My Recovery from Blepharospasm and Meige Syndrome
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- Опубліковано 5 лют 2025
- This video is about my use of Neuroplasticity to recover from Blepharospasm and Meige Syndrome through hard work and the help of Dr. Joaquin Farias.
Link to Dr. Farias:
www.fariastech...
Link to my story and ongoing diary which describes my symptoms and strategies for recovery:
dougpatt.com/m...
Link to Facebook group, Neuroplasticity Therapy for Blepharospasm, which has been great support:
/ 1425592381040551
Your symptoms have described me! I had a year of Botox to no avail and most recently DBS brain surgery. I am still recovering with no positive results. Thank you for your recommendation of Dr Farias!
Got diagnosed with blephorospasm just today after a decade of progressive worsening symptoms. My quality of life has really suffered and your video brought me to tears seeing someone recover and gives me hope after endless struggle and stumbling around in the dark as my life has been crumbling around me. I will look into your methods and start my healing journey.
A million thank you for making this video and giving us the link to Dr. Farias. I have been receiving botox injections for years but my life is still limited by this condition- Facial Dystonia. this gives us hope
Thanks G S !
Thank you for this video...finding the way to relief. Congratulations on your management of the Condition.
Thank you for posting, and I’m so happy you recovered! I have received Botox every 10-12 weeks for 21 years BUT quit 5 months ago. I follow Neil Durrans who recovered also. I truly believe this is due to an emotional burnout (emotions presenting as physical). I had (have) all the symptoms you had and am slowly recovering 🙌🏻. Thank you again for sharing.
I agree! I follow Neil also and will recover!
My wife and I have continued to embrace you in our thoughts and prayers. I have been listening and hearing you for a number of years. I have also enjoyed your presentations and lessons. Semper Fi
R. Thanks so much for the kind note. Very thoughtful. All the best! Doug
Doug, Sorry this has plagued you in the recent years. Glad you are clawing your way out. I appreciate your sharing and giving listeners a path to sensitivity and fellow patients hope. Be well.
I have been diagnosed today with this. It started about 9 months ago. It was only have running/jogging. Then it was after anytime I broke a sweat. Now it seems like it happens after walking or standing for a long period of time. I go in for botox treatments on Tuesday. I'm excited to now have a name to the disorder. I was able to record my spasms (on the phone) and show the doctor. Today, we had a muscle test and it started, eyes started to have spasms and closed. The doctor was able to witness it. She said my muscles and nerves were fine but she would contact a colleague of hers that she thought would know more about this. She called me back within the hour with a diagnose and doctor that could help. I'm so excited and can't wait to start treatment before it gets worse!
I'm here because your first playlist is on my classes extra resources. It brings me great joy to see this video tho. Tks for sharing. I'm glad you have seen improvement and are trying to also help others!
I admire your strength and persistence. Thank you for sharing. Stay amazing.
I've just watched your video on Dr Farias' Dystonia Recovery website. I too have BEB and I look forward to reading about your journey towards recovery. Thank you so much for posting!
I just saw something you posted on instagram, so I came to check our your UA-cam channel. It obviously has been a while. I had no idea about your condition, but I am very happy you are getting better. I have always liked you information and presences on UA-cam. God bless and continued progress on your recovery!
Thank you Tim:) Nice to hear from you.
Dang Doug! Glad to hear you're doing a lot better. I started watching your videos back in 2010ish. While I didn't become an architect, I did get a degree in architectural engineering with an emphasis in electrical. I've been working at an electrical engineer for the past 4 years. Your videos inspired me all those years ago to better myself. God bless you.
Thankyou so much for making this video, I really appreciate it. Im now 18 and had a bad head injury 3 years ago. My eyes have flickered and twitched uncontrollably over time. It has progressed since and became more frequent and it is now impacting me a lot more mentally that ever before, especially in public and with social interactions. I informed my parents since day 1 however am only now just taking proper action into seeking advice and treatment. The worst of all is the muscle pains in my upper face and eyelids. Sleeping has become a lot more difficult as involuntary, constant blinking throughout the day has lead to my eyes being sore at night when most importantly needing to be closed. This has lead to not getting enough sleep and feeling even worse about it day after day. I’m glad I can communicate with others in similar or relatable situations and I greatly appreciate you making this video regarding it. Thanks very much
Hello Beans on Bread:) I'm so sorry to hear about your challenges and wish you all the best. I understand how difficult something you have no control over can be. Hang in there and thanks so much for the note! I believe there is hope in all things challenging. Seek and you will find.
