I wanna send that first Tiktok to the lady who gave me a death stare on the train for sitting in priority seating (disabled, elderly, pregnant) when returning from my parents. I have osteoarthritis, you can't see the damage to my joints and bones but it's still there and, having spent an entire afternoon on my feet, my pain was so bad that I could barely move. Part of me hopes she saw me hobble out of the train and felt ashamed of herself.
Sorry that happened to you, I hope that she saw you hobble out of the train and now considers that some people sitting in priority seating have invisible disabilities. I think the general public are quite uneducated about invisible disabilities, some people assume the young person in priority seating is just being a 'lazy young person' rather than thinking they might be in pain, have trouble standing for long etc. I try to educate myself, when I was younger I've learnt a lot from youtube about invisible disabilities and I know quite a few people who have a variety of invisible disabilities who have taught me lots. I hope you're in less pain today :)
To all my fellow amazing gremlins with invisible disabilities: remember you are absolutely valid and anyone who says otherwise or makes you feel bad about yourself aren’t worth your time and can step on a cactus❤❤❤
9:14 I had someone try to tell me that “sometimes you just have to get over your chronic pain and work” when I told them I was trying to get on disability. I let them know I almost ended up in the ER because of working for three days a week. I was barely working as it was and it still almost killed me. So yeah……. No. I think it’s better if I stay out of work currently. At least until my health is managed better. Every time I try to tell people I’m disabled and can’t work I get stories of these supposed people living off welfare who are capable of working yet… I’ve never met anyone like that. I’ve been trying to get on disability for years and if it wasn’t for my bf’s family (who are also struggling financially immensely) I would be homeless and starving. I literally cannot survive on my own. Peoples reactions to those that can’t work are absolutely insane and the assumptions they make about my medical history and why I’m choosing to go on disability instead of literally just dying is wild. Seeing their faces when I tell them how bad it was for me to work is great though. If they’re gonna force me to listen to their ableism I’ll make them listen to how that same ableism almost killed me 🤷♂️
as someone that has a high functioning and hidden disability (sorry if that's not the right terminology, i don't know much) it's been hard for me to understand other disabled people but these videos have made it way easier to understand other people around me! thank you so much of uploading these! (i have type 1 diabetes, and might have adhd and an anxiety disorder)
i have a request for a video. can you possibly do one of only autistic tiktoks? im autistic and autism is one of my special interests and you compile some of the videos i can actually sit through. :3 its okay if not
So, recently while in another country from home, i've realized my ankles are starting to loosen and damage, so i have to wear two ankle braces every day of this trip.. crap
I have multiple neurological disorders and have been dealing with a flare for the past few weeks. I have very few friends in a similar situation as me so it’s a nice reminder that I’m not alone. :)
im possibly autistic and have been diagnosed with bpd and adhd. my brother says that i like bragging about my disabilities and i say no because i just want my family to understand about it. its really hard living and im often called exaggerated but im not my emotions just get out of hand and im more sinsible to things that people may see as "not a big deal". its hard.
Tw demanding Hey you yes you, take a deep breath let it out slowly, and lower your shoulders. I'm so proud of you being here. Thank you. Now make sure you take care of yourself and drink some water, eat something and take a stretch break
non demanding alternative if this comment does not vibe with you for whatever reason: technically you don't have to do any of this, but OP and I both care for the health and comfort of those reading out of compassion, if you haven't recently, a deep breath will help even a little with stress and anxiety, and check if your shoulders are raised, keeping them raised can contribute to muscle pain and stiffness, but if its comfortable right now its fine. I too am proud of you from a parasocial perspective. well done for living :) waters good, prevents headaches if you want to have some, and if eating isn't possible thats cool too, but if you can something you enjoy would be good, and if you want to stretch tis very crunchy and good
@@broken_queer_but_fighting8589 feel free to if you want, if you want to reword it that could be interesting but if not I will have become a copypasta which is pretty funny to me, you have a good weekend as well
I need some help from people with chronic illnesses, specifically lung related ones but anything helps a bit, if you're comfortable with sharing, can you tell me some unexpected things you experience by having it? I'm trying to write a character with a chronic illness for a fanfic I'm writing. In canon I believe it was triggered by his living conditions in his childhood. They won't be the same in the work I'm writing, but if I can I want to keep his illness. I'm doing as much research as I can to accurately portray it but it is best to get information from people who share the experiences.
