What an amazing lady ! And so calm and sweet ! Jessica and Brian, PwP without the tremor, could this be a topic for another time ? I don't have a tremor (yet) and a lot of the invisible symptoms and 24/7 tingling in my lower legs. I can not find very much about it. In my opinion it took so much longer to get a diagnosis than I hear from people with a tremor as one of the first symptoms. Thank you for another great episode !!
I just stumbled onto this. As real as it gets. So far, for none of you, has it been the beast of 30+ years ago. They've come so far. My wife is 4 years diagnosed, and with light meds, good eating, and some exercise, she's really still really good. She just retired at 65, and I'll probably be soon behind. My biggest fears are feeling guilty spending time on myself fishing, and holding my patience over the long haul.
This had so little to do with the care giver feelings and emotions. Trust me when you get to late stage and years of making adjustments to make your partner comfortable all of the time. There is something to talk about and hear.
Hello my name is Danny Cockrell. I’ve had PD 8 years I had DBS in 2019. I would like to have a phone number or way to get in touch with one of you guys. Thanks
Very informative from a caregivers point of view!
What an amazing lady ! And so calm and sweet !
Jessica and Brian, PwP without the tremor, could this be a topic for another time ? I don't have a tremor (yet) and a lot of the invisible symptoms and 24/7 tingling in my lower legs. I can not find very much about it. In my opinion it took so much longer to get a diagnosis than I hear from people with a tremor as one of the first symptoms. Thank you for another great episode !!
I just stumbled onto this. As real as it gets.
So far, for none of you, has it been the beast of 30+ years ago. They've come so far. My wife is 4 years diagnosed, and with light meds, good eating, and some exercise, she's really still really good. She just retired at 65, and I'll probably be soon behind.
My biggest fears are feeling guilty spending time on myself fishing, and holding my patience over the long haul.
Don't feel guilty - everyone needs to focus on themselves at some point. Especially caregivers!
It would have been nice if all caregivers showed as much interest as this amazing lady.
Very informative. Thanks for sharing ❤
Loved this!!
thank you for sharing this message ❤
Great insights!
This had so little to do with the care giver feelings and emotions. Trust me when you get to late stage and years of making adjustments to make your partner comfortable all of the time. There is something to talk about and hear.
I am so sorry, I didn’t think about that I will email you.
Hello my name is Danny Cockrell. I’ve had PD 8 years I had DBS in 2019. I would like to have a phone number or way to get in touch with one of you guys. Thanks
Sorry, but for privacy reasons we don't give out our phone numbers. But you can reach us via email at info@thesecretlifeofpd.org