my pseudodysphagia / arfid recovery

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  • Опубліковано 10 вер 2024
  • this is NOT professional medical advice, this is simply what helped me & what i learned.
    i reccommend watching at x1.25 speed. please comment below what you’d like me to address! this was just a starting video and id like to extend help to others!
    **i forgot to expand on the part that putting fear foods in front of you regulary helps our brains and bodies begin to associate life with regular food again and gets us in tune with our hunger cues. even if you dont finish, at least you tried! recovery will not happen overnight but it IS possible! remember, this is a learned phobia, and it can be unlearned!
    this is part of my story and my struggles with phagophobia, arfid, & pseudodysphagia. stay strong. you’ve got this 💕🌸
    - if you want to message me personally or keep up with me, my instagram is @mvgicbaby!
    - if this is something you struggle with, you can also dm @smoothiesnjoy on instagram to join a group chat of people with similar issues, & i also highly recommend giving her a follow! she has lots of helpful & resourceful content on her page. we will bring awareness to this very real issue & we will recover!

КОМЕНТАРІ • 190

  • @royalt1113
    @royalt1113 6 місяців тому +5

    Fear is what’s trying to choke us out!! Also when you are fine in the physical, that’s when you KNOW it’s spiritual!!
    I pray that God restores all of us that are going through this, and KNOW that we have the victory IN Christ Jesus 🙌🏽🙌🏽🙌🏽🙌🏽🙏🏽🙏🏽🙏🏽🙏🏽🙏🏽

  • @multipassionproject
    @multipassionproject 2 роки тому +11

    ✍🏽I too, found that I am much braver in the morning! 🌅 It's been a small window 🪟 where I can eat "scarier" things.
    ✍🏽It's so weird that this isn't considered an eating disorder.
    ✍🏽"I wish I could eat."
    Yes, I remember that feeling.
    ✍🏽Gradual process has helped me. I think it can help.
    ✍🏽Thank you for sharing your story!

    • @jayroman
      @jayroman  2 роки тому +1

      i'm so glad you took positivity from this! i really hope it does help! you're strong, you got this! remember that we can unlearn a learned phobia! sending love

    • @Samah-lh1eq
      @Samah-lh1eq Рік тому +1

      how do you feel today?

    • @royalt1113
      @royalt1113 6 місяців тому

      It’s easier in the morning because your mind has rested.

  • @oishee16
    @oishee16 Місяць тому +1

    I have been struggling with eating and every time I eat my entire throat goes tight...I've gone to 4 different doctors and all of them said my throat was absolutely fine. I am so fearful of eating and I also spit out my food usually if i think i cant swallow it. This video helped so much because I have been feeling so alone and so sad about this. I've always loved eating but now I am just so afraid but I am trying to get better. Thank you so much for sharing your experience. It makes me feel less alone. :D

  • @aarops9700
    @aarops9700 2 роки тому +10

    you have no idea how grateful I am that I found this video. I’ve been struggling with this for a couple months now and it had progressively gotten worse. I caught the flu a couple days ago which just made it even worse, because when you’re sick your throat tends to constrict and get swollen, so I would only resort to liquid. I had panic attacks and had anxiety filled days, when I already struggle with anxiety, and i’m now in my grandparents house and they’re helping me get back into the swing of things. I also tense up when I eat and I curl up and get super tense. Thank you for calling this out, because it made me realize that yes, this IS, and eating disorder, and I CAN get through this. I don’t wanna end up in a hospital bed and I wanna get through this, and i’m glad that you were able to get through this the way you did! You’re a whole warrior!

    • @Samah-lh1eq
      @Samah-lh1eq Рік тому +1

      how are you feeling today?

    • @josephmgift
      @josephmgift 4 місяці тому

      Dont worry, I overcame it.

