Living with Turners Syndrome

Поділитися
Вставка
  • Опубліковано 5 січ 2025

КОМЕНТАРІ • 60

  • @hannahsomes389
    @hannahsomes389 9 місяців тому +6

    Thanks for sharing your story, Charlotte! I'm 28 and have mosaic Turners. I'm American, but living and teaching English in France, so I'm very independent and loved what you said about not letting anything stop you from living your life.

  • @anacarol1997ach
    @anacarol1997ach 11 місяців тому +6

    Hey Charlotte! I am 26 and I was also diagnosed with Mosaic Turner Syndrome when I was 9 years old. Wish you all the best :)

  • @gingerscholl3248
    @gingerscholl3248 2 роки тому +27

    Charlotte I wish you the best reaching your dream of being a teacher! I’m a 48 year old TS sister who is also a science teacher!

    • @mrsNetty34
      @mrsNetty34 Рік тому

      I’ll be 48 in august

    • @НатальяПарванчук
      @НатальяПарванчук 11 місяців тому +1

      I'm happy you made to 48. I don't think I will... Turner sucks, big time. I'm 24, and I have been depressed ever since the age of 10 (I was diagnosed at 5, but at that age I didn't have the mental capacity to understand what's going on). Hate myself everyday. Hate the shortness. Hate being neither male, nor really properly female. Hate the thyroid condition. Hate the psoriasis. Hate the swollen legs. Hate having to fucking estrogen...

    • @sarahudson108
      @sarahudson108 11 місяців тому

      ​@@НатальяПарванчук Don't give up , talk to someone , I know it's hard I have TS too , Went through two bad bouts of depression as a teenager , Get support from family , friends and your medical team, You are a woman, Just one who happens to have a medical condition, Keep going and be as healthy and happy as possible.Good luck for your future x.

    • @Nwladylaura369
      @Nwladylaura369 7 місяців тому

      @@НатальяПарванчук❤

    • @kaylasmusic
      @kaylasmusic 7 місяців тому

      @@НатальяПарванчук I have Turner’s syndrome too,.. I always have to take birth control to regulate hormones and stuff,.. However,… Turner’s syndrome is genetically female,.. you’re still biologically and genetically a female you’re just missing the X chromosome but you are still a female or you wouldn’t have it because only a female can have it,. I have not particularly had thyroid problems that i knew of, but other than taking growth hormones and birth control, having learning disabilities, etc,.. I am now turning 23 and thriving perfectly fine and perusing my college degree and career as an audiologist,.. You got this and you can do anythingyou set your mind too!! Please take care of yourself!! I would say the only thing that i even face now is the fact that i can’t have kids.., i promise you will be able to do anything you ever want, if you ever need to talk im always hear for you

  • @happyasalways6967
    @happyasalways6967 11 місяців тому +4

    Good luck Charlotte from a 15yr old girl with TS❤❤❤

  • @marli21099
    @marli21099 2 роки тому +11

    Thank you for sharing your story, Charlotte! I’m 23 also with classic TS and am a 6th grade teacher :)

    • @Priyanka-rawat.154
      @Priyanka-rawat.154 2 роки тому

      Can yo do s**xx

    • @ldee4127
      @ldee4127 Рік тому

      Is it true that classic turner syndrome has many more features and complications than mosaic? Got a dx of our little one having classic

    • @НатальяПарванчук
      @НатальяПарванчук 11 місяців тому

      I would say, yes. Because, with the mosaic variation, only certain cells in the body are missing the second sex chromosome. With the classic one, all cell have only one chromosome in them. @@ldee4127

  • @kaylasmusic
    @kaylasmusic 7 місяців тому +5

    I also have turners syndrome too and would love to share my story with yo all!,.. So I also had a lot of growing problems, ear infection, etc,.. but when I was about 6, I had stopped growing completely and thats how my parents knew something was wrong,. so they had a karyotype done on me (my parents are both physicians), and thats how I found out I had it,. I then got growth hormones to help,.. I also have had a moderate hearing loss since age 7,8,., learning disabilities, etc,.. But now I am 22, almost 23 in month, and I just finished my 3rd year of university with almost a 4.0 GPA! (last semester got 3.9, but still waiting to see how I did this semester but I think it all went ver well) getting a BA in music, since I sing and play piano, and then plan to be an audiologist,. exactly what I ever wanted,..

