The Woman With Unusual DNA: Swyer Syndrome | Season 9 Episode 1 | Medical Documentary | All Docs

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  • Опубліковано 27 січ 2019
  • This documentary is about Jeanne Nollman, a healthy, active mother of two, who struggle with a mystery disease that affect her life and identity. Through interviews and dramatic recreations, she discovers the truth about her disease.
    People suffering from illnesses un or misdiagnosed, discuss their journey to finding a diagnosis.
    Jeanne Nollman fails to hit puberty and is being told that she is just a late bloomer. Her doctor tells her that her ovaries are underdeveloped and can become cancerous. After many tests, Jeanne Nollman finds out she has a rare genetic disorder called Swyer syndrome which gives her XY chromosome. In result, she struggles to produce hormones that are essential for puberty which can affect her future and everyday life.
    Every year, millions of Americans fall prey to real-life medical mysteries ailments that go undiagnosed or misdiagnosed for years. Their lives are thrown into turmoil as medical professionals struggle to understand their baffling conditions. Mystery diagnosis tells their stories. Through interviews and dramatic recreations, each medical mystery is recounted in vivid detail. Symptoms emerge, specialists are called in, but still the daily struggle continues. And then one day, because of a patients relentless pursuit of an accurate diagnosis, or a forward thinking doctor, the problem is solved and a true diagnosis given.
    Welcome to All Documentary the home of amazing documentaries! Here you will find full episode documentaries and documentary series, covering true crime, medical, science and more.
    Subscribe here for more full length documentaries: / @banijaydocumentaries

КОМЕНТАРІ • 4,8 тис.

  • @meows_and_woof
    @meows_and_woof 4 роки тому +7360

    “Boys were not interested in me, I looked like a boy”
    Showing gorgeous model looking girl

    • @swizzleproxi4810
      @swizzleproxi4810 4 роки тому +115

      But maybe she had a hard muscular, flat chested body.

    • @Petsn
      @Petsn 4 роки тому +185

      Should've taken a male actor

    • @leebee5361
      @leebee5361 4 роки тому +105

      Just doesn't quite work in getting the point across, does it??

    • @evaw4062
      @evaw4062 4 роки тому +73

      Because most. Models look. Like boys.

    • @morganolfursson2560
      @morganolfursson2560 4 роки тому +41

      Cover girl, put the bass in your walk, head to toes, let your whole body talk.
      And,...what !
      Welcome to the main stage of ru paul drag race !
      Category is,... Butch queen !
      10, 10, 10 across the board !
      Contestant Swyer Noll-Man, Shantay you stay, you may join the other "girls".

  • @praise8221
    @praise8221 5 років тому +5403

    Here we go again with the dramatic blinking 🤦‍♀️🤦‍♀️🤦‍♀️

    • @carolcoates3750
      @carolcoates3750 5 років тому +47

      I think the film-maker has an eye fetish!

    • @SwedishDoomGoblin
      @SwedishDoomGoblin 5 років тому +11

      👁️👁️👏👏👏👏👏

    • @leonolonger
      @leonolonger 5 років тому +7

      😐😑😑😶

    • @RabbitTeaPot
      @RabbitTeaPot 5 років тому +13

      I said this on one of their other videos about the wee lass who had precious puberty & it was a sign of some obscure illness, the editor should be fired for it haha every 3 mins it was a shot of the mother blink with the dramatic “dun dun” sound effect

    • @SwedishDoomGoblin
      @SwedishDoomGoblin 5 років тому

      @iissomsom i 😂

  • @beverlytaff4914
    @beverlytaff4914 3 роки тому +3734

    Why do American documentaries have to keep repeating the same information over and over and over again. Are all Americans afflicted with attention deficiencies?

    • @holliejackson8453
      @holliejackson8453 3 роки тому +311

      I've been to America and it frustrated me soooo much the ammount of adverts and the constant re-capping, like I know what happened 3 min ago because I was watching it!

    • @gustavoturm
      @gustavoturm 3 роки тому +159

      Have you seen their president? It suggests they are. xD

    • @favourifezue1593
      @favourifezue1593 3 роки тому +79

      I know!!! They do this in EVERY SHOW!!! like chopped, masterchef, American next top model.. everything! It’s so annoying, I always just skip 10secs

    • @ivand8531
      @ivand8531 3 роки тому +50

      Well... Because they had so little to be shown... And, repeating the same info over and over again has been an old trick to drive curiousity into the audience... Heck only to find nothing explained at the end... So Typical... Especially for documentary.

    • @karenwangari4057
      @karenwangari4057 3 роки тому +20

      Its so annoying

  • @metalguru5226
    @metalguru5226 3 роки тому +932

    The resemblance between the subject and the actress playing her is uncanny... uncanny in that there is no resemblance whatsoever.

    • @fableagain
      @fableagain 3 роки тому +3

      XD

    • @Adora3473
      @Adora3473 3 роки тому +19

      is that the less feminine blonde actress they could find?.... seems like they didn't care at all at the plot of this story when choosing her

    • @metalguru5226
      @metalguru5226 3 роки тому +9

      @@Adora3473 I guess they wanted at least one woman on camera that was attractive

    • @sitcomsTV
      @sitcomsTV 3 роки тому +5

      Uncanny were the acne pimples on the actress's face. She was full of estrogen 🤣🤣 skin doesnt lie....

    • @Cheepchipsable
      @Cheepchipsable 3 роки тому +2

      Almost, but not quite, exactly unlike the woman she is portraying...

  • @summerghost6551
    @summerghost6551 5 років тому +8408

    Shit this documentary is more intense than most Bollywood films

  • @james1234168
    @james1234168 5 років тому +10607

    Typical American documentary... 15 mins of content dragged over 45

    • @princessdeedee7430
      @princessdeedee7430 5 років тому +190

      Jammy Jam YOU ARE BLATANTLY BRITISH.....LOL

    • @james1234168
      @james1234168 5 років тому +263

      @@princessdeedee7430 indeed

    • @ginacable5376
      @ginacable5376 5 років тому +376

      Oh god yes the bloody crime ones get on my wick with their constant repeating, makes me want to hang myself.

