I just got home from getting my loop recorder in my heart rate goes into the 30s and up to the high 200 s been like this for a year and a half and now I finally got my loop thank God I’m blessed I finally got it and my doctor told me that I have one of the worst cases of dysautonomia that he has ever seen I have faith in God and everything will turn out good and I’ll be OK I’ll pray for you I love your channel I just subscribed I just found two which is crazy because I haven’t put in a loop recorder or anything like that and you popped up I have the same machine you have God bless you thank you for making these videos
Rachel, I am so sorry you are going through this. You do have quite a range of HR, but I am glad you are now being monitored. I hope the procedure was not too bad. Get plenty of rest over the next couple of days. Check back in to let me know how you are doing. Would love to keep in touch. It is said that things or people come into our lives when we need them, so I am glad that my video was able to help you. I will be doing an update soon, as I just had my 3 year "anniversary" of having mine implanted. Stay strong. Much love, hugs and prayers on your journey.
Thank you so very much for making this video. I am going to have one inserted in me and my anxiety is getting the better of me. But after watching your video I am feeling much better. Thank you so very much again.
Hi Gina, Thanks for the video. I just had this implant today. Local anesthesia (lots of needles of lidocaine) Burning, tears and then just pressure as they inserted the device-the whole thing took maybe 10 minutes. The devise is in com with an app om my phone and data goes to doctor, If I have an episode, he will call me. I discovered I had A fib at a routine annual EKG exam. My symptoms were exhaustion, out of breath when climbing stairs etc. I had no racing heart, just irregular rhythm, wouldn't have known if they didn't pick it up. I had the ablation maybe 5 years ago and it worked but my doctor wanted me to have this implant because I really don't want to take blood thinners but I have a history of stroke in my family, so he was pretty convincing about doing it. The ablation was fine you are asleep for it. I had lines up both groins and they were sore and black and blue after. My Dr. is in Santa Monica, Calif and is considered one of the best for ablation Dr. Shephal K Doshi. Best of luck luck with everything.
I am 19 and have had monitors, a tilt table test, and today had the device implanted. They did it with the local anesthetic and no sedation. It actually was not too bad. My cardiologist is in my opinion one of the best at UPMC.
I am doing well. The main downside is that if I sleep on my stomach, the mattress/pillow pushes on my skin and makes it a little uncomfortable. I just had my wound check appointment today. They said that everything is good so far.@@BougieMagicwithGinaWelds
@@mikesapienza1211 I'm wondering how long mine will stay in. My device didn't cone with a "downloader" , just the handheld so after three "recordings" I call and make an appt for downloading. I have yet to have an appt with anyone regarding any readings (it's seems like the Neurologist who ordered it is supposed to arrange followup with the cardiologist who reads the reports, but I have heard from neither of them! ) It's been close to 6 months so I suspect they probably haven't found anything unusual but I'm not even sure anyone knows or remembers I have one! LOL
I'm delighted to have seen your video. I've been suffering with problems for years now. Fast heart rate (not like yours though) then suddenly it'll drop. Can be very light headed, heart can be pounding while doing absolutely nothing. I've nearly blacked out a few times which was very scary. Finally went to a private hospital here in Ireland last Saturday, had 2 ecgs done and they put me on a heart monitor for 2 days. Thankfully when i went back yesterday it picked up a few things (extra heart beat) but nothing major. They're not concerned about the fast heart beat or extra beats, it's the near blacking out that they want to find out about. They said i could get a mobile ecg monitor that i can take myself and email the results when i feel it come on or he mentioned the loop monitor. I wasn't on for that at first but definitely considering it now and trying to get as much info as i can about it. I like the constant monitoring part and it will pick up a lot more than the mobile device
Hi Gina, my Cardiologist. Talked to me as bout getting a loop recorder. I had again in 2011 following another surgery I had an ablation about 3 years ago and another ablation this past June.
I had my Medtronic Loop Recorder installed yesterday, the process went very smoothly with little to no pain. I had this done because of occasional flutters of my heartbeat now we will see what it finds.
Hi Gina, couple of years ago I woke up in the middle of the night with the strange sensation in my chest. It wouldn't go away, so I thought it was having a heart attack. Call an ambulance went to the emergency room. Turns out my heart rate was going back and forth for very slow to very fast and they called it afib I was not having a heart attack thank goodness for that. But the aphib still scared the bejeses out of me. Put me on medication and sent me home. After a few months I tried the home monitor for the week and they didn't detect anything. Since I have anxiety disorder. We decided on the Medtronic loop. Had it put in with just a local anesthetic , very easy. Turns out mine was defective had it a little over a year and then had it removed recently same thing under local anesthetic no big deal. But it did give me a sense of false security so it did not work for me. So far medication seems to be controlling it. I wish you well Glad you didn't need the ablation. You take care of yourself
I'm glad medication is working for you. I recently had a new one put in since the battery in the other one died. You mentioned the false sense of security. I totally get that, since it doesn't fix the issue, just monitors it, and medication helps.
Hi Gina, I had a loop recorder put in about a week ago. I, like you, felt everything during the procedure. The local anesthetic gave me no relief. It was very very uncomfortable.I had a 95% blockage in my LAD artery, which has been stented. It did not stop the angina pain or correct the heart palpatations. I have SVT's daily, multiple times a day. They have me on five BP meds trying to stop the episodes, but it is not working. I have thrown 21 SVT episodes in 48hrs when I wore a Holter monitor. I am miserable. The episodes just don't stop. I have not heard what the next step will be, but thankyou for sharing your experiences. I wish you a speedy recovery with your ablation. I am guessing that will be the next step for me as well. Thank you for sharing your story.
Continued from Rose lover. The implantation is painful! No I.v. Pain med. Only local injections that really sting! And I am not called about an episode. I have to call the office myself. I am deciding if I am discontinuing this recorder when this needs to be redone. Praying for you Gina ❤️🙏
Hi. Don't you have regular checkups with your cardiologist? I see mine about every 3 months or so. If I have several episodes at a time, I send data. Don't wait for them to call, please. They're so busy with other patients.
Thanks so much for the video, my dad has passed out a few times with no warning and was told he'd need the loop recorder to figure out the cause... thanks for sharing
So I had mine put in yesterday after a Tilt Table Test (Awful test) with no sedation and I DO NOT recommend it with no sedation! Today Feel much better just sore. Hopefully being only 41 this will help to explain my medical issues.
I'm sorry you went through the procedure with no sedation. I know how you feel. I had to do the same. My veins totally collapsed so the anesthesiologist could not get the IV in. I had only local, but I felt everything. You'll be sore for a couple of days. Remember to not lift anything heavier than 5 pounds or what your doctor suggested, and don't lift above your head. Gentle hugs.
I will be getting my loop recorder Tuesday with just local. I have Fibromyalgia and like you they are not sure if is connected. Thanks for the video, it helped me understand it a lot better.
Thanks so much for your informative video. I am in the process of deciding with my cardiologist whether to have the implant. This gives me great hope. Thanks for sharing your story.
I understand that it can be a tough decision to make, and I am sure that your cardiologist will help you make the correct one. I am so glad that I found a cardiologist who listened and really worked hard to find out what was/is wrong with my heart.
Im glad the afib is deemed not bad at this time. Just keep regular checkups. 5 years? That's awesome!! Each of mine has had a 3 year lifespan. I'm now on my third.
Great question! I've had an MRI since my implant procedure, and had no issues. Just let the technician know that you have a device, discuss it with them to make sure that the one you have is safe for the MRI machine.
Thank you for this video. It was very informative, I am 14 years old and having this done tomorrow morning and was very nervous. I have been diagnosed with POTS and disautonomia for 4 years now. I am very glad to have seen something informative before.
Kenzie, I am so glad this was helpful, but am sorry you are going through this at such a young age. I will be praying for you for sure. I was diagnosed with POTS and dysautonomia (confirmed AFib recently as well), so I know the challenges. Be strong. I know you must have a strong support system. When you have recovered, please check in to let me know how you are doing. Gentle hugs.
How are you feeling Kenzie?I pray you are handling everything well! Your brave and strong to go through all of this at your age. Keep up the great work!!
Hi. Thanks for sharing your experiences with the Linq.What many Doctor's & Facilities don't tell you up front, is that there may be a monthly fee for monitoring your implant.I had the Reveal Linq implanted and a week after I had my Ablation, they sent me a letter saying I was going to incur a monthly monitoring fee of $125.00. My Insurance company said they will not pay for that. So I had to insist the Doctor withdraw me from the monitoring program. So essentially, they have wasted $12,000 by implanting the device. Plus, they won't remove the device unless I pay them in advance for the cost of removal. So be sure you are informed of ALL the costs associated with having the implant.
