Mahalo for sharing what you do. I live with Fibro, Lyme Disease , Osteo and Rhuematoid Arthritis . I was on Opiods for 7 years. Went cold turkey as I was becoming dependant and the pains were worse when the drug wore off. I noticed it was affecting my liver. I know I have liver damage from that as well damage as over the counter pain meds. When I got Lyme, I became allergic to all of these, so I have to take benadryl daily. I really don't want to take it but I get severe hives and allergic to many foods since having the combination of both fibro and Lyme. I have taken hydroxizine but would get tremors. Gabapentin would also give my adverse reactions as well as other drugs. I am apparently very sensitive to these drugs. The way I deal with the pain is natural. Not in the sense of weed and cbd which I am allergic to, but I suck on fresh ginger throughout the day. It helps with histimine. But when my allergies are so bad because I am allergic to the cats, I never take fresh ginger while I am taking bendryl, there is a danger when taking both. So if I am on benadry and can't handle the pains I take a very hot shower and I really have to pray for it to go away. Sometimes it is too much , sometimes if I can I focus on diving into the pain and overcoming it that way. But it is very challenging and I get depressed often because I have no doctors or family that can understand what I am going through. But, I am now trying to take tumeric and it helps. Eliminating sugar and carbs can help. Not eating tomatoes, green peppers helps. Sometimes I take blueerries but it causes much pain, but I know that by eating it is good pain from a herx reactiom that kill those toxins that inflame our body. Moving around is also best to beat fibro, orange juice, sunlight , the ocean, music and art therapy and most of all my faith in Jesus has continued to help me, without him I would probably be gone . Anyways, mahalo nui loa for sharing
Thank you so much for sharing your story with us. It's incredible to hear about your journey managing several chronic illnesses. The way you've explored different treatments, especially your creative use of natural remedies like ginger, really shows how resourceful you are. I'm really sorry to hear that you've felt alone and misunderstood in your struggles. That's really tough, especially when you need support the most. It's great to see how you've found comfort in things like music, art, and being in nature. Plus, your faith seems like a huge source of strength for you. Keep finding those moments of joy and healing!
Thank you so much for one of the best UA-cam channels on living with Fibromyalgia. I have just recently found you and I think you are a beautiful person. Ive had Fibro for over 25 years and not much helps. I don't think I gave the LDN a chance so I'm going to try it again. Thank you ❤
Thank you so much for your kind words and for joining our community here on UA-cam! I’m so happy to hear you've found the channel helpful and I truly appreciate your lovely compliment. Dealing with fibromyalgia for over 25 years is incredibly challenging (I'm at 32 years old) , and I understand how tough it is to find treatments that provide relief. Giving LDN another try sounds like a good plan. Sometimes, revisiting a treatment with a new perspective can make all the difference. I'm sending you all my best wishes for better days ahead with this new attempt.
Thank you again, for such an informative, open discussion on your medications. Im on Duloxetine and strong co -codamol. Neither help much with the pain. Think i need another discussion with my doctor. Im in Scotland so drugs may be different in whats available. Also, wish my doctor was more clued up about this illness. Take care xx
Thank you for your comment and for sharing your experience with us. It sounds frustrating that the Duloxetine and co-codamol aren't doing much for your pain. Definitely sounds like a good plan to have another chat with your doctor about what options might be available. It's tough when it feels like your doctor isn't fully up to speed on what you're dealing with. I really hope you can find more effective relief soon. Hang in there, and take good care of yourself. Sending you all the best vibes from here! ♥️
Thank you so much for your transpirency. Like you , I don't look ill. Probably from all the supplements I've been taking since 1996. Very few doctors in the US will keep up with up to date on Fibro/Chronic F so don't watch to even subscribe. I waited for 6 mo . two years ago to see a local Rhematologist and he prescribed the exact ineffectual meds that my original diagnosing Rheumatologist did 30 yr ago. I have medical background and am constainly researching. I am currently on a strick meat/eggs diet for the past 2 months. Also recently found out that gluten has been cause of severe muscle contraction in hands and low extremities and all day vomiting , unconscious migraine. I'm writing to ask you have you been aware of Sally K Norton's "Toxic Superfoods"? She and others (MD's, researchers, etc) have discovered and warning about "oxalates" in plant food. I'm beginning to think my issues may be related to all the symptoms of toxicity that this causes. Anyway, I can tell you've been suffering all the same problems as me and I appreciate your vids. It's surely been a wild ride hasn't it. BTW, the medical industry hasn't the first clue what is causing CFS/ Fibro and hasn't been looking for the most part in the past decades. Perhaps some of the MD's etc that are looking into nurtrition or lack thereof may set a new avenue of research. I'm 74y and this malady is only getting worse! Seems like a cure should be forcoming soon. Blessings, p
Thank you so much for your thoughtful and detailed comment. I completely understand the frustration with finding effective medical care and treatments. It's so tough when you're not being heard or getting the help you need. I admire your dedication to researching and trying different approaches, like your strict meat/eggs diet. It's incredible how much our diet can impact our health. I've heard about Sally K Norton's work on "Toxic Superfoods" and the effects of oxalates. It’s definitely something worth looking into, especially if it might be connected to your symptoms. I appreciate you sharing your journey and insights; it really helps to know we're not alone in this.