Doug, Thank you so much for posting this video. I have been experiencing the same conditions for almost 2 years. Initially, I thought it was due to the major changes in my life, but then thought it was due to an issue with dry eyes, which led me to visit several ophthalmologists. There were good days, but mostly very bad days. Today is one of those bad days that led me to start this research, which landed me in your video. The severity of the situation reached critical levels with my inability to conduct simple things like typing this message. I am glad that you are cured and will certainly continue to review the material that you are suggesting to pursue. Hoping for the best. Thank you, again.
Hi Tony. Thanks for the note and I'm so sorry you're going through this. Definitely check out my diary and I'm happy to talk if you're interested. Kind Regards, Doug.
Doug, I've got Meige Syndrome which, like you, came on in mid-life. I've had serious symptoms for well in excess of a decade with milder symptoms for a few years before that. I was at the point of being functionally blind before I was able to convince my primary care physician that what I was experiencing was real. Pointedly, I'm a physician. I work as a senior attending pathologist and spend 8-10 hours a day at a microscope reviewing cases. This threatened my ability to practice. About a decade ago, I self diagnosed and got myself referred to a neurologist who confirmed my suspicion and referred me to a very talented ophthalmologist for treatment. I get Botox injections every 13 weeks to help manage the blepherospasm. I just live with the oromandibular dystonia. I cannot smile. I haven't been been able to smile in over a decade. When I try, all that happens is a grotesque grimace that frightens people. I've just stopped trying. Every year or two I would do a Pubmed search and see if anything new has been reported. It's quite a rare disease, as you're aware. Amazingly, your UA-cam video is the first I've heard of anything that approximates treatment with the hope of cure, rather than just managing symptoms. I'm indebted to you. Congratulations on your obvious improvement in symptoms - I understand the work involved. I plan to get in touch with Dr. Farias. Best wishes, John
Hi John. What a moving note! I'm so glad you found the video. For starters, the doctor's 4 day seminar is the way to go. I'm not sure how he's doing things with COVID right now so hang tight if dates are on hold. I visited Toronto for a seminar and even though I was nearly asymptomatic at the time just being there for his discussion with others was incredibly valuable long term. There were some really miraculous (and I don't use that term lightly) things that happened with his patients when I was there. I am not a member of his online group but I'm certain it has a lot to offer. The Facebook group Neuroplasticity therapy for Blepharospasm also has lots of great resources and regulars always ready to listen and help. Also, make sure you read through my diary (link in the description box below the video) for some surely helpful insights. Also of note. My father could never smile. My mother used to tease him about this years before his diagnosis with Meige. His dystonia came on in his early 50's (mine late 40's). This condition is slippery. We can anticipate symptoms, but we can never really forecast severity. We can have good days and awful. However, with hard work, Neuroplasticity is an incredibly fruitful route. I am virtually symptom free at times and every day a little better still. It's a daily battle. You're welcome to contact me (contact on dougpatt.com if not YT) if you'd ever like to talk. I wish you all the best and thanks again for your thoughtful and well written note.
@@howtoarchitect, i have orbicular dystonia, it is very painful,
How are you doing now?
Doug I have used your content for YEARS in my classes (I teach HS Arch Design & Eng Design). You explanations and examinations of subjects far exceed my abilities to succinctly capture concepts. I had no idea (a tribute to your video making!), and I am glad to hear you are on the mend. Thanks for all you have done for us UA-cam dwellers that appreciate masterful people lie you who share their immense skill and knowledge. Speedy recover and positive thoughts my friend.
Thank you!
I just want to say THANK YOU for making this video. The progression of my symptoms followed exactly how yours did and I've spent about 5 years trying to figure it out. It eventually turned into functional blindness and i was forced to take disability. During this time, I was researching other eye issues and came across your video. Turns out I also have the same condition and was treated with botox. It made a world of difference, and I was able to return back to work.