Although I don't have a chronic illness I have been coughing on and off for weeks now and one issue I've been experiencing is the thirst I feel. I get thirsty because not only am I trying to breathe through my mouth (narrow nasal passages) it is using up more of my energy trying to breathe. I drink so much water and get so thirsty that I am always using the bathroom and it has caused issues at work because of how often I wee
hi! I'm asthmatic, probably not an expert-expert but because of other health conditions, I've had a pretty rough go of it, so hopefully I can help! some things I've noticed: - stairs, Not Fun. - cold air. something about the sharpness? of it always makes me wheezy. thunderstorms also, I can usually tell when a thunderstorm is just based on tightness in my chest with no "visible" triggers. dry air is super not good, as the person before me has stated [: - doing physical exercise *without a warmup*! I used to play a sport before my health got too bad, and going from walking, to running (even if only for a minute or two), back to walking, instantly so much harder to breathe. if I did a warmup before running, I've usually acclimated to the amount of air needed - doing breathing exercises! I used to play trumpet, famous blow-into-it-to-make-it-work instrument, and doing that without proper breath control is a no-no. learning how to spend my air wisely was such a help with even just things like talking or going on walks - which brings me to my next point, talking! depending on how severe their condition is, they may have trouble with talking for long sentences or for a long time. I used to use up all my air on a sentence or two, then spend the next few minutes trying to get my breath back, all while trying to hold a conversation with someone. it may be hard for them to hold a conversation while walking or doing some other form of physical activity. yelling also might be a struggle if done repeatedly - SWIMMING. I don't know if this is just a me thing, but every time I submerge myself in water up to my chest, suddenly I'm acutely aware of the pressure of the water on my lungs. it's not enough to hurt, but I become more wary of not overdoing myself. actually now that I think about it, I think that most people with chronic lung issues (or any chronic issue, really) become a lot more aware about what triggers flare-ups and are a lot more aware of overdoing it. - this is also true for weighted blankets, but again that could just be me - when I get sick, it hits hard and tends to stay in my lungs for around a week-month after the rest of me isn't sick anymore, usually coughing, sometimes it's tightness in the chest. coughs could be chesty (deeper, hollow-sounding, usually doesn't hurt throat too bad but like,, it still hurts if you're doing it for a month), throaty (feels raw, hurts to talk after, usually not as loud as chesty coughs), and kind of gross but wet coughs? which usually means bad things but those are just the ones I experience. your character might be more prone to illness, may stay sick for longer, might be more avoidant of getting sick (i.e. wearing a mask, using hand sanitizer, avoiding sick people), and also might have some serious sick-rituals (vicks vapo rub is my savior!) - probably common knowledge but anxiety and panic attacks are Not Fun, especially if you have issues with breathing already. if I didn't have years of asthma experience before my first panic attack, I could have been seriously injured. struggling to breathe because of a panic attack feels a lot like struggling to breathe because of an asthma attack. struggling to breathe also causes you to panic more, which in turn makes it harder to breathe, which makes you panic more, you get the idea. that's all I can think of! let me know if any of this helped, and I'd love to read your fic once it's posted!
@@soapenthusiast thank you! this really helped me!. The character isnt a main one in the fic but I wanted to be sure I wasnt misrepresenting anything. Since the condition isnt specified in canon, I was thinking of having him be asthmatic if I couldnt find enough information on another one.
I wanna send that first Tiktok to the lady who gave me a death stare on the train for sitting in priority seating (disabled, elderly, pregnant) when returning from my parents. I have osteoarthritis, you can't see the damage to my joints and bones but it's still there and, having spent an entire afternoon on my feet, my pain was so bad that I could barely move. Part of me hopes she saw me hobble out of the train and felt ashamed of herself.
