My Battle Against My Sickness | Raynaud's Disease
Вставка
- Опубліковано 15 тра 2024
- I have severe symptoms at the level of only about one in a million people. I have been fighting the disease for about 8 years now but I will never give up. I will try every possible treatment this year and I will certainly be cured. Thank you so much for your support everyone.
●My old video about my sickness:
• Something I Should Hav...
▼Please support me through Ko-fi (a donation platform like Patreon)▼
ko-fi.com/letsaskshogo
▼Let's ask Shogo Merchandise Shop▼
Where you can buy t-shirts, hoodies, mugs, stickers, etc. of cute Ukiyoe animal characters and logos of Let’s ask Shogo:
suzuri.jp/lets_ask_shogo
▼The BEST online katana shop for martial arts (Iaido, Kendo, etc.): Tozando▼
tozandoshop.com/letsaskshogo
Everything I use for my katana training is bought at this shop! I still use the first training katana I bought in 2016, and it is still in good shape!
▼The recommended online katana shop for decorations and cosplay: Mini Katana▼
minikatana.com/SHOGO
*Get 15% OFF off all their products by purchasing through my affiliate link
▼Where you can meet me in Kyoto, Japan | Yushinkan Samurai Experience with Modern-day Musashi▼
A 90-minute experience in Japan where beginners can learn how to wield, draw, sheath, and swing the katana from the modern-day Musashi! I, Shogo, will be your interpreter to lead you into the wonderful world of samurai martial arts!
Make your reservation here: www.airbnb.com/experiences/45...
A video of me visiting this experience: • Chopping Up Mats with ...
▼Who is Shogo? What is this channel about?▼
• Shogo’s Self Introduct...
▼Related videos on this channel▼
-We Decided to Cut the Balloon with a Katana | Is the Third Baby a Boy or a Girl?
• We Decided to Cut the ...
-Something I Should Have Told You A Long Time Ago
• Something I Should Hav...
-I Never Thought I'd Cry
• I Never Thought I'd Cry
▼MY DREAM▼
• The "TRUE REASON" why ...
“To make every Japan lovers’ dream come true, by making Japan a more secure, comfortable, and safer place for everyone to visit, study, and live in”
I will be using the profit I gain from this channel at restaurants, hotels, and cultural facilities in Kyoto to introduce them. The more you watch the videos on this channel, Kyoto and Japan will become a more exciting place, and you can support your own and others’ dreams in the future even more.
▼Join our Membership▼
/ @letsaskshogo
The ticket to the front row seats to Shogo's rapid adventure to make his dream come true! Through the videos, lives, and zoom chats your ideas and opinions will be adopted for Shogo to make the right decisions for his challenges!
●Membership benefits
-Limited behind-the-scene videos
-Weekly Zoom call or live stream
-Priority reply to comments
▼Sub-channel: “Shogo’s Podcast”▼
/ @shogospodcast
▼Instagram▼
/ lets_ask_shogo
*Please ask me questions through the DM here!（⚠️I do not use e-mail）
♪Music♪
おとわび
otowabi.com/category/material...
トーマス大森音楽工房
/ @fm_thomasoomori
ぽるぽるMusic
/ @music-qx3gy
しゃろう Sharou
/ sharou
MOMIZism MUSiC
music.storyinvention.com/
♪Sound effects♪
効果音ラボ
soundeffect-lab.info/
♪Pictures♪
かわいいフリー素材屋 いらすとや
www.irasutoya.com/
#raynaudsdisease #raynaud #raynauds #sickness - Розваги
I'm a medical student. I'm so sorry your doctors have failed you like that! You don't just have Raynaud's syndrome but straight up Raynaud's Necrosis, and any form of Necrosis needs to be taken extremely seriously!
Here is what insight I have as a medical student:
Niacin is also vitamin B3, i don't see why you shouldn't be able to get it in Japan.
Rather than using the word 'Cure' i recommend using the word 'treatment'. Cure implies that it will fix you completely, so it is recommended that it is used very carefully in medical context.
Since modern medicine rarely works that way, it is most often associated with pseudomedicine and scams, I'm afraid.
