Thank you. Having surgery on May 12th 2023. I am super nervous. My birthday is on May 13. Mothers day is on May 14th. It brings tears to my eyes to get rid of this pain. To have a normal life again.
@@stevendchangmd6447hi sir , what about venous contact not compression and what if person has constant pain like ache in one side of face but don't have classical tn pain just pins and needles and muscular spasm pain occasionally from 3 years around.Main component is constant ache that reduces intensity sometimes in a day and sometimes its like ache with burning mild.No talk about this type of pain anywhere because type 2 means type 1 instant is somewhat there but what I talk about is mostly constant no classic tn symptoms
Hi Dr. Chang, I was listening to your webinar just now, but apparently my question did not go through. I had TN with surgery on 6/2/23, fluid was leaking from surgical site, 2nd surgery in July 2/2023. Got very confused, remain four months in Hospital. To this day I have feelings of hair in my oral cavity, plus other sensation. Poor appetite, decrease in taste. Can you help with what I can use to help this. Thank you. Webinar was very interesting.
Dr Chang thank you so much for posting this. I am a TN patient of almost 2 years. I was told my TN diagnosis is atypical. I had bells paulsy as a child. I woke up one day and went to work and had stroke like symptoms. Slurring words couldn't move my mouth correctly. I had an MRI I have some white spots and a cyst in my sinus on the TN side. I also have decompression I'm three areas of the cranial nerve. I'm wondering if the cyst or bells paulsy has anything to do with it? I also made my physician test me for b vitamin after a chiropractor that never touched me brought it up. Sure enough, I'm B12 deficient. I have no relief from the typical neuro meds. And it's a constant pain, with electric shocks but varying degrees of the stabbing. I don't sleep thru the night without meds, I have gained 60 lbs in 2 years. I have started to keep a diary in regard to pain and times of day. I am also wondering if I should keep a diary of my experience as a whole, maybe for medical professionals to read. I am getting botox to help the pain, as I get migraines. Any advice would be appreciated.
How do you treat symptoms from TN that causes a sensation of hairs in oral cavity with no taste and poor appetite. Numbness in teeth and other sensation in tongue and lips
Thank you so much for this. I like the way the classifications have been simplified and explained clearly. I want to know if after all these years has the research for a cure continued? If so is there a cure to eliminate all the pain for Type 1 Trigeminal Neuralgia meaning will there be complete pain relief for this disorder without being maintained with meds that are toxic with so many side effects? I've had TN type1 for 20 years and have been on Tegretol and Lyrica as a result. My meds have been regulated and easily increased according to the efficacy of the previous doses I was in. Pain as we all know can result in depression so I have been in therapy for 20 years as well taking Cymbalta.Can a cure (not just treatments) be around the corner?
Trigeminal. Neuralgia I'd a horrible condition. It destroys quality of life. The ability to earn a good income is reduced draticly and it causes so much despair and depression. Until now doctors are unable to treat thos effectively. Now. Because of surgical procedures avaable we have option. I've had this burden for 43 yrs of pure hell. Meds only do so much. God ess don't gove up.
I have TN and ON. I have MCAS, T2DM, AVM of the occipital lobe that is embolized from Intraparachymal Hemorrhage. I take Zyrtec, Montelukast, Metformin, Pregablin and Tylenol. TN can be an allergic reaction and that is how mine is. I am almost in remission. I take 75mg of pregablin a day. I use ketotifen eye drops for the ON. I use bendable straws to drink. I eat pain free foods. I hope my comment helps others. This is truly excruciating pain.
Can Trigeminal that seems to come out of no where and lasts for a few months and goes away and then after a year or so comes back again for a few months and has done so 4 times now. I feel like it is cooling down now and hopefully will disappear from this last series which has lasted more or less a couple of months. DOes it ever happen that it might just go away on its own and never come back again or is it true it always comes back and gets worse each time it returns? AlsoI think what started it this time was getting on a Vib plate in my barefeet that was turned at a really high degree. First time it came was after hitting my head on the edge of a glass desk. DOes it usually have to have something that shocks it into returning?
Is it safe to use a micro current device when you have Type 1 Trigeminal Neuralgia either when have the shocks or not and also is it safe to use one that also has radio frequency? Will the radio Frequency be dangerous or cause it to start up or get worse? Is it possible you could reply with your thoughts on this? Thank you
It is very common in asymptomatic individuals to have neurovascular contact at trigeminal nerve then why some have symptoms and then how it is cause of trigeminal neurlagia .Various studies have been done and available on internet that artery contact with trigeminal nerve is common in many normal population..any answer on it?? Mvd is not safe as I have seen some cases about its risks ..gamma knife is good and can be repeated so it is better to opt for that time to time or try alternate treatment like ayurveda or homeopathy
My husband was just diagnose but he can’t even take his meds or swollen what can I do please help me am a disable person now that he is sick it a lot for me help me
I’m only two months into this and only two weeks diagnosed with now meds helping. Baclofen and amatriptyline. My mri is in a couple of weeks. I hope they do the kind you recommend. I know it’s with and without contrast. Even if they find the problem the thought of brain surgery scares the hell out of me.
