I have seventeen years now with this horrible disease and I was 36 years old and pregnant with my daughter. I totally understand what you're going through. Bless you always.
Can I ask how life is for you with Parkinson’s? I’m 25 and am quite fearful I have it. The thought of being nearly incapacitated by the time I’m 45 is honestly terrifying.
Stay strong Drew, Those children must be an absolute inspiration for you ! Thanks for sharing your video with us, you are very brave And so young! I’m 69 Let’s hope they find a cure soon, and you’ll be walking your daughter down that Isle!
Totally get it Drew, I'm there with you, 25 years older, but completely understand you. Thanks having the courage to share - you've done more than I have. Keep your family close, they'll be the reason to keep going. All the very best mate. Colin - North Wales
I was diagnosed on March 25th of this year. Looking back now, after seeing a great neurologist, I’ve had symptoms for about 10 years! I just turned 52. Fear of the unknown!! This sucks!!
Whilst the charity and this UA-cam channel is a great resource the one criticism of PARKINSON'S UK I have is that the website, literature and videos don't cover or feature enough of the younger people who are diagnosed making younger patients feel even more isolated, worried m, scared. I was 38 when I was diagnosed although some of the symptoms had began to surface a few years before I was diagnosed. I'm 46 now and I still can't help feel that it's still perceived as an old person's disease and I feel for younger people who are diagnosed.
Hi Barry, thanks for your feedback. I'm really glad you find the channel a great resource but also understand why you may feel like that, and we will definitely take your point on board for future content. We've also shared your thoughts with our feedback team. All the best
Aw man I’m so sorry. Reach out, I’ve had opportunities I wouldn’t normally have since PD. It doesn’t define you. My mentality after 3 years is, if PD wants to use me and close routes in my life, I’ll equally use pd to open doors for me!
I am unable to sing, which saddens me. I was a footwear designer but alas no more . Photography is out the window. Please don’t worry about not walking your daughter down the aisle....love will show you the way. ❤
Hi everyone , I’ve been having weird flutters all over my body primarily my back and my elbows and my thumb and baby finger regularly twitch . I live in Africa as you would imagine we have little to no health care we basically aren’t able to diagnose most disorder apart from malaria . Anyways I will really appreciate it if any of y’all can help me with how you got diagnosed , was in mri or any particular test as I did have and mri in March which came back normal .
Hi Fatima, really sorry to hear this. Have you tried getting in touch with Parkinson's Africa? www.parkinsonsafrica.com/ - they may be able to help? We also have a lot of information on our website which may be useful www.parkinsons.org.uk/information-and-support - good luck, and all the best, James
I don’t want to come of as a hypochondriac however I thought I had ms because of pins and needles and electric shocks around my body . Now that has resolved am battling this urge to twitch I don’t know how to explain but it’s making me go crazy
You are tested on Restless Legs Sydrome ? I have it . Its really bad ! And you have the feeling that noone cares about this desease. No really research nothing .
Im 15 and like i feel like im shaking but i am not and like its weird and like if i have it can i live like a normal person? Like go out for walks? Drive a bike?
Hi Mike, I'm so sorry to hear that. Are you based in the UK? We would highly recommend talking to our helpline on 0808 800 0303. Please also speak as soon as possible to your healthcare professional service. In answer to your question, yes people with Parkinson's can often live very well and can certainly do things like walking and riding a bike for many years. Your issue is hopefully unrelated but please do speak as soon as you can to a healthcare professional. Wishing you all the best
I have drug-induced permanent parkinsonism. I am 20 years old. I can say that this disease is the hardest thing in my life. I hope scientist will find a cure for it.
I have seventeen years now with this horrible disease and I was 36 years old and pregnant with my daughter. I totally understand what you're going through. Bless you always.
When you hear someone else saying it , it makes it a little easier to cope, knowing you are not alone. Thanks
I was diagnosed at 37,.. I'm 48 and I'm Praying for your Healing it isn't Over. You got plenty life . love you Drew and your Beautiful Family
Can I ask how life is for you with Parkinson’s? I’m 25 and am quite fearful I have it. The thought of being nearly incapacitated by the time I’m 45 is honestly terrifying.
Stay strong Drew,
Those children must be an absolute inspiration for you !
Thanks for sharing your video with us, you are very brave
And so young! I’m 69
Let’s hope they find a cure soon, and you’ll be walking your daughter down that Isle!
This is like you read my mind. 🙏 it is something that is so hard to put into words.
God bless u even my husband the same … god bless all of you dears
Glad I'm not the only one that feels that way. I'm 29 years old, been diagnosed a month ago. I'm scared...
I'm 22 and i ve this disease
Same age ,Suffering with symptoms ,
Can I contact you .