I have had the short and the long ablation. Next stop, later this month, is the implant of the loop recorder. Thanks for the Video, I did not realize the size of the external monitoring equipment. I wonder if in the past two years it has been miniaturized to some extent.
Hal, you will be given two external pieces of equipment. One is the phone-like device that you saw. The other is a handheld device that you can hang on your key chain, about two inches or so in length and about an inch wide. You will take the small one with you where ever you go, to indicate events as they happen. It will all be explained to you when you have the implant done. The phone-like one stays beside your bed or wherever you sleep. Sorry for the confusion in the video.
mine is no bigger than a paper clip. I move my arm the wrong way it hurts Lol. My heart fluttered after they put recorder in. Good luck to you and how are you. Please let us know
I wish you the best of luck with your ablation. Having had 3 of them, I can tell you it is virtually painless, the prep and sedation are the worst of it and they are not that bad. Many people need a second one, so don't get too discouraged if that is the case. I had 232 bpm for 2 hours and 45 minutes while I was on a 21 day monitor. Unfortunately, I was awake while it was happening.59 year old at the time. Male. Had an ablation, mostly took care of it. FF 8 years, dizzy/fast heart episodes returned, one of them being 285 bpm, but 'only' lasted for about 20 minutes. When it is happening, I just want to curl up in a fetal position and be left alone, which is hard for others to understand.Very scary.Long story short, 2 cardioversions and 2 more ablations (one was 7 hours, the other 8 hours). I thought it was fixed, didn't have an episode for 6 weeks after the ablation.Out of nowhere, got dizzy today, was at 179 bpm. I'm going in for a loop next week, I hope they can figure out what is going on and fix it. So tired of walking on eggshells.
Wow thank you for this video. 68 yrs. Young. PSVT since 18 yrs old. Preparing for the loop and 1st oblation in the morning under general anesthesia. I am confident that God is with me. Praying for all who shared and encouraged our hearts. Will text in with the victory report. We are not alone. The Lord is with us all. AMEN
Interesting! Thanks for this video. I was admitted in the ER for what I thought was a panic attack. Since I'm prone to those. But was scared after a few days later when the cardiologist said he noticed a couple arrythmyas in my sleep one night. So he wants to do this to me to monitor. Every other test came back fine. Even every other ekg I ever had was perfect. So was definitely confused. Hoping to get this all figured out soon.
How are you doing? Did you get the monitor implanted? I would love to hear your experiences. It may help someone else....and I would also love to hear how you are doing.
Thank you so much for sharing my dad passed away 1 year and a day ago and had this chip. He had a cardiac event 2 weeks before he passed away and the cardiologist never caught it and 2 weeks later I found him unresponsive 2 weeks later where he passed away still no one contacted me about the cardiac event or even having no heart rhythm. I am very upset and I am locking for answer's. Had my dad been monitored properly he probably would be here today. Bitter and broken
Hello Gina, I want to thank you so much for making this video. I just found out today that i have to have this procedure done. I had a Holtor Monitor for a week . Though i had many SVT's on it, i did not pass out while on it. I have Lupus (SLE) as well. I already have a chemo port on that side and was wondering if it will be in the way. I came home from the Dr's to think if i wanted to have this done. After speaking with a couple friends and seeing your video I feel much better about it. So thank you so much for sharing this part of your life with a bunch of strangers!! Pray you are doing well!!
Hi Chi! So sorry you are going through this. I was diagnosed with neuro-cardiogenic syncope as well as inappropriate sinus tachycardia just a couple of weeks ago. I am doing very well, actually. The medication that I am on does help, in addition to some natural remedies that I use. My cardiologist also recommended that I start rowing. My recent data check showed several episodes, some registering in excess of 200 beats a minute while sleeping. One of the things that I use are essential oils, which help with stress and helps with the heart rate. I also meditate a lot. It's amazing how much that has helped me. I would love to know when your surgery is taking place, and how you're doing after. Glad the video helped.
Thank you so much Gina! My highest was 162 while asleep. Obviously i had no idea that was happening while i was asleep. I feel ashamed because a Dr i was seeing wanted me to go to a sleep lab to find out why i have trouble sleeping. I thought to myself, i know why...im in pain!! I guess i should have followed through with his recommendations. As you likely know, when you have Lupus everything gets attributed to it. You just never know when it is Lupus or something new. I was Dxed 35 years ago and am so used to suffering i don't think much of it. I have been suffering with chest pain a great many years. You know how Dr's can be if they don't have an obvious answer...oh its in your mind or it's just the Lupus, nothing you can do. Finally one Dr said have you ever had a Halter for a week or so...since i had not i was referred out. I am so thankful to her, I finally have a reason for this.I will keep in touch to let you know how things go. As nervous as i am...I'm even happier to see an end in sight, to this portion anyhow! Thanks again!!
My son was diagnosed with wide complex tachycardia 2 years ago at age 12. We forget it by accident because I took him to the ER for pink eye. His heart was beating a 240 up 280 and he said he felt fine. That’s night I thought I died seeing my son having to have his heart stop and restarted, due to nothing else working. He had 2 ablations and just go got the loop recorder a month ago. My son now has problems not being able to sleep due to that recorder. It was place on the side that he sleeps on. I’m curious to know how long did it take some you to get use to it. I told him he has to find his normal position in the bed. How long did it take to healed completely. I pray healing for everyone. I would thank everyone, especially Gina for sharing your story.
Gina Welds Hulse I have the same thing wrong with me and my Dr told me no need to push button and send it to them. I have a bunch of quacks asking me what i'm scared of. WOW i pray you get better.
Hi. Sometimes there is no need to push the button....like during sleep. However, if you are feeling episodes, please push that button as often as you need. That signifies that you are feeling them and they are interfering with your life. Once a month, they should do what is a called a remote download. Every other month I usually go to my cardiologist to get an update. Don't worry about what people say. You know that something is not right because you live in that body. That is what happened with me as well. Only you know your body.
I have had SVT for years and did not know how bad it was till one day it reached over 200.Nothing has ever been detected except a polarity difference on my ekg. Two days ago I got my loop recorder inserted and just local anesthetic.Very painful after and my shoulder hurts.Feeling of weakness so I went to the Er. I am not sure if all this goes away. Deep chest pain also.
I had reveal device implanted nearly 3 years ago i was awake also wasnt so bad though the doctor even pocked his finger inside to make a pocket for device to fit in i love mine will miss it when its gone. xx
Aloha!! I just want to thank you so much for this video. I have Long QT Syndrome and will be having a Loop Monitor implanted after my doctor gets approval from my insurance company. I have had 2 episodes of syncope in the past year......about a year apart. It begins where I CANNOT BREATH. I feel as though I am drowning in air and cannot CANNOT BREATH. My most recent syncope occurred May 29th. I got up to go to bathroom and suddenly I began yelling "I cannot breath" and I passed out in our hallway. My hubby was home and he was completely shocked and saw that I was turning purple and not breathing. He began doing chest compressions...... he saved my life
i had ablation done in feb this year and i have just been put on waiting list to have it done again. the 1st one i had it done with pain killers and sedation and it hurt like hell it took 3 hours and was very painful ive agreed to have it again but under a general anaesthetic and it will take about 5 hours. funny thing was after the ablation i had very little pain. good luck xx
It turns out that I won't have the ablation. I was just diagnosed with POTS and atrial fibrillation so I'm being monitored closely. I'm so sorry you went through such pain the first time.....but glad that your recovery is going well. I'm actually surprised that the ablation was done under sedation. They would have to put me OUT.
Prayers for you !!!! I'm so sorry you have to go through all of us !!! i had a stroke and my primary Dr wanted me to go to a Cardialogist ? I had tests done and they came back normal but my Dr is AFRAID that i will have another STROKE? SO i guess i have to do this ? My DR feels that my Stroke was from a fibulation i had in my heart but i have never had heart problems before this Stroke ?
Hi Gina! Thank you for this video is is very helpful❤️I’m currently debating whether to get the loop recorder I have encountered episodes of PSVT they discovered I have arrhythmias and it may be hormonal since this started once I turned 50 I am not a fan of meds and things like this currently on Metoprolol and it seems to be helping keep my rate and body down. How are you now? Did you have the ablation procedure? How’s your heart? Hope a is well just trying to weigh my options thank you so much by the way you’re beautiful and inspiring!
Hi. What decision did you make? It's a tough one, I know. I did not have the ablation. It was determined that it was not necessary at the time. I'm now on my second loop recorder.
Hi Gina! Hope all is well! I saw a different doctor who I felt more comfortable with and suggested the chest monitor which I’m currently awaiting, and he said we will see from there and that there are meds for arrhythmia not just the ablation so we shall see. The worst part I waiting and my bloodwork did show I’m going through menopause so that could have played a role in the onset of the heart issues
I had one fitted aone month ago and I can totally relate to what you are saying. It feels like it is compressing on my chest. I feel it dying to push itself out of the skin. It also pushes out on my scar.