Sorry that happened to you, I hope that she saw you hobble out of the train and now considers that some people sitting in priority seating have invisible disabilities. I think the general public are quite uneducated about invisible disabilities, some people assume the young person in priority seating is just being a 'lazy young person' rather than thinking they might be in pain, have trouble standing for long etc. I try to educate myself, when I was younger I've learnt a lot from youtube about invisible disabilities and I know quite a few people who have a variety of invisible disabilities who have taught me lots.
I hope you're in less pain today :)
To all my fellow amazing gremlins with invisible disabilities: remember you are absolutely valid and anyone who says otherwise or makes you feel bad about yourself aren’t worth your time and can step on a cactus❤❤❤
A cactus made of Lego
9:14 I had someone try to tell me that “sometimes you just have to get over your chronic pain and work” when I told them I was trying to get on disability. I let them know I almost ended up in the ER because of working for three days a week. I was barely working as it was and it still almost killed me. So yeah……. No. I think it’s better if I stay out of work currently. At least until my health is managed better. Every time I try to tell people I’m disabled and can’t work I get stories of these supposed people living off welfare who are capable of working yet… I’ve never met anyone like that. I’ve been trying to get on disability for years and if it wasn’t for my bf’s family (who are also struggling financially immensely) I would be homeless and starving. I literally cannot survive on my own. Peoples reactions to those that can’t work are absolutely insane and the assumptions they make about my medical history and why I’m choosing to go on disability instead of literally just dying is wild. Seeing their faces when I tell them how bad it was for me to work is great though. If they’re gonna force me to listen to their ableism I’ll make them listen to how that same ableism almost killed me 🤷♂️
as someone with a connective tissue disorder, thank you so much for making these videos
with the last one, I literally forgot I had tourettes and my friends had to remind me. I tic all day every day LMAOOO
I needed this today, had a doctors appointment early afternoon today.
Autism is a disability. I always wondered I had such a difficult time working. Didn’t get diagnosed until an adult.
as someone that has a high functioning and hidden disability (sorry if that's not the right terminology, i don't know much) it's been hard for me to understand other disabled people but these videos have made it way easier to understand other people around me! thank you so much of uploading these! (i have type 1 diabetes, and might have adhd and an anxiety disorder)
OMG I HAVE ADHD AND T1D TOO
i have a request for a video. can you possibly do one of only autistic tiktoks? im autistic and autism is one of my special interests and you compile some of the videos i can actually sit through. :3 its okay if not
I've made quite a few of those in the past :)
I AM HERE
AllMight?!
@@rockgirl6786 lol yes
So, recently while in another country from home, i've realized my ankles are starting to loosen and damage, so i have to wear two ankle braces every day of this trip.. crap
I have multiple neurological disorders and have been dealing with a flare for the past few weeks. I have very few friends in a similar situation as me so it’s a nice reminder that I’m not alone. :)
im possibly autistic and have been diagnosed with bpd and adhd. my brother says that i like bragging about my disabilities and i say no because i just want my family to understand about it. its really hard living and im often called exaggerated but im not my emotions just get out of hand and im more sinsible to things that people may see as "not a big deal". its hard.
Tw demanding Hey you yes you, take a deep breath let it out slowly, and lower your shoulders. I'm so proud of you being here. Thank you. Now make sure you take care of yourself and drink some water, eat something and take a stretch break
non demanding alternative if this comment does not vibe with you for whatever reason: technically you don't have to do any of this, but OP and I both care for the health and comfort of those reading out of compassion, if you haven't recently, a deep breath will help even a little with stress and anxiety, and check if your shoulders are raised, keeping them raised can contribute to muscle pain and stiffness, but if its comfortable right now its fine. I too am proud of you from a parasocial perspective. well done for living :) waters good, prevents headaches if you want to have some, and if eating isn't possible thats cool too, but if you can something you enjoy would be good, and if you want to stretch tis very crunchy and good
@riv3rw4ter I like that, is it ok if I use that from time to time or should I reword it? i hope you have a sweet weekend
@@broken_queer_but_fighting8589 feel free to if you want, if you want to reword it that could be interesting but if not I will have become a copypasta which is pretty funny to me, you have a good weekend as well
YIPPEE :D
blindlychloe looks like the girl from the Cluefinders
I need some help from people with chronic illnesses, specifically lung related ones but anything helps a bit, if you're comfortable with sharing, can you tell me some unexpected things you experience by having it?