    • @aprilapril2
      @aprilapril2 5 років тому +295

      I think they assume we all have some kind of dementia and hAve no short term memory so need constant reminders...perhaps there are monstrously long commercial breaks

    • @toby1248
      @toby1248 5 років тому +113

      With ads every 6 minutes

  • @sabriele
    @sabriele 3 роки тому +1890

    Pro tip for those who haven’t started or are halfway through: 1.75x speed is your best friend

    • @jaira7253
      @jaira7253 3 роки тому +103

      Me watching this in 2× speed:" 👁️👄👁️"

    • @rominao.v.9145
      @rominao.v.9145 3 роки тому +59

      *You are a genius.*

    • @estilevy2618
      @estilevy2618 3 роки тому +13

      Love you

    • @alexmorelli2826
      @alexmorelli2826 3 роки тому +32

      Hahahaha I literally just did this 😂 🤣 best decision I ever made

    • @noddingbart6915
      @noddingbart6915 3 роки тому +13

      You are now my best friend

  • @rosevampire3755
    @rosevampire3755 4 роки тому +2273

    Picking a literally hyper feminine model to play her was a bad choice.
    I say this as a very tall flat chested 16 year old who does not have heath issues.

    • @anneshaw4642
      @anneshaw4642 3 роки тому +11

      👀👄👀

    • @karenwilliams9904
      @karenwilliams9904 3 роки тому +32

      I agree it does not soften the blow....if that was the intent

    • @adrianaherrera7202
      @adrianaherrera7202 3 роки тому +20

      Ja , when she was little she looked more maskulin ………… the model is too ordinary beauty

    • @belmum1689
      @belmum1689 3 роки тому +13

      They should've got a man

    • @soleshajoseph
      @soleshajoseph 3 роки тому +6

      @@simon41978 I Mean, I Want It🤷🏿‍♀️

  • @CutieRingoJoy
    @CutieRingoJoy 5 років тому +4234

    What am I doing watching this at 3am

  • @Tasoq
    @Tasoq 5 років тому +1789

    The fact that the doctor didn't tell her the truth irritates me.

    • @katerinadicamella
      @katerinadicamella 5 років тому +56

      Me too, its like I can't make decisions for my own. I am my own master!

    • @Nyahinn
      @Nyahinn 5 років тому +63

      Yeah he had no right to not tell her

    • @BaltasLapinas
      @BaltasLapinas 5 років тому +5

      Jean does not have both organs. Watch the video.

    • @AiryEllis
      @AiryEllis 5 років тому +46

      I don't get why she didn't sue

    • @eugeniababyqueenmascheroni4257
      @eugeniababyqueenmascheroni4257 5 років тому +39

      This shows you can't trust every doctor.

  • @leanne496
    @leanne496 3 роки тому +343

    The first story is so Inspiring, I'm currently 29 and unable to have children, I'm still coming to terms with it, but seeing her have her have her dreams come true after so much heartache and trauma just gives me that little bit of hope! ❤️

    • @Gibblo11
      @Gibblo11 3 роки тому +10

      Same age and doesn't seem to be able to either.. But hey, you save a lot of money and don't have to contribute to the selfish action of overpopulating the earth even more.

    • @rswpt
      @rswpt 3 роки тому +22

      You can adopt children still, many children dont have a mother, and dont forget, medicine is always advancing, who knows what future brings? i wish you all the best

    • @leanne496
      @leanne496 3 роки тому +10

      @@rswpt fingers crossed, thankyou for your kind words 🤗

    • @khadijaaah._5315
      @khadijaaah._5315 3 роки тому +6

      @@rswpt many people would like to have their own biological children that’s why they may not go for adoption

    • @thenativist3564
      @thenativist3564 3 роки тому

      Are you pro life?

  • @metalheart16
    @metalheart16 4 роки тому +287

    Jeanne was able to process her medical condition - and by adopting, she was able to to help other kids! Bravo!!

  • @Stefankriss643
    @Stefankriss643 5 років тому +2798

    Writer: so how many blinking scenes do you want?
    Producer: yes!!

    • @zoe4622
      @zoe4622 5 років тому +21

      idk Sabrina idk read this while a blinking scene was going on

    • @liveliness496
      @liveliness496 3 роки тому +2

      😂😂😂😂

    • @petrichor7121
      @petrichor7121 3 роки тому +1

      😄😄😄

    • @arcachata4137
      @arcachata4137 3 роки тому +2

      It's funnier without the excalmation marks ;)

    • @lesegoyv
      @lesegoyv 3 роки тому

      😂😂😂🤣🤣🤣🤣

  • @seyimajek
    @seyimajek 5 років тому +2366

    I was diagnosed with asthma and diabetes
    *dramatically blink*
    What’s with the constant blinking they are doing?!🥵😭

    • @hannahko3225
      @hannahko3225 5 років тому +1

      Seyi Majek ツღ
      Hmmmm?
      Blinking.
      Never heard of it.

    • @Hannah-hx5sp
      @Hannah-hx5sp 5 років тому +36

      its clearly for drama and it comes off as either cringey or hilarious LOL. genuinely surprised that even the medical professionals do it!

    • @seyimajek
      @seyimajek 5 років тому

      Hannah Linton haha same😅

    • @kskyxizzy3068
      @kskyxizzy3068 5 років тому +2

      This made me laugh so hard. Lol😅😂😂😂

    • @seyimajek
      @seyimajek 5 років тому

      K Sky Xizzy I’m glad my comment made you laugh 😂😂😁.

  • @estonianpunk
    @estonianpunk 3 роки тому +231

    Who's the actress portraying teenage Jeanne? Not saying one word her eyes are more convincing than 90% of Hollywood. I hope She gets famous.

  • @jl4260
    @jl4260 3 роки тому +431

    Who casted this insanely beautiful feminine looking woman to play Jeanne tho like it's almost as if they're tryna rub it in even more

    • @supertubemind
      @supertubemind 3 роки тому +2

      It's two different cases. The pretty actress is playing the role of the lung case not Jeanne. A plain actress plays Jeanne's role.

    • @frenchartantiquesparis424
      @frenchartantiquesparis424 3 роки тому +25

      @@supertubemind No, I dont think so. The 1st story of the girl who had her ovaries removed was played by a drop dead gorgeous model....

    • @supertubemind
      @supertubemind 3 роки тому

      @@frenchartantiquesparis424 possibly, I didn't watch the whole video.