They wanted to do this with my friend who also had lupus. Do you remember when I shared some of the story about my friend...who now through the healing modalities I taught her she no longer has lupus avoiding this procedure. Lovely how are you doing now? Do you still have this? You are gorgeous too! 😍
Yes, I still have the device, and I am going through some healing modalities using reiki and crystal reiki among other things. Meditation does help me with keeping the heart rate down. I wish more doctors recommended that to patients, provided that it is not a life threatening situation of course.
I had a loop recorder put in two days ago. They say it's a procedure but really it's like a small surgery and I wish I had known that because I wasn't prepared for it. I had to have a blood work up before admission to check my kidney function because I got a lot of antibotics injected into my line before I went into theatre. I could taste it in my mouth and smell it and it made me feel nausea for a few minutes. I was wired up to a heart monitor, had a blood pressure cuff on the whole time and had to have a pregnancy test to prove I wasn't pregnant before I was injected with the antibotics. I walked into theatre and had an oxygen mask put on before the prep started off all the equipment. That took a good half hour, then my heart surgeon/cardiologist began to prep my chest and that was awful as I was so cold and he had to scrub and hose me off using the coldest fluid ever. That took 15mins. My teeth were chattering. Before the procedure started a blue surgical sheet was placed over my head and I had to get them to pin one corner up so I didn't feel closrophobic and they had to turn the oxygen down as well as it was starting to make me feel sick. I felt the sting of the needle which was ok and the pressure of the device going in but it was over in a minute. I had a stitch put in and then a clear 3 inch by 3 inch dressing placed over the whole area to keep it sterile. Then a big pressure dressing which I could take off as soon as I got home. It was taped down with some heavy duty tape from shoulder to hip on both sides. I walked out of the O.R and then was monitored for an hour. I got to eat and drink something and was discharged when my meds arrived. I wasn't allowed to drive for 48 hours. Also i had a man come and show me the loop recorder and gave me my own reciever and pocket reciever as well. I felt worse than i though i would as I really needed to think of it as a small operation in which I would be awake without sedation. The anesthetic made me feel pretty crappy until 3a.m. but then I seemed to bounce back a bit. The cut felt like a burn or really bad graze for 18 hrs. I definitely couldn't go to work the next day and then 48 hours after wards I had an attack and past out while trying to do some grocery shopping. I had the smaller portable device in my handbag and it was easy to record the event. I also have a samsung mobile phone which has an app on it for recording my pulse so I was clocking in at 151bpm when I fainted. Hopefully I will find out soon what is wrong. I have had an echo and stress echo etc but am still waiting to have the table tilt test done. I'm so grateful for this technology but I wish I had been better informed on what to expect regarding the procedure. Especially the use of antibiotics as I have an autoimmune disease. I also have fybromyalgia
Oh, wow, Vicki! I am so sorry you are going through this. Yes, they say it is just a simple procedure, but it is minor surgery which takes a few days to recover from. How are you feeling now that it's been a few days? Always keep the hand device with you, and sleep close to the monitor at night. Periodically send data because I found that Occasionally mine will have a hiccup. If you have any questions, do not hesitate to reach out, and keep in close contact with your cardiologist. Another tip: Document everything. It might be helpful to start keeping a journal of symptoms, and what you were you doing when the symptom occurred.
I started having heart palpitations and irregular heart rhythms back in February of this year. I woke up one night to use the bathroom and a soon as I got back in the bed, my heart started beating super fast and hard. I thought I was having a heart attack. I went to the ER and my blood pressure was 200/106 and my heart rate was 120. I had blood work done, EKG and an echocardiogram...all came back normal. That had never happened to me before. Long story short, I had a urinary tract infection a couple of weeks before the heart palpitation episode. I was prescribed the antibiotic Cipro. Turns out that this particular antibiotic (along with others in the fluoroquinolone family) can cause heart arrhythmia problems and a ton of other health problems. I'm convinced that's what caused my heart issues. Have you ever taken Ciprofloxacin before?
Hi. How are you feeling? I actually feel great after having it in for that length of time. The toughest part is the healing part. Give yourself time to heal. The data received each month is very helpful. I'm glad I got it, even though I was hesitant at first. All the best on your healing. Let me know how you're getting on.
This was so helpful. I will need a recorder. I have bradycardia with my resting heart rate dipping into the 40s. I black out too and are plagued with migraines. It causes several PVS’s. I was so worried to let them place one I me. You have calmed my fears.
I’ve had every monitor except this one, they detected normal abnormalities but nothing alarming but I’ve been having issues where twice sometimes three times a month my pulse in my chest and carotid artery in my neck will get out of whack and I even have had it to where each artery had a extremely different pulse, got light headed and almost passed out afterward. Scariest situation I’ve been in
Hi, thanks for all the info. I have had pvc's, pac's, and vtach many times. I was totally healthy when all this began in 1999. At first the doctors just all said, you're fine don't worry about it. But when I finally got a cardiologist he did tests and said I have psvt. Through the years I have tons of tests/monitoring and different cardiologists. They always tell me it's not serious and just to take my medicine. I have been on Atenolol for 15 years now and for the most part it is controlled, sometimes too controlled. Had a heart rate of 44 this morning when I woke up. Before the Atenolol it would get up to 150's/170's. I really didn't feel faint but it felt like my heart was gonna burst out of my chest, very scary feelings. I have had a cough for about a year now and no one knows what's causing it, not even my pulmonologist. Atenolol can cause a dry nagging cough, so I'm assuming it's that. I told the doctor I wanted a EP study and he said he wanted to do the recorder instead. I just said ok and am getting it the 20th of this month. Heart problems don't run in my family and asthma is the only other health issue I have. It ALWAYS gets worse after eating or drinking alcohol. I just pray this goes and stays away.
Wow! 44 bpm? Mine has never been that low. Recently I had a readout where one episode recorded a heart rate of 297 bpm. I was asleep so I did not feel it. What a Christmas present!! You may experience some pain for a couple of days, so take it easy. Let me know how it all goes. Glad you got the cardiologist. That is what happened to me as well. My cardiologist finally realized what was going on. After wearing a regular holter monitor for quite a while, this was recommended to me. It has been a life saver. If you're experiencing problems after eating, try to eat several very small meals during the day. That should help. Have you been tested for COPD? I was initially diagnosed with asthma and it turns out that I actually had COPD, and eating was a challenge, so see if your pulmonologist would check you for COPD......even if you're a non-smoker. I never smoked a day in my life and ended up with emphysema/COPD. There are different herbs that will help with dry mouth and throat. I know mullein is one of them. Check to see if you would be able to use that with the medicine you're on as herbs can also affect prescription meds.
I had this brand of loop put in yesterday. I'm bruised from my top rib to my collarbone. I'm in severe pain. I can't bend over, roll over in bed, barely can walk. It feels like severe pressure. Anyone else have severe pain afterwards? They should really sedate you putting this in. I asked the Dr if he was jumping on my chest when putting it in. Horrible experience
I'm so sorry that you are having such a rough time. I did my procedure with just local anesthetic because my veins would not cooperate that day, so no IV sedation for me, but when I got home I did not have much discomfort. I couldn't bathe for a few days but that was it. I'm wondering if our device may be pressing on a nerve. You should not be in such severe pain. I only had a rash reaction from the dressing that was used. Please check with your doctor, if you haven't done so already. It is such a useful device and I would hate for you to be having an awful experience from something that should be helping you.
Gina Welds Hulse , thank you. I called the office this morning, they never called me back. It feels like it's stabbing me when I move. I wasn't sure if it needs to build scar situation to keep it in one spot or what. I also wondered about it pushing on a nerve. The hospital told me they never use sedation for this. I think it's in humane to not use it. I'm pretty sure I'm allergic to the lidocaine they used also. I was shaky the whole day yesterday. It felt hard to breathe.
Keep calling. You shouldn't have a stabbing feeling. You'll have some discomfort from the incision site, but even that should be mild, if the device was placed correctly. I think sedation is offered, but it could depend on insurance also. I was offered sedation as well as local, but because my veins wouldn't cooperate, I told my doc that since I was already, to just use the local. I felt everything, but it was not horrible. My Anesthesiologist even stayed to hold my hand. He felt s bad that he couldn't get the IV in, but he was very supportive. The worst discomfort was from the burning of the medicine as it was pumped in before the incision was made. If you feel like you are having a reaction, then go to the ER. If you can't reach your doc, then go to the ER if anything feels out of the ordinary. It does take time to build up the scar tissue around the device. Make sure you are not lifting above your head, or lifting anything above 5 pounds. I think the recommendation is not above 10 pounds, but my cardiologist said 5 until it is healed and won't move around. Don't forget.....ER if you can't get in to see your doctor. Did you get the monitor set up at home at least? They should be monitoring you already, and should have some data to work with. The ER can also reach your doctor.