  • @amyatetheaudio9809
    @amyatetheaudio9809 9 місяців тому +3

    I'm in the middle of this right now. But with liquids. When the phobia/anxiety rises higher, it affects foods too. I'm thankful for the few videos like yours that I'm finding. It's the ups and downs that throw me. A first visit with a therapist recently had me drinking much better for a few days. But then.. it just reverted and got worse again. I re-read his follow up notes and wrote them out the other day, then had 2 hours of being able to swallow normally! Which after two hours reverted back. It's frustrating because you suddenly feel a little better, only to have it snatched away. I've only seen them once and realize now that this could be a much longer road that I originally hoped it would be. And I will add, the more things going on around my life, that I can't fix or have a voice with, things I didn't stand up for, etc... I believe that's the key. Feeling like having no control in my own life.
    Can I say one more thing. You actually did an excellent job on your video. You didn't ramble. Very well spoken, easy to listen to, well thought out and orderly. Really great job. I'd say you're a natural speaker. : )
    I would like to talk to you a little more if that's possible. My therapist so far has called it an anxiety disorder in my case, not an eating disorder. Though I totally see how they are intertwined and the treatment could be very much the same.

  • @jamief.8406
    @jamief.8406 2 роки тому +5

    Ty for being brave and making this video
    I've suffered from this since I was 13 and the comfort of knowing that I'm not alone is very promising.
    Stay strong girl

    • @jayroman
      @jayroman  2 роки тому

      We have a whatsapp groupchat of about 20 girls who have this condition. You are def not alone! let me know if you'd like to join!

    • @Samah-lh1eq
      @Samah-lh1eq Рік тому +1

      how are you now?

    • @jamief.8406
      @jamief.8406 Рік тому +1

      @@Samah-lh1eq much better

    • @Samah-lh1eq
      @Samah-lh1eq Рік тому +1

      @@jamief.8406❤

    • @Samah-lh1eq
      @Samah-lh1eq Рік тому +1

      @@jamief.8406please tell me what help you?😢

  • @jmboyd65
    @jmboyd65 9 місяців тому +2

    You didn't ramble, you did great. I can't thank you enough for documenting your experience with us. I am quite a bit older than you, but I've come to realize that I've had this disorder for 25 years, it's just really ramped up the last few months. I've lost 27 lb in 2 months, and yes, I feel like I'm being dismissed by the medical profession. "Anxiety, depression, blah blah blah." Like no shit Sherlock, of course I'm depressed and anxious, I can't function. I've heard of Arfid, but after delving into it, I believe this is what I have.

  • @ashleyd9851
    @ashleyd9851 2 роки тому +16

    Thank you for making this video on such a rare disorder and phobia many people struggle with. I’m a mom and my phobia was triggered in 2020 just after pandemic started by severe anxiety and panic disorder. I looked up everything I could and could not find much help as far as doctors and such. So after about 4 months of just sipping broths I kept pushing myself to remember what it was like to eat (I love food) watched conversational mukbangs and eventually started eating certain things that I was comfortable with. But your video has challenged me to not have a group of foods to be scared of (which I do) and steak is one! So thank you again for your voice and testament to one of the hardest things I’ve endured in my entire life! Did they put you on any medication to help the process to overcome this condition?

    • @jayroman
      @jayroman  2 роки тому +3

      of course! you're so welcome and i'm so happy it did that for you! it is certainly a challenge and requires hard work but with baby steps it is doable! & yes, they actually prescribed me mirtazapine to relax the GI tract. i take it every night before bed. i'm also prescribed clonazepam for anxiety x3 a day. you've got this and you can do it! one bite at a time!