    • @kikaparod5216
      @kikaparod5216 3 роки тому +1

      Thats a man and looks like HE-MAN

    • @SaoirseVisceral
      @SaoirseVisceral 3 роки тому

      I mean theyre called actor theure supposed to ACT

  • @brittdenneboom4322
    @brittdenneboom4322 5 років тому +2472

    "She did not go through puberty!"
    *camera zooms in on pimple*
    Edit: wow, so many comments 😅
    I understand that a pimple doesn't equal puberty. I was just saying that they're not really making their point clear by zooming in on it. Kinda like saying ''it hasn't stormed in years'' and then showing rain. It's just a bad directing choice is all I'm saying.

    • @kaelyn1474
      @kaelyn1474 5 років тому +53

      I don't know
      You can still get pimples without going through any stage of puberty

    • @brittdenneboom4322
      @brittdenneboom4322 5 років тому +22

      @@kaelyn1474 well pimples are kinda a puberty thing. Ofcourse you can get them at other times too but you don't very often see them on kids who haven't gone through puberty yet.

    • @kaelyn1474
      @kaelyn1474 5 років тому +6

      I don't know
      My 9 year old sister had one she haven’t gone through it yet

    • @kareemsean1331
      @kareemsean1331 5 років тому +22

      I'M 24 years old , I've never had a pimple , I've had a micropenis instead :'(

    • @solus8685
      @solus8685 5 років тому +8

      @@kaelyn1474 many girls hit puperty at 9..

  • @devangpapinwar208
    @devangpapinwar208 5 років тому +2643

    And y'all blaming us Indians for extreme visuals effects . Come on

    • @gummiberryjuice
      @gummiberryjuice 5 років тому +134

      😂 what this documentary needs is a musical number 😉

    • @queenofpunt
      @queenofpunt 5 років тому +71

      😂😂😂😂True the american documents are way way worse

    • @justinnamuco9096
      @justinnamuco9096 4 роки тому +6

      I mean so long as they werent unnecessary or meaningless repetitive effects

    • @itsakenthang
      @itsakenthang 4 роки тому +14

      Hahahaha they learnt it from us G

    • @deborarosales4197
      @deborarosales4197 4 роки тому +5

      EXACTLY! Loooll

  • @sanduzmeu4549
    @sanduzmeu4549 3 роки тому +228

    “6’1, I knew something was wrong”
    Wait till u come to the Netherlands and see every single woman being at least 6’5

    • @BrynjaHjartans
      @BrynjaHjartans 3 роки тому +10

      hot

    • @carolinelees8561
      @carolinelees8561 3 роки тому +5

      Aye that be true their the tallest I have seen .

    • @arthurhagen3826
      @arthurhagen3826 3 роки тому +16

      6'5 is tall for women here too. I did meet a 6'8 policy officer a couple of weeks ago. Being only 6'1 myself I really looked up to her :)

    • @lindaakesson8403
      @lindaakesson8403 3 роки тому +11

      lol, typical dutch person exaggerating average height. your men are 6ft ya liar

    • @arthurhagen3826
      @arthurhagen3826 3 роки тому +3

      Your silly system gives us a chance to round up. 184 cm. 6 feet and a half inch then :)

  • @boudicca4841
    @boudicca4841 4 роки тому +15

    It's about time society stopped judging people, putting them into boxes, or dictating what is "normal". Jean leads a full & productive life & has a lovely family. As for the medical profession ....enough said....

  • @EugenieHeraty
    @EugenieHeraty 5 років тому +3895

    There's nothing unusual about not having periods by 13. Some kids don't get periods till 16.

    • @meg_3079
      @meg_3079 5 років тому +141

      Eugenie Heraty I didn’t have mine until I was 15

    • @DoubleSlit9
      @DoubleSlit9 5 років тому +134

      I'm 21 year old and i haven't got mine yet.

    • @georgieroberts8697
      @georgieroberts8697 5 років тому +203

      chinchin 1 I’d go see a doctor... although it could be normal, there may be an underlying issue. And better safe than sorry am I right?

    • @DoubleSlit9
      @DoubleSlit9 5 років тому +367

      @@georgieroberts8697 Plot twist: I'm a boy

    • @georgieroberts8697
      @georgieroberts8697 5 років тому +209

      @@DoubleSlit9 lol then keep waiting, hopefully it should come in a few years or so;)

  • @kathleen7849
    @kathleen7849 5 років тому +1147

    I think it's so condescending when doctors think they have to withhold the truth from you. I understand she was only 16 but people need to know what's happening to their bodies/health. I'm so happy she found true love.

    • @rixterz11
      @rixterz11 5 років тому +15

      She may easily have committed suicide if she knew the truth, especially during teen years.

    • @personalcheeses8073
      @personalcheeses8073 5 років тому +105

      rixterz That’s not true many people with terrible disorders are not suicidal. And then you have hundreds of people without any physical disorders killing themselves every day. Every single person has the right to know what is going on with their own body

    • @sharielane
      @sharielane 5 років тому +80

      It's one thing not to tell the teen but not tell her parents as well? That's what got me the most.

    • @TheWhiteGoblin
      @TheWhiteGoblin 4 роки тому +40

      It is very common with intersex disorders, also telling parents that certain surgeries will make their child into a 'normal' boy or girl, even though there is a lot of evidence that it can be very damaging over all. It is pretty gross and a lot of that sort of thing is completely legal.

    • @tabby73
      @tabby73 3 роки тому +13

      He could've at least tell the mother and let her decide when and how to tell Jeanne the truth.
      It was a social stigma back then I guess. Intersex = taboo.

  • @robynology101
    @robynology101 2 роки тому +36

    The ending of Jeanne's story brought me to tears. I'm so happy she could have a rich and full life and a beautiful family. She is more blessed than she even knows.

  • @Monica-vv1zt
    @Monica-vv1zt 3 роки тому +111

    I'm so happy for Jeanne. What a lovely lady with a wonderful loving family. A lot of women would struggle with such a diagnose but it's amazing how Jeanne didn't let it hold her back and she turned it into a positive. What an inspiration ♥️

  • @0xydation
    @0xydation 5 років тому +3733

    Lol late puberty because of asthma !!! OMG where do those doctors get their diplomas, on a flea market ?

    • @amandalynn8591
      @amandalynn8591 5 років тому +141

      Riiiiiiiight!? I've suffered from chronic severe asthma since I was 2. Went through puberty as normal, at 12/13. Never once was I ever told by a doctor that my having asthma would delay anything aside from oxygen getting into my lungs. What a quack.