Thank you, so much, for your transparency. My medication list is quite similar, though a bit longer due to the blessing of added medical conditions. I’m in the U.S. so some meds are more common here. I have had fibro symptoms since I was in my twenties but it kicked into high gear after lung cancer(okay now)/heart attack/autoimmune disease hell year in 2014. If I didn’t have a twisted sense of humor, I’d be bat sh*t crazy. Oh, and the antihistamine thing…fact. I started noticing a difference when my lung specialist put me a couple of them(along with a couple of inhalers).
Your resilience and sense of humor really shine through, even with everything you’ve been through. Thank you for sharing your experience and the specifics about how different medications have been part of your journey, especially with the added complexities of managing multiple health conditions. It’s incredible how you’ve managed to navigate such intense challenges, all while keeping your spirits up with a bit of humor. Your ability to share openly provides so much value to others who might be dealing with similar struggles. It helps everyone feel a little less alone and a bit more hopeful about finding combinations that work for them. Thanks again for being part of the community and for your candidness. We’re all the better for it!
I eat grilled cheese sandwiches to manage my fibromyalgia…………….if only it was that easy 😉 I’m not taking any pain medication right now. I take metformin for diabetes, so I’m a little apprehensive to take other medication, I want to be careful with my liver. ✌️
I got a laugh out of the grilled cheese remedy, if only managing fibromyalgia could be that delicious and simple, right? It’s great that you’re being mindful about medication interactions, especially considering your diabetes treatment. Being cautious with your liver is definitely wise. It sounds like you’re navigating these challenges with a good balance of humor and caution, which is so important. Thanks for sharing your approach and sparking a bit of light-heartedness in our discussion. Keep us posted on how you’re doing, and here’s to finding that balance in treatment and care! ✌️
Great video, thanks for sharing. Your antihistamine journey is interesting, I take it all the time too. A couple of the reasons I ended up getting prescribed was because I get ‘skin writing’ (amused the kids no end when they were younger) but also it helps with my sinus problems, when I run out or just get supermarket ones, I barely sleep because I can’t breathe properly.
Thanks for being such a supportive subscriber and for sharing your experience with us! I totally understand how tough it is when you end up having a rough night. I hope you continue to find the right balance that helps you manage. Thanks again for watching and taking the time to comment! 🌼
Thanks for your information I have fibromyalgia, osteoarthritis, nerve pain in hands and feet. I take Tramadol for pain. Gabapentin for nerve pain. Anxiety medicine and depression medicine. Ibuprofen for inflammation. I have a bad stomach so I can’t take strong opioids. It does help.
Thanks for your comment and for sharing what you're going through. Managing fibromyalgia, osteoarthritis, and nerve pain is incredibly challenging. It's good to hear that you found a combination that is helping somewhat. I also have a sensitive stomach and I rely a lot on nausea medication. But I do worry I am going to end up with an ulcer. It's really a tough road, but I'm glad you've found a regimen that works for you without aggravating your stomach too much. You are not alone in this, and sharing your experiences can help others in similar situations feel understood and supported.