It's a shame it's such an orphan condition. With that said, I'm kind of glad it is. It's awful. I'm so glad to hear that you found a helpful treatment.. and you're working again. Congratulations. I still have subtle symptoms but when I look back I cannot believe how challenging it all was. I'm glad it's in the rear view mirror and I wish you all the best moving forward with treatments and solutions. There is hope! Kind Regards, Doug.
can you please explain your first symptoms?
Thank you Sooo much for making this video! I’ve been praying for this for years! I believe in recovery!🙏🏽💖 yay❣️
When you said "2019" I suddenly realized I've been watching this channel since '09.
I learned a lot and I'm really glad you're recovering.
Well, man Ijust realized it after your comment!:) It past 10 years after I saw this channel in my University years for the first time!
Thanks for sharing Doug, I truly wish you the best in your recovery!
Damn, I just found your videos and it turns out you're going through this illness. I pray for your recovery and healing good sir.
I hope you have recovered! I have read your book "How to Architect" (MIT Press) which I bought at the bookstore of Chicago Architecture Center several years ago when I visited Chicago. The content is so profound but easy to understand. It seems to me it covers what I have felt during my career as an architect. I have been working at a large architectural firm in Tokyo. I am also a Penn graduate, MArch '78. I took Mr. Edmund Bacon's class, too! One day after the class, he took us to the taichi studio where he attended to make us recognize the relationship between our body, architecture and urban design! Anyway, it is very nice to know your activity to let the people know the reality and raison d'etre of Architects!
Thanks so much for the note. That's so cool! Penn and my book from Chicago. Great to hear. I'm glad you enjoyed it. I'm also very jealous. Japan is wonderful. I miss it a lot. Thanks again for the comment!
This is amazing!! You look wonderful. If anyone can beat this terrible condition it’s you !!!
Sir, thank you for sharing your profoundly impactful video. Moreover, I am equally joyed you are getting better. Granted, hard work is essential to conquering this debilitating syndrome. My sincerest hope and prayer is VICTORY. I do not know you, although I sense in my heart, that you will definitely get well. As I have often shared with my family, "I don't know-how, but I know who." Living life to its fullest. Blessings on you and yours. Semper Fi, Robert
Thank you!
Hi Doug, I have been diagnosed with blepharospasm and now mesh syndrome for five years. Up until the time I was diagnosed I was very active and still working as a therapist even though I’m 75 years old blepharospasm has greatly limited my life the pain is sometimes and unbearable. The only relief I have is when I am resting my eyes or sleeping. And because of all the tension in my face, I feel very tired most of the time. The Botox does help many people but it has really not helped me at all and I feel at my wits end . I had been thinking of going and taking the four day class with Dr. Farias. And since I happen to be on your UA-cam presentation, I’m beginning to think that that would be very helpful .Thank you so much for sharing your story.
Valinda Zimmerman Tx
It was a game changer. I highly recommend the seminar. Thanks for the note and all the best!
I have been watching you since your first post. I was the guy talked to you about doing voiceovers here is LA. I am glad you are doing better. I will pray for you.
From one architect to another, I wish you all the best as you advance toward a recovery. Thank you for sharing your condition and improvement so others can find hope, comfort, and, hopefully, their own recovery.
Thank you:)
@@howtoarchitecthow can I reach you about this disease
I didn't know you were facing such struggle. Thanks for all you efforts enlightening architects all around the globe. I know I love your content. It is really smooth and pleasuring. I love to know that you are getting better.
I'm in optometry school and this came up in my studies. The textbooks don't talk about BEB or Meige syndrome in this type of detail, so thank you.
Glad to know that you are getting better. Thank you for sharing your story with us. 🙏🙏
Glad to see you're better. Best wishes!
Hope you're still continuing to do better Doug. I watched you years and years ago and your channel popped back into my head and I wanted to see what you were up to.
Thanks for the early years of inspiration in design!
Thanks for the note mike:) Doing very well.
You are a warrior! Thank you so much for sharing this journey. Praying every day for your healing.