I had one put in 2 months ago and i have tried everything the help with the pain not being able to sleep nor eat im depressed all the time. For me since this loop recorder was put in i have had nothing but problems i can feel it i can see it. It hurts all the time
@@jasminegersitz2546 Sorry I am just seeing this comment. Have you seen the doctor since posting this? You should not be having any of those symptoms. If you are thin you may be able to see it, and possibly feel it as well , but you should not be in pain at this point.
Does it leave a big scar on your chest? Do you have any photos? I am on the waiting list to have one fitted but I am very anxious about having it done.
I have a question and I hope you can help me understand a little better.. My dad had a loop recorder implanted in September 2018, and by October 2018 he was found dead laying on the couch. He didn't have an autopsy, although I wish they would have.. But they just wrote it off as a heart attack.. Even though the skin was red above the implant and it was warm to the touch.. Any ideas of what could have happened?? If you could answer I would greatly appreciate it, thanks! EDIT: I also left out that the machine that you can use to save recordings if you are having an "episode" had not been updated since October 27th, unknown to him, and he died October 30th
Hi Cal. I am so sorry to hear about your dad. It sounds like your dad may have developed an infection surrounding where the implant was placed. Since he did not receive an autopsy, it would be hard to tell now without extreme measures. There should have been some record of a heart attack on the monitor, if it was a heart attack, as the machine records all the episodes. I'm not sure how this helps, or if it does, but I hope you do get some answers.
@@BougieMagicwithGinaWelds thanks so much. It actually does help some, but you're right, I will probably never really know. And the machine hadn't worked for some reason, since 3 days before his passing but he hadn't checked it I'm guessing. And we got a call from his Dr that put it in, reminding him of an appointment January 24, so they have no clue, we've contacted a lawyer. Thanks so much for taking the time to reply. Good luck with everything
I just had a ILR placed, mine is different and uses my cell phone to send it vs the device you have. I’m 24 hrs post op, what was your pain level? I’ve been up all night with pain. I had it local sedation, I also felt it all but just poking nothing bad. The new device is by St. Jude, they made it so you can go anywhere and even be away from your phone (which is way better since it will record everything regardless). Sounds like everything has greatly improved but the burning at the site is intense!!!
I can also be away from my device. It automatically records. The handheld device is to mark the episodes that I feel. At night, however, I have to sleep next to the external monitor. I had very little pain after the procedure. My discomfort related to itching at the site....I think it was from the surgical tape. So sorry you are hurting...some motrin should help, unless it's really bad....in which case you should contact your doc who did the implant. Hope you get some relief soon.
I'm experiencing the same thing. It's unbearable and they refuse to prescribe me pain meds or seen to really care at all. All they've said it's they'll start work to schedule the explant and it will take 2-3 weeks before they can get it in the schedule . Meanwhile I can barely move without searing pain. It is the one by St Jude too.
Hi, Kassie. I actually did not need to have the ablation. I'm still being monitored and have regular appointments about every 4 months unless somethings shows up on my data read-out. What are your husband's symptoms? What is he being monitored for, if you don't mind the question?
He is being monitored for afib following a stroke. They found a hole in his heart that's what caused the stroke a blood clot went thru the hole.so they closed the hole and 2 weeks after they closed it he started getting heart palpitations. Like 4-8 times a day.never had them before the surgery. He went back after putting in the monitor he pushed the button 12 times already and the heart Dr said he sees the erythemia but the pattern doesn't look like afib but they will watch it and he has another appt in 6 months. They also said it takes awhile for the heart to heal and hope once the heart heals this could poss go away. Hopefully it does. He is 58 yrs old.we are still young
Very late to the video but just wondering is it normally for it to almost sting when sending a recording using the device ? I’m 17 and recently had one fitted but I always feel an uncomfortable sensation when sending a recording ?
It should not sting, but if you have only recently gotten it implanted, as in the last few months, the scar tissue may still be a little sensitive in that area. If it persists definitely check it out with your doctor. I do remember mine was sensitive for a while, but not like electrical current kind of way.
Hi Gina, thank you for sharing. My Dr. wants me to get one, and I will likely do that (not wanting to repeat a stroke), but I wonder if you can feel it in other ways than palpation, i.e., energetically or bio-electrically? I ask cause I'm sensitive this way, having been a polarity/craniosacral practitioner and sound healer. Thanks! (I also asked you online but figure this may be the quickest way to hear back). If anyone else would like to respond, I'd love to hear from you too.
Hi, Laurie. I'm so sorry to hear about your stroke. I don't know it's there unless I am playing with my granddaughter and she accidentally hits me in my boob. lol. If you are really thin, you may be able to see it, but most likely not. It is not recommended to use crystals such as hematite, as they will interfere with the device. I also avoid microwaves.......not sure how they would impact the device, but I would rather not find out in a negative way. This is something that you could bring up with your doctor. Does that help at all?
No, you don't. There is a smaller device that you travel with. It literally connects to your key ring. When you have an episode, you simply use it to mark the moment when it occurs.
WOW. Next stop Psychologist. oh I have PSVT. my highest heart rate was 260bmp. After ep studies and one ablation surgery. now stable on 50 MG. Tenormin bid. And that has been 25 years now. Good luck with what is going on with your case.
Hi George. Thanks for stopping by. I'm glad your condition is stabilized. I was just diagnosed with POTS and atrial fibrillation last week. The ablation is off the table, as I have Inappropriate sinus tachycardia. An ablation would devastate the sinus node and pretty much put me in line for a pacemaker. I was put on an increased salt intake to keep my BP elevated to help with the POTS. For now it's just medication for me to help with symptoms.
Be VERY careful using herbals-many have cardiac side effects and can trigger arrhythmias! (Essentially, even Digoxin is derived from foxglove.) I had a dear friend who lived with Crohn’s -one of those autoimmune diseases that, like Lupus, involve anticardiolipin / antiphospholipid antibodies-and she developed irregular cardiac activity. She had a genetic component to the cardiac arrhythmias and other family members also developed it. They went through the ablation process several times…I’m sorry to hear that you struggle with this. Again-beware of herbals. There are mushroom mixtures touted as immune enhancers that people take for COVID, cancer, etc-but they have potent cardiac side effects! Be careful!
I appreciate your concern, but after years of study, I teach what I know to work. I have never undergone the ablation, but if it helps others, great. As a Master Herbalist, I work with herbals in a reverent way. Over the years I have healed from numerous illnesses using herbal remedies. If herbals are not for you, that is ok. Plants and trees were placed on the planet for healing, although there is also a place for western medicine. I teach my experiences, not for others to do what I say, but for them to do the research for themselves and go from there. I can only teach from what I have gone through and what works for me. Any medical decision should be made between you and your doctor, not based on something that I have said. I am not a medical doctor, and you or anyone watching should consult your doctor before making any changes to your healing protocol.
I just got home from getting my loop recorder in my heart rate goes into the 30s and up to the high 200 s been like this for a year and a half and now I finally got my loop thank God I’m blessed I finally got it and my doctor told me that I have one of the worst cases of dysautonomia that he has ever seen I have faith in God and everything will turn out good and I’ll be OK I’ll pray for you I love your channel I just subscribed I just found two which is crazy because I haven’t put in a loop recorder or anything like that and you popped up I have the same machine you have God bless you thank you for making these videos
Rachel, I am so sorry you are going through this. You do have quite a range of HR, but I am glad you are now being monitored. I hope the procedure was not too bad. Get plenty of rest over the next couple of days. Check back in to let me know how you are doing. Would love to keep in touch. It is said that things or people come into our lives when we need them, so I am glad that my video was able to help you. I will be doing an update soon, as I just had my 3 year "anniversary" of having mine implanted. Stay strong. Much love, hugs and prayers on your journey.
I will be having loop recorder implanted on January 31st, 2022. Thank you very much for your video.
is there a monthly fee for the loop recorder ?
@@bjams8817 Not that I am aware of.
No, there isn't for me. Insurance covered.
How are you doing now? It's been a couple of months. I would love to hear. Please email me. I would love to chat with you about the experience.
@@bjams8817 No
Thank you so very much for making this video. I am going to have one inserted in me and my anxiety is getting the better of me. But after watching your video I am feeling much better. Thank you so very much again.
How are you doing?
Hi Gina, Thanks for the video. I just had this implant today. Local anesthesia (lots of needles of lidocaine) Burning, tears and then just pressure as they inserted the device-the whole thing took maybe 10 minutes. The devise is in com with an app om my phone and data goes to doctor, If I have an episode, he will call me.