The benefits of going to the onsen can also be gained by taking a very hot bath at home. Also take great liberty with hand warmers.
Oxygen room helps by providing oxygen to deoxygenated tissues in your hands which were otherwise not getting any due to the ischaemia caused by Reynolds.
Ideally you should be prescribed a vasodilator
Feels as if a vasodialator should be the first "go to" for the doctors, wonders why this have not happend yet (or has it)?
@@daarco2 we didn't know his entire medical history, there might be a condition that didn't allow for vasodilator, i.e. hypotension.
While I have no experience with medicine, I have read that chicken breast contains a lot of niacin/vitamin b3, twice as much as chicken thigh I believe. Salmon and tuna also have a lot of it, so eating more of those foods could be helpful.
Also if he has snoring problems (by tissue softening) he may buy pressured breather to gain better amounts of oxygen at nights. It also relief heart a little bit and increase pumping power.
@@carlfromaccounting1112 Please don't respond unless you have actual medical experience. This isn't Facebook. 🤦♀️
The worst part of having any kind of disease is not getting proper care and having to struggle to find the right doctor.
amen to this
Doctors aren't magicians and don't always know that much more than average people, and doesn't care as much about you as you would hope. You should always make your own decisions, try to be informed of course and listen to the doctor, but ultimately it's your life and your health that are at stake.
@@TheJadeFist Proper medical care is a human right. Doctors are professionals and if they don't know what to do to help you, they should recommend someone who can. And of course they know more than average people, I don't understand why anyone would say otherwise. It's not like anyone can practice medicine.
@@malenalucero6473 All I'm saying is don't place blind faith in some one who may not have your best interest in mind. You have to make your own choices sometimes because you'll be the one to suffer the consequences.
@@TheJadeFist Even if they don't care, it is not only their job, but their DUTY from a moral, social, economical and legal perspective. That some fail to care when they could and should, is not excusable or acceptable by any mean. No argument. It's something that needs to change regardless of what you have to say about the present. There's a difference between "Doctors aren't perfect", and "doctors are incompetent", and the ratio is not balanced in a way that is excusable. When i see 7 veteran cardiologists seing a patient back to back over the span of a couple months, all giving WILDLY different causes, exam results, diagnoses, dangerous treatments & surgeries, and prognosis, quite a few of each polar opposites and drastically counterindicating the other, there is an issue. Not to mention they are happy to get a couple hundred bucks off of you each time.
I'm not native to Japan, but I've lived here long enough to know something about the medical system. If you need that better medicine, here's my recommendation: don't go to the big hospitals - find a small, private clinic (like one of those places with just one, maybe two doctors) with a doctor who doesn't mind prescribing it. A lot of times, you can find one of these guys who has studied or even practiced in the U.S. and they're more open to giving you the medicine you need. I went to two big hospitals not far from you myself for my own thing and they did practically nothing for me. You know who ended up giving me the medicine that put me into remission? My freaking dentist. One old man who had seen the condition before and knew what was needed. It's all about those connections and the big hospitals just have too many people worried about losing their job by prescribing more than the bare minimum.
I had luck I Landed with a Young Doctor, Female that was more understading of my situation and gave me better medicines and even took my input into account, but yeah as you said Old Doctors arent too cooperative.
Thank you so much I have a friend who has raynauds and this really helped
Are you taking 'hormone replacement' drugs?
Hey Atomic, I'm interested in how a dentist could have possibly put a condition like this into remission?? And other hospitals are also incompetent still, have the means to help you, but not the knowledge or the will even .. some staff are clueless still
Like Takemi from Persona 5??
Shogo getting shafted by not getting the right medicine is genuinely heartbreaking.
Yep. As heartbreaking as the fact that it's a worldwide common occurence. I'm sorry some doctors get overworked, but they need to do better, as do the patients, governments, managers, administrative workers, medical schools, and other people/places responsible for their budget, training, staffing, "capital goods" and efficient workflow. They are doctors, not stand up comedians, it's people's livelihood, happiness and ability to function that are at stake. Dead people and sick people don't keep a country prosperous, and eugenics don't work.
@@Dice-Z I always tell doctors/nurses/admin people I appreciate them and thank you.