@@deadman-hx3sx are you sure?i mean you have got a clear diagnosis this early?I'm so sorry if thats the case
@@deadman-hx3sx no way , what are your symptoms and pls how do you get diagnosed with it
Hope a cure is found soonest.
Totally get it Drew, I'm there with you, 25 years older, but completely understand you. Thanks having the courage to share - you've done more than I have. Keep your family close, they'll be the reason to keep going. All the very best mate. Colin - North Wales
I was diagnosed on March 25th of this year. Looking back now, after seeing a great neurologist, I’ve had symptoms for about 10 years! I just turned 52. Fear of the unknown!! This sucks!!
Stay strong mate. Bless you and your family.
I know what he means when he said “ when I wake up, I remember I got Parkinson”. And God fear of the unknown as he said, I know what all that means
Whilst the charity and this UA-cam channel is a great resource the one criticism of PARKINSON'S UK I have is that the website, literature and videos don't cover or feature enough of the younger people who are diagnosed making younger patients feel even more isolated, worried m, scared. I was 38 when I was diagnosed although some of the symptoms had began to surface a few years before I was diagnosed. I'm 46 now and I still can't help feel that it's still perceived as an old person's disease and I feel for younger people who are diagnosed.
Hi Barry, thanks for your feedback. I'm really glad you find the channel a great resource but also understand why you may feel like that, and we will definitely take your point on board for future content. We've also shared your thoughts with our feedback team. All the best
Recently diagnosed with Parkinson’s disease. Yes, it’s the unknown that’s scary.
Aw man I’m so sorry. Reach out, I’ve had opportunities I wouldn’t normally have since PD. It doesn’t define you.
My mentality after 3 years is, if PD wants to use me and close routes in my life, I’ll equally use pd to open doors for me!
My friend is 38 and has Parkinson’s , she’s actually my inspiration.
I wish you all the love and strength in the world. 🙏
Your little one is absolutely gorgeous. I wish you well
Keep battling and exercise! Dumbbell full body exercises and bike riding. Even on a quiet street.
Good video Drew. This all takes a lot of courage
I am unable to sing, which saddens me. I was a footwear designer but alas no more . Photography is out the window. Please don’t worry about not walking your daughter down the aisle....love will show you the way. ❤
Hi everyone , I’ve been having weird flutters all over my body primarily my back and my elbows and my thumb and baby finger regularly twitch . I live in Africa as you would imagine we have little to no health care we basically aren’t able to diagnose most disorder apart from malaria .
Anyways I will really appreciate it if any of y’all can help me with how you got diagnosed , was in mri or any particular test as I did have and mri in March which came back normal .
Hi Fatima, really sorry to hear this. Have you tried getting in touch with Parkinson's Africa? www.parkinsonsafrica.com/ - they may be able to help? We also have a lot of information on our website which may be useful www.parkinsons.org.uk/information-and-support - good luck, and all the best, James
I tried vitamin B1 and B2 it helps with my symptoms
I will lose the battle but no the war. PD my constant fight. I feel you.
It is a hard nut to leave with.
Hey Drew stay strong hope to meet up with you one day cheers Geoff
this is me
I just got diagnosed a month ago I’m in the first stage 47 and also got blind in one eye from brain surgery years ago. I worry about future
I don’t want to come of as a hypochondriac however I thought I had ms because of pins and needles and electric shocks around my body . Now that has resolved am battling this urge to twitch I don’t know how to explain but it’s making me go crazy
You are tested on Restless Legs Sydrome ? I have it . Its really bad ! And you have the feeling that noone cares about this desease. No really research nothing .
Im 15 and like i feel like im shaking but i am not and like its weird and like if i have it can i live like a normal person? Like go out for walks? Drive a bike?
Hi Mike, I'm so sorry to hear that. Are you based in the UK? We would highly recommend talking to our helpline on 0808 800 0303. Please also speak as soon as possible to your healthcare professional service. In answer to your question, yes people with Parkinson's can often live very well and can certainly do things like walking and riding a bike for many years. Your issue is hopefully unrelated but please do speak as soon as you can to a healthcare professional. Wishing you all the best
You have internal tremors.
You have internal tremors.
Hi Drew, have you considered DBS or spoken to your neurologist about it. I’ve just had the surgery myself. Feel free to message me. Penny
I have drug-induced permanent parkinsonism. I am 20 years old. I can say that this disease is the hardest thing in my life. I hope scientist will find a cure for it.
My technology teacher said to do a task about you for online lessons the whole year 8 is doing this we are nearly 200 students in a year group
Oh wow, I must admit I’ve not been on here for a long time, can I help in any way? Happy to do a live chat
He's 36?????(. Nooo wayyyyy.
And I bet that aint half your story