I discovered I had A fib at a routine annual EKG exam. My symptoms were exhaustion, out of breath when climbing stairs etc. I had no racing heart, just irregular rhythm, wouldn't have known if they didn't pick it up. I had the ablation maybe 5 years ago and it worked but my doctor wanted me to have this implant because I really don't want to take blood thinners but I have a history of stroke in my family, so he was pretty convincing about doing it. The ablation was fine you are asleep for it. I had lines up both groins and they were sore and black and blue after. My Dr. is in Santa Monica, Calif and is considered one of the best for ablation Dr. Shephal K Doshi. Best of luck luck with everything.
How are you feeling today? I'm sorry you are going through this.
Hello, how big is the scar after the procedure? is it very noticeable? does it fade away?
I am 19 and have had monitors, a tilt table test, and today had the device implanted. They did it with the local anesthetic and no sedation. It actually was not too bad. My cardiologist is in my opinion one of the best at UPMC.
How are you doing, Mike, since the implant? So glad you had a good experience, and trust that you find the answers that you are looking for.
I am doing well. The main downside is that if I sleep on my stomach, the mattress/pillow pushes on my skin and makes it a little uncomfortable. I just had my wound check appointment today. They said that everything is good so far.@@BougieMagicwithGinaWelds
I found it very simple & not painful too. I was awake. They said they decided to just use local as I was calm enough.
@@shannonrose3597 They removed mine in February. They used anesthesia for the removal.
@@mikesapienza1211 I'm wondering how long mine will stay in. My device didn't cone with a "downloader" , just the handheld so after three "recordings" I call and make an appt for downloading. I have yet to have an appt with anyone regarding any readings (it's seems like the Neurologist who ordered it is supposed to arrange followup with the cardiologist who reads the reports, but I have heard from neither of them! ) It's been close to 6 months so I suspect they probably haven't found anything unusual but I'm not even sure anyone knows or remembers I have one! LOL
I'm delighted to have seen your video. I've been suffering with problems for years now. Fast heart rate (not like yours though) then suddenly it'll drop. Can be very light headed, heart can be pounding while doing absolutely nothing. I've nearly blacked out a few times which was very scary. Finally went to a private hospital here in Ireland last Saturday, had 2 ecgs done and they put me on a heart monitor for 2 days. Thankfully when i went back yesterday it picked up a few things (extra heart beat) but nothing major. They're not concerned about the fast heart beat or extra beats, it's the near blacking out that they want to find out about. They said i could get a mobile ecg monitor that i can take myself and email the results when i feel it come on or he mentioned the loop monitor. I wasn't on for that at first but definitely considering it now and trying to get as much info as i can about it. I like the constant monitoring part and it will pick up a lot more than the mobile device
Hi Gina, my Cardiologist. Talked to me as bout getting a loop recorder. I had again in 2011 following another surgery I had an ablation about 3 years ago and another ablation this past June.
I had my Medtronic Loop Recorder installed yesterday, the process went very smoothly with little to no pain. I had this done because of occasional flutters of my heartbeat now we will see what it finds.
How are you doing? Any update?
Hi Joanne. Just checking up on you. How are you doing?
Hi Gina, couple of years ago I woke up in the middle of the night with the strange sensation in my chest. It wouldn't go away, so I thought it was having a heart attack. Call an ambulance went to the emergency room. Turns out my heart rate was going back and forth for very slow to very fast and they called it afib I was not having a heart attack thank goodness for that. But the aphib still scared the bejeses out of me. Put me on medication and sent me home. After a few months I tried the home monitor for the week and they didn't detect anything. Since I have anxiety disorder. We decided on the Medtronic loop. Had it put in with just a local anesthetic , very easy. Turns out mine was defective had it a little over a year and then had it removed recently same thing under local anesthetic no big deal. But it did give me a sense of false security so it did not work for me. So far medication seems to be controlling it. I wish you well Glad you didn't need the ablation. You take care of yourself
I'm glad medication is working for you. I recently had a new one put in since the battery in the other one died.
You mentioned the false sense of security. I totally get that, since it doesn't fix the issue, just monitors it, and medication helps.
Hi Gina,
I had a loop recorder put in about a week ago. I, like you, felt everything during the procedure. The local anesthetic gave me no relief. It was very very uncomfortable.I had a 95% blockage in my LAD artery, which has been stented. It did not stop the angina pain or correct the heart palpatations. I have SVT's daily, multiple times a day. They have me on five BP meds trying to stop the episodes, but it is not working. I have thrown 21 SVT episodes in 48hrs when I wore a Holter monitor. I am miserable. The episodes just don't stop. I have not heard what the next step will be, but thankyou for sharing your experiences. I wish you a speedy recovery with your ablation. I am guessing that will be the next step for me as well. Thank you for sharing your story.
Thanks for sharing your experience as well. It helps others who are going through a similar situation.
Continued from Rose lover. The implantation is painful! No I.v. Pain med. Only local injections that really sting! And I am not called about an episode. I have to call the office myself. I am deciding if I am discontinuing this recorder when this needs to be redone. Praying for you Gina ❤️🙏
Hi. Don't you have regular checkups with your cardiologist? I see mine about every 3 months or so. If I have several episodes at a time, I send data.
Don't wait for them to call, please. They're so busy with other patients.
Thanks so much for the video, my dad has passed out a few times with no warning and was told he'd need the loop recorder to figure out the cause... thanks for sharing
Wow. I'm hoping they find out....and quickly. It has been very helpful. When will he be receiving it?
So I had mine put in yesterday after a Tilt Table Test (Awful test) with no sedation and I DO NOT recommend it with no sedation! Today Feel much better just sore. Hopefully being only 41 this will help to explain my medical issues.
I'm sorry you went through the procedure with no sedation. I know how you feel. I had to do the same. My veins totally collapsed so the anesthesiologist could not get the IV in. I had only local, but I felt everything. You'll be sore for a couple of days. Remember to not lift anything heavier than 5 pounds or what your doctor suggested, and don't lift above your head. Gentle hugs.
Thank you for the video. Having this loop procedure done next week. Now I know what to expect and want to be definitely sedated. Thank you so much.
I will be getting my loop recorder Tuesday with just local. I have Fibromyalgia and like you they are not sure if is connected. Thanks for the video, it helped me understand it a lot better.
How are you feeling?
Thanks so much for your informative video. I am in the process of deciding with my cardiologist whether to have the implant. This gives me great hope. Thanks for sharing your story.
I understand that it can be a tough decision to make, and I am sure that your cardiologist will help you make the correct one. I am so glad that I found a cardiologist who listened and really worked hard to find out what was/is wrong with my heart.
I have a loop recorder. The first one had a 3year lifespan. I am now on my second one. That has a five year timeframe. I have AFib but it is not bad !
Im glad the afib is deemed not bad at this time. Just keep regular checkups. 5 years? That's awesome!! Each of mine has had a 3 year lifespan. I'm now on my third.
Is Medtronic LNQ11 loop recorder compatible with MRI?
Great question! I've had an MRI since my implant procedure, and had no issues. Just let the technician know that you have a device, discuss it with them to make sure that the one you have is safe for the MRI machine.
@@BougieMagicwithGinaWelds Thank you so much Gina...my doctor who implanted also told that there is no contraindication.
Thank you for this video. It was very informative, I am 14 years old and having this done tomorrow morning and was very nervous. I have been diagnosed with POTS and disautonomia for 4 years now. I am very glad to have seen something informative before.
Kenzie, I am so glad this was helpful, but am sorry you are going through this at such a young age. I will be praying for you for sure. I was diagnosed with POTS and dysautonomia (confirmed AFib recently as well), so I know the challenges. Be strong. I know you must have a strong support system. When you have recovered, please check in to let me know how you are doing. Gentle hugs.
How have you been feeling, Kenzie? How did the procedure go?
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How are you feeling Kenzie?I pray you are handling everything well! Your brave and strong to go through all of this at your age. Keep up the great work!!
Hi. Thanks for sharing your experiences with the Linq.What many Doctor's & Facilities don't tell you up front, is that there may be a monthly fee for monitoring your implant.I had the Reveal Linq implanted and a week after I had my Ablation, they sent me a letter saying I was going to incur a monthly monitoring fee of $125.00. My Insurance company said they will not pay for that. So I had to insist the Doctor withdraw me from the monitoring program. So essentially, they have wasted $12,000 by implanting the device. Plus, they won't remove the device unless I pay them in advance for the cost of removal. So be sure you are informed of ALL the costs associated with having the implant.
Wow! That's crazy! I thank God I'm in Canada! Sorry your medical system is so costly. 😞
i get mine at the end of this Month of April 29th 2022? I'm not well with NEEDLES or any LOCAL ?
I have had the short and the long ablation. Next stop, later this month, is the implant of the loop recorder. Thanks for the Video, I did not realize the size of the external monitoring equipment. I wonder if in the past two years it has been miniaturized to some extent.