    • @deepanwitanath4630
      @deepanwitanath4630 5 років тому +74

      Medical science has no limit.Even doctors can't know the whole about it.So common people may not know it..it's quite normal.But Mr.google is always here to help you.So it's a stupid job to insult the doctors of India/Pakistan,,,,you can always search on Google . Just type "childhood asthma and delayed puberty".you will get your answer. Please don't try to explain something you don't know. It's not at all a mature attempt:)

    • @vanessamcdonald1071
      @vanessamcdonald1071 5 років тому +1

      I have asthma

    • @anmo9865
      @anmo9865 5 років тому +35

      @Kimmy Granger do u have some sort of animosity towards Indians? And what gives you the right to judge an Indian doctor? When you go to the hospital to get a treatment, do you get the treatment based on your nationality and ethnicity? We don't look at a person's skin before treating him/her so YOU do not HAVE THE RIGHT to judge us based on our skin.
      And let me tell you one more thing, Indians make great doctors and Indian doctors have made ALOT of contributions to medicine.
      Do your research properly and get your facts straight before writing such bullshit.

    • @thebigiam6502
      @thebigiam6502 5 років тому +16

      Kimmy Granger whatttt. India has so many talented doctors. Some of the best in their fields in the world. Stupid comment. I bet you won’t be saying that if one had to save your life

  • @hannahcleo5604
    @hannahcleo5604 5 років тому +373

    Omg her wedding photos are really beautiful she looks so happy

  • @NeimyCatArtist
    @NeimyCatArtist 4 роки тому +575

    "The later you go into puberty the taller you grow"
    I had my puberty when I was 16.
    I'm 5 foot. Barely.

    • @nayanmipun6784
      @nayanmipun6784 4 роки тому +13

      Well.that is because you are still genetically a woman

    • @Liam3245
      @Liam3245 4 роки тому +37

      I'm on the opposite side of the spectrum as i had my puberty when i was 12
      I'm over 6 foot

    • @cazzabojangles
      @cazzabojangles 4 роки тому +6

      I went through mine at twelve and now I'm five ten 😅

    • @rosevampire3755
      @rosevampire3755 4 роки тому +7

      Completely Finished puberty at 13.
      5’9

    • @imwatching2960
      @imwatching2960 4 роки тому

      @@Liam3245 same here

  • @heide-raquelfuss5580
    @heide-raquelfuss5580 Рік тому +11

    What a wonderful husband and man.
    You do not find easy a man like that, who loves her, despite her condition.
    Wonderful children too and mom.

  • @Tony07UK
    @Tony07UK 5 років тому +249

    The guy she eventually met - what a wonderful guy!

  • @LunaMaheswari
    @LunaMaheswari 5 років тому +371

    *complains about blinking*
    *but still continue to watch it*
    it's a great show

  • @kiraqueenbiteszadusto1576
    @kiraqueenbiteszadusto1576 4 роки тому +136

    This could all be 20 minutes

  • @mobutter2879
    @mobutter2879 4 роки тому +82

    So glad she got what she deserved! Beautiful family✔️Loving husband ✔️Experienced Motherhood ✔️❤️❤️❤️❤️

    • @bacicinvatteneaca
      @bacicinvatteneaca 3 роки тому +7

      @Aluzky sure buddy

    • @andauril
      @andauril 3 роки тому +4

      @Aluzky *She

    • @availanila
      @availanila 3 роки тому +9

      @Aluzky you must have gotten your biology degree from a 4th grade text book and attended schooling at a flat earther's convention.

  • @ajrwilde14
    @ajrwilde14 5 років тому +1054

    The actress legit looks like a Barbie doll.

    • @MrChickenstalker
      @MrChickenstalker 5 років тому +18

      Alice Wilde deadass. Hot af

    • @cacildasoares1137
      @cacildasoares1137 5 років тому +87

      And she is 100% girly. Nothing androgenous about her!

    • @SuperLadiesman619
      @SuperLadiesman619 5 років тому +12

      FBI, open up

    • @voornaam3191
      @voornaam3191 5 років тому +17

      Wilde Alice, Barbie dolls have no vagina, so that's a rude comparison. How cynical is your humor?

    • @cacildasoares1137
      @cacildasoares1137 5 років тому +14

      @@voornaam3191 I've never met someone that literal 🤣

  • @LittleKitty22
    @LittleKitty22 5 років тому +917

    I'm 45 and have never had a period in my life. I started puberty a little but then it stopped and never resumed so I never developed properly. For the last 30 years, doctors have only ever told me "tough", "that's just normal for you", "you are just imagining it" and "you are just getting old" (this when I was 24). I have ever had any kind of treatment, the reason for this lack of development has never been investigated. All I know is that my body never produced any estrogen. Doctors aren't bothered to investigate why. I was wrongly diagnosed with "premature ovarian failure" - but they cannot have FAILED since they never worked to begin with!
    I have tried to push for proper investigations, only to get shouted at by doctors, sent away, accused of "imagining it", accused of lying, disbelieved, mocked, accused of being a male and just pretending to be female. Doctors tested my chromosomes without telling me as they refused to believe me that I am a female. Other doctors screamed at me that I should get pregnant a few times and "that will sort everything out" (erm - how can a non-developed girl get pregnant??? Apart from that what sort of a thing is this to say to an unmarried lady!).
    For some reason I also suffer from very advanced male pattern baldness (I have to wear wigs) , which would indicate excess testosterone or a thyroid problem, but doctors are not bothered and just say "this is just normal for you". Well no - it's NOT normal for a young WOMAN to have very advanced male pattern baldness!
    I am being denied access to my medical records (here in the UK they can just claim it would "harm me" to have access to it) so I am certain something is being covered up.

    • @hannankandeebee
      @hannankandeebee 5 років тому +206

      Little Kitty hey. You can have access to your medical records new guidelines have come out. I work for the nhs. I hope everything gets better xx

    • @aprilapril2
      @aprilapril2 5 років тому +129

      They can not deny your access to your records. Why are doctors shouting at you? A doctor has never shouted at me or my family.

    • @misscheesecake7282
      @misscheesecake7282 5 років тому +147

      I think you need better doctors. I live in the uk, and can request a copy of my medical records. I was diagnosed with polycystic overy syndrome. I have no periods and hair loss because of it. You need to push for a diagnosis and tests.