I am a TN patient for more than 2years now, my doc prescribed gabapentin 300mg 3times a day but still suffer the pain for several instances in a day .Carbox helped me more but my doc now changed carbox to gabapentine bec. Carbox causes to lower my sodium.Pls helped me
Hi Dr. Chang, I was listening to your webinar just now, but apparently my question did not go through. I had TN with surgery on 6/2/23, fluid was leaking from surgical site, 2nd surgery in July 2/2023. Got very confused, remain four months in Hospital. To this day I have feelings of hair in my oral cavity, plus other sensation. Poor appetite, decrease in taste. Can you help with what I can use to help this. Thank you. Webinar was very interesting.
Hi Dr. Chang, I was listening to your webinar just now, but apparently my question did not go through. I had TN with surgery on 6/2/23, fluid was leaking from surgical site, 2nd surgery in July 2/2023. Got very confused, remain four months in Hospital. To this day I have feelings of hair in my oral cavity, plus other sensation. Poor appetite, decrease in taste. Can you help with what I can use to help this. Thank you. Webinar was very interesting.
Hi Dr. Chang, I was listening to your webinar just now, but apparently my question did not go through. I had TN with surgery on 6/2/23, fluid was leaking from surgical site, 2nd surgery in July 2/2023. Got very confused, remain four months in Hospital. To this day I have feelings of hair in my oral cavity, plus other sensation. Poor appetite, decrease in taste. Can you help with what I can use to help this. Thank you. Webinar was very interesting.
Had MVD 10 years ago. Saved my life.
Thank you. Having surgery on May 12th 2023. I am super nervous. My birthday is on May 13. Mothers day is on May 14th. It brings tears to my eyes to get rid of this pain. To have a normal life again.
How did it go?
Any update on surgery ??
WOW! I am very grateful for this presentation!
Glad it was helpful!
@@stevendchangmd6447hi sir , what about venous contact not compression and what if person has constant pain like ache in one side of face but don't have classical tn pain just pins and needles and muscular spasm pain occasionally from 3 years around.Main component is constant ache that reduces intensity sometimes in a day and sometimes its like ache with burning mild.No talk about this type of pain anywhere because type 2 means type 1 instant is somewhat there but what I talk about is mostly constant no classic tn symptoms
Thank you Dr. Chang for your great presentation.
Hi Dr. Chang,
I was listening to your webinar just now, but apparently my question did not go through. I had TN with surgery on 6/2/23, fluid was leaking from surgical site, 2nd surgery in July 2/2023. Got very confused, remain four months in Hospital. To this day I have feelings of hair in my oral cavity, plus other sensation. Poor appetite, decrease in taste. Can you help with what I can use to help this. Thank you. Webinar was very interesting.
Dr. Chang I've have sufferd for 23 yrs.
It's been a nightmare. Thank you for the info.
How you relieved now ?
@@Ackerman_77 so you had mvd??
Can supplements like alpha lipoic acid and turmeric/curcumin restore the sheath on the nerve ?
Dr Chang thank you so much for posting this. I am a TN patient of almost 2 years. I was told my TN diagnosis is atypical. I had bells paulsy as a child. I woke up one day and went to work and had stroke like symptoms. Slurring words couldn't move my mouth correctly. I had an MRI I have some white spots and a cyst in my sinus on the TN side. I also have decompression I'm three areas of the cranial nerve. I'm wondering if the cyst or bells paulsy has anything to do with it? I also made my physician test me for b vitamin after a chiropractor that never touched me brought it up. Sure enough, I'm B12 deficient.
I have no relief from the typical neuro meds. And it's a constant pain, with electric shocks but varying degrees of the stabbing. I don't sleep thru the night without meds, I have gained 60 lbs in 2 years. I have started to keep a diary in regard to pain and times of day. I am also wondering if I should keep a diary of my experience as a whole, maybe for medical professionals to read. I am getting botox to help the pain, as I get migraines. Any advice would be appreciated.
Any update
@@Iamranasameer yes hi. I got off the meds and made sure to avoid my triggers. I also take a multivitamin and eat better.
@@samanthamelendez8851 so you had mvd surgery??
I had surgery on 6/2/23,bld vessel was on the TN. I'm having feelings oh hairs in oral cavity, no appetite, poor appetite. Can you help?
How do you treat symptoms from TN that causes a sensation of hairs in oral cavity with no taste and poor appetite. Numbness in teeth and other sensation in tongue and lips
Thank you so much for this. I like the way the classifications have been simplified and explained clearly. I want to know if after all these years has the research for a cure continued? If so is there a cure to eliminate all the pain for Type 1 Trigeminal Neuralgia meaning will there be complete pain relief for this disorder without being maintained with meds that are toxic with so many side effects? I've had TN type1 for 20 years and have been on Tegretol and Lyrica as a result. My meds have been regulated and easily increased according to the efficacy of the previous doses I was in. Pain as we all know can result in depression so I have been in therapy for 20 years as well taking Cymbalta.Can a cure (not just treatments) be around the corner?
Hi how r you??