Hal, you will be given two external pieces of equipment. One is the phone-like device that you saw. The other is a handheld device that you can hang on your key chain, about two inches or so in length and about an inch wide. You will take the small one with you where ever you go, to indicate events as they happen. It will all be explained to you when you have the implant done. The phone-like one stays beside your bed or wherever you sleep. Sorry for the confusion in the video.
mine is no bigger than a paper clip. I move my arm the wrong way it hurts Lol. My heart fluttered after they put recorder in. Good luck to you and how are you. Please let us know
There is no need to wear external heart monitors like 24 to 48 hour holter monitors or 30 day event recorders with the implant loop recorder
I wish you the best of luck with your ablation. Having had 3 of them, I can tell you it is virtually painless, the prep and sedation are the worst of it and they are not that bad. Many people need a second one, so don't get too discouraged if that is the case. I had 232 bpm for 2 hours and 45 minutes while I was on a 21 day monitor. Unfortunately, I was awake while it was happening.59 year old at the time. Male. Had an ablation, mostly took care of it. FF 8 years, dizzy/fast heart episodes returned, one of them being 285 bpm, but 'only' lasted for about 20 minutes. When it is happening, I just want to curl up in a fetal position and be left alone, which is hard for others to understand.Very scary.Long story short, 2 cardioversions and 2 more ablations (one was 7 hours, the other 8 hours). I thought it was fixed, didn't have an episode for 6 weeks after the ablation.Out of nowhere, got dizzy today, was at 179 bpm. I'm going in for a loop next week, I hope they can figure out what is going on and fix it. So tired of walking on eggshells.
Wow thank you for this video. 68 yrs. Young. PSVT since 18 yrs old. Preparing for the loop and 1st oblation in the morning under general anesthesia. I am confident that God is with me. Praying for all who shared and encouraged our hearts. Will text in with the victory report. We are not alone. The Lord is with us all. AMEN
I did not do the ablation. My doctor decided that it was not going to work for me. I am doing very well, though.
Interesting! Thanks for this video. I was admitted in the ER for what I thought was a panic attack. Since I'm prone to those. But was scared after a few days later when the cardiologist said he noticed a couple arrythmyas in my sleep one night. So he wants to do this to me to monitor. Every other test came back fine. Even every other ekg I ever had was perfect. So was definitely confused. Hoping to get this all figured out soon.
How are you doing? Did you get the monitor implanted? I would love to hear your experiences. It may help someone else....and I would also love to hear how you are doing.
Thank you so much for sharing my dad passed away 1 year and a day ago and had this chip. He had a cardiac event 2 weeks before he passed away and the cardiologist never caught it and 2 weeks later I found him unresponsive 2 weeks later where he passed away still no one contacted me about the cardiac event or even having no heart rhythm. I am very upset and I am locking for answer's. Had my dad been monitored properly he probably would be here today.
Bitter and broken
So Sorry for your Loss. I pray that You get some answers and Some peace. GOD Bless YOU
Hello Gina, I want to thank you so much for making this video. I just found out today that i have to have this procedure done. I had a Holtor Monitor for a week . Though i had many SVT's on it, i did not pass out while on it. I have Lupus (SLE) as well. I already have a chemo port on that side and was wondering if it will be in the way. I came home from the Dr's to think if i wanted to have this done. After speaking with a couple friends and seeing your video I feel much better about it. So thank you so much for sharing this part of your life with a bunch of strangers!! Pray you are doing well!!
Hi Chi! So sorry you are going through this. I was diagnosed with neuro-cardiogenic syncope as well as inappropriate sinus tachycardia just a couple of weeks ago. I am doing very well, actually. The medication that I am on does help, in addition to some natural remedies that I use. My cardiologist also recommended that I start rowing. My recent data check showed several episodes, some registering in excess of 200 beats a minute while sleeping. One of the things that I use are essential oils, which help with stress and helps with the heart rate. I also meditate a lot. It's amazing how much that has helped me.
I would love to know when your surgery is taking place, and how you're doing after. Glad the video helped.
Thank you so much Gina! My highest was 162 while asleep. Obviously i had no idea that was happening while i was asleep. I feel ashamed because a Dr i was seeing wanted me to go to a sleep lab to find out why i have trouble sleeping. I thought to myself, i know why...im in pain!! I guess i should have followed through with his recommendations. As you likely know, when you have Lupus everything gets attributed to it. You just never know when it is Lupus or something new. I was Dxed 35 years ago and am so used to suffering i don't think much of it. I have been suffering with chest pain a great many years. You know how Dr's can be if they don't have an obvious answer...oh its in your mind or it's just the Lupus, nothing you can do. Finally one Dr said have you ever had a Halter for a week or so...since i had not i was referred out. I am so thankful to her, I finally have a reason for this.I will keep in touch to let you know how things go. As nervous as i am...I'm even happier to see an end in sight, to this portion anyhow! Thanks again!!
My son was diagnosed with wide complex tachycardia 2 years ago at age 12. We forget it by accident because I took him to the ER for pink eye. His heart was beating a 240 up 280 and he said he felt fine. That’s night I thought I died seeing my son having to have his heart stop and restarted, due to nothing else working. He had 2 ablations and just go got the loop recorder a month ago. My son now has problems not being able to sleep due to that recorder. It was place on the side that he sleeps on. I’m curious to know how long did it take some you to get use to it. I told him he has to find his normal position in the bed. How long did it take to healed completely. I pray healing for everyone.
I would thank everyone, especially Gina for sharing your story.
Gina Welds Hulse
I have the same thing wrong with me and my Dr told me no need to push button and send it to them. I have a bunch of quacks asking me what i'm scared of. WOW i pray you get better.
Hi. Sometimes there is no need to push the button....like during sleep. However, if you are feeling episodes, please push that button as often as you need. That signifies that you are feeling them and they are interfering with your life. Once a month, they should do what is a called a remote download. Every other month I usually go to my cardiologist to get an update. Don't worry about what people say. You know that something is not right because you live in that body. That is what happened with me as well. Only you know your body.
I have had SVT for years and did not know how bad it was till one day it reached over 200.Nothing has ever been detected except a polarity difference on my ekg.
Two days ago I got my loop recorder inserted and just local anesthetic.Very painful after and my shoulder hurts.Feeling of weakness so I went to the Er.
I am not sure if all this goes away.
Deep chest pain also.
I had reveal device implanted nearly 3 years ago i was awake also wasnt so bad though the doctor even pocked his finger inside to make a pocket for device to fit in i love mine will miss it when its gone. xx
How have you been feeling?
Have you had it removed? How did that go? I've had mine in about 2.5 yrs.
Aloha!!
I just want to thank you so much for this video. I have Long QT Syndrome and will be having a Loop Monitor implanted after my doctor gets approval from my insurance company. I have had 2 episodes of syncope in the past year......about a year apart. It begins where I CANNOT BREATH. I feel as though I am drowning in air and cannot CANNOT BREATH.
My most recent syncope occurred May 29th. I got up to go to bathroom and suddenly I began yelling "I cannot breath" and I passed out in our hallway. My hubby was home and he was completely shocked and saw that I was turning purple and not breathing. He began doing chest compressions...... he saved my life
Kristin, how are you doing? Did you get the device implanted?
i had ablation done in feb this year and i have just been put on waiting list to have it done again. the 1st one i had it done with pain killers and sedation and it hurt like hell it took 3 hours and was very painful ive agreed to have it again but under a general anaesthetic and it will take about 5 hours. funny thing was after the ablation i had very little pain. good luck xx
It turns out that I won't have the ablation. I was just diagnosed with POTS and atrial fibrillation so I'm being monitored closely. I'm so sorry you went through such pain the first time.....but glad that your recovery is going well. I'm actually surprised that the ablation was done under sedation. They would have to put me OUT.
this hot weather we are having is killing me will be glad when winter arrives.
Prayers for you !!!! I'm so sorry you have to go through all of us !!! i had a stroke and my primary Dr wanted me to go to a Cardialogist ? I had tests done and they came back normal but my Dr is AFRAID that i will have another STROKE? SO i guess i have to do this ? My DR feels that my Stroke was from a fibulation i had in my heart but i have never had heart problems before this Stroke ?
Hi Gina! Thank you for this video is is very helpful❤️I’m currently debating whether to get the loop recorder I have encountered episodes of PSVT they discovered I have arrhythmias and it may be hormonal since this started once I turned 50 I am not a fan of meds and things like this currently on Metoprolol and it seems to be helping keep my rate and body down. How are you now? Did you have the ablation procedure? How’s your heart? Hope a is well just trying to weigh my options thank you so much by the way you’re beautiful and inspiring!
Hi. What decision did you make? It's a tough one, I know.