    • @ashleyd9851
      @ashleyd9851 2 роки тому +1

      @Nathaly Hernandez hi sorry for the delay, I still have struggles over certain tough textured foods (the list gets shorter every couple of months though!) and if I’m in a high stress state eating is so hard so I have to be in a relaxed environment and mental state so whatever coping mechanisms work for you is what I would use for example I have my husband watch my very active kiddos, watch a funny movie or tv show, always have a favorite entree or side with my meal that I’ve always loved etc. Getting back into eating however for me was very much training my mental psyche to remember what eating meant to me, how long I actually had been eating, and I honestly NEEDED to eat for my kids. I spent 32 years of my life eating just fine i know my throat and body are capable!!! I watched conversational mukbangs (where they talk, not just scarf down food) which really gave me my appetite back and kicked my mind into gear as far as remembering i used to kill dominoes pizzas lol..and did some therapy as far as I could afford (wasn’t much bc no insurance at the time) and kept my circle positive. My friends uplifted me my husband uplifted me. But it was rough ass hell to get where I am now which is no where near perfect. I plan on doing more therapy now that I have insurance and continuing to see food as I remember it and I’ve always loved food. It has always brought me joy. No one experience is the same as another this is just mine. My phobia of choking was with pills from swallowing a nickel when i was a child, i was fine and pooped it out but the reaction and fear of my parents i guess stayed with me? Idk i never was fond of taking anything pill related so I’ve avoided it my entire life… But the anxiety of the pandemic and life issues pushed me over the edge and it spread onto food randomly when i let a thought run it’s course. Our minds are so very powerful if we let them. I have talks with myself to this day. But i WILL defeat this. I had to physically and mentally push myself out of completely not eating to eating for my kids and myself! It takes hard mental strength and work to fig against your minds powerful thoughts that run rampant. You got this and I wish you all the love and support through this.

    • @slxppyjoe
      @slxppyjoe 2 роки тому +1

      @@ashleyd9851 bruh I used to kill Domino’s pizzas too 😭 stop I wanna cry now I’m going thru a similar thing

    • @ramonfollowerofjesuschrist847
      @ramonfollowerofjesuschrist847 2 роки тому +1

      @@ashleyd9851 🙏

    • @Samah-lh1eq
      @Samah-lh1eq Рік тому +1

      @@slxppyjoehow are you now?

  • @joannabower7753
    @joannabower7753 Рік тому +1

    Wow! Thank you so much for making this video. I'm 46 and have had this since I was 19yrs old. You are so right when you say there are so little resources. So many of the things you talk about resonate with me and this is the first time I've ever seen/heard anyone else who has these problems with swallowing. I really hope you have continued to recover. Thank you again for being brave and putting your story online. I feel less alone already ❤

  • @jayroman
    @jayroman  7 місяців тому +15

    Everyone watching, who would like an update?

    • @Killannihilator
      @Killannihilator 6 місяців тому

      That be awesome. Btw have anxiety meds helped? Been contemplating it

    • @samcarswell9890
      @samcarswell9890 5 місяців тому

      Hey! An update would be really good - currently going through this rn and this vid has helped a lot for me. Hope you're going well 😊

    • @stevenaugusto1910
      @stevenaugusto1910 5 місяців тому +1

      I would love an update, since your story was one of the first pieces in my recovery process and I was able to show it to my family when I couldn't explain it myself. I was having a nearly exact experience as you described, the worst of it being in January of last year. The worst has passed though and I was able to get back to a healthy food intake after nearly starving myself for months. I hope that you are succeeding in your journey and are able to share more of your insight with those suffering with anxiety/depression and some of its lesser known symptoms.

    • @stevenaugusto1910
      @stevenaugusto1910 5 місяців тому

      ​@@KillannihilatorI would consult with your doctor but from personal experience I would say it helped tremendously with my first steps out of the severe parts of anxiety. I know it may sound cliche but being around friends/family, doing hobbies/exercise, sleeping enough, drinking enough water, and going outside will help out a lot. It may not feel like it's working for the first few weeks but if get back into healthier habits at your own pace life will truly start to feel better. Remember that you will have ups and downs so don't beat down on yourself. You can get through it

    • @jayroman
      @jayroman  4 місяці тому +4

      UPDATE COMING! So sorry for going MIA on this channel. Life has been busy and had a lot of life changes. I do have more tips to provide.

