      Jaclyn Kritzar Harlow isnt a therapy dog lol she's a service dog

  • @lisagiardino2131
    @lisagiardino2131 6 років тому

    I am so proud of you and you help me continue my health fight having PID

  • @ebonymarie7016
    @ebonymarie7016 6 років тому

    Harlow's face at the end was so cute. I can't wait to get my hippo hoodie!!!

  • @ktrn79
    @ktrn79 6 років тому

    You don’t have to stop antihistamines for a 24 hour urine test for MCAS. I was diagnosed based on my urine test. I had been on antihistamines daily for 20 years when I was diagnosed. At the time of my testing I was on Zyrtec, Zantac, Singulair, Atarax and prednisone.

  • @RosieDozie
    @RosieDozie 6 років тому +1

    Omgsh .. you & Harlow are so sweet together! True soulmates ... 💞💕

  • @jfigue01
    @jfigue01 6 років тому

    I love watching your videos Jaquie!! You keep me so positive

  • @jessd956
    @jessd956 6 років тому

    For those doing the test, I recommend voiding into a frozen cup or glass. I kept one glass in freezer, then used it and put a new glass in freezer while I washed and dried the first one. My test was positive for 11-beta prostaglandin F2 alpha.

  • @laurennorton2935
    @laurennorton2935 6 років тому +1

    That’s right Jaquie-onward and upward!!

  • @pammym190
    @pammym190 6 років тому +11

    Awww Jaquie!! Can u be any cuter & sweeter?? I hope ur pee gig goes well too! I too am fortunate enough to have Dr’s let me pee at home! & I do have a bonnet as well.. with my CP & being 4’8” public toilets don’t fit me to well!!! Ahhh riveting info huh? And as always sooo good to see Harlow!! Sending hugs to both of u!!😃✌️

  • @phantommangagirl
    @phantommangagirl 6 років тому

    Harlow's sigh of boredom at 5:02, I'm dying XDDDDDD

  • @blugreen123
    @blugreen123 6 років тому

    I always called those urine catchers that go in the toilet "hats." There have been many times I've had to "wear my pee hat." Lol!

  • @govi-5648
    @govi-5648 6 років тому

    I love your channel, I learn from you every day :)
    Just as a question, are you not getting the injections that went in your joints to help your pain anymore? They seemed to help you a lot!
    Take care :)

    • @ChronicallyJaquie
      @ChronicallyJaquie  6 років тому

      My pain management doctor relocated rather far away so its been a while since I've been able to do those. But thankfully my surgeon has been working to help me restart them this month 🙌

  • @Thefunfam24-v5s
    @Thefunfam24-v5s 6 років тому

    I love watching your channel,thanks for sharing your journey with us. So how is Janice doing? Haven't seen her since she left UA-cam. I hope she and Paul are doing great and orion🐶too

  • @cellogirl11rw55
    @cellogirl11rw55 6 років тому

    Harlow is so cute and sweet. You are so lucky to have her as your pooch. 😇

  • @LadyTracyAnne
    @LadyTracyAnne 6 років тому +1

    I hope everything goes well with your tests Jaquie xxxxx

  • @catherinebenton3637
    @catherinebenton3637 6 років тому +2

    I had to do that 24 hour urine test because I had a tumor on my adrenal gland and they were trying to rule out cushing syndrome It ended up being a pheochromcytoma which is a benign tumor ( rare one but benign) . worst thing is keeping it in the fridge

  • @rae1957tn
    @rae1957tn 6 років тому

    Next time you go to Walmart or CVS pick up some roll on “Stop Pain”. It really helps on joint and muscle pain for me I’m never without it. Best of luck on your tests.

  • @nikkizayas4887
    @nikkizayas4887 6 років тому

    Jaquie im a fan of u I was diagnosed with Fibromyalgia and Gastropersis recently and right now I’m in the hospital with a few scary infections I’m in the ICU they have me toradol for my pain just now and I feel pretty sick still they diagnosed me with pneumonia nausea high fever c diff and colitis I’ve been here for 7 days already and it took them 5 days for the diagnosis and I’m like feeling worse. My question is have u ever had any of these diagnoses and what can I do for myself to feel better. Like I said icu life and my current temp is 103.3 and the lowest had been 101.9 can I get advice

  • @meenik6489
    @meenik6489 6 років тому

    Hi Jacquie! I haven't heard you talk about this for a while, so i was wondering. How is school going?

  • @katherinebrenner7377
    @katherinebrenner7377 6 років тому

    I had to do a 24 hour urine collection because I had kidney stones earlier this year. Hopefully I never have to do it again because it was horrible. It grossed me out so much and was such a pain to do so hopefully I don’t have to do it again. Congratulations Jaquie for getting through it!