I hope it helps them know their hard work is part of a bigger picture, and is appreciated.
I have been living with Raynauds for 50 years now. I’m so lucky it is a mild case so I have never lost any skin. The number one rule is keep your torso warm. Number two is control moisture with wicking socks (hiking socks) and full fleece slippers ( I get mine from New Zealand) you might consider silk long underwear under your traditional kimono. Best of luck
Excellent tips, i copied it so he can see it easier. Hopefully he sees it as this knowledge served you well.
@@MaDmanex100 Happy to see it reached him, he is my favorite youtuber thats off the path from gaming. Literally the only other thing I get on here for.
This kind of necrosis (tissue death) is REALLY rare in primary raynauds - that is raynauds without any other associated conditions. This could be a BIG sign that you have an underlying autoimmune condition that needs treating - so your fingers can benefit from that treatment. I hope you have had as many tests as possible for these autoimmune diseases so you can get to the bottom of why the raynauds is so bad. If the hospitals have let you down (I understand medicine in Japan is not as forceful in pursuing diagnoses) then if there are private clinics that are faster and more invested in people's health, use them. I have an autoimmune condition myself so I understand how hard it can be to get them diagnosed and treated, but you really need to explore this avenue if you haven't already.
A sneaky one is caused by wheat, and its presentation can even be a red flag before other autoimmune diseases show up in tests. Besides celiac, some people have an autoimmune reaction the Amylase-Tripsin Inhibitors, found in the same grains. But it does not show up on tests. It's often brushed off as "gluten intolerance" if you bring it up to people, so it's very difficult to get it taken seriously or get others to consider they may have it.
Thing's a f***ng b***ch to deal with, but it isn't deadly. Can cause permanent damage to organs and joints if you don't cut out wheat completely or do it in time, but for the most part it will heal, and won't put your life at risk in the way celiac does. But it absolutely can cause his symptoms, I started having it in my toes. I always have Raynaud's in my feet and hands, because of a different autoimmune condition, but it was starting to actually completely cut off my toes at one point. I stopped being able to feel my right big toe.
@@ghostratsarah I also had raynaud's for years, that was caused by gluten. It disappeared unexpectedly when on a strict GF diet. Mine was not severe like Shogo's and was only an issue in chilly weather.
This comment should be pinned!
Definitely. It should not be underestimated how even the seemingly small things can cause negative autoimmune responses that can cause much more severe issues. In my experience starting at the very basics of basics, like with diet, saves so many people. Very strict elimination diet with slow reincorporation of other foods to see if those exasperate any symptoms, and doing everything else to minimize inflammation. Even supposedly "healthy" things, that most people can tolerate, can often cause inflammation in certain people which can lead to all sorts of diseases.
Those looks like arterial wounds. My Raynaud's is mild (though I have several other autoimmune diseases). Raynaud's is common in Canada. I wish I could have you assessed here. I really feel our specialists could help you. Medication is necessary when you are chronically ill. We have to manage the side effects. If you are not comfortable with medication, the best thing you can do is follow an anti-inflammatory diet. It's up to you though. I'm very happy the
Hyperbaric Oxygen Therapy is working for you. It's a fantastic wound care therapy.
Thank you for bringing awareness to this autoimmune condition. Hoping your pain stays manageable and you find a specialist who can help. Chronic pain is awful. I've been dealing with it for 30+ years and it's one of the reasons I had to quit nursing.
OH wow! I didn't know it was common here too!
Question: Is yours affected more by altitude or humidity? Do you know what parts of the country are more affected by it?
100% i got it in remission no flare ups for 2 years with low inflamation diet also helped with my eczema and atopic dermatitis.but i have to be really strict otherwise i relapse the moment i eat anything inflammatory.
Another Canadian with Reynaud's here. I discovered by accident that magnesium citrate works wonders for me. My fingers and toes are pink and warm to the touch now, unless I'm exposed to real cold, like outdoors in the Autumn. One capsule a day does the job, and no side effects.
1) no such thing as "autoimmune" diseases. It's gobbledygook for vaxx injury and=or an extremely toxic diet (ex. Lupus).