Thank you for sharing your medication information. It’s amazing how many different types of medications are needed to treat fibromyalgia. I have found that low doses of different meds are more affective in controlling my symptoms rather than high doses of one drug. It has taken years to find the right cocktail! It’s really smart that you keep a narcon kit at home. Have a lovely day!! 🌷🌷🌷
Thank you for your kind comment and for sharing a bit about your own approach to managing fibromyalgia. It's indeed a journey to find the right balance of medications that works for each individual, and it sounds like you’ve put a lot of thought and care into finding what best helps you. Keeping a Narcan kit at home is one of those safety measures that can make a big difference. I'm glad to hear you've found a system that helps you manage your symptoms effectively. Wishing you a lovely day as well! Keep taking good care of yourself, and thank you again for connecting here. ♥️
Hi Daniella…can you please let me know the name and where you got the migraine cap from? The one you put in the freezer? I’m located in Ontario, Canada. Thanks a bunch ❤
I got it on Amazon. It’s called Icekap. I have an associate link which means if you buy using this link I get a very small percentage from Amazon at no extra cost to you. This is the link: amzn.to/3xM67By
Thanks for being so open, friend ❤! That was really helpful how you explained how each medication works. We are on the same muscle relaxer (I take mine at night as well), and one of the same H1 blockers, hydroxyzine (I also take it at night, and use it for emergencies, unless I have to just pull my epipen out). And thank you for talking openly about the addiction potential for opoids ❤. It's insanely ridiculous in the U.S. It's near impossible to get a script, when there are actual people in pain, and we have a HUGE fentanyl crisis going on here. Last August, I lost my oldest nephew (he just turned 18 5 days prior) to the fentanyl crisis 💔. I'm so glad you view addiction potential as dangerous, and that you are that responsible with your medication ❤. God bless you, Daniella!
Thank you so much for your kind words and for sharing a bit of your own journey with us. It’s great to hear that the video was helpful and that we share some common ground with our treatments. I’m so sorry to hear about your nephew. Losing someone so young to the fentanyl is heartbreaking. My thoughts are with you and your family during this incredibly tough time. While there’s no easy answer to the opioid crisis, it's clear that leaving people in pain isn't the solution. Chronic pain has driven too many to despair and take their own lives and we must work toward effective and safe pain management strategies. I consider myself incredibly fortunate to have a doctor who understands and trusts me. Perhaps our shared background in healthcare and my pharmacology knowledge play a part, or maybe it’s just luck. Having used this medication responsibly for over two decades without increasing the dosage, I am acutely aware of its potential dangers and value my life too much to take any risks. God bless you too, and take care.
You've made an excellent point! It's actually something I've been quite concerned about; just the other day, I discussed it with a friend. I plan to talk to my doctor about scheduling a liver panel every three to six months. Living with Fibromyalgia feels like a no-win situation. Without medication, managing symptoms is unbearable, but with it, I have to cope with the side effects. It's a tough call, and there's no right or wrong answer-just what works best for each individual.
Hi wat een cocktail van medicatie zit er in je lichaam….Als je ldn gebruikt werkt alleen goed als je gestopt bent met tramadol niet mixen met opiaten. Wanneer ik ben gestart met de Wim hof methode ademhaling en koude douche. Heeft een tijdje geduurd maar je lichaam gaat dan minder cortisol aan maken en meer dopamine wat er voor zorgt dat je minder pijn hebt. Dit heeft er voor gezorgd dat ik nu nog alleen mirtazapine voor diepe slaap gebruik. En voor mijn hyper sensitief brain uni tranxene to relax. Dokter gabor on you tube is ook inspirerend een trauma van vroeger kan ook lijden tot fibro, Cfs,diabetes enz.. ze geven allemaal tips om het lichaaam te herstellen zonder te veel farma te gebruiken.ik ben nu 5 weken facia therapie aan het volgen helpt ook. Grtj uit België
Hallo! Bedankt voor het delen van je ervaringen en inzichten. Het is fascinerend om te horen hoe verschillende benaderingen zoals de Wim Hof methode en facia therapie je hebben geholpen om je symptomen te beheersen. Het gebruik van minder medicijnen en het focussen op natuurlijke lichaamsprocessen kan zeker voordelig zijn voor sommigen. Ik waardeer ook je aanbeveling van Dr. Gabor’s werk; het is altijd interessant om te leren hoe vroegere trauma's onze gezondheid kunnen beïnvloeden. Ik ben blij te horen dat je manieren hebt gevonden die voor jou werken en wens je het beste in je verdere reis naar welzijn.