    • @raclarke7379
      @raclarke7379 5 років тому +1

      Lisa McClymont lol

    • @sharonsharon9540
      @sharonsharon9540 5 років тому +55

      Pay for private blood tests save up and pay will cost about a gram then find a lawyer who will take on your case for free
      Failing that before we leave the EU get on a plane and go over there get checked out an use those truly a to sue

  • @dianasamulski665
    @dianasamulski665 Рік тому +10

    I’m glad you confronted your doctor. I think more women should do the same when they are misdiagnosed or lied too. Thankyou for your story.

  • @6a6ey87
    @6a6ey87 3 роки тому +20

    Honestly never been so happy about having periods. Really opens you eyes.

  • @MattJay.
    @MattJay. 4 роки тому +440

    Coming next week: The woman who couldn’t blink
    Director: I want her blinking at least 95 times in the next shot

  • @Sophassofa
    @Sophassofa 5 років тому +1082

    Nobody:
    Everybody in the damn video:
    *•_• -_- dramatic sounds*

  • @Jennymlnd
    @Jennymlnd 3 роки тому +42

    Beautiful, looks like a warrior woman. I wonder how many women have been born like this in history and because they have not had children and/or died young there are no stories about them.

  • @camogrrl
    @camogrrl 3 роки тому +138

    Can we take a moment to appreciate how difficult it is to discuss “Jeans genes”

    • @itzibiba
      @itzibiba 2 роки тому

      😂😂😂😂

  • @raeallman-shuttleworth3032
    @raeallman-shuttleworth3032 5 років тому +1533

    Welcome to another episode of:
    WHY THE HECK IS THIS IN MY RECOMMENDED 😑

  • @amipark28
    @amipark28 5 років тому +284

    She’s a statuesque beauty. I’m happy she had her dream wedding, dream man and have a happy family today.

  • @EmmaSianHughes
    @EmmaSianHughes 3 роки тому +47

    Jeanne is absolutely stunning, particularly in the older photos shown, she looks like a supermodel.

  • @ShinigamiShionZ
    @ShinigamiShionZ 3 роки тому +134

    I cant watch this... it's just too dragged out for no reason. Also, why did they pick the girliest looking girl as a representation for this

  • @History909
    @History909 5 років тому +144

    I cried when I got my first period when I was 11 years old I didn't accept it, I kept crying till age of 15.
    Now seeing this women I feel bad.

    • @marienicole8581
      @marienicole8581 5 років тому +4

      I got my my first period at the age of 9 im still sad til today but this made me thankful and feel bad for people like her

    • @personalcheeses8073
      @personalcheeses8073 5 років тому +1

      Same but all my friends did tell me I would feel like I was going to die so I was terrified. Okay it was unpleasant but not to the extent I was told but I no longer have to worry about that🙏

    • @jenniferchen2310
      @jenniferchen2310 5 років тому

      I got my period at the age of 13. My period stopped often

    • @Wheelsandolbaby
      @Wheelsandolbaby 5 років тому +6

      why were you crying for 4 years? It's a natural phenomenon for us women, there's nothing to cry about unless it gave you excruciating and debilitating pain

    • @prachijaiswal3784
      @prachijaiswal3784 5 років тому

      Sammmeeee

  • @NadinaStryhn
    @NadinaStryhn 5 років тому +707

    The picture of Jean when she was younger with her long blond hair, a green t-shirt and no bra. Wow. She was truly stunning. To me she looks like a Valkyrie.

  • @maurieguya8297
    @maurieguya8297 4 роки тому +149

    Her story pretty much says there's someone out there for you, no matter how weird you feel/are.

    • @LittleKitty22
      @LittleKitty22 Рік тому +1

      No, she found someone because she is pretty. That doesn't mean there's someone for everybody. I never found someone, not even for a date. As soon as they find out I'm bald, they are off. Worse now that I'm disabled because doctors refuse an operation that would cure me. Now that I'm known locally as the monster of... (name of my city) due to my severe disablity, men only mock and ridicule me.

  • @jasonfrederick1258
    @jasonfrederick1258 3 роки тому +8

    There's nothing more beautiful than watching people who love each other get along.....

  • @trisann345
    @trisann345 5 років тому +1080

    Jeanne is born intersex. I don't know why it's so difficult to just say the word! swyer syndrome is a type of intersex. It's so cool to see Jeanne find love and a happy life ❤️

    • @jay6440
      @jay6440 3 роки тому +141

      I wish we spoke about intersex people more: once you know what you’re looking for it’s so much easier to get them appropriate medical care! They make up over 3% of the population but are never spoken about :(

    • @kelza83
      @kelza83 3 роки тому +37

      @@jay6440 3%? i'd love to see the stats you refer to. I'm sure there would be a lot that go unnoticed.

    • @ikodragonofthenibelungen8297
      @ikodragonofthenibelungen8297 3 роки тому +26

      Intersex, is a hermaphrodite, isn't it?

    • @fableagain
      @fableagain 3 роки тому +77

      Exactly! They kept saying "women with swyer's" but not all people who have swyers choose to live as a woman.

    • @irisperun4261
      @irisperun4261 3 роки тому +48

      And so many intersex people experience the sam "cover up" and "betrayal" she experienced when she accidentally found out

  • @syedatasneemtowhid8149
    @syedatasneemtowhid8149 5 років тому +252

    Dear Jean, you are healthy. You are intelligent and sensible. I respect you for the way you dealt with your misdiagnosis. I am chromosomally normal, yet experienced a lot trouble having children. You are perfect and unique.

  • @SilverAgatka
    @SilverAgatka 3 роки тому +50

    The standards of intersex healthcare are terrible, and what Jeanne experienced is unacceptable. It's such joy to see she found love and has a family she thought she'd never have, and at peace with her body.

  • @lightbringer6942
    @lightbringer6942 3 роки тому +141

    Whenever I wonder why those people didn't get a second or third opinion on their symptoms I remember "Ah yes, the American health care system" and that's it

    • @gothicgrandma4559
      @gothicgrandma4559 3 роки тому +6

      You should try the NHS in the UK. You go to your local GP surgery and see one of the doctors there. If you are fobbed off that's it. You can't look for another doctor because you can only register with a surgery in your catchment area. You can only get referred to a specialist by that GP. The only other option is if it is a genuine emergency you can go to A&E and you will probably just see a triage nurse not even a doctor. It can take years to be diagnosed with something that may need immediate treatment. People die simply because their GP is overworked and every appointment is just 10 minutes long. They actually complain if you come with multiple problems because it won't fit into the 10 minute slot.