  • @zubair717
    @zubair717 2 роки тому +8

    Thank you for this video. I am struggling with this massively. It is now almost 2 years and it has gotten worse. I am so exhausted and hungry I just want my normal life back. I have been screened for every medical exam and test and yet nothing but a anxiety/acid reflux diagnosis. My throat is so tight now all the time I have started to struggle with smoothies now mainly in the evening.

    • @ramonfollowerofjesuschrist847
      @ramonfollowerofjesuschrist847 2 роки тому

      I feel your pain! I got the same problem.
      That God may bless you!! (John 3:16).

    • @user-hr3mb1fn1t
      @user-hr3mb1fn1t 2 роки тому +1

      i‘m going through the same thing.. how are you doing now?

    • @Samah-lh1eq
      @Samah-lh1eq Рік тому +1

      @@user-hr3mb1fn1thow are you now?😢

  • @benevolent9130
    @benevolent9130 2 роки тому +4

    Thank you so much for sharing! This exact thing started for me 2 weeks ago after watching some videos of people choking. Before that day I would easily eat so much food and also be anxious gaining weight. After that day Im now anxious losing weight. I do not eat a lot I only eat a bit and spit the rest of the chewed food in my mouth. I will try your tips and also try to face my fear. (My entire life I could eat so fast and really a lot I was 92kg at a point being 168cm.) It is so dumb I just want to eat without caring again :(
    EDIT: After watching your video I followed what you said and tried to eat my pizza again. I almost ate the whole slice without spitting ANY! Stayed calm, relaxed my throat/body, no noises and taking full swallows, not moving the food to the back of my gums of trying to swallow in a weird way I did before. Thank you so much. The solution for everything is one. Face YOUR fear. RELAX yourself. Anxiety is behind it all and its so hard to tell because were used to IT.

    • @jayroman
      @jayroman  2 роки тому +2

      You have NO clue how happy it makes me to hear that it worked! You're exactly right! That is the right mindset and with time it will get easier! Thankfully it hasnt been going on for too too long for you so I definitely believe you have hope! We all do, but tackling it early is great. I'm so happy it helped :') No need to thank me; I only want to help other people!

    • @Samah-lh1eq
      @Samah-lh1eq Рік тому +1

      @@jayromanhow are you now ❤?

    • @Samah-lh1eq
      @Samah-lh1eq Рік тому

      how are you now?

  • @user-le3xo2gl1j
    @user-le3xo2gl1j 2 роки тому +5

    Thank you for sharing your story, I hope your recovery will be easier from here on out.

    • @jayroman
      @jayroman  2 роки тому +3

      thank you so much!

  • @tbully5613
    @tbully5613 2 роки тому +4

    I suffer with these things myself its def terrible and frightening, its nice to hear about other peoples experiences. Praying for a full recovery! God Bless :)
    “… casting all your anxieties on him, because he cares for you.” 1 Peter 5:7

    • @Samah-lh1eq
      @Samah-lh1eq Рік тому +1

      how are you now?

    • @tbully5613
      @tbully5613 Рік тому +1

      @@Samah-lh1eq a lot better than I was thank you. I am able to eat much better!

    • @Samah-lh1eq
      @Samah-lh1eq Рік тому

      @@tbully5613 What helped you get over that?🤍

  • @mirkaovcajderova2543
    @mirkaovcajderova2543 2 роки тому +5

    Thank you for sharing. Helps to know I'm not alone.

