We Finally Have A Plan! | Lucy’s First Pup Cup & Plan For My Care

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  • Опубліковано 7 вер 2024
  • #eds #pots #endometriosis #symptommanagement #feedingtube
    We finally have a plan for my care!

КОМЕНТАРІ • 2

  • @AprilLeighchronicallyme
    @AprilLeighchronicallyme Місяць тому

    I’m only half way through the video but my gastroparesis and mast cell activation syndrome and my dysautonomia all together cause a combination of symptoms that are similar to yours and these are linked to Ed’s and endometriosis. I don’t have EDS but I did have pots in the beginning of my symptoms 5years ago. And I hand severe endometriosis from my teens until 39 when I had hysterectomy for it. Just wanted to share for insight. They did try me on amitriptyline to calm my abdominal pain because it talks to the nerve In the gut to calm it down and I was finally able to eat. It helped for a year then i was in and out of flares of gastroparesis instead of daily and stuck on fluids and yogurt and soup.

    • @itsnikkiautumn
      @itsnikkiautumn  Місяць тому

      @@AprilLeighchronicallyme it’s definitely a journey, we still haven’t put all the pieces together or figured out what suits my body best. I’m also on Amitriptyline, it helps me sleep but I haven’t had any change in abdominal symptoms. My weight is at a dangerous point, so my gynaecologists are afraid to do surgery. But soon, I’m hoping we will figure things out 😊