Thanks for the note Allison. Appreciate it:)
stay well my friend... you are a significant voice to those of us in the profession, and a competent and encouraging face to the wider public and those considering the vocation... prayers and best wishes for your recovery and continuing success
I'm happy for you Doug that you found a way to get over it .I hope you go into complete remission and never have to fight it again. ~~~Juliana
Thank you Juliana:)
Hi Doug, thank you so much for your video, now I am subscribing for Dr. Farias’ on line platform, I do not have to face my condition alone. Best wishes in everything! 🏆🌹🙏
Doug has inspired to become architect, before I went to architecture school I remember watching his channel as soon as the next video drop. I learn things from this man that they don't even teach in architecture school anymore. All I can say with tears in my eyes, that you get better soon. All your hard works are appreciated.
Thanks for the kind note. I wish you all the best on your journey! Warm Regards, Doug.
Thank you!
Thank you for this information. 44 years old and this hit me. It’s been hard age depressing.
Take care man... You have inspired me as a young architect... Keep going... May God bless you.
Hello there! Well, just to say you are an inspiration to me! I follow you for so many years now, followed you when I started my master in Architecture at the late age of 32 and in those tought times I thought about quitting you were there to support me by you sharing your love for architecture with all of us here on youtube. Keep strong!! All the best from Portugal! (By the way, I'm finally practicing architecture!)
Thank you so much for the kind email. I'm glad you're getting after it! I used to live in Oporto. Portugal is amazing. All the best with your career!!! Congratulations.
This simple video is a source of hope for many.wishing u the best of luck ✌️✌️✌️💪💪💪💪💪
Really happy to hear you're recovering and that your efforts have borne fruit. I wish you a quick recovery and the ability to enjoy life to the fullest!
Thank God you are recovering. All the best.
Hey Doug!! Glad to see that you are doing better and continuing to get better. I had no idea that things had gotten so bad with the facial tics and spasms. Wishing you continued recovery and, of course, all the best!
Thanks Bob!
I wish you a quick recovery and the ability to enjoy life to the fullest! Thanks for all you efforts enlightening architects all around the globe. I love your content. It is really smooth and pleasuring.
I wish you well Sir. I have learned so much form watching your videos, that I have to say ..."THANK YOU, for everything that you have done, are doing, and may do in the future.".... I just learned of what you have been going through today... I never knew. I wish you better. You are a great teacher. You're a good man. And Sir, You have my respect.
Hi Smitty. Thanks so much for the kind email:)
Merhaba lutfen gorun yorumumu annemdede 1 senedır meig sendromu var bız turkıyedeyız nasıl bır yol ızledınız ıyı olmanıza sevındım
Wishing you all the best. Continue to take care of yourself
What a blessing!!! I have nowhere near the challenge you’ve faced but your recovery and willingness to share has blessed my heart. God bless you and journey.
Sir can I get more information about it sir my father is facing same problem please provide us the the methods to recover ....
Fascinating therapy and idea behind it. Glad you’re doing well, I’m sure it’s a lot of work and effort. Good luck! 💪
I wish you all the best on your recovery
Wow, I'm sorry to hear & see what you've been thru. I hope & pray you can beat this. God Speed my friend!
Вы очень хороший преподаватель, желаю Вам крепкого здоровья, чтобы Вы могли и дальше давать нам эти очень важные уроки.
Absolute legend for baring this for all to see, your sharing will undoubtedly help others. What a beautiful man. Much love and respect Mr Architect.
Thanks Craig:)
Mil gracias. Mi nombre es Doris Pulido, me diagnosticaron sindrome de meige y tengo bastante dificultad para hablar, masticar los alimentos, deglutir sólidos y líquidos, ha sido muy difícil.
Esta técnica del Dr. FARIAS es una luz para esta condición. Dios lo bendiga Doug por compartir el link. 🙏
That's great news, I'm glad you are doing better. The treatment sounds quite interesting.
Glad to hear you are getting better.
Thank you so much for your all effort to keep making video, you have enlighted the way how to architect to alot of people , and i am very appreciated it. I hope you can be better soon. Fighting !!!
Best wishes
Hello Doug...thank you so much for sharing your story. I am in the beginning stages of trying to figure out what I actually have. I will see a neurologist in 3 days. I believe it's Upper Eyelid Apraxia but I do not know. Being my own Dr. Google is causing much anxiety BUT it led me to seeing your video, which is a Godsend. I am scared and my mind is running in a million directions. I will continue research on neuroplasticity and on Dr. Farias. THANK YOU for your courage and I hope your recovery is going well.