    • @ChronicallyJaquie
      @ChronicallyJaquie  6 років тому +1

      It's not my favorite test either :/ Hope we both don't need to do it again in the future!

    • @katherinebrenner7377
      @katherinebrenner7377 6 років тому

      Chronically Jaquie I dedicated the whole day to stay home, too. Because I was like there is no way I am taking this around with me all day. So I did it on a Sunday so I could stay home and finish it. Thankfully I only had to do one 24 hour collection, and I didn’t have to refrigerate mine. But it was a pain!

  • @mirandabakker1
    @mirandabakker1 6 років тому +11

    You do look a lot better i am so happy the treatment is working 😄😄

  • @cori8489
    @cori8489 6 років тому

    I have Mast Cell Activation Disorder as well, it's really difficult. Even on treatments. I am on Ketotifen from a compound pharmacy and I can feel it working but also I am still having reactions at the same time. It's a tough struggle. I feel like I live on antihistamines. I have a lot more food reactions, and it's super painful. When ragweed released, I got soo sick, it's like allergies turned infection or something. I feel your pain on this illness. Much love from Kansas City!

  • @KatyB1113
    @KatyB1113 6 років тому

    I have to do another 24 hour urine collection myself because last November I found out that I had 28 kidney stones, so he's keeping track of me. However, I don't have to refrigerate mine. It's a pain in the butt, but it's one of those things we have to do in order to get the best care out there!!

  • @nicolepszonak6336
    @nicolepszonak6336 6 років тому +4

    Holy moly! That’s a lot of pee that they want lol I never seen containers for just for pee never new lol

  • @johnbladykas4454
    @johnbladykas4454 6 років тому +1

    I am new and learning about cell. My histamine levels are in normal range but a tryptase level at 14.
    I never had a reaction. Just learning

  • @cottoncandyfriends8933
    @cottoncandyfriends8933 6 років тому

    Harlow is sooo cute. My sweet baby likes to cuddle with me too! Glad u seem to b feeling better Jacqui!
    I love u & am praying for you! Will light another candle for you at Mass tomorrow morning & will include u in my Rosary, as well... GN sweetheart. It's 12:15 am 9/9. Gotta get some sleep now!
    JESSIE

  • @joanmilano5302
    @joanmilano5302 6 років тому

    I am in love with Harlow!

  • @1aliveandwell
    @1aliveandwell 6 років тому

    Did they test oxalic acid? Have you tried journal/diary of weather,stress,foods to see if might increase reactions? Lowhistaminechef had a lot of good ideas.

  • @lisagiardino2131
    @lisagiardino2131 6 років тому

    I love you determination and love for your family and Harlow

  • @emmanightshade295
    @emmanightshade295 6 років тому

    I love you guys and I don't know how north Florida will be doing through Florence but I live in Savannah and even though I am terrified right now and trying to get everything we need for it ready, I hope you guys will be okay. You and your family are always in my prayers.

  • @krafttee1
    @krafttee1 6 років тому

    After all you've gone through, peeing in a jug is the easy part. Harlow! Sometimes I just watch her face while you're talking. Her expressions, she's adorable ✌️️

  • @sarahstuart3245
    @sarahstuart3245 6 років тому

    "You fuss me and I'll fuss you mom!" Sooooo cute!

  • @VulcanOnWheels
    @VulcanOnWheels 6 років тому

    2:55 Ooh, that could so easily have gone into your eye!
    6:16 That does sound very good.

  • @sarahtennyson7260
    @sarahtennyson7260 6 років тому +1

    👍🏻🙂💖 Glad you are making progress!!

  • @mimis-girls7935
    @mimis-girls7935 6 років тому

    Harlow makes me smile

  • @jayquill22
    @jayquill22 6 років тому

    Love your videos! Keep moving forward 💙💜💚

  • @jonasflynn.7389
    @jonasflynn.7389 6 років тому

    My mom had to do this test... It’s quite entertaining.

  • @warthogprincess5749
    @warthogprincess5749 6 років тому

    Love the Vera shorts 😍

  • @samiamisme
    @samiamisme 6 років тому +2

    Worst test on the planet. I remember having to stop all of my anti-itching drugs two weeks prior to the test and I ended up in ER four times. It was torture. Only to find out my mast cell levels were not showing during test but it was evident by all my symptoms that I had mast cell. I could have told them that. Pft. Hope your test goes better.