2) No, the "specialists" will throw toxic "medication" at you, they will never even TRY to find the cause, nor the cure
3) there are plenty of people who, just with the carnivore diet alone, got rid of this very same thing. But in much more severe cases, there are protocols in addition to that that can help. The body can heal most anything :-)
@@zzBaBzz Assuming you aren't a bot but an unwell individual I will reply. A lot of individuals who speak like you are often those who have anxiety, schizoaffective personality disorder or schizophrenia and refuse to take their medication. Please take your medication to treat your paranoia, fear and delusional conspiracy theorist behaviours. Take you medication before you harm yourself or others.
The oxygen room (hyperbaric oxygen) is used by medical professionals for non-healing wounds and in my experience works MIRACLES. Takes a lots of visits though
My mom had this before she passed away. She spent years and traveled all over the world seeking treatment. She never really found relief. Hopefully you can go get some help. keep you spirit high.
I had never heard of this before. As someone that works in IT for a living and paints for a hobby, not being able to use my fingers is a truly a horrifying thought... I'm so sorry you're going through this. All the luck to you, Shogo. I hope you recover.
Shogo, I lost a fingertip to Reynaud's, which is what led to my diagnosis. I've found Norphedipine/amlodipine to be a GREAT help. Fingertip damage WILL grow back over time, but I haven't had a knuckle sore or anything that won't heal in years. The only down side is that in the summer, you might have swollen feet. I only take meds during the winter because of this. My Reynauds is actually caused by an autoimmune disorder, and I have lung damage, so I've been told I may have to do the pressure chamber treatments in the future.
Without a medicine to resolve it, I really suggest taking a VERY hot bath every night, and making sure you're COMPLETELY warm when you sleep, which will help the damage from the cold day to heal at night. As a few other people mentioned, raising your core temperature when you get that cold/stiff zombie feeling in your fingers (and they turn white or purple) will really help.
That said, I know you want to leave Japan in the future, so maybe aim for somewhere where it doesn't get very cold. That will be the biggest help if you can't get a medication to control the symptoms while you're in Japan.
Amlodopine in low dose has helped me as well. It has been a game changer. I can even do some outdoor sports in winter without extreme pain.
Yeah we were always taught calcium channel blockers like nifedipine I believe
Raynaud’s Syndrome IS an actual autoimmune disorder, not caused by one. Autoimmune disorders are rarely found alone, there are usually several and the causes are still up for debate. Some insist that there is a genetic component that gets triggered, while others say that they can be caused by years of stress, with no familial history of these disorders. I’m proof of the latter.
I'm not at all familiar with the health service in Japan, but in Canada it's common for the elderly to require additional oxygen due to some common chronic illnesses, and we can get portable oxygen tanks for travel out of the house, and an oxygen concentrator for at home. If these are available in Japan for a reasonable price, they may be cheaper than the oxygen room since they don't require a special room, but you will probably want to discuss it with your doctor in case there are negative effects.
As someone with raynauds, I wish you the best of luck finding a way to manage it. I've had it undiagnosed until recently for years. It's an unpleasant, to put it very mildly, condition, and I hope eventually we can have more effective treatment for it. And it's nice you're sharing your situation as I know so few people open to even mentioning the condition. Especially as I'm trying to figure out how I'm going to live with it for a few decades as I'm only in my 20s.
We Vietnamese university UA-cam team shall continue to pray for Shogo's health & family 🙏🙏 Thank you for sharing Japanese culture always 🌹
Of course! We hope he gets super well! 🥰
For a sec I thought u said we will pray for shogo's death💀💀
@@BotanRice let's continue to pray hard for Shogo 🙏🙏
@@unknownentity6275 Shogo is not our enemies, why would we do that? 🤔🤔
Thank you for sharing, Shogo. As a fellow tea ceremony student it made me realize I have been taking my hands for granted. I will host my guests with your spirit in mind. You are a strong samurai Shogo. I will pray for your recovery 🍵🙏🏻
I have Reynauds syndrome in conjunction with SLE. I had NO idea it could get like this though. I’m so sorry you’re going through that and I wish you can find a treatment that works for you! Best of luck
I am sorry the medicine they gave you caused so many problems, but I am glad you have attempted other things. My mother suffers from psoriatic arthritis which has caused deformation in her fingers and actual bone loss. I have seen her struggling to use her hands and do the things she wishes to do. I pray that things get better and you find further relief. I am rooting for you.