I'm trying to write a character with a chronic illness for a fanfic I'm writing. In canon I believe it was triggered by his living conditions in his childhood. They won't be the same in the work I'm writing, but if I can I want to keep his illness. I'm doing as much research as I can to accurately portray it but it is best to get information from people who share the experiences.
Although I don't have a chronic illness I have been coughing on and off for weeks now and one issue I've been experiencing is the thirst I feel. I get thirsty because not only am I trying to breathe through my mouth (narrow nasal passages) it is using up more of my energy trying to breathe. I drink so much water and get so thirsty that I am always using the bathroom and it has caused issues at work because of how often I wee
hi! I'm asthmatic, probably not an expert-expert but because of other health conditions, I've had a pretty rough go of it, so hopefully I can help!
some things I've noticed:
- stairs, Not Fun.
- cold air. something about the sharpness? of it always makes me wheezy. thunderstorms also, I can usually tell when a thunderstorm is just based on tightness in my chest with no "visible" triggers. dry air is super not good, as the person before me has stated [:
- doing physical exercise *without a warmup*! I used to play a sport before my health got too bad, and going from walking, to running (even if only for a minute or two), back to walking, instantly so much harder to breathe. if I did a warmup before running, I've usually acclimated to the amount of air needed
- doing breathing exercises! I used to play trumpet, famous blow-into-it-to-make-it-work instrument, and doing that without proper breath control is a no-no. learning how to spend my air wisely was such a help with even just things like talking or going on walks
- which brings me to my next point, talking! depending on how severe their condition is, they may have trouble with talking for long sentences or for a long time. I used to use up all my air on a sentence or two, then spend the next few minutes trying to get my breath back, all while trying to hold a conversation with someone. it may be hard for them to hold a conversation while walking or doing some other form of physical activity. yelling also might be a struggle if done repeatedly
- SWIMMING. I don't know if this is just a me thing, but every time I submerge myself in water up to my chest, suddenly I'm acutely aware of the pressure of the water on my lungs. it's not enough to hurt, but I become more wary of not overdoing myself. actually now that I think about it, I think that most people with chronic lung issues (or any chronic issue, really) become a lot more aware about what triggers flare-ups and are a lot more aware of overdoing it.
- this is also true for weighted blankets, but again that could just be me
- when I get sick, it hits hard and tends to stay in my lungs for around a week-month after the rest of me isn't sick anymore, usually coughing, sometimes it's tightness in the chest. coughs could be chesty (deeper, hollow-sounding, usually doesn't hurt throat too bad but like,, it still hurts if you're doing it for a month), throaty (feels raw, hurts to talk after, usually not as loud as chesty coughs), and kind of gross but wet coughs? which usually means bad things but those are just the ones I experience. your character might be more prone to illness, may stay sick for longer, might be more avoidant of getting sick (i.e. wearing a mask, using hand sanitizer, avoiding sick people), and also might have some serious sick-rituals (vicks vapo rub is my savior!)
- probably common knowledge but anxiety and panic attacks are Not Fun, especially if you have issues with breathing already. if I didn't have years of asthma experience before my first panic attack, I could have been seriously injured. struggling to breathe because of a panic attack feels a lot like struggling to breathe because of an asthma attack. struggling to breathe also causes you to panic more, which in turn makes it harder to breathe, which makes you panic more, you get the idea.
that's all I can think of! let me know if any of this helped, and I'd love to read your fic once it's posted!
@@soapenthusiast thank you! this really helped me!. The character isnt a main one in the fic but I wanted to be sure I wasnt misrepresenting anything. Since the condition isnt specified in canon, I was thinking of having him be asthmatic if I couldnt find enough information on another one.
@@band-aid-enthusiast hey wait a minute I just read your username, we're both inanimate object enthusiasts
also I'm glad I could help!
wheeee I'm early!!
I really needed this rn, as always you're right on time 🩵