  • @carolinesantos1165
    @carolinesantos1165 6 років тому

    Harlow is so sweet and loving 💗

  • @katiestanina813
    @katiestanina813 6 років тому +2

    I just got out of a GP flare, But lately my POTS and chronic pain from my EDS has been really bad, I'm also wondering if its the crazy Florida weather. I like watching your videos you and Harlow cheer me up. I hope the medical marijuana is still helping you do look better! I get 2xs a week IV saline infusions for my POTS and I enjoy watching your videos while I'm infusing. Also good to hear your MCAS is doing better with the xolair shot. Treatments are exhausting, But the outcome is worth it!

  • @horseweirdo1235
    @horseweirdo1235 6 років тому

    Omg love you and Harlow

  • @keishlacruz136
    @keishlacruz136 6 років тому

    I’ve done those to check the amount of protein I release in my urine, it never gets any less gross or awkward.

  • @janetatum8966
    @janetatum8966 6 років тому

    Question, maybe less triggers if not going out and about?

  • @luvgoldens12
    @luvgoldens12 6 років тому

    Harlows so cute at 4:00

  • @Carolinakid8643
    @Carolinakid8643 6 років тому

    I know what you are going through. I did that pee test twice.

  • @sarakrueger494
    @sarakrueger494 6 років тому

    I’m doing this test tomorrow!!!

  • @katc9087
    @katc9087 5 років тому

    Omg I hate pee jugs I’ve done them 3 different times. The doctor was gonna do a 4th but I might not have to yay!

  • @zeew.8137
    @zeew.8137 6 років тому

    I have to do this test on Monday at school 🙄 so not looking forward to it

  • @asiulana21
    @asiulana21 6 років тому

    I had to do the same test some years ago too!

  • @terrilynnstoneburgh3787
    @terrilynnstoneburgh3787 6 років тому +1

    Love your videos! BUT I WANT MORE!

    • @ChronicallyJaquie
      @ChronicallyJaquie  6 років тому +4

      I try to do at least 3 a week :) This new way of doing videos is easier for me to handle. Thankfully I have felt well enough to do more than 3 per week lately!

    • @terrilynnstoneburgh3787
      @terrilynnstoneburgh3787 6 років тому +2

      3 videos are plenty i just love you so much!!!

  • @tamberjune
    @tamberjune 6 років тому

    Aghh the Orange jugs!

    • @tamberjune
      @tamberjune 6 років тому

      And Harlow made me laugh when she batted you on the face hahah

  • @charlottebarros2866
    @charlottebarros2866 6 років тому

    Hallo looks so cute 😘🐶🐕🌹⚘I hope you start feeling better hun hugs from California I'll be praying for you.

  • @r.baldwin880
    @r.baldwin880 6 років тому

    Hippo love! Very little better than Hippo love!

  • @lindsaybuckles1543
    @lindsaybuckles1543 6 років тому

    Jaquie, if you weren't chronically ill would you still have gotten a dog?

  • @samf2539
    @samf2539 6 років тому

    I did mine on H1 and H2 blockers, antileukotrienes, and prednisone and my histamine level was still elevated. I think the only medications that affect the results of this test are mast cell stabilizers!

    • @ChronicallyJaquie
      @ChronicallyJaquie  6 років тому +1

      I've heard conflicting things but I'm just going based off what my doctor told me. But there is no way I can come off treatment anyways... Too risky! I've also heard some people have normal results (with or without being on treatment) and still have MCAS? So the testing seems complex to me.

    • @jessd956
      @jessd956 6 років тому

      I was told that meds only affect your receptors, not the production of mediators in the body. So I've stayed on all my meds. I think NSAIDS are not supposed to be taken before testing for some reason.

    • @samf2539
      @samf2539 6 років тому +2

      Right I believe if you’re not having symptoms you’re more likely to have a normal result, so I was told my medications shouldn’t affect it (the mast cells still release the chemicals, the medication just prevents the chemicals from affecting the cells) but if it were to come back normal to wait for a particularly symptomatic day. I’ve had to do 3 and one came back normal but because the lab didn’t handle it properly.

    • @ChronicallyJaquie
      @ChronicallyJaquie  6 років тому +1

      Yeah that is the other things I've been told about this test, often times the lab does not handle it properly and results are incorrect because of that. It is sad, but true. It has to be kept cold at all times! I think with all these variables (medications, symptomatic days, lab handling errors) it makes sense as to why most doctors will test repeatedly. Mine always came back elevated though, and I have had one normal after I started a pretty adequate treatment plan. But maybe I was not symptomatic enough that day or maybe the lab made a mistake. It is a tricky test in my opinion.