    • @lottieparker2269
      @lottieparker2269 3 роки тому +4

      Actually, while this is true and a GP can deny your right to a second opinion, you can always change your GP.

  • @claracallistar
    @claracallistar 5 років тому +51

    i just watched a video about a 3 year old girl being in puberty mode at such a young age, and here i am now, watching a 15 year old girl who is not going through puberty.

  • @ginadean4206
    @ginadean4206 5 років тому +163

    Aww,I'm so happy for her that she got married and had two children

    • @CDuell
      @CDuell 4 роки тому

      How?

    • @brendaperez2116
      @brendaperez2116 4 роки тому +7

      Catherine Duell By adoption of Bi-racial children, whom made her life complete, and happy. It happens.

    • @HiiAnniie
      @HiiAnniie 4 роки тому +3

      Spoiler alert

  • @kelza83
    @kelza83 3 роки тому +33

    This woman is amazing. She really has a great attitude. I'd love to know someone like her

  • @LeeKirkman88
    @LeeKirkman88 3 роки тому +18

    Cant imagine the emotional rollercoaster she went through but when you see how it all turned out cant help but admire her strength and to seeing her so happy.

  • @Eludia
    @Eludia 5 років тому +493

    I can't see the excessive blinking that everyone seems to be obsessed with??

    • @hufflesnoot9940
      @hufflesnoot9940 5 років тому +72

      i don't know if this is sarcasm but if it's not, here are some examples: 13:00 34:10 39:05 but once you notice you can't unsee it.. you have been warned :)

    • @boldanabrasevic3020
      @boldanabrasevic3020 5 років тому +35

      The editors can't see it either

    • @jamaquinabella3378
      @jamaquinabella3378 5 років тому +29

      Me neither.. lt's because we are too busy listening to what is being said than to look for irrelevant things..

    • @violetgirl1996
      @violetgirl1996 5 років тому

      @@hufflesnoot9940 😂😂😂😂

    • @jenniferholden9397
      @jenniferholden9397 5 років тому +11

      Cos you blinked.

  • @monse0206
    @monse0206 5 років тому +723

    I love this show and i think the blinking is funny

    • @miahhia
      @miahhia 5 років тому +2

      Monserrat Guardado i think your are one of the only ones that thinks it’s funny

    • @GuardianTiger
      @GuardianTiger 5 років тому +1

      @@miahhia I don't find it annoying either if it is for you non dramatic people then just stop the video and watch something else

    • @michelleb5381
      @michelleb5381 5 років тому +3

      I find it funny too hahaha

    • @monse0206
      @monse0206 5 років тому +1

      It helps provide comedic relief

    • @michelleb5381
      @michelleb5381 5 років тому +1

      Val O'Brien I’m 25. And I don’t know how you can come up with a comment as stupid as that just because I said I like a particular part of the editing of this show

  • @lovethineownself7994
    @lovethineownself7994 4 роки тому +54

    Jeanne, you are such a beautiful woman, inside and outside. Your story really touched my. All the best.

  • @Tweety55
    @Tweety55 3 роки тому +15

    i like how Jeanne didn't let what she went through get to her, and how she continued her life normally with hope, she is so inspiring

  • @Aiden-iy5jd
    @Aiden-iy5jd 5 років тому +617

    Anyone else binge watching these types of videos.

  • @Mysterian22
    @Mysterian22 5 років тому +335

    This show makes me question what kind of doctors america have? What is the correlation between Asthma and puberty?? First thing you should do is check hormones.

    • @sexyhomeowner9345
      @sexyhomeowner9345 5 років тому +14

      The use of steroids to treat the asthma, perhaps.

    • @honigfuchs111
      @honigfuchs111 5 років тому +6

      Not only in America, also here in Germany 🤷‍♀️

    • @asteriakaterini2358
      @asteriakaterini2358 5 років тому +1

      Are you a doctor now?

    • @asteriakaterini2358
      @asteriakaterini2358 5 років тому +6

      They said that they’ve seen other kids with asthma going into puberty late that’s why they thought she might have it too

    • @reggieshmeggie4219
      @reggieshmeggie4219 5 років тому +1

      I think you're just to uneducated in the medical field so don't even try to judge

  • @weightycarlos
    @weightycarlos 3 роки тому +36

    I hope the doctors who did the surgery on her had their license revoked.

  • @AdisaKola
    @AdisaKola 3 роки тому +16

    I was crying when she said "my children makes me rich" 😢😢

  • @cuddlecakepop8084
    @cuddlecakepop8084 5 років тому +381

    I have a cold.
    *blinks dramatically*
    *zooms in on pores and THICC eyeliner*

  • @olivia-gs3hp
    @olivia-gs3hp 5 років тому +513

    this is edited like a shane dawson video

    • @pancon9947
      @pancon9947 5 років тому

      😂😂

    • @DaleDix
      @DaleDix 5 років тому +2

      That's low

    • @izzy4897
      @izzy4897 5 років тому +5

      Don’t you mean Shane edits like a documentary?

    • @robynbremner4007
      @robynbremner4007 4 роки тому

      LOOOOOOOOOOL

    • @Jay.T4NA
      @Jay.T4NA 4 роки тому

      ahahah very similer, but i still think this is more dramatic XD

  • @Rebecca_2012
    @Rebecca_2012 3 роки тому +10

    Warning for anyone with Epilepsy: There are a number scenes within this video where there is some abnormal flashing effects, they are far more frequent within the second half for the video, more common towards the end. It's not supposed to be part of the documentary, as in, it's not done on purpose, it's just a quality issue. I don't understand why the uploader of this video did not mention this in the begining of the video description, but they should have.

  • @divingdave2945
    @divingdave2945 3 роки тому +22

    lol I was thinking "Why are American Documentaries always like this?"
    scrolling down to the comments and see I'm not alone with that thought

  • @stuffandthangs9314
    @stuffandthangs9314 5 років тому +366

    I skipped forward and all i heard was "vaginal opening" and my speakers are nearly at full volume 😂😂😳😳😳😳

    • @user-zx9ko4ro5y
      @user-zx9ko4ro5y 4 роки тому +1

      Lol

    • @lokietail7969
      @lokietail7969 3 роки тому +1

      @@darrellandsondraholden9457 what

    • @LeoLeo-yi5yx
      @LeoLeo-yi5yx 3 роки тому +3

      I was was eating and not paying attention then i heard vaginal opening on full volume 😂

    • @theeloise
      @theeloise 3 роки тому +1

      😂😂😂

    • @ennisel
      @ennisel 3 роки тому +4

      Seems like you hit the spot 😏

  • @mirta000
    @mirta000 5 років тому +1065

    So many cruel comments here. Like "she looks like a guy!". Well no wonder why. Do you also point fingers at disfigured people going "she is disfigured!"?