I wish you all the best sophia:)
Glad to hear that you are recovering! 🙂
Thank you for sharing. We are on the hunt for answers to my husbands condition. This video may change his life. Thank you!
Happy to see you recovering well Dough :)
I hope your recovery continues.
Wish you faster recovery and stabile result!
Thank you Doug! Going to check your links. It's good to see successes with our crazy organic bodies
Thank you for sharing your journey. Glad you are recovering.
I’m glad you’re better we missed you
praying for you.
Hi Doug! Just viewed your video. I don’t know if you’re still sick or not; but I sincerely wish you to get well soon!
Hi, I'm a medical student just wanting to know what a Meige-Syndrome is. I'm really impressed by what you achieved! Thank you for that video! It helps a lot! :) I hope you're doing well now or even better! All the best! :)
Doing Great! Thank you:)
Hi there
I haven’t been diagnosed with MEIGE yet but have been diagnosed with blepharospasm. I’ve had no appointment for months because of delays through covid but my mouth is now worse than my eyes . I’m quite scared for the future . If I’m not grimacing frowning and clamping shut it’s opening wide . I know 100% I have it and will expect my neurologist to diagnosis me etc time I see him . It heartens me to see someone recover such as yourself . Thanks x
Hi Suzy. I'm so sorry to hear about your Meige. It's quite a challenge but there is HOPE! Read my online diary below the video for more detail and hope with your journey. I wish you all the best. Doug.
@@howtoarchitect thanks hun 👍
@@howtoarchitect thanks Doug 👍
Same situation been diagnosed with Blepharospasm and seeing Neurologist soon my jaw muscles and chin are so much worse than eyes
Thank you for sharing your journey with us. I’m glad to hear that you are getting better ☺️
Glad you're doing better never heard of merge before thank you for sharing your story stay well brother 👍🏾👍🏾👍🏾
Doug thanks for making this video. It’s very encouraging to say the least. I don’t think you mentioned, had you tried any other treatments before you discovered Dr. Farias? Botox, for instance?
Hello Brian. I found Dr. Farias before my symptoms were pronounced so there was really no need at the time. A couple years later once my symptoms had become too severe to hide I did try botox twice. It just wasn't for me. As antithetical as it sounds, it took away the control I was learning to harness with neuroplasticity. Thanks for the note.
Good job. I think this is great information as still medical industry is learning.
Thanks because in 2008 I learned everything about you
I hope you can pass every difficulty, and i can only wish you could recover soon
My dad also had blepharospam, it was so bad he almost had to retire because he couldn't keep his eyes open to see. Luckily botox worked wonders for him and he's completely fine now.
My father has the same condition, he has been going through this, past 6-7 years, He had diagnosed with botox injections but it is only effective for hardly 3-4 months. At first, to be honest, after so much of research and consulting n number of doctors finally they have concluded that this condition is called Bhlepharospasm. It is extremely rare atleast in the area where we live (Andhra Pradesh, India) so obviously, even for the doctor's, it is very rare to treat these condition, they have struggled alot at first. It is really important to educate and share the knowledge you know as it helps other patients in one or other way like this gentleman did a video on it. The main problem of this particular condition is, it is a serious condition and there is no permanent cure for it. Every person or a relative of the patient needs to open up on this atleast to propagate some knowledge about this. Strength to all.
Hey help me plz my father is also suffering frm blepharospasm 😢
@@shwetaverma9761 Botox is the only thing he can try that isn’t invasive.
Doug, I have been following you since 2008, I always looked up to you as a student then as a practicing architect.. you have reached far than any other architect in youtube, so thank you.
I pray for your full recovery and I thank you for sharing this personal side of you.. stay strong and know that you are always appreciated.. your, from the UK
Wow, thanks. I really appreciate your kind words:)
I just got diagnosed with BEB. I can 100% relate to you. I've been dealing with being undiagnosed for 16 months. Godsend..
How old were you when it started?
@@headtrips1 56 Yeats old
This sounds very promising. I'm in my neuros office awaiting my botox and DBS adjustments. I will be reading this when I get home. Hope it works. My life as a GREAT trainer was lost after I lost my voice!
I'm sorry to hear that and hope you find some relief. See the comment below for link to Dr. Farias Seminar. Super helpful. Best, Doug.