Doing Autophagy or Fasting for 3 to be a bit more empirical since Autophagy is the process the body undergoes when it does not has calorie intake for certain periods of time,anyea it can help in Arthritis since it is a Immune System Disease..
check for hidden food allergies.
Hope your mother and shogi do well in their health.
@@charaznable2859 Shogo, Not Shogi. he is no Game XD. I'm Baffled that the the Red Comet Made such Mistake...
@@bernhardvonbarret1729 this new autotranslate is not red thus meaning its 3x slower
Niacin is just another name for vitamin B3, which you should be able to get in Japan.
Only thing I fear to loose more than fingers are eyes, I wish you well and to recover as fast as possible
I've heard of hyperbaric chambers but only in relation to treatment for decompression illness. After watching your video (yes, it's very informative) I looked it up and it's an excellent treatment for wounds or gangrene. I'm so happy you found ways to feel better and improve your quality of life. Bless you, Shogo.
XD, I read Hyperbolic Chamber and Imagine Shogo Training to beat Someone XD. Kinda like Goku...
In the 90s they used it for a lot of illnesses. My mother had treatments for her Multiple Sclerosis and still talks about how it was one of the most helpful therapies, but for some reason it seems like the excitement behind hyperbaric therapy died off in the early 2000s? My mom was unable to find a new facility or any Dr that would prescribe it.
@@HannaBenanaIn my country (Italy) they've always been very underrated. There are only 65 of them all over the country and some are available only in summer, for divers. I don't know why, though...
Michael Jackson used to have an oxygen chamber.
I would like Shogo to go to Sao Paulo, Brazil, to analyze the difference between the Japanese Culture there and main land Japan. it is said that São Paulo has the largest Japanese community outside Japan. Also the weather is warmer there I think it would help him to recover
on that note san fransisco has a huge japanese population as well as hawaii and are both some warm places
Dont send him to brazil
He’s not going fo brazil 😭
@@tikimillie if he goes to brazil hes getting berraded 💀💀(im half brazilian)
@@accie. Did you just call San Francisco a "warm place"?
"The coldest winter I ever spent was a summer in San Francisco." -- Mark Twain
@@HansLemurson ... Do you have any idea how long it's been since Mark Twain said that and how much the climate has changed. Yes, it's absolutely hot there. San Francisco is cooler than a lot of California, but it's still warm.
The Mayo Clinic is the best of the best. If you can go to the website and request an appointment. You might have to request a zoom appointment. If you can’t travel don’t give up talk to the hospital liaison for help with international patients.
Keep fighting the illness! As a martial artist for almost 50 years, my diagnosis with MS 24 years ago was a blow. I was begin to train in Iado and was doing well with the kata that begin in seiza. Since then, my legs have progressively gotten worse, as is the nature of the disease. Therefore, getting in and out of seize is not happening! I still train daily at my dojo, but my movements are limited. But, it is better than letting the condition own me!
The way you handle yourself despite your condition is really inspiring and really respectable
Raynaud's Disease is a bothering sickness. I once had a staff who always have band aids on her fingers and I asked her why. She said her fingers are always have wounds, without her doing anything. Found out it was Raynaud's disease. I have no news about her now. I hope she gets better and you as well.
I'd never heard of this condition until now. I really hope you find the right doctor who listens and prescribes something that actually helps you. Prayer and best wishes for you!
Niacin, a type of Vitamin B commonly found in peanuts naturally, helps with blood flow A LOT...it's actually recommended for treating erectile dysfunction as well because of its effectiveness. Blackberries and cayenne peppers also help in a similar way. I have heart issues so I have cayenne pepper on almost everything I eat now. The "Oxygen Room" you're using is ALSO a VERY effective treatment for MANY things. It's called a "hyperbaric chamber" and many celebrities and wealthy people own personal units and spend a lot of time in them because they are KNOWN to help with MANY issues and sicknesses and are rumored to even prolong life and youth.
Niacin really helped me with my cholesterol levels.