  • @CarlyMcGowen
    @CarlyMcGowen Рік тому +2

    It was a bagel for me!!!!! I swallowed and choked on one a few months ago. I've had arfid for years but my anxiety has risen so much to the point where I'm on liquids. Currently working on my dysphagia and anxiety. Thanks for this video! We have so many similarities and I feel less alone. I nearly cried when you said the thing about alcohol because I would drink and then eat sometimes too. Then I would not be able to eat for days. At this point my liquid diet has me down to 129 pounds and I'm 5'9 I really need to turn this around. My gastric issues absolutely do not help. I say every day I miss eating. 😭

    • @Samah-lh1eq
      @Samah-lh1eq Рік тому +1

      how are you now??

    • @CarlyMcGowen
      @CarlyMcGowen Рік тому +1

      @Samah-lh1eq I'm doing much much better. Been recovering for about 5 months. Back up to a healthy weight 💪 😌 Prozac helped 😆 and just sticking with my therapy and not giving up.

    • @Samah-lh1eq
      @Samah-lh1eq Рік тому

      @@CarlyMcGoweni wish you the best ❤

    • @Samah-lh1eq
      @Samah-lh1eq Рік тому

      @@CarlyMcGowenwhat help you please tell me 💔

  • @giedriuspradkelis1249
    @giedriuspradkelis1249 2 роки тому +4

    Thank you for your video, I had tears in my eyes while watching. Now I am going through this so this is a reason why I found your channel. My story started when I bought multivitamins/minerals mega caps. Sometimes it stucked however never blocked the airway just had some discomfort. But slowly slowly I started to afraid to take them, was asking somebody to stay with me while taking them. Finally I stopped them. Because I am doing fitness so by accident I read an article about american bodybuilder who chocked on food and died. Time from time I started to remember it while eating. It didnt affect me too much however I started to be sure that I have water with every meal.
    I still didnt have serious problems just sometimes had dilemma to swallow it or spit it out.
    But 3 weeks ago I read about one women from my country (Lithuania) who was in Dubaj and chocked on food in the restaurant and she is in coma. She chocked on piece of meat. Ok I thought maybe she was laughing in that moment or was drunk or smth... So I started to be afraid to swallow food more and more often,to swallow pills more and more often. After I read that this women have died. And last 3 days are the most difficult to me. I have to drink my sports supplements but I take powder from capsules or if its very small I am trying to swallow but every time I get panic in the moment of swallowing. When I am alone I put capsule in mouth and trying to swallow it but changing my mind so many times that its already melted. That supplements would be not a end of the world but now I have that fear with every meal. I am eating only "safe" food, very slowly but I make some normal bites but out of nowhere on some bites I get panic, I stop to think to swallow it or to spit and if I chooce to swallow in that situations I am falling down on the table with my chest and I put instictly my hand on mouth. Now is the hardest time of my life. And the more I think about this its getting worse and worse. I must be strong, I must overcome myself cause I was working so hard to become fit person (I always was too skinny) and now can lose everything because of that. I had some injuries in this period I am into the gym but I didnt give up so life sent me another challange and its f*g mental and I dont know how to deal with it...

    • @jayroman
      @jayroman  2 роки тому

      Have you progressed? I'm so happy this helped you!

    • @giedriuspradkelis1249
      @giedriuspradkelis1249 2 роки тому +1

      @@jayroman Thank you! Yes I did that! How? I fell in love :) To tell the truth, I am grateful to this fear for the love I have found. The story is that I told my manager at work about the problem. She promised not to tell anyone. The other day, the girl I was quietly in love with asked me: how do you feel, I heard that you are afraid to eat food. I was so angry with the manager, I was so ashamed. However, it was from this conversation that we started communicating with her :) So sometimes in life you can find light in the dark :) When I realized that she liked me, the problem disappeared by itself. Sometimes only bad memories of the problem come back while eating, but without any panic.

    • @jayroman
      @jayroman  Рік тому

      @@giedriuspradkelis1249 I'm SO glad to hear that!! That's wonderful!! Have you struggled at all since then?

    • @samia6888
      @samia6888 2 місяці тому

      @@giedriuspradkelis1249 are you able to eat well completely now?