I'm sure you are aware that any medications that are anticholinergic ( so any anti- histamines you are taking) have been heavily linked to quite a substantial risk for dementia? It's about a 54% increased risk according to the Harvard study I read. Just wanted to make sure you are aware! ❤
Thank you for bringing this to my attention. I've heard about their link to dementia risks, and honestly, it's quite alarming. However, I haven't delved too deeply into it because I really need these medications. They're crucial not only for managing my fibromyalgia but also for preventing anaphylactic shocks due to my mast cell activation syndrome, which has sent me to the emergency room too many times to count. Taking these medications isn't just a choice for me, it's a necessity. While I'm aware that every medication carries its risks, and potentially increases the likelihood of other severe conditions, the immediate risk of not taking them is far greater for me. Managing this balance is tough, but essential. Thank you again for your concern and for making sure I'm informed. It’s a reminder of how complex managing health can be, especially when you're juggling multiple conditions.
@tt_looking_glass I totally get it! I'm on a low dose of nortriptyline, which is also an anticholinergic medication, so I need to discuss this in my next neurology appointment! It's about weighing risks and benefits, but it can be so stressful just knowing that something we're taking for daily management, is increasing our risk for future health issues.
Yes, I totally get it too. Being aware of it can make us more proactive in doing other things that can help. Like keeping our brains active like learning a new language, being creative, learning a new skill…
Mahalo for sharing what you do. I live with Fibro, Lyme Disease , Osteo and Rhuematoid Arthritis . I was on Opiods for 7 years. Went cold turkey as I was becoming dependant and the pains were worse when the drug wore off. I noticed it was affecting my liver. I know I have liver damage from that as well damage as over the counter pain meds. When I got Lyme, I became allergic to all of these, so I have to take benadryl daily. I really don't want to take it but I get severe hives and allergic to many foods since having the combination of both fibro and Lyme. I have taken hydroxizine but would get tremors. Gabapentin would also give my adverse reactions as well as other drugs. I am apparently very sensitive to these drugs. The way I deal with the pain is natural. Not in the sense of weed and cbd which I am allergic to, but I suck on fresh ginger throughout the day. It helps with histimine. But when my allergies are so bad because I am allergic to the cats, I never take fresh ginger while I am taking bendryl, there is a danger when taking both. So if I am on benadry and can't handle the pains I take a very hot shower and I really have to pray for it to go away. Sometimes it is too much , sometimes if I can I focus on diving into the pain and overcoming it that way. But it is very challenging and I get depressed often because I have no doctors or family that can understand what I am going through. But, I am now trying to take tumeric and it helps. Eliminating sugar and carbs can help. Not eating tomatoes, green peppers helps. Sometimes I take blueerries but it causes much pain, but I know that by eating it is good pain from a herx reactiom that kill those toxins that inflame our body. Moving around is also best to beat fibro, orange juice, sunlight , the ocean, music and art therapy and most of all my faith in Jesus has continued to help me, without him I would probably be gone . Anyways, mahalo nui loa for sharing
Thank you so much for sharing your story with us. It's incredible to hear about your journey managing several chronic illnesses. The way you've explored different treatments, especially your creative use of natural remedies like ginger, really shows how resourceful you are.
I'm really sorry to hear that you've felt alone and misunderstood in your struggles. That's really tough, especially when you need support the most. It's great to see how you've found comfort in things like music, art, and being in nature. Plus, your faith seems like a huge source of strength for you. Keep finding those moments of joy and healing!
@@tt_looking_glass mahalo again, I look forward to seeing more videos from you
Thank you so much for your support. ❤️
Thank you so much for one of the best UA-cam channels on living with Fibromyalgia. I have just recently found you and I think you are a beautiful person. Ive had Fibro for over 25 years and not much helps. I don't think I gave the LDN a chance so I'm going to try it again. Thank you ❤
Thank you so much for your kind words and for joining our community here on UA-cam! I’m so happy to hear you've found the channel helpful and I truly appreciate your lovely compliment.