@@davidsonwaas5745 thanks
Useful information--thank you!
When my mom was sick in the hospital (diabetes) they had her go to the oxygen room to recover after a surgery. And the oxygen room did wonders for her. It's like she was healing much much faster and was able to recover and come home sooner. That was over 10 years ago. I believe this will be a key component for your recovery.
You're so strong, Shogo.
I feel so terrible for you Shogo. I can only imagine how this effects your life everyday, as well as Harumi and children. I hope you will be able to find help for your condition and get better. Take care
Much love and respect for being transparent about something you weren’t sure how people were going to react.
You deserve proper treatment and attention and I’m sorry it has been difficult.
L-arginine 4000mg daily. It's a vasodilator and totally safe. I take it working out.
It's just an amino acid and found in different foods.
I have a very mild case of reynauds, i wasn't even aware it could get this bad. i hope youre able to find the treatment you need and can get back to your way of living
Thanks so much for sharing! If you ever need to take a break from video making, please let us know how we can support your channel in the meantime. We're gonna stay just as determined as you!
I'm happy you're sharing an illness that is impacted by temperature. I am very sensitive to temperatures as well (so called cold-allergy and skin rashes on my neck from wearing too hot clothes on this particular spot, aka turtle neck outfits and scarfs). Your story helps me as well, especially on my journey of finding the cause to my heat rashes... Nice to know temperature does not only influence me 😅
I am in no way a doctor, but my girlfriend has the same issue, a short walk on too cold a day would give her a painful rash. A friend of hers having the same issue suggested taking over the counter allergy medicine daily, she takes claritin daily now ( since it's non-drowsy ) and hasn't had the problem for a long time. We even got to enjoy some walks in the snow.
Shogo, love and prayers, mate 🙏 Hoping you find relief and treatment that works.
Don’t give up! I have severe eczema so I completely understand the dryness situation. Great to see you have a 3 step plan for new methods! Keep moving foreword!
I have pretty bad eczema too. How do you treat it?
i have eczama too, what do you do to treat it ?
Hey everyone, I have eczema as well and I’ve found a really amazing cream that helps a lot, it’s called A-derma Exomega Control. No corticosteroids or fragrance and it helps with the itching and keeps the skin moisturised. You should also make sure your diet or cosmetics aren’t making the eczema worse.
Living with chronic illness really is a full-time job. Whether you "win" or "lose" against your sickness, you're still a valuable person Shogo! We support you!
I too have reynauds syndrome that has been passed down to me. Thankfully I live in Florida where the temperature never drops below 32 degrees and is regularly 80 degrees. I hope you get better soon!!!
A friend posted a link the other day on FB about this, and I realized it actually had a name!!! Thankfully mine isn't that bad, but it's still annoying. Also nice to know it's a legitimate medical condition and I'm not just a wimp like I was called in High School. I hope things get better!
If niacin is working for you, definitely try to eat more things with folic acid/folate in them, like green leafy vegetables, eggs, and foods that have been fortified with it. The folic acid/folate will help you to absorb more of the niacin. Also, a friend of mine has this disease and he found that reducing the amount of caffeine he took (so, reducing how much tea, coffee and chocolate, etc. that he consumes) helped him a lot.
I’ve commented on your Raynauds on other videos. While I don’t have it yet (and hope not too) I have lupus. One in three people with lupus have Raynauds. Some are diagnosed with Raynauds *before* they are diagnosed with Raynauds.
Also I was undiagnosed with lupus for a several years. My advice, inasmuch as doctors, is to leave them as soon as you feel they are inadequate. Go find new ones. Don’t even think twice about it.
small thing, but in english, a cure is something that can be done to permanently remove a condition. the word you are looking for is treatment, which is something that can be done repeatedly to alleviate a condition (can be medicine or an exercise)
Maybe heading to somewhere warm during winter (since you did mention you want to move overseas) would be a workaround too!
Sorry to hear about that Shogo. I hope your health gets much better!
Thank you for the update. I am glad you found some things that seem to be working for you. Please make sure, you keep your doctors informed of anything you take. Niacin while usually harmless can cause liver damage. And you never know how ingredients might interact with each other. 🙇🏻♀
I take niacin is there a way to avoid liver damage?
