My heart is deeply saddened at the loss of Bob Saget. He was such a champion for Scleroderma research. I feel indebted to you Mr Saget & whole heartedly thank you for your dedication to help us with Scleroderma live better lives. -Milly B, Pompano Beach, FL.
Scleroderma is a disease i battle daily and believe me it's been a battle. i can't even begin to explain the gratitude i have for bob saget for spreading the awareness that he spreads & all that he does do raise funds for it. Thank you very much bob!!
Thank you for keeping Scleroderma on the public's radar. Someone I love is afflicted with this disease and I know he is grateful, as am I, for your efforts.
Im so sorry to read all of the comments. My mother struggled with the disease for 11 years and passed away when I 17. Im also working to raise awareness and money to help those affected.
I am suffering (dying) of this. THank you to Bob Saget for creating and taking advantages of situations like this for the cause. Right now it seems like HSCT might offer the best hope of a cure.
Thank you for helping to bring awareness of this disease. I was diagnosed a year ago and still know very little, mine is systemic scleroderma, not much out there about it really. God bless!
Bob, I hope you read this, Jeff Conaway and myself along with Sha Na Na from Grease, were on your show 100 vs 100. My Auntie Kay died of Scleroderma. It was in the early 70’s just as she retired in her mid 60’s. Like 65 yrs. They, the Dr.s knew nothing. NOTHING!!. It started with what they said ,carpel tunnel syndrome 1st. Who knows? She was dropping things. She went very fast. A few months at best. I remember Doctors telling her not to have salt with her hospital meals.. She flipped them off. .. and shook that shaker all she wanted ...with her death sentence. That was my last memory of her. What a joke, no salt, on hospital food! A great lady she was. In those years no one knew anything about it. We could not pronounce it. Today, she has 200+ off -spring living now, in Ellensburg, Washington. Most to you Pat! Susan
thank you bob for all you do in the name of scleroderma,, i can't see a cure in my life time, but maybe one day, if we keep raising awareness and funds
Thanks for all you do, unfortunately a Cure was not find to save my husband Aug. 2016, but I am also trying to raise awareness & raise funs for research.
May God Bless You Bob!!...Can You Give Me More Info??... It's Hard Living With Scleroderma... Plus I Have G.V.H.D. .. It Would Be Nice To Know Whats Availible For Me Dealing With Something That I Know I Can Only Slow Dow Down!!
I lost my beloved Son to this insidious Scleroderma, I keep his " Scleroderma Hug Group Alive " nearly 600 member currently over 50 different Scleroderma groups doing the same ...... Spreading Scleroderma Awareness
Remembering Bob Saget with gratitude and love, always.
It's impossible to believe that he's actually gone. Not just a great talent, but a great human. RIP Bob Saget, America's Dad
My heart is deeply saddened at the loss of Bob Saget. He was such a champion for Scleroderma research. I feel indebted to you Mr Saget & whole heartedly thank you for your dedication to help us with Scleroderma live better lives. -Milly B, Pompano Beach, FL.
R.I.P
Bob Saget 1956-2022
Glad to know that Bob was fighting this disease of Scleroderma for his sister and others.
Scleroderma is a disease i battle daily and believe me it's been a battle. i can't even begin to explain the gratitude i have for bob saget for spreading the awareness that he spreads & all that he does do raise funds for it. Thank you very much bob!!
Thank you for keeping Scleroderma on the public's radar. Someone I love is afflicted with this disease and I know he is grateful, as am I, for your efforts.
Rest In Peace to both of them
Im so sorry to read all of the comments. My mother struggled with the disease for 11 years and passed away when I 17. Im also working to raise awareness and money to help those affected.
I am suffering (dying) of this. THank you to Bob Saget for creating and taking advantages of situations like this for the cause. Right now it seems like HSCT might offer the best hope of a cure.
Good man. What a loss. I’m going to donate and go to one event in sf if I can.
thank you for donating you're a good person
Thank you for helping to bring awareness of this disease. I was diagnosed a year ago and still know very little, mine is systemic scleroderma, not much out there about it really. God bless!
Bob, I hope you read this, Jeff Conaway and myself along with Sha Na Na from Grease, were on your show 100 vs 100. My Auntie Kay died of Scleroderma. It was in the early 70’s just as she retired in her mid 60’s. Like 65 yrs. They, the Dr.s knew nothing. NOTHING!!. It started with what they said ,carpel tunnel syndrome 1st. Who knows? She was dropping things. She went very fast. A few months at best. I remember Doctors telling her not to have salt with her hospital meals.. She flipped them off. .. and shook that shaker all she wanted ...with her death sentence. That was my last memory of her. What a joke, no salt, on hospital food!
A great lady she was. In those years no one knew anything about it. We could not pronounce it. Today, she has 200+ off -spring living now, in Ellensburg, Washington. Most to you Pat! Susan
I was diagnosed when I was 6. This needs to be researched asap
thank you bob for all you do in the name of scleroderma,, i can't see a cure in my life time, but maybe one day, if we keep raising awareness and funds
Thanks for all you do, unfortunately a Cure was not find to save my husband Aug. 2016, but I am also trying to raise awareness & raise funs for research.
Cure was not found
thank u Bob...thank u
I have this. I watched for the love of hope and then a few years later I came down with it. have had almost 20yrs
How u last that long, ive only had it for 2 years and my doctor told me i wont be around that long
Cornelius King
I hope you've continued to live an abundant life..
I have outer Scleroderma in 5 places and consider myself lucky that it's just on my skin away from my joints.
May God Bless You Bob!!...Can You Give Me More Info??... It's Hard Living With Scleroderma... Plus I Have G.V.H.D. .. It Would Be Nice To Know Whats Availible For Me Dealing With Something That I Know I Can Only Slow Dow Down!!
I'm a 24 year old male with Scleroderma. It affects men too..
A nasty toxic disease. I have never been so ill in all my life.
I lost my beloved Son to this insidious Scleroderma, I keep his " Scleroderma Hug Group Alive " nearly 600 member currently over 50 different Scleroderma groups doing the same ...... Spreading Scleroderma Awareness
💀