Dealing with fibromyalgia for over 25 years is incredibly challenging (I'm at 32 years old) , and I understand how tough it is to find treatments that provide relief. Giving LDN another try sounds like a good plan. Sometimes, revisiting a treatment with a new perspective can make all the difference. I'm sending you all my best wishes for better days ahead with this new attempt.
@@tt_looking_glass 🤗❤️
Thank you again, for such an informative, open discussion on your medications. Im on Duloxetine and strong co -codamol. Neither help much with the pain. Think i need another discussion with my doctor. Im in Scotland so drugs may be different in whats available. Also, wish my doctor was more clued up about this illness. Take care xx
Thank you for your comment and for sharing your experience with us. It sounds frustrating that the Duloxetine and co-codamol aren't doing much for your pain. Definitely sounds like a good plan to have another chat with your doctor about what options might be available. It's tough when it feels like your doctor isn't fully up to speed on what you're dealing with. I really hope you can find more effective relief soon. Hang in there, and take good care of yourself. Sending you all the best vibes from here! ♥️
Thank you so much for your transpirency. Like you , I don't look ill. Probably from all the supplements I've been taking since 1996.
Very few doctors in the US will keep up with up to date on Fibro/Chronic F so don't watch to even subscribe. I waited for 6 mo . two years ago to see a local Rhematologist and he prescribed the exact ineffectual meds that my original diagnosing Rheumatologist
did 30 yr ago. I have medical background and am constainly researching. I am currently on a strick meat/eggs diet for the past 2 months. Also recently found out that gluten has been cause of severe muscle contraction in hands and low extremities and all
day vomiting , unconscious migraine. I'm writing to ask you have you been aware of Sally K Norton's "Toxic Superfoods"? She and
others (MD's, researchers, etc) have discovered and warning about "oxalates" in plant food. I'm beginning to think my issues may
be related to all the symptoms of toxicity that this causes. Anyway, I can tell you've been suffering all the same problems as me
and I appreciate your vids. It's surely been a wild ride hasn't it. BTW, the medical industry hasn't the first clue what is causing CFS/
Fibro and hasn't been looking for the most part in the past decades. Perhaps some of the MD's etc that are looking into nurtrition
or lack thereof may set a new avenue of research. I'm 74y and this malady is only getting worse! Seems like a cure should be forcoming soon. Blessings, p
Thank you so much for your thoughtful and detailed comment. I completely understand the frustration with finding effective medical care and treatments. It's so tough when you're not being heard or getting the help you need.
I admire your dedication to researching and trying different approaches, like your strict meat/eggs diet. It's incredible how much our diet can impact our health. I've heard about Sally K Norton's work on "Toxic Superfoods" and the effects of oxalates. It’s definitely something worth looking into, especially if it might be connected to your symptoms. I appreciate you sharing your journey and insights; it really helps to know we're not alone in this.
Thank you, so much, for your transparency. My medication list is quite similar, though a bit longer due to the blessing of added medical conditions. I’m in the U.S. so some meds are more common here. I have had fibro symptoms since I was in my twenties but it kicked into high gear after lung cancer(okay now)/heart attack/autoimmune disease hell year in 2014. If I didn’t have a twisted sense of humor, I’d be bat sh*t crazy. Oh, and the antihistamine thing…fact. I started noticing a difference when my lung specialist put me a couple of them(along with a couple of inhalers).
Your resilience and sense of humor really shine through, even with everything you’ve been through. Thank you for sharing your experience and the specifics about how different medications have been part of your journey, especially with the added complexities of managing multiple health conditions.
It’s incredible how you’ve managed to navigate such intense challenges, all while keeping your spirits up with a bit of humor.
Your ability to share openly provides so much value to others who might be dealing with similar struggles. It helps everyone feel a little less alone and a bit more hopeful about finding combinations that work for them. Thanks again for being part of the community and for your candidness. We’re all the better for it!