  • @dogmothercoffeelover
    @dogmothercoffeelover 16 днів тому

    Thank you so much for making this video!

  • @danieljung2621
    @danieljung2621 2 роки тому +5

    One thing i say about this disorder is that you will never recover you just learn how to live with it kinda. I have had it for 3-4 years now and at one point when i was 6 months in i could barely swallow my own salvia, but i kept forcing myself to eat after I had a mental breakdown and I decided this just cant go on and after a while i was able to live with it and i got used to it. As you said in the video this still doesnt mean im fully recovered yet or i forgot about it at all because i have a harder time eating in public or with a lot of people around me. But generally i can still eat everywhere its just harder. So in a low stress enviroment i have little to no problem at all! I think anxiety has a HUGE role in this disorder and when ure very anxious its always harder compared to when as you said drunk.
    Congratulations on your progress and keep fighting! You will get to that steak! :)

  • @theoneandonlykatie265
    @theoneandonlykatie265 17 днів тому

    Thank you for this upload it helps to no I’m not alone 😢

  • @Pia0324
    @Pia0324 Місяць тому

    Thanks for this. I've been in this situation for a month and it's so hard to overcome the anxiety that stops you from eating. Postponing meals seems like the easiest thing to do.

  • @christinajohnson1980
    @christinajohnson1980 Місяць тому

    Thank you for your testimony May God continue to be with you and bless you through your journey I’m going through the same thing but trusting God everyday to help me overcome the fear because he didn’t give us the spirit of fear but of power to overcome anything with trust in him God bless you

  • @dianetavegia2058
    @dianetavegia2058 Рік тому +2

    I'm having problems with this. I was recently dx'd with Parkinson's Disease and the number one cause of death is aspiration pneumonia. I also have health anxiety and now can't eat certain textures because I'm afraid of aspiration. Working hard to eat healthy.

  • @bradsharp1803
    @bradsharp1803 2 роки тому +2

    It's actually sad the only time I can enjoy a meal is when I drink alcohol and result to that many of times. Thank you for posting this video I've ignored this for so long and haven't told anyone because I thought this wasn't a real condition.

    • @jayroman
      @jayroman  2 роки тому +1

      this was how i coped for the longest time :( it really sucks when it feels like that is the only way to eat… but i promise there is a way & there is a light. this is a very real condition! people need to understand how to treat it better! we also have a support group of others with the same condition on instagram and whatsapp if you want to join

    • @bradsharp1803
      @bradsharp1803 2 роки тому

      @@jayroman yeah that would be awesome, Would be good to learn more about it and be able to listen to others stories on it that could be useful.

    • @Samah-lh1eq
      @Samah-lh1eq Рік тому +1

      @@bradsharp1803how are you now?

  • @heathersherman5349
    @heathersherman5349 2 роки тому +2

    Thank you soooooo much for sharing your story!!! This challenges me and I hope that we will all recover from this! ❤️love you girl! Thanks again so much for the tips. There are few resources for this right now, but we’re going to make a way for others that will/do struggle with this! It is REAL and can happen to anyone if we aren’t aware of the problem and what point it can reach if we let it.

    • @jayroman
      @jayroman  2 роки тому +1

      thank you heather! and loads of love to you back. you've really helped and inspired me so much & your dedication to spreading awareness and help for this issue is incredible.

    • @Samah-lh1eq
      @Samah-lh1eq Рік тому +1

      how are you now?

    • @samia6888
      @samia6888 2 місяці тому

      @@Samah-lh1eq how are you doing now?

  • @JodieLee07
    @JodieLee07 2 роки тому +2

    Thank you so much for this video! As you said there's not alot of info or help on this... So your video is really helpful. Feel less alone, hearing your experience and it being almost identical to mine. Thankyou again💛

  • @suffer4christ
    @suffer4christ 2 роки тому +2

    thank you so much for this video, its so relatable and it makes me feel like im not alone

    • @jayroman
      @jayroman  Рік тому

      no need to thank me! you're strong, there's always a light, & you're not alone. i know it feels dark & isolating, but you're definitely not alone and recovery is possible. wishing you all the best

    • @Samah-lh1eq
      @Samah-lh1eq Рік тому

      how are you now?