    • @jessd956
      @jessd956 6 років тому

      @@ChronicallyJaquie Jaquie, I recommend going into a frozen cup or glass, then transferring to the jug. That is how I got a positive test. I kept switching 2 glasses I kept in the freezer.

  • @baby_girl_jennifer8573
    @baby_girl_jennifer8573 6 років тому

    how do thay expect you fell that

  • @WorkingK9
    @WorkingK9 6 років тому

    How do you know that Harlow isn’t a trigger?

    • @ChronicallyJaquie
      @ChronicallyJaquie  6 років тому

      Allergy testing. I'm not allergic to dogs.

    • @WorkingK9
      @WorkingK9 6 років тому

      But triggers don’t have to be IgE allergies... I’m seeing a dr for suspected MCAS this week and even though I’m not allergic to dogs, I am certain they can be a trigger.

    • @ChronicallyJaquie
      @ChronicallyJaquie  6 років тому

      That's true! But we have already gone through the lengthy process of trying to determine what I react to. Harlow doesn't have an obvious correlation, but she does have a very apparent positive impact on my safety, independence and quality of life. So perhaps that "what if" will always remain unanswered, but I am okay with that because the pros most obviously outweigh the cons. There is not enough evidence to say she contributes to my reactions, and definitely not enough reason to consider not having her.

  • @taylorburge3223
    @taylorburge3223 6 років тому +1

    At least it’s not a stool test I’ve had to do about 6 or more I’ve lost count I’ve had to do so many I honestly wouldn’t mind doing a urine test it’s a whole lot better 😂 I have Crohn’s disease and sometimes gastritis

  • @trishab2147
    @trishab2147 6 років тому

    Pee collecting tests are much better than stool sample tests... those are so gross.

  • @titanicgirl774
    @titanicgirl774 6 років тому

    I’ll be honest, how are you with being a police officers wife? As soon as I learned that (new to your channel) I was like, holy cow!! This girls a super hero!!”

    • @ChronicallyJaquie
      @ChronicallyJaquie  6 років тому +2

      He loves what he does and he has a kind heart, but a rationale mindset. It's a great career for him and when he is this happy with work, it's easy to support him. (:

    • @titanicgirl774
      @titanicgirl774 6 років тому

      Chronically Jaquie what a beautiful way to put it. :)

  • @alyssawssinging4039
    @alyssawssinging4039 6 років тому

    Hey jaquie

  • @plushpuppy32
    @plushpuppy32 6 років тому

    I have to do a feces test to discover why I have anemia

  • @user-ee7kb6sf5g
    @user-ee7kb6sf5g 6 років тому

    At least it wasnt the stool sample tests 😖 that was the WORST

  • @purpleangelwings6579
    @purpleangelwings6579 6 років тому

    Whoooooo Hooooo go Jacque......you look so much better since using the CBD oil .....good for you ..... i am praying for you 🙂

  • @MrRichard1280
    @MrRichard1280 6 років тому

    honestly the chugs just look like gas cans

  • @hannahmariellewellynllewel7128
    @hannahmariellewellynllewel7128 6 років тому

    Hardlow u are so cute pup 🐕

  • @djlawlz4041
    @djlawlz4041 6 років тому

    I completely agree with you and know exactly how you feel on how much effort it takes to keep our bodies functioning . It takes so much time and effort. for me my time consuming treatment and testing is Physical Therapy. . Everyone i go, I get better in terms of symptoms and sometimes we even make progress on things such as making my muscles stronger . seeing that I'm only human I have to take breaks once in a while and I do Physical Therapy. at least once a week in the hospital and every day at home but once I take a break I declined quite significantly and it's very frustrating .
    I know that I can't take time off often so I try to only do it once a month so I don't cause myself more pain and rapid decline but it's so hard not to especially while being a junior in high school .
    just remember to do what's best for your body but not let it consume you . take everything one step at a time and take breaks when you need to .

  • @angiemarquez06
    @angiemarquez06 6 років тому

    Hello 👋

  • @nickforman1038
    @nickforman1038 6 років тому

    B-1 treats pots. Pls try it. And myb a b complex vitamin, because the b vitamins work together

  • @infinityarts1744
    @infinityarts1744 6 років тому

    First one here! Poor you x

  • @angiemarquez06
    @angiemarquez06 6 років тому

    Hi

  • @caseyhansen7914
    @caseyhansen7914 6 років тому

    😍😍😍

  • @Not_a_snake
    @Not_a_snake 6 років тому

    Did this. It was sorta gross, but not too bad.

  • @pointblankperiodt2325
    @pointblankperiodt2325 6 років тому

    First