@@caileighgouthro1365 As far as I know, drink plenty of water and allow time between doses to let your kidneys and liver get it out of your system.
I have Reynaud's syndrome too! I think that's why this video was recommended to me. It effects my toes, which also have had those spots of rotting tissue like your hands. I have been taking amlodipine, and thankfully it's worked well for me the past few years. It does make me dizzy, so I have to take it before bed, and be sure to stand up slowly if I need to be up during the night. I also have to manage the cold by wearing extra layers during the winter. I hope you're able to find relief through the cures you're trying!
You have the right attitude, so you will find the answers you need to get better.
All my best wishes for a healthy 2023 Shogo San!
Keep fighting shogo
My the bodhisattvas bless you and hopefully u get better ☺️
Stay strong Shogo and beat that disease
I have Raynauds on my fingers, which caused me to loose the tip of one of my fingers. Very painful and horrible. I really hope that you get some relief and comfort soon.
I would be interested on a video detailing your struggles with the Japanese health system or just on the system in general. It sounds like it's somewhat simular to our system in the US but also very different.
Dear Shogo keep fighting! Hope your health keeps improving with these new treatments ❤❤❤❤
I have a vascular condition in my right leg as a result of a bad accident. It is not easy, but I try to find ways to work around it. My heart goes out to you. Sending you much ALOHA.
I have a very mild case of Raynaud's, usually only causing mild discomfort. The worst I ever had it took me off my feet for several days, as my feet were in incredible pain. So I can't even begin to imagine what it's like having a more extreme case like yours. wish you the best!
I wish you the best of luck! I was mortified to hear about the medicine making things worse for you, but very happy to hear that you found something that helps. Very surprised to hear that the doctors seem to not be interested in helping you, I wonder what that's about.
That's interesting you are taking a holistic approach to improve your condition. Wishing you the best in maintaining your health
As a sufferer of an autoimmune disease, I sympathize with you. “It’s all in your head.” Come back when you’re dying.” I rejoiced when I found a doctor who takes me seriously.
I myself was diagnosed with Raynaud's about three years ago, and though mine is more mild compared to yours, it's unbelievably uncomfortable and even painful. Even touching ice can trigger an episode. I want to study abroad in Japan, but one of my biggest concerns was the cold weather. I truly hope you can find the treatment you need, and I feel your pain. Much luck to you. 頑張ってね！！
Speedy recovery 🙏
I hope you these treatments work out for you. If they don’t there is always room here is Arizona USA! It never gets cold here!
I’m so sorry that you have to deal with Raynaud Syndrome. Prayers of Healing and Restoration to full health.
Shogo, thank you so much for doing this, I appreciate you being so open and honest about your disease and trials and tribulations. I feel sometimes people are either too embarrassed or private in their daily life-struggles to share them with others, being open about things I think really does help as it allows people to support you and other to appreciate what they are taking for granted in life.
P. S. You probably already know this but just as a reminder in English the verb we usually use for medicine is "to take" I know in Japanese people usually use the same verb as "to drink" but in English it's different. e.g. Ever since I've been taking this medicine, or I have been taking this medicine for 3 weeks now
My mom has suffered from this since I was a kid and I've started suffering it to in recent years. It really does suck. The way it limits your ability to use your hands can just make you feel so helpless and like you can't take care of yourself sometimes. Sometimes I need help in the kitchen because some of the ingredients that need prepped are to cold for me to handle without pain. I hope the niacin continues to help and it reminded me i need to pick some up for this year. It's starting to get cold were I live and we just had a cold front. Best whishes on continuing to find ways to manage and improve your condition.
Best of luck with your struggle Shogo!!!
As for Niacin flushing, you do best to take essential fatty acids with it, because if you don't, you will in time get a tolerance to Niacin, and have to increase the dose to get the flush. If you take time-released Niacin, depending on the dose, you may get little flushes at intervals throught the day. I don't know whether you want this or not. As a bonus, Niacin will make sure you keep your sense of humor. I take it for that if nothing else.