    • @SuperBullaMan
      @SuperBullaMan 5 років тому +16

      She really is a he!!

    • @BlackTheNerevar
      @BlackTheNerevar 5 років тому +37

      What makes us male and female is all about hormones. It's not her fault though.

    • @SIenderplier
      @SIenderplier 5 років тому +7

      male in face and body through and through, fucked over by those doctors.

    • @kathy-leew3989
      @kathy-leew3989 5 років тому

      6 figures I was only 4

    • @lr3521
      @lr3521 5 років тому +21

      Piatequila I would laugh at this if it wasn’t so tragic. I’m surprised these trolls had enough IQ to log into UA-cam

  • @Bienimiii
    @Bienimiii 3 роки тому +83

    Can we talk about her beautiful hair? I mean it‘s georgous!!!!

    • @yrozord
      @yrozord 3 роки тому +4

      I've heard that very thick hair comes with the Swayers syndrome :)

    • @yrozord
      @yrozord 3 роки тому +1

      @Linet Akinyi hmm on the body, but on the head? I think it's more like individual trait, like eye colour?

    • @yrozord
      @yrozord 3 роки тому

      @Linet Akinyi I disagree ;)

  • @cvvd9801
    @cvvd9801 3 роки тому +21

    they literally had no right to lie about her condition, I’m so upset

  • @TsetsiStoyanova
    @TsetsiStoyanova 5 років тому +737

    Ovarian surgery is not a joke

    • @thabisilemoshoeshoe1913
      @thabisilemoshoeshoe1913 3 роки тому +11

      At all 😔😔

    • @marasol7169
      @marasol7169 3 роки тому +15

      That person it's really example of natural androgynous.Not much defined with sexuality its.

    • @mercedesd5067
      @mercedesd5067 3 роки тому +3

      This is a real story

    • @spaceytracey1237
      @spaceytracey1237 3 роки тому +9

      It's pretty much like a hysterectomy right?. I can't imagine a young girl having to go through that. My mum had to have one when she was 35 and it basically killed her instead of taking her cancer away. She lasted 2 years after her operation.

    • @doaaadel3756
      @doaaadel3756 3 роки тому +2

      It can end someone's dreams

  • @jaynedough405
    @jaynedough405 5 років тому +82

    It's a terrible thing for this this lady to go through. I wish her well. She found love and has a family and is a great role model. Such a great story. Both these ladies are an inspiration.

  • @sianais
    @sianais 3 роки тому +112

    If they didn't lie she would've been on estrogen earlier. I can understand this isn't something anyone, especially a kid, wants to hear but lying doesn't help.

    • @breakprismatshell6270
      @breakprismatshell6270 3 роки тому +9

      They gave her estrogen immediately after. They just lied about why.

    • @andreamacdonald5530
      @andreamacdonald5530 3 роки тому +1

      If they had not lied.....

    • @skadi6750
      @skadi6750 3 роки тому +2

      Maybe she would never even take estrogen. Maybe if she didnt grow up in society that was really pushy towards masculinity and femininity, she might just have been okay with who she was naturally. Not all intersex people feel the desire to fit into a typical bracket and pass as male or female. A lot of them are operated on against their will or without their knowledge.

  • @AFV85
    @AFV85 3 роки тому +90

    Her mother knew! I've seen alot about this and it's normally discovered at birth and the doctors normally advise the parents not to tell there kids about it!

    • @sh0sh4nn4
      @sh0sh4nn4 3 роки тому +12

      Really?! How’d you know?

    • @breakprismatshell6270
      @breakprismatshell6270 3 роки тому +13

      No that's not true actually. It is impossible to see at birth from the outside.

    • @AFV85
      @AFV85 3 роки тому +2

      @@breakprismatshell6270 it is true doctor's have been pulled up and interviewed about it and how it could effect the child's life if there told, so they said that they would always do the opp and advise the parents that they should ever tell the kid! It's all been filmed on that dispatches when they send in undercover reporter's to expose what's happening! For all I know it could have happened to me and was never ever told or it would have destroyed a life! I'll have alook for the program with it all in it if I find it I'll send you the link!

    • @breakprismatshell6270
      @breakprismatshell6270 3 роки тому +16

      @@AFV85 you can't see it from the outside. Maybe these days newborns are examined more thoroughly with better ultrasound or chromosomal analysis, but without that they are not able diagnose it at birth. Note that she was born in the 60s or early 70s.

    • @NickyEmpress123
      @NickyEmpress123 3 роки тому +1

      Technology wasn't so advance in that time

  • @kerina6594
    @kerina6594 5 років тому +159

    Ooo I can feel myself watching these until 5am when I have school at 7am

    • @n.n5641
      @n.n5641 5 років тому +2

      Congratulations... Looks like this gonna be your biggest accomplishment..

    • @isadorashegypt972
      @isadorashegypt972 3 роки тому +5

      @@n.n5641Woooow 👏🏽👏🏽👏🏽👏🏽 This UNNECESSARY comment! 🙄🚶🏽‍♀️...

    • @amandaescue8664
      @amandaescue8664 3 роки тому

      Picking a literally hyper feminine model to play her was a bad choice.
      I say this as a very tall flat chested 16 year old who does not have heath issues.

    • @kerina6594
      @kerina6594 3 роки тому +5

      @@n.n5641 I’m a 2nd year law student so the joke is on you 🥵🥴

    • @Hannah-ii5ls
      @Hannah-ii5ls 3 роки тому

      You just described my night. 💀👍

  • @didegrey5421
    @didegrey5421 5 років тому +1325

    wish they didn't use such a pretty actress, because I think it takes from the story. The real woman wasn't scoring high in the looks department and its understandable that a couple of frustrated teenagers would bully her. But with an actress soooo pretty its hard to imagine her being bullied and told she looks like a man ( although pretty girls do get bullied too, but its just my opinion)

    • @personalcheeses8073
      @personalcheeses8073 5 років тому +124

      Spot on the real Jean is striking and that hair 😱 but using a petite, feminine actress was rather poor

    • @Chan-zx1kc
      @Chan-zx1kc 5 років тому +19

      Definitely agree

    • @nicolemarie1360
      @nicolemarie1360 5 років тому +120

      she's not ugly, but she does look more masculine and so the actress doesn't suit the documentary

    • @trude8073
      @trude8073 5 років тому +21

      Yes, that wasn’t a good fit 😳

    • @personalcheeses8073
      @personalcheeses8073 5 років тому +31

      Nicole Marie No she is far from ugly and seeing her with her husband and kids she just looked like any other mother

  • @sherylbrown6943
    @sherylbrown6943 3 роки тому +5

    My daughter in law didn’t get her period until 18 . Now she’s 32 and a gorgeous mum .