@@howtoarchitect Did you regain your speech? did you even lose it? You said you couldn't read. Was that solely from your bleparospasm? I need my voice back desperately, as I used to be quite a successful and talented Sr Network Secuirty Engineer Instructor. Losing my voice, I lost everything. My 6 figure job, then my wife, my son, my house and the my dog. All because I lost the ability to communicate.
Thanks,
James
Hello James. My grandmother had spasmodic dysphonia so I understand the condition. When I said I couldn't read it's because reading had become extremely painful and almost impossible with eye pain. It was my eyes and face, not my voice. I had / have bleph and meige. I also lose my voice partially when I'm stressed. When I'm working hard on a daily basis it's hard for me to talk at the end of the day but my voice never disappears completely or becomes incoherent. I think Dr. Farias could be helpful and I would definitely try to get into one of his four day seminars. When my voice starts to get quiet or raspy I meditate and do relaxation techniques to get it back. Usually by the next day it's returned. I'm so sorry for how challenging your situation has become and I hope you can find some relief. This is a horrible disorder but there is hope. You're welcome to email me anytime. Kind Regards, Doug.
I have the same thing but I feel the irritation under my eye instead of behind. Hoping to get better
Thank you for sharing ...you really bring a hope of being cured
Your victory was what I needed to see today. I have dystonia and am hoping brain training from home will help me overcome. Any thoughts on at home treatment? Thank you for so bravely sharing- you shine!
Hi Heather. I'm sorry to hear about your challenges. Yes. I would highly recommend Dr. Farias online platform and in person seminars for dystonia. His link is in my description box. I've never done the online portion but I did meet him in person and it was a game changer. I wish you all the best:)
@@howtoarchitect ok, I'm going for it- I'm signing up! Thank you for your response and informative video. All the best to you Doug! I hope life is beautiful for you :)
@@HeatherKirklandHowe did you start the program yet? What are your symptoms? I'm researching right now.
I have similar symptoms and thanks for your sharing
I am crying watching this
Hope you recover my freind!
I have this too and it's put my potential acting career on hold because I can't do any scenes without blinking a lot. When you deliver lines, what people don't know until they get into studying acting is that it's better to keep your eyes open through the whole scene when you deliver a line unless you really have to.
One example I can give is with Star Trek:TNG. See if you can spot any of the main cast blinking when they deliver their lines.
very interesting.
GOD LOVES YOU🌟🔥❤
Thanks for sharing such a great story. Can you please reply the following questions
1. How much (in %age) you have recovered?
2. You have mentioned about your cycling in your diary. If you consider cycling to be the part of recovery as well?
3. Do you consider dryness of eyes as a cause of blepharospasm or the effect of blepharospasm?How you overcame the dryness. Which eyedrops did you use?
4. Did you ever experience blurriness of vision as well?
5. Did you use any supplements to treat the condition?
1. I'd say I'm roughly 80% - 90% recovered. 2. Yes. I believe doing things faithfully and mindfully that were quite difficult with eyes consistently open were all part of my recovery including walking, talking, chewing, reading, using my computer, and riding my bike (stationary and mountain). I worked at relaxing though spasms and getting my eyes open hundreds if not thousands of times a day. 3. In my case I believe that dry eye was a result of BEB, not the other way around. With that said, I've definitely heard and read that the opposite may be true. I found that the better my BEB gets, the better my eyes are. I've still got dry eye but it's not nearly as bad. I cannot use eye drops. I tried almost every drop on the market, including prescription, and they all irritated my eyes. 4. I had unpredictable stabbing eye pain but no blurred vision. 5. I've been taking juice plus and omega supplements since the beginning. Hope this helps:)
I have been suffering with this syndrome and diagnosed by two doctors for 5 years I cannot get an answer it's the ability and it's ruining my life please can you reach out to me and help me with the techniques that you used to get better because it's so painful the blepher spasms and now it's going into the neck and my face and jaw
I’m pretty sure I have blephorspasms. It happens mostly while driving. It’s horrible. I have an appointment on Wednesday to address this. I am scared to drive. No other facial twitching. But excessive blinking and dry eyes . I’m worried because I’m only 35. I found your video and your symptoms look exactly like mine.
Hang in the Greg and stay in touch. I'm happy to talk. Best, Doug.
Hi..nice to meet you.