I eat grilled cheese sandwiches to manage my fibromyalgia…………….if only it was that easy 😉 I’m not taking any pain medication right now. I take metformin for diabetes, so I’m a little apprehensive to take other medication, I want to be careful with my liver. ✌️
I got a laugh out of the grilled cheese remedy, if only managing fibromyalgia could be that delicious and simple, right? It’s great that you’re being mindful about medication interactions, especially considering your diabetes treatment. Being cautious with your liver is definitely wise.
It sounds like you’re navigating these challenges with a good balance of humor and caution, which is so important.
Thanks for sharing your approach and sparking a bit of light-heartedness in our discussion. Keep us posted on how you’re doing, and here’s to finding that balance in treatment and care! ✌️
Great video, thanks for sharing. Your antihistamine journey is interesting, I take it all the time too. A couple of the reasons I ended up getting prescribed was because I get ‘skin writing’ (amused the kids no end when they were younger) but also it helps with my sinus problems, when I run out or just get supermarket ones, I barely sleep because I can’t breathe properly.
Thanks for being such a supportive subscriber and for sharing your experience with us! I totally understand how tough it is when you end up having a rough night. I hope you continue to find the right balance that helps you manage. Thanks again for watching and taking the time to comment! 🌼
Thanks for your information I have fibromyalgia, osteoarthritis, nerve pain in hands and feet. I take Tramadol for pain. Gabapentin for nerve pain. Anxiety medicine and depression medicine. Ibuprofen for inflammation. I have a bad stomach so I can’t take strong opioids. It does help.
Thanks for your comment and for sharing what you're going through. Managing fibromyalgia, osteoarthritis, and nerve pain is incredibly challenging. It's good to hear that you found a combination that is helping somewhat. I also have a sensitive stomach and I rely a lot on nausea medication. But I do worry I am going to end up with an ulcer.
It's really a tough road, but I'm glad you've found a regimen that works for you without aggravating your stomach too much. You are not alone in this, and sharing your experiences can help others in similar situations feel understood and supported.
Thank you for sharing your medication information. It’s amazing how many different types of medications are needed to treat fibromyalgia. I have found that low doses of different meds are more affective in controlling my symptoms rather than high doses of one drug. It has taken years to find the right cocktail! It’s really smart that you keep a narcon kit at home. Have a lovely day!! 🌷🌷🌷
Thank you for your kind comment and for sharing a bit about your own approach to managing fibromyalgia. It's indeed a journey to find the right balance of medications that works for each individual, and it sounds like you’ve put a lot of thought and care into finding what best helps you. Keeping a Narcan kit at home is one of those safety measures that can make a big difference. I'm glad to hear you've found a system that helps you manage your symptoms effectively. Wishing you a lovely day as well! Keep taking good care of yourself, and thank you again for connecting here. ♥️
Hi Daniella…can you please let me know the name and where you got the migraine cap from? The one you put in the freezer? I’m located in Ontario, Canada. Thanks a bunch ❤
I got it on Amazon. It’s called Icekap. I have an associate link which means if you buy using this link I get a very small percentage from Amazon at no extra cost to you. This is the link: amzn.to/3xM67By
@@tt_looking_glass Thank you Daniella. I’ll order through the link 🤗
Thank you so much for the support. ❤️
Thanks for being so open, friend ❤! That was really helpful how you explained how each medication works. We are on the same muscle relaxer (I take mine at night as well), and one of the same H1 blockers, hydroxyzine (I also take it at night, and use it for emergencies, unless I have to just pull my epipen out). And thank you for talking openly about the addiction potential for opoids ❤. It's insanely ridiculous in the U.S. It's near impossible to get a script, when there are actual people in pain, and we have a HUGE fentanyl crisis going on here. Last August, I lost my oldest nephew (he just turned 18 5 days prior) to the fentanyl crisis 💔. I'm so glad you view addiction potential as dangerous, and that you are that responsible with your medication ❤. God bless you, Daniella!
Thank you so much for your kind words and for sharing a bit of your own journey with us. It’s great to hear that the video was helpful and that we share some common ground with our treatments.
I’m so sorry to hear about your nephew. Losing someone so young to the fentanyl is heartbreaking. My thoughts are with you and your family during this incredibly tough time.