    • @ohboy111
      @ohboy111 7 місяців тому

      oh good for you

  • @BebeesHuman
    @BebeesHuman 5 місяців тому

    Great video! I'm another woman with Turner's Syndrome. This a great video about the wide field of things we can do and enjoy. Thanks!

  • @abigailmetcalf7606
    @abigailmetcalf7606 2 роки тому +7

    Hi Charlotte, My name is Abby and I am 25 year old who lives with Mosaic Turner syndrome (diagnosed at 10). I am a speech language pathologist at a middle school. Remember you can do anything you put your mind too- your dreams are achievable.

  • @MrsPetal
    @MrsPetal Рік тому

    That’s actually a great way to look at life, an opportunity doesn’t define who you are and what you can accomplish. ❤️

  • @samanthajacobs1028
    @samanthajacobs1028 2 місяці тому

    hi charlotte im Shineeq 17 years old and also have turner sindroom i am grade 11 thank you so much for your wonderful story

  • @drlisa3
    @drlisa3 2 роки тому +3

    Thank you Charlotte! Remembering your story helped me to understand Turner Syndrome for a test that I am taking. See how you teach? You can do it!

    • @maherunnesha4300
      @maherunnesha4300 2 роки тому

      Menschen mit Übergewicht oder Adipositas* haben im Vergleich zu Menschen mit gesundem Gewicht ein erhöhtes Risiko für viele schwere Krankheiten und Gesundheitsprobleme.
      Diese beinhalten
      1. Alle Todesursachen (Mortalität).
      2. Bluthochdruck (Hypertonie).
      3. Hohes LDL-Cholesterin, niedriges HDL-Cholesterin oder hohe Werte von 4 Triglyceriden (Dyslipidämie).
      4. Typ-2-Diabetes.
      5. Koronare Herzkrankheit.
      6. Schlaganfall.
      7. Erkrankung der Gallenblase.
      8. Osteoarthritis (ein Abbau von Knorpel und Knochen in einem Gelenk).
      9. Schlafapnoe und Atemprobleme.
      10. Viele Arten von Krebs.
      11. Niedrige Lebensqualität.
      12. Psychische Erkrankungen wie klinische Depressionen, Angstzustände und andere psychische Störungen4,5.
      13. Körperschmerzen und Schwierigkeiten mit körperlichen Funktionen6.
      *Übergewicht ist definiert als ein Body-Mass-Index (BMI) von 25 oder höher. Adipositas ist definiert als ein BMI von 30 oder höher.
      Besuch: sites.google.com/view/germany-tea4/home

  • @svitlanasalo1179
    @svitlanasalo1179 Рік тому +1

    I have a classic form of Turners,too. I am 43 years old, born and raised in Ukraine.
    In Ukraine I worked as a nurse for 13 years, than 5 years ago I moved to Austria.
    I've been happily married for 17 years.
    I would be happy to get to know somebody who has Turner Syndrome,I've never met someone like me :)

    • @ldee4127
      @ldee4127 Рік тому +1

      Hi! So happy to read your success story. I am having a baby with Classic TS. So it’s nice to hear good outcomes

    • @كريماكرامي-ر3ظ
      @كريماكرامي-ر3ظ 5 місяців тому

      Iam from Egypt Ihave daughter with turner s. She is 15 year old. She want to have friends this is make her so happy but she didnot find friends

  • @HazelOct
    @HazelOct 2 роки тому +17

    I also live with Turner Syndrome!
    You go girl!!