  • @sadhbhdelahunt
    @sadhbhdelahunt 3 роки тому +8

    What a strong women to be so balanced mentally after such a long medical mystery. also lucky to have a together family.

  • @freudvibes10
    @freudvibes10 5 років тому +37

    Didn't expect this happy ending for the first woman!!!! So glad for her!!!!

  • @mariichan3337
    @mariichan3337 5 років тому +33

    I’m so happy for her that she got married and has a happy family. I wish her all the best in her life and future. She went through a lot. This was a very interesting documentary and the first time I’ve heard of Swyer Syndrome.

  • @caroldrayson3280
    @caroldrayson3280 3 роки тому +15

    Lovely woman, and courageous to tell the story like this - for the benefit of others and so we can be more open and educated about this type of situation.

  • @schnitzelnugget9550
    @schnitzelnugget9550 3 роки тому +16

    Someone, literally anyone says something: ...
    The Editor: oh yes, I want those *intensive blinks*

  • @lethuthandomaphalala1148
    @lethuthandomaphalala1148 5 років тому +182

    Because of chronic asthma ☻👀some doctors need to be tested for competency every now and again

  • @chxell
    @chxell 5 років тому +49

    I remember my classmate named Myra and she was a late bloomer too and she had her first period at the age of 17.. After graduating High School she suddenly got married! And that was only one month after her first period! Amazing isn’t it?

    • @nealaxr1898
      @nealaxr1898 5 років тому +11

      Archie Eguna weird

    • @vph1r819
      @vph1r819 5 років тому +1

      wait she got married at 17? or perhaps just as she turned 18?
      if 17 then isn't that illegal
      all i know is that it probably is here in the uk

    • @fatimahal-lami8890
      @fatimahal-lami8890 5 років тому

      @@vph1r819 I have seen girls getting married at 14 ...

    • @vph1r819
      @vph1r819 5 років тому +1

      @@fatimahal-lami8890 the world is crazy, there are some strange laws in some countries, and in others people just don't seem to think laws exist to begin with
      but compared to that yeah 17 isn't too bad, but still quite young :|

  • @franciscomera835
    @franciscomera835 4 місяці тому +1

    I am so glad that in spite of her medical problems she led a fulfilling life.

  • @dedomax07
    @dedomax07 3 роки тому +6

    All I can say. I'm happy for her. That she met her love of her life.

  • @muthoninjauyah3968
    @muthoninjauyah3968 5 років тому +64

    I am glad her life turned out to be beautiful.

  • @a.p.6301
    @a.p.6301 5 років тому +40

    I am so thankful that I am in good health! Sometimes we take it for granted and forget about those who have to go through all these abnormal struggles! 🙁

  • @shanabananazzz6651
    @shanabananazzz6651 4 роки тому +60

    The most valuable lesson is Dr's are not always right..

    • @gurpreetbhamra9752
      @gurpreetbhamra9752 3 роки тому +8

      *They make a LOT of mistakes, but they know how to cover it up. I have experienced it myself.*

    • @availanila
      @availanila 3 роки тому +2

      @@gurpreetbhamra9752 uhm... doctors do make mistakes but most aren't villainous creeps even the doctor here thought he was acting in her best interest.

    • @sherlyw5799
      @sherlyw5799 3 роки тому +1

      Dr are human too

    • @lunasees7580
      @lunasees7580 3 роки тому

      @@sherlyw5799 Exactly, doctors still need to learn on things.

  • @moniho6907
    @moniho6907 2 роки тому +3

    These two stories are so heartbreaking, i am glad the first lady got her happiness but was also sad for the 2nd woman and what she has been going through

  • @bluevegerot6754
    @bluevegerot6754 5 років тому +313

    The thumbnail looks like she went super saiyan 3

  • @fishranaway
    @fishranaway 4 роки тому +73

    I've legit spent 2 days watching these videos, better than Netflix

    • @arvindshastry1178
      @arvindshastry1178 3 роки тому +5

      And it's cheaper than Netflix

    • @cellyrum9430
      @cellyrum9430 2 роки тому

      @@arvindshastry1178 its free basically

    • @arvindshastry1178
      @arvindshastry1178 2 роки тому

      @@cellyrum9430 Technically it's not free because you need internet to run UA-cam and for internet you have to buy an internet plan which costs money.

    • @cellyrum9430
      @cellyrum9430 2 роки тому +2

      @@arvindshastry1178 oh yeah 😅

  • @cordelleshettleworth3831
    @cordelleshettleworth3831 3 роки тому +6

    I am so happy for Jean. I wish her long life health and happiness. Glad she found the man of her dreams.

  • @tashebasewell7203
    @tashebasewell7203 3 роки тому +25

    what a beautiful story Jean so proud of her...Her beautiful heart gave her a wonderful husband and two lovely kids I am so proud of you and your family...

  • @peachesandcream.2612
    @peachesandcream.2612 5 років тому +12

    I actually cried at the end because I was so happy for her that she found true love and happiness - a good man and two beautiful children! God Bless them all 💕

  • @peterbrown8767
    @peterbrown8767 5 років тому +146

    This is a great documentary thank you for uploading it.

  • @theeditor1149
    @theeditor1149 3 роки тому +13

    Jeanne is beautiful and has such a gorgeous, kind smile, I'm so happy that she didnt let the syndrome destroy her and that she is doing well in her life. She also didnt let society affect her because I'm sure the name calling would have affected her a lot. Doctors need to tell the truth and let the patient decide how they're going to deal with it. At least she would not have been confused and scared and wondering for so long.

  • @silence.9376
    @silence.9376 2 роки тому +11

    "and then i drank water "
    * dramatic sound effects