I did not have the ablation. It was determined that it was not necessary at the time. I'm now on my second loop recorder.
Hi Gina! Hope all is well! I saw a different doctor who I felt more comfortable with and suggested the chest monitor which I’m currently awaiting, and he said we will see from there and that there are meds for arrhythmia not just the ablation so we shall see. The worst part I waiting and my bloodwork did show I’m going through menopause so that could have played a role in the onset of the heart issues
I was one of the first few to get this. I hate it.. It hurts in my chest. I feel like it is pressing down on a nerve..
I had one fitted aone month ago and I can totally relate to what you are saying. It feels like it is compressing on my chest. I feel it dying to push itself out of the skin. It also pushes out on my scar.
@@kevinkent4434 yes exactly! Sucks
After a couple of month you can feel pain where the loop recorder is??
If you are, you should tell your doctor.
They wanted to do this with my friend who also had lupus. Do you remember when I shared some of the story about my friend...who now through the healing modalities I taught her she no longer has lupus avoiding this procedure. Lovely how are you doing now? Do you still have this? You are gorgeous too! 😍
Yes, I still have the device, and I am going through some healing modalities using reiki and crystal reiki among other things. Meditation does help me with keeping the heart rate down. I wish more doctors recommended that to patients, provided that it is not a life threatening situation of course.
Thank you
I had a loop recorder put in two days ago. They say it's a procedure but really it's like a small surgery and I wish I had known that because I wasn't prepared for it. I had to have a blood work up before admission to check my kidney function because I got a lot of antibotics injected into my line before I went into theatre. I could taste it in my mouth and smell it and it made me feel nausea for a few minutes. I was wired up to a heart monitor, had a blood pressure cuff on the whole time and had to have a pregnancy test to prove I wasn't pregnant before I was injected with the antibotics. I walked into theatre and had an oxygen mask put on before the prep started off all the equipment. That took a good half hour, then my heart surgeon/cardiologist began to prep my chest and that was awful as I was so cold and he had to scrub and hose me off using the coldest fluid ever. That took 15mins. My teeth were chattering. Before the procedure started a blue surgical sheet was placed over my head and I had to get them to pin one corner up so I didn't feel closrophobic and they had to turn the oxygen down as well as it was starting to make me feel sick. I felt the sting of the needle which was ok and the pressure of the device going in but it was over in a minute. I had a stitch put in and then a clear 3 inch by 3 inch dressing placed over the whole area to keep it sterile. Then a big pressure dressing which I could take off as soon as I got home. It was taped down with some heavy duty tape from shoulder to hip on both sides. I walked out of the O.R and then was monitored for an hour. I got to eat and drink something and was discharged when my meds arrived. I wasn't allowed to drive for 48 hours. Also i had a man come and show me the loop recorder and gave me my own reciever and pocket reciever as well.
I felt worse than i though i would as I really needed to think of it as a small operation in which I would be awake without sedation. The anesthetic made me feel pretty crappy until 3a.m. but then I seemed to bounce back a bit. The cut felt like a burn or really bad graze for 18 hrs.
I definitely couldn't go to work the next day and then 48 hours after wards I had an attack and past out while trying to do some grocery shopping. I had the smaller portable device in my handbag and it was easy to record the event. I also have a samsung mobile phone which has an app on it for recording my pulse so I was clocking in at 151bpm when I fainted. Hopefully I will find out soon what is wrong. I have had an echo and stress echo etc but am still waiting to have the table tilt test done.
I'm so grateful for this technology but I wish I had been better informed on what to expect regarding the procedure. Especially the use of antibiotics as I have an autoimmune disease. I also have fybromyalgia
Oh, wow, Vicki! I am so sorry you are going through this. Yes, they say it is just a simple procedure, but it is minor surgery which takes a few days to recover from.
How are you feeling now that it's been a few days? Always keep the hand device with you, and sleep close to the monitor at night. Periodically send data because I found that Occasionally mine will have a hiccup.
If you have any questions, do not hesitate to reach out, and keep in close contact with your cardiologist. Another tip: Document everything. It might be helpful to start keeping a journal of symptoms, and what you were you doing when the symptom occurred.
I started having heart palpitations and irregular heart rhythms back in February of this year. I woke up one night to use the bathroom and a soon as I got back in the bed, my heart started beating super fast and hard. I thought I was having a heart attack. I went to the ER and my blood pressure was 200/106 and my heart rate was 120. I had blood work done, EKG and an echocardiogram...all came back normal. That had never happened to me before. Long story short, I had a urinary tract infection a couple of weeks before the heart palpitation episode. I was prescribed the antibiotic Cipro. Turns out that this particular antibiotic (along with others in the fluoroquinolone family) can cause heart arrhythmia problems and a ton of other health problems. I'm convinced that's what caused my heart issues. Have you ever taken Ciprofloxacin before?
O 09
@@stanleywright1044 what?
Hi 👋 I’m getting mine in about two hours from now . How has your experience been after you have had it in for over 3 years ??
Hi. How are you feeling? I actually feel great after having it in for that length of time. The toughest part is the healing part. Give yourself time to heal. The data received each month is very helpful. I'm glad I got it, even though I was hesitant at first.
All the best on your healing. Let me know how you're getting on.
I just got my implant Tuesday I was wondering if the incision site is supposed to be yellow and purple ?
This was so helpful. I will need a recorder. I have bradycardia with my resting heart rate dipping into the 40s. I black out too and are plagued with migraines. It causes several PVS’s. I was so worried to let them place one I me. You have calmed my fears.
I’ve had every monitor except this one, they detected normal abnormalities but nothing alarming but I’ve been having issues where twice sometimes three times a month my pulse in my chest and carotid artery in my neck will get out of whack and I even have had it to where each artery had a extremely different pulse, got light headed and almost passed out afterward. Scariest situation I’ve been in
Hi, thanks for all the info. I have had pvc's, pac's, and vtach many times. I was totally healthy when all this began in 1999. At first the doctors just all said, you're fine don't worry about it. But when I finally got a cardiologist he did tests and said I have psvt. Through the years I have tons of tests/monitoring and different cardiologists. They always tell me it's not serious and just to take my medicine. I have been on Atenolol for 15 years now and for the most part it is controlled, sometimes too controlled. Had a heart rate of 44 this morning when I woke up. Before the Atenolol it would get up to 150's/170's. I really didn't feel faint but it felt like my heart was gonna burst out of my chest, very scary feelings. I have had a cough for about a year now and no one knows what's causing it, not even my pulmonologist. Atenolol can cause a dry nagging cough, so I'm assuming it's that. I told the doctor I wanted a EP study and he said he wanted to do the recorder instead. I just said ok and am getting it the 20th of this month. Heart problems don't run in my family and asthma is the only other health issue I have. It ALWAYS gets worse after eating or drinking alcohol. I just pray this goes and stays away.
Wow! 44 bpm? Mine has never been that low. Recently I had a readout where one episode recorded a heart rate of 297 bpm. I was asleep so I did not feel it. What a Christmas present!! You may experience some pain for a couple of days, so take it easy. Let me know how it all goes. Glad you got the cardiologist. That is what happened to me as well. My cardiologist finally realized what was going on. After wearing a regular holter monitor for quite a while, this was recommended to me. It has been a life saver. If you're experiencing problems after eating, try to eat several very small meals during the day. That should help. Have you been tested for COPD? I was initially diagnosed with asthma and it turns out that I actually had COPD, and eating was a challenge, so see if your pulmonologist would check you for COPD......even if you're a non-smoker. I never smoked a day in my life and ended up with emphysema/COPD. There are different herbs that will help with dry mouth and throat. I know mullein is one of them. Check to see if you would be able to use that with the medicine you're on as herbs can also affect prescription meds.
@@BougieMagicwithGinaWelds It's asthma for sure. I've had it since I was 4 yrs old. Thanks for writing back.
I had this brand of loop put in yesterday. I'm bruised from my top rib to my collarbone. I'm in severe pain. I can't bend over, roll over in bed, barely can walk. It feels like severe pressure. Anyone else have severe pain afterwards? They should really sedate you putting this in. I asked the Dr if he was jumping on my chest when putting it in. Horrible experience
I'm so sorry that you are having such a rough time. I did my procedure with just local anesthetic because my veins would not cooperate that day, so no IV sedation for me, but when I got home I did not have much discomfort. I couldn't bathe for a few days but that was it. I'm wondering if our device may be pressing on a nerve. You should not be in such severe pain. I only had a rash reaction from the dressing that was used. Please check with your doctor, if you haven't done so already. It is such a useful device and I would hate for you to be having an awful experience from something that should be helping you.
