HSCT for MS - 6 Months Post Treatment
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- Опубліковано 14 жов 2024
- I have a 6-month old immune system!! Here's my HSCT for MS update. I mention magnesium cream and this is where I get it from: betteryou.com/...
I don't plan on updating over the next couple of month but, of course ,will do should anything change and/or I get my MRI results :)
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Hi Jenny, I’m newly diagnosed, can you tell me how you manage to get HSCT?… was it on the NHS? Or did you have to travel abroad for treatment?
Did you have to pay for the treatment?
Hope you are well.
Hi, wishing for your speedy recovery.....were you tested for JC virus before this treatment or is it even a consideration for the transplant? did you also consider getting Rituximab for your spms ?
Hi, sorry for late reply, I've broken my collarbone so haven't been able to post! No, they didn't check for JC virus, as far as I know, though hey did do a whole host of blood tests, so may have without me knowing. They never offered me Rituximab, but it appears to still be in a testing phase here in the UK? The place where I had my HSCT was involved in the clinical testing for that, so that is why I was offered HSCT.
@@trippingthroughtreacle very sorry to know about the fracture in collarbone... Is it fine now? But, how did it happen?
@@trippingthroughtreacle sorry to hear that! but any updates? how did your MRI turn out?
@@mshaelab8931 Just about to post a video now! My results were good - no new lesions!
@@aditya50499 I managed to fall down a step outside my house... still sore but getting better thankfully :)