While there’s no easy answer to the opioid crisis, it's clear that leaving people in pain isn't the solution. Chronic pain has driven too many to despair and take their own lives and we must work toward effective and safe pain management strategies.
I consider myself incredibly fortunate to have a doctor who understands and trusts me.
Perhaps our shared background in healthcare and my pharmacology knowledge play a part, or maybe it’s just luck. Having used this medication responsibly for over two decades without increasing the dosage, I am acutely aware of its potential dangers and value my life too much to take any risks.
God bless you too, and take care.
@@tt_looking_glass 🥰❤️💓
thanks!
Welcome! ♥️
What about your liver?
You've made an excellent point! It's actually something I've been quite concerned about; just the other day, I discussed it with a friend. I plan to talk to my doctor about scheduling a liver panel every three to six months. Living with Fibromyalgia feels like a no-win situation. Without medication, managing symptoms is unbearable, but with it, I have to cope with the side effects. It's a tough call, and there's no right or wrong answer-just what works best for each individual.
Thanks for such an informative video!
Thank you so much for watching and always supporting me. ♥️
Hi wat een cocktail van medicatie zit er in je lichaam….Als je ldn gebruikt werkt alleen goed als je gestopt bent met tramadol niet mixen met opiaten. Wanneer ik ben gestart met de Wim hof methode ademhaling en koude douche. Heeft een tijdje geduurd maar je lichaam gaat dan minder cortisol aan maken en meer dopamine wat er voor zorgt dat je minder pijn hebt. Dit heeft er voor gezorgd dat ik nu nog alleen mirtazapine voor diepe slaap gebruik. En voor mijn hyper sensitief brain uni tranxene to relax. Dokter gabor on you tube is ook inspirerend een trauma van vroeger kan ook lijden tot fibro, Cfs,diabetes enz.. ze geven allemaal tips om het lichaaam te herstellen zonder te veel farma te gebruiken.ik ben nu 5 weken facia therapie aan het volgen helpt ook. Grtj uit België
Hallo! Bedankt voor het delen van je ervaringen en inzichten. Het is fascinerend om te horen hoe verschillende benaderingen zoals de Wim Hof methode en facia therapie je hebben geholpen om je symptomen te beheersen. Het gebruik van minder medicijnen en het focussen op natuurlijke lichaamsprocessen kan zeker voordelig zijn voor sommigen. Ik waardeer ook je aanbeveling van Dr. Gabor’s werk; het is altijd interessant om te leren hoe vroegere trauma's onze gezondheid kunnen beïnvloeden. Ik ben blij te horen dat je manieren hebt gevonden die voor jou werken en wens je het beste in je verdere reis naar welzijn.
I'm sure you are aware that any medications that are anticholinergic ( so any anti- histamines you are taking) have been heavily linked to quite a substantial risk for dementia? It's about a 54% increased risk according to the Harvard study I read. Just wanted to make sure you are aware! ❤
Thank you for bringing this to my attention. I've heard about their link to dementia risks, and honestly, it's quite alarming. However, I haven't delved too deeply into it because I really need these medications. They're crucial not only for managing my fibromyalgia but also for preventing anaphylactic shocks due to my mast cell activation syndrome, which has sent me to the emergency room too many times to count.
Taking these medications isn't just a choice for me, it's a necessity. While I'm aware that every medication carries its risks, and potentially increases the likelihood of other severe conditions, the immediate risk of not taking them is far greater for me. Managing this balance is tough, but essential.
Thank you again for your concern and for making sure I'm informed. It’s a reminder of how complex managing health can be, especially when you're juggling multiple conditions.
@tt_looking_glass I totally get it! I'm on a low dose of nortriptyline, which is also an anticholinergic medication, so I need to discuss this in my next neurology appointment! It's about weighing risks and benefits, but it can be so stressful just knowing that something we're taking for daily management, is increasing our risk for future health issues.
Yes, I totally get it too. Being aware of it can make us more proactive in doing other things that can help. Like keeping our brains active like learning a new language, being creative, learning a new skill…
Thank you for being so open and honest ❤
You are welcome. Thank you for your support. ❤️