Did you have mvd too in those years as now it's being 25
Trigeminal. Neuralgia I'd a horrible condition. It destroys quality of life. The ability to earn a good income is reduced draticly and it causes so much despair and depression. Until now doctors are unable to treat thos effectively. Now. Because of surgical procedures avaable we have option. I've had this burden for 43 yrs of pure hell. Meds only do so much. God ess don't gove up.
I have TN and ON. I have MCAS, T2DM, AVM of the occipital lobe that is embolized from Intraparachymal Hemorrhage. I take Zyrtec, Montelukast, Metformin, Pregablin and Tylenol. TN can be an allergic reaction and that is how mine is. I am almost in remission. I take 75mg of pregablin a day. I use ketotifen eye drops for the ON. I use bendable straws to drink. I eat pain free foods. I hope my comment helps others. This is truly excruciating pain.
From how many years do you have it
Can it feel like a foreign object in the area where it hurts so bad. In the upper gum area 41:49
I have trigeminal neuralgia in my ear it comes from my neck and inside my mouth the pain is very bad what can I do
Can Trigeminal that seems to come out of no where and lasts for a few months and goes away and then after a year or so comes back again for a few months and has done so 4 times now. I feel like it is cooling down now and hopefully will disappear from this last series which has lasted more or less a couple of months. DOes it ever happen that it might just go away on its own and never come back again or is it true it always comes back and gets worse each time it returns? AlsoI think what started it this time was getting on a Vib plate in my barefeet that was turned at a really high degree. First time it came was after hitting my head on the edge of a glass desk. DOes it usually have to have something that shocks it into returning?
Is it safe to use a micro current device when you have Type 1 Trigeminal Neuralgia either when have the shocks or not and also is it safe to use one that also has radio frequency? Will the radio Frequency be dangerous or cause it to start up or get worse? Is it possible you could reply with your thoughts on this?
Thank you
I would like to know the answer to this as well.
It is very common in asymptomatic individuals to have neurovascular contact at trigeminal nerve then why some have symptoms and then how it is cause of trigeminal neurlagia .Various studies have been done and available on internet that artery contact with trigeminal nerve is common in many normal population..any answer on it?? Mvd is not safe as I have seen some cases about its risks ..gamma knife is good and can be repeated so it is better to opt for that time to time or try alternate treatment like ayurveda or homeopathy
I have ice pick ear pain not face pain, so who knows if this is what I have
Worth getting an MRI mine turned out to be an acoustic neuroma - successfully treated 4 years ago with Cyberknife
Yes you do because I have ear pain and pressure.
My husband was just diagnose but he can’t even take his meds or swollen what can I do please help me am a disable person now that he is sick it a lot for me help me
That me milk help in a cup fill all the way the top still painful but it helped
How do people survive with this issue...how do you do your jobs?
我有這種病，自殺上了日程表。
Are Hindi me hi bolta to Tera kya ho jata
Vo bahar ka banda hai hindi me kaise bolega
I’m only two months into this and only two weeks diagnosed with now meds helping. Baclofen and amatriptyline. My mri is in a couple of weeks. I hope they do the kind you recommend. I know it’s with and without contrast.
Even if they find the problem the thought of brain surgery scares the hell out of me.
Don't be scared. I had my surgery in 2018. I woke up after the microvascular decompression and hadn't had any pain from till then.
Do it!
I am a TN patient for more than 2years now, my doc prescribed gabapentin 300mg 3times a day but still suffer the pain for several instances in a day .Carbox helped me more but my doc now changed carbox to gabapentine bec. Carbox causes to lower my sodium.Pls helped me
@@petrakaltenegger1635how was recovery and what person feel like first time when he woke up from anaesthesia
Hi Dr. Chang,
I was listening to your webinar just now, but apparently my question did not go through. I had TN with surgery on 6/2/23, fluid was leaking from surgical site, 2nd surgery in July 2/2023. Got very confused, remain four months in Hospital. To this day I have feelings of hair in my oral cavity, plus other sensation. Poor appetite, decrease in taste. Can you help with what I can use to help this. Thank you. Webinar was very interesting.
I had surgery on 6/2/23,bld vessel was on the TN. I'm having feelings oh hairs in oral cavity, no appetite, poor appetite. Can you help?
Hi Dr. Chang,
I was listening to your webinar just now, but apparently my question did not go through. I had TN with surgery on 6/2/23, fluid was leaking from surgical site, 2nd surgery in July 2/2023. Got very confused, remain four months in Hospital. To this day I have feelings of hair in my oral cavity, plus other sensation. Poor appetite, decrease in taste. Can you help with what I can use to help this. Thank you. Webinar was very interesting.
Hi Dr. Chang,
I was listening to your webinar just now, but apparently my question did not go through. I had TN with surgery on 6/2/23, fluid was leaking from surgical site, 2nd surgery in July 2/2023. Got very confused, remain four months in Hospital. To this day I have feelings of hair in my oral cavity, plus other sensation. Poor appetite, decrease in taste. Can you help with what I can use to help this. Thank you. Webinar was very interesting.
Any update