As a fellow sufferer, you have my explict condolences. I seen you are thinking of moving. They say moving to somewhere that doesn't experience cold winter months is the best thing we can do. For me that would be somewhere like Florida/Texas. I don't know much about Japan's weather patterns, but I'd suggest moving as close the equator as possible (which is an option I'm sure you've already weighed). I hope your condition gets better, and I hope we can both one day be rid of this disease. 🤞
I would recommend California and Nevada too. Politics in the US is changing. It may not be safe for landed immigrants in Texas or Florida.
I don't have this condition, but I do get cold triggered hives. I'm from Texas originally, and I never even knew I had this condition because it flared up so rarely that I never even made the connection until I moved to Kansas, where the winters are colder for school and had to walk to classes. When I go home for winter break, it goes away, so for my issue a warmer climate does help, though I'm hesitant to make any statements about other conditions.
@@DembaiVT as a Floridian I can assure you that he would be be perfectly safe. Frankly people are moving to FL/TX more than ever to seek out a better standard of living.
CA is a beautiful state but to say their local government is troubled is an understatement.
Australia (but north of victoria) has a very mild winter)
@@ryand.3858 Depends on where you live really, some places in Florida are dangerous and Texas does have a higher homicide rate, but overall as long as you do your research all those states are fine
All the best! Keep up the fight!
Big fan, Keep on fighting !!!!! Cheering for ya!
i love watching your videos and shorts for the information you give, and it absolutely breaks my heart to hear you're dealing with this. I hope your battle with this disease gets better.
Hope things get better for you brother. Thanks for sharing your story.
Wishing you the best. Stay strong!
Oh man! I’m so sorry to hear this! I hope you get better!
Wishing you the best!💜
If you are thinking of moving somewhere warmer to help with your condition I definitely recommend the Philippines! It’s near enough to visit home when you want and the Philippines would definitely be into learning more about Japanese culture.
I know a person who lived there for 3 years and was treated very poorly because she was white but that was also 30 years ago.
As a filipino, no please dont recommend Shogo here. Not that we have problems with foreigners, but the environment and medical facilities here may not help Shogo at all.
Wiah you all the best Shogo!
PinoyLand doesn’t have the best medical care.
@@orionfernandes4587as painful and shameful as it is, what you said is true.
@@Pokemongod934 It would have better medical care if it were still under Spanish rule.
May you have a speedy recovery, Shogo-san!
Hang in there and best of luck with your treatment.
I'm so sorry man. I very much enjoy your videos. I hope you find the help you need and get better soon
Wish you all the best Shogo!
Praying for your health my friend
Hope you get well\better soon. Thanks for sharing and the update. Thanks Shogo
Really wish you the best my guy. I hope you get the treatment you need and get well soon.
I’m sorry that you’re going thru this. I hope you can get better.
Im praying for you man your gonna get better🙏🏿❤
Praying for your health Shogo, hope you can get well! You are an amazing teacher, really enjoy learning about your culture.
❤ best wishes for a speedy complete wellness 🙏
Hi, Shogo! About the EPA/DHA, there's some Omega 3 supplements you can find more than you're actually taking. I would recommend you taking some D3+K2+magnesium malate, you can buy them separately but you have to take them together. I do have an autoimmune disease and this helps me to maintain the symptoms under control. Be safe 😊
Best of luck with your treatments, I truly hope there's significant improvement for you as soon as possible. Thank you Shogo for everything you do!
Lots of respect for you for sharing this, I hope you will get better. Best wishes
im so sorry to hear, i hope you’re okay, stay strong!
We feel for you, do stay strong and recover well in years to come.
Hope you feel better soon Shogo!
Thank you for showing us and explaining, Shogo. I learned a lot, and an hoping for successful treatment for you in the future.
Best wishes my friend. Raising awareness is really important. I hope your fingers get better and you get the help you need.
Your will and spirit are so strong!! Keep it up! I’m hoping and praying you find cures working 🙏🏻
Best of luck with your treatments Shogo. I hope something will work for you. Greetings from Sweden.
You are such a positive vibe 💞
Thank you for your videos and information. Your bravery in the face of your challenges is inspiring.
I wish you all the positive vibes to cope with this crap disease. Thank you for shining a light on this,