Really incredible. I self diagnosed w Cushings Disease in 2019. Been sick 16 years, suffered RCA giant fistula w aneurysm (two, one massive!) in 2016 at age 28. Just got my MRIs back. Radiologist report is unremarkable but I found very obvious tumors (multiple) upon 2 hours of viewing my images. I’d love for you to look at mine! Really interesting and not seen one like mine yet - also cavernous sinus invasion. How was this missed?! Thank Goodness for my tenacity!!! Cortisol levels between 760ng/dL upwards at 2300hrs - had to see specialist at UCLA for a diagnosis. My local pit/Cushings specialist insisted I was wrong. She was wrong!!
Really incredible. I self diagnosed w Cushings Disease in 2019. Been sick 16 years, suffered RCA giant fistula w aneurysm (two, one massive!) in 2016 at age 28. Just got my MRIs back. Radiologist report is unremarkable but I found very obvious tumors (multiple) upon 2 hours of viewing my images. I’d love for you to look at mine! Really interesting and not seen one like mine yet - also cavernous sinus invasion. How was this missed?! Thank Goodness for my tenacity!!! Cortisol levels between 760ng/dL upwards at 2300hrs - had to see specialist at UCLA for a diagnosis. My local pit/Cushings specialist insisted I was wrong. She was wrong!!
Go Nat. That’s how you get it done. Hope you’re feeling better.