    • @jesuschristismylordforever
      @jesuschristismylordforever 2 роки тому +4

      i love u guys, I lost my baby girl and she was diagnosed but sadly passed away, i wish i could hug her

    • @TheSditMaverick
      @TheSditMaverick Рік тому +1

      @@jesuschristismylordforever Im so so so so sorry. I have Turners and i almost passed.

    • @The_Great_Human
      @The_Great_Human Рік тому

      ​@Just _ sophia what is truner syndrome??can human died with this disease😢

    • @theepics3665
      @theepics3665 Рік тому

      ​@@The_Great_Humanit's not a disease. I suppose you know that human females have XX chromosomes while the males have XY. If the chromosomes don't separate properly during segregation (during cell division) it leads to gain/loss of a set of chromosomes. In the case of Turner's syndrome,one X chromosome is lost from the cell. Therefore,it is usually said that the females with this syndrome are not 'feminine'. They are also sterile (can't reproduce)

    • @kaylasmusic
      @kaylasmusic 7 місяців тому +1

      Same!!

  • @mytoysworld366
    @mytoysworld366 2 роки тому +3

    My doughter with ts has always been a very angry person. She screams when she is angry and it takes many many hours up to over nine hours before she quiets herself. Nothing you do changes her. She is a stubborn personality and wants things her own way. Is angry issues usual to turnéer syndrome people? Because my doughter is very much as a child with dawn syndrome. She loves to eat and she is as I said very stubborn. She wants to decide everything herself. She does not like rules. Is this something you recognizes in the turner syndrome personality? A big problem is that she screams so loud and for such long time and she even says that she does not care about the neighburs. Not okey.

    • @novonordisk
      @novonordisk  2 роки тому

      Hi, thank you for sharing your experience. I understand it must be challenging to manage your daughter's emotions. Please note that due to global privacy and legal regulations, we are not allowed to give medical advice on social media. I recommend you contact your healthcare professional for guidance and help.
      Sending my best wishes to you and your daughter. 💙
      Take care & all the best,
      Asif
      Novo Nordisk

    • @fabianifigueira
      @fabianifigueira 11 місяців тому

      I am stubborn too, and want to do things in my own way? Hahaha, of course.
      But, I really recommend you get professional help, because you can have something more than Turner, is possible, like autism, I don't know, but if the correct treatment she can get better.
      I always was different, but my mom refused to treat me like someone with down and didn't let anyone treat me like that, when she discovered the Turner syndrome she had a shock, but even then she always believed in my potential.

    • @fabianifigueira
      @fabianifigueira 11 місяців тому

      Best wishes for her.

    • @НатальяПарванчук
      @НатальяПарванчук 11 місяців тому

      I am angry. But angry at NOT being fucking normal. I look at myself in the mirror and all I see is a monster. I look feminine, but I know all well that I'm neither male, nor properly female. Suffer from a major case of Napoleonic complex. I feel emotions easily, but feel ashamed for it. I feel like I got screwed over by those deleted chromosomes. Wish I had never been born. My mom doesn't understand either. But then again - she didn't have to go through growth hormone shorts every day for years, she's not super short, she produces estrogen, she has fucking boobs, she wasn't bullied because of her shortness, she didn't grow up hating herself and the world around her...

  • @bobtaylor9959
    @bobtaylor9959 Рік тому

    Thank you for sharing

  • @mrsNetty34
    @mrsNetty34 Рік тому

    I have this neat to see others with it

  • @mytoysworld366
    @mytoysworld366 2 роки тому +1

    If anyone recognizes the temper i describe of my doughter send an answer it is so important. The syndrome seem to be so much look a like dawn syndrome. So write If the anger has been a big thing for you who has turner syndrome.