Gina Welds Hulse , thank you. I called the office this morning, they never called me back. It feels like it's stabbing me when I move. I wasn't sure if it needs to build scar situation to keep it in one spot or what. I also wondered about it pushing on a nerve. The hospital told me they never use sedation for this. I think it's in humane to not use it. I'm pretty sure I'm allergic to the lidocaine they used also. I was shaky the whole day yesterday. It felt hard to breathe.
Keep calling. You shouldn't have a stabbing feeling. You'll have some discomfort from the incision site, but even that should be mild, if the device was placed correctly. I think sedation is offered, but it could depend on insurance also. I was offered sedation as well as local, but because my veins wouldn't cooperate, I told my doc that since I was already, to just use the local. I felt everything, but it was not horrible. My Anesthesiologist even stayed to hold my hand. He felt s bad that he couldn't get the IV in, but he was very supportive. The worst discomfort was from the burning of the medicine as it was pumped in before the incision was made.
If you feel like you are having a reaction, then go to the ER. If you can't reach your doc, then go to the ER if anything feels out of the ordinary. It does take time to build up the scar tissue around the device. Make sure you are not lifting above your head, or lifting anything above 5 pounds. I think the recommendation is not above 10 pounds, but my cardiologist said 5 until it is healed and won't move around.
Don't forget.....ER if you can't get in to see your doctor. Did you get the monitor set up at home at least? They should be monitoring you already, and should have some data to work with. The ER can also reach your doctor.
I had one put in 2 months ago and i have tried everything the help with the pain not being able to sleep nor eat im depressed all the time. For me since this loop recorder was put in i have had nothing but problems i can feel it i can see it. It hurts all the time
@@jasminegersitz2546 Sorry I am just seeing this comment. Have you seen the doctor since posting this? You should not be having any of those symptoms. If you are thin you may be able to see it, and possibly feel it as well , but you should not be in pain at this point.
This loop recorder really hurts my chest and burns
Same!
Same i hate it
Same, I cannot lay on my side or lean over without searing pain
Does it leave a big scar on your chest? Do you have any photos? I am on the waiting list to have one fitted but I am very anxious about having it done.
I have a question and I hope you can help me understand a little better.. My dad had a loop recorder implanted in September 2018, and by October 2018 he was found dead laying on the couch. He didn't have an autopsy, although I wish they would have.. But they just wrote it off as a heart attack.. Even though the skin was red above the implant and it was warm to the touch.. Any ideas of what could have happened?? If you could answer I would greatly appreciate it, thanks! EDIT: I also left out that the machine that you can use to save recordings if you are having an "episode" had not been updated since October 27th, unknown to him, and he died October 30th
Hi Cal. I am so sorry to hear about your dad. It sounds like your dad may have developed an infection surrounding where the implant was placed. Since he did not receive an autopsy, it would be hard to tell now without extreme measures. There should have been some record of a heart attack on the monitor, if it was a heart attack, as the machine records all the episodes. I'm not sure how this helps, or if it does, but I hope you do get some answers.
@@BougieMagicwithGinaWelds thanks so much. It actually does help some, but you're right, I will probably never really know. And the machine hadn't worked for some reason, since 3 days before his passing but he hadn't checked it I'm guessing. And we got a call from his Dr that put it in, reminding him of an appointment January 24, so they have no clue, we've contacted a lawyer. Thanks so much for taking the time to reply. Good luck with everything
Did he call the doctor to let him know there was redness and or swelling? Sadly, it does sound like infection. I am so sorry for your loss!
I just had a ILR placed, mine is different and uses my cell phone to send it vs the device you have. I’m 24 hrs post op, what was your pain level? I’ve been up all night with pain. I had it local sedation, I also felt it all but just poking nothing bad. The new device is by St. Jude, they made it so you can go anywhere and even be away from your phone (which is way better since it will record everything regardless). Sounds like everything has greatly improved but the burning at the site is intense!!!
I can also be away from my device. It automatically records. The handheld device is to mark the episodes that I feel. At night, however, I have to sleep next to the external monitor. I had very little pain after the procedure. My discomfort related to itching at the site....I think it was from the surgical tape. So sorry you are hurting...some motrin should help, unless it's really bad....in which case you should contact your doc who did the implant. Hope you get some relief soon.
I'm experiencing the same thing. It's unbearable and they refuse to prescribe me pain meds or seen to really care at all. All they've said it's they'll start work to schedule the explant and it will take 2-3 weeks before they can get it in the schedule . Meanwhile I can barely move without searing pain. It is the one by St Jude too.
well what happened? did the ablation work? my husband just got this put in the loop moniter 2 dys ago...
Hi, Kassie. I actually did not need to have the ablation. I'm still being monitored and have regular appointments about every 4 months unless somethings shows up on my data read-out. What are your husband's symptoms? What is he being monitored for, if you don't mind the question?
He is being monitored for afib following a stroke. They found a hole in his heart that's what caused the stroke a blood clot went thru the hole.so they closed the hole and 2 weeks after they closed it he started getting heart palpitations. Like 4-8 times a day.never had them before the surgery. He went back after putting in the monitor he pushed the button 12 times already and the heart Dr said he sees the erythemia but the pattern doesn't look like afib but they will watch it and he has another appt in 6 months.
They also said it takes awhile for the heart to heal and hope once the heart heals this could poss go away. Hopefully it does. He is 58 yrs old.we are still young
Very late to the video but just wondering is it normally for it to almost sting when sending a recording using the device ? I’m 17 and recently had one fitted but I always feel an uncomfortable sensation when sending a recording ?
It should not sting, but if you have only recently gotten it implanted, as in the last few months, the scar tissue may still be a little sensitive in that area. If it persists definitely check it out with your doctor. I do remember mine was sensitive for a while, but not like electrical current kind of way.
There is no need to wear either a 24 to 48 hour holter monitor or a 30 day event recorder with implant loop recorder
I did not have a holter monitor at the time that I got the implanted device. That was previously.
Thank you soo much for your information !
great video great info
Hi Gina, thank you for sharing. My Dr. wants me to get one, and I will likely do that (not wanting to repeat a stroke), but I wonder if you can feel it in other ways than palpation, i.e., energetically or bio-electrically? I ask cause I'm sensitive this way, having been a polarity/craniosacral practitioner and sound healer. Thanks! (I also asked you online but figure this may be the quickest way to hear back). If anyone else would like to respond, I'd love to hear from you too.
Hi, Laurie. I'm so sorry to hear about your stroke. I don't know it's there unless I am playing with my granddaughter and she accidentally hits me in my boob. lol. If you are really thin, you may be able to see it, but most likely not. It is not recommended to use crystals such as hematite, as they will interfere with the device. I also avoid microwaves.......not sure how they would impact the device, but I would rather not find out in a negative way. This is something that you could bring up with your doctor. Does that help at all?
Do you have to stay at home..?
No, you don't. There is a smaller device that you travel with. It literally connects to your key ring. When you have an episode, you simply use it to mark the moment when it occurs.
WOW. Next stop Psychologist. oh I have PSVT. my highest heart rate was 260bmp. After ep studies and one ablation surgery. now stable on 50 MG. Tenormin bid. And that has been 25 years now. Good luck with what is going on with your case.
Hi George. Thanks for stopping by. I'm glad your condition is stabilized. I was just diagnosed with POTS and atrial fibrillation last week. The ablation is off the table, as I have Inappropriate sinus tachycardia. An ablation would devastate the sinus node and pretty much put me in line for a pacemaker. I was put on an increased salt intake to keep my BP elevated to help with the POTS. For now it's just medication for me to help with symptoms.
get well soon
This is an actual surgery.....it starts at 36 seconds. ua-cam.com/video/GeQ3F9fZszo/v-deo.html
Be VERY careful using herbals-many have cardiac side effects and can trigger arrhythmias! (Essentially, even Digoxin is derived from foxglove.)
I had a dear friend who lived with Crohn’s -one of those autoimmune diseases that, like Lupus, involve anticardiolipin / antiphospholipid antibodies-and she developed irregular cardiac activity. She had a genetic component to the cardiac arrhythmias and other family members also developed it. They went through the ablation process several times…I’m sorry to hear that you struggle with this. Again-beware of herbals. There are mushroom mixtures touted as immune enhancers that people take for COVID, cancer, etc-but they have potent cardiac side effects! Be careful!
I appreciate your concern, but after years of study, I teach what I know to work. I have never undergone the ablation, but if it helps others, great. As a Master Herbalist, I work with herbals in a reverent way. Over the years I have healed from numerous illnesses using herbal remedies. If herbals are not for you, that is ok. Plants and trees were placed on the planet for healing, although there is also a place for western medicine. I teach my experiences, not for others to do what I say, but for them to do the research for themselves and go from there. I can only teach from what I have gone through and what works for me. Any medical decision should be made between you and your doctor, not based on something that I have said. I am not a medical doctor, and you or anyone watching should consult your doctor before making any changes to your healing protocol.