Please explain your neuroplasticity treatment?Is it with Transcranial magnetic stimulation?thx
Hi Deasy. No. Best to read my diary for answers to your question and find Dr. Farias online here: www.fariastechnique.com/joaquin-farias. Diary found here: dougpatt.com/my-recovery-from-blepharospasm-and-meige-syndrome/. I wish you all the best:)
Hey Doug, I also have BEB, my brother has cervical dystopia, I live in the uk and am finding it difficult to find a doctor that understands, mine came on 20 years ago when my 19 yr old daughter was tragically killed, it gets worse with stress and can be very exhausting and debilitating as well as embarrassing,
Where can I find seminars that your neuro dr did,
I’m soo glad you’re improving.
I would recommend his four day seminar. It is a game changer. www.fariastechnique.com/onlineseminars
Hello Doug I have been experiencing similar symptoms with my eyelids and face around the eyes. My eyelids will close uncontrollably and I have small facial tics as well. I have seen a lid specialist and a cornea specialist but they were treating me for dry eye with no results. Is there and exercise or therapy you can recommend?
Hello Maria. I'm so sorry to hear that. I can recommend the links in my video description box. I've copied them here too. If you've got BEB (A sure way to be diagnosed is a neurologist.), Dr. Farias is a wonderful resource for alternative therapy. I would also recommend reading my diary which describes my journey and various strategies I used to overcome challenges. The Facebook group is also a wonderful means of support and information. Stay in touch and I wish you all the best:) Hang in there.
Link to Dr. Farias:
www.fariastechnique.com/joaquin-farias
Link to my story and ongoing diary which describes my symptoms and strategies for recovery:
dougpatt.com/my-recovery-from-blepharospasm-and-meige-syndrome/
Link to Facebook group, Neuroplasticity Therapy for Blepharospasm, which has been great support:
facebook.com/groups/1425592381040551/
How are you doing today? Would you mind telling us what medication you were taking at the time.I will look into the course.Thank you very much and I hope this message finds you well
I have Blepharospasm, diagnosed in 2017, started Botox injections in 2018. I also have noticed the jerks in my facial & neck area.. it is HELL trying to adapt to this kind of lifestyle 😫
Hi Sharon. I have the same on occasion. Particularly when I'm stressed. The facebook group listed in the description box below the video has been very helpful as was the seminar hosted by Dr. Farias. Hang in there and know there is hope for reducing symptoms.
Hi Doug. Is there any way I could talk to you one evening about my eyes! I’ve been suffering for about 6 years
sure. send me a note through the email at the end of my diary (link in description box) and we can connect. best, Doug.
Thank you for this video. I also have blephoraspam. I’m currently getting treated at the University hospital in Salt Lake City, Utah. My symptoms started in early 2018 exactly the same. I also have Meige syndrome. I don’t know why my symptoms started as I don’t know of anyone else in my family that has it. But the Botox treatment as well as neuroplasticy is helping.
I'm glad to hear Peter. If I recall correctly more times than not it has nothing to do with genetics. I wish you all the best toward recovery.
Hi Pete - can you explain more about how your symptoms started? Did it start with one eye then both? Any other sensations you experienced? I'm researching because I have had symptoms the last 2 months.
@@kellyd8776 Good afternoon, my symptoms started in January of 2018. I noticed it after getting a new pair of glasses that had the wrong prescription. As well as a very cold and snowy winter using the defrost in my semi that really dried out my eyes. The blinking started with my left eye first, then worked it’s way to both eyes. Within just 5 months the blinking and squinting was so bad that I was as having a very hard time driving. I got an appointment with an ophthalmologist in Salt Lake City, UT. He said it was Blaphoraspasm and referred me to the University Hospital in Salt Lake. I have been getting Botox treatment since then. And last December I finally got a double Myectomy to remove some excess skin because my Botox treatment causes droopy eyelids. About two and a half years ago my condition became Meige syndrome as well and I have a lot of head jerking and tongue protrusion. I hope this helps a little. Also, I was 53 at the time my symptoms started. One more thing, I am still wondering if my symptoms started because my tear ducts are clogged in my eyelids and nit lubricating my eyes properly. But all I am told is that dry eyes won’t cause the symptoms. GRRRR.
Hi..i have the same problem but you not . Say who.and how 🤔