    • @alex_is_not_outside
      @alex_is_not_outside Рік тому

      I'm 19 have ts I have multiple mental illnesses- (major depressive disorder, anxiety disorders , and adhd) anger and short temper does comes with this,I don't know y'all personally but if she has any other symptoms of that kinda stuff I'd look into it for help 💕💕💕 peace and love fr

  • @tatianajadid262
    @tatianajadid262 Рік тому +1

    I am 17 years old .. I had my period when I was almost 12 years old and completely regular , but I am short my height is 153 cm , and my weight is 37 kg . My intelligence is very normal , and I look much younger than my age also my body showed no signs of puberty .. I do not have the rest of the symptoms. Can anyone help me to know if I have Turner syndrome ?

    • @novonordisk
      @novonordisk  Рік тому +2

      Hi Tatiana, thank you for reaching out. Please be aware that we are not able to give any medical advice on social media due to global privacy and legal regulations. Please see your doctor and discuss your observations there. Your doctor will be able to guide you better and make further examinations if needed.
      Wishing you all the best and take care 💙
      Asif, Novo Nordisk

    • @tatianajadid262
      @tatianajadid262 Рік тому +1

      @@novonordisk okay I will .. Thank you very much for the respond 💛

    • @fabianifigueira
      @fabianifigueira 11 місяців тому

      ​@@tatianajadid262well, the Turner diagnosis is with endocrinologist, they will avaliate you and ask for exams.

    • @kaylasmusic
      @kaylasmusic 7 місяців тому +1

      I have Turner’s syndrome but all I could say is you need a karyotype to know,. Some people also have no symptoms and don’t know until later, although I’ll say, you are extremely underweight and that might have effected your growth

  • @RahzAlGhul
    @RahzAlGhul 8 місяців тому

    God bless you

  • @Twilight_980
    @Twilight_980 10 місяців тому

    I have mosaic TS

  • @karinnamorgan9539
    @karinnamorgan9539 Рік тому

    You are amazing 😃

  • @mariquilla8891
    @mariquilla8891 Рік тому +1

    I've got a friend with TS who is a doctor.

  • @pankajsharma-xb4cr
    @pankajsharma-xb4cr 2 роки тому

    God bless all

  • @ohboy111
    @ohboy111 7 місяців тому

    any south asian who have same problem?

  • @imcnagpc2
    @imcnagpc2 Рік тому

    I don’t know what Turner syndrome is, you didn’t explain it.

    • @fabianifigueira
      @fabianifigueira 11 місяців тому +1

      Basically, we have 45 chromosomes, not 46 like the other people.
      The other people have XX for girl and XY for boys, but, in Turner's syndrome we have just one X, so, we are all girls, the classic Turner lost completely the last X.
      Sorry if my English get weird, Brazilian here.
      And yes, I have Turner syndrome too. The classic one as the girl in the video.

    • @НатальяПарванчук
      @НатальяПарванчук 11 місяців тому

      The only case (syndrome) in humans where a baby can actually survive being born with only one sex chromosome. Most Turner's fetuses get aborted or are miscarried.

    • @fabianifigueira
      @fabianifigueira 11 місяців тому

      @@НатальяПарванчук get aborted? I wonder why, because we Don't have any deficiency that would make us "parents dependents all life." But miscarriage happen a lot in these cases.

    • @НатальяПарванчук
      @НатальяПарванчук 11 місяців тому

      Yeah, that's what happens. Abortion is common. I have this Turner shit. And trust, I'd rather be dead.@@fabianifigueira

    • @НатальяПарванчук
      @НатальяПарванчук 8 місяців тому

      @@fabianifigueira I also have classical TS. I think TS, Down Syndrome, Rett Syndrome, Cri du chat Syndrome get aborted often. I do think TS is a very serious condition. C'mon, like take our medications away - and no puberty, only brittle bones, old skin, scoliosis, and early menopause. I wish I never had TS.

  • @lucyvlogandart5166
    @lucyvlogandart5166 2 роки тому

    i have turner sydrome too.

  • @romanista9776
    @romanista9776 Рік тому

    ❤️