    • @suffer4christ
      @suffer4christ Рік тому +1

      @@Samah-lh1eq the same

    • @Samah-lh1eq
      @Samah-lh1eq Рік тому +1

      @@suffer4christ😢 I wish you the best

  • @andrewtodd5203
    @andrewtodd5203 Рік тому +3

    I have same thing currently getting better but still feels like some things go down slower or feel caught for sec when I focus on it, I do eat slow less and smaller I lost 10lbs in a month and had it so bad where I ate at the ER on lunch time and probably ate 1-2 small meals a day, I’m also a hypochondriac and have been under a lot of stress it all started very stressed having acid reflux and felt good going down slow , I have had it to where can’t swallow, getting endoscopy soon hopefully can get over this fully

    • @Samah-lh1eq
      @Samah-lh1eq Рік тому +2

      how are you now?😊

    • @andrewtodd5203
      @andrewtodd5203 Рік тому +2

      @@Samah-lh1eq I’m fine now!!!! I had lost 35 pounds, I couldn’t even eat. But after a clear test from doctors, and building confidence I got over it, there is sometimes with acid reflux where it comes back but not too strong, but I know it’s just acid reflux and it’s just a sensation.

    • @Samah-lh1eq
      @Samah-lh1eq Рік тому +1

      @@andrewtodd5203wish you the best❤… i feel so bad.. its so hard 💔… i hope this ends soon

    • @Samah-lh1eq
      @Samah-lh1eq Рік тому +1

      @@andrewtodd5203and what help you?

    • @andrewtodd5203
      @andrewtodd5203 Рік тому +1

      @@Samah-lh1eqplease if your dealing with this the only way to beat this is 5 simple steps .. 1. Get and push for an endoscopy with your doctor, once you get the results of a clear throat, then you have nothing to worry about 2. Stop choosing certain foods, just eat what you want. 3. Don’t eat too late, don’t eat fast food all time just eat cleaner and don’t get full this will help with acid reflux 4. Any psychological issue you are going through control it, get a therapist, workout, etc to combat that as it could be the main issue causing this. 5. Be confident, self talk is big, stay positive, focus on other things be more mindful. Goodluck

  • @HannahMcClain27
    @HannahMcClain27 Рік тому +2

    this is exactly me. thank you so much for talking about it!!

  • @Whittingtons
    @Whittingtons Рік тому +2

    This video is really helpful for me in my own recovery from this condition. Thank you

    • @jayroman
      @jayroman  Рік тому +2

      I'm so happy to hear this! Genuinely. You're not alone!

    • @Samah-lh1eq
      @Samah-lh1eq Рік тому +1

      how are you now?❤

    • @Whittingtons
      @Whittingtons Рік тому +1

      @@Samah-lh1eq You're very kind, thanks for remembering me. I'm pretty much cured, though still have to work hard with bread products and things that require more chewing. I'm also better with other people than eating alone. I think I'll be completely cured when I no longer think about it when eating, and hopefully that won't be long. How about you?

    • @Samah-lh1eq
      @Samah-lh1eq Рік тому +2

      @@WhittingtonsI wish you the best 🩵

    • @Samah-lh1eq
      @Samah-lh1eq Рік тому +1

      @@Whittingtons I'm suffering so much I feel like I can't even swallow my saliva...but sometimes I feel a little better, I hope this ends soon..tell me what helped you..and did you feel like you couldn't swallow?

  • @Bluey1996
    @Bluey1996 2 роки тому +1

    Thank you so much for sharing ❤️ Your story is amazing, and I'm glad you're in recovery, so I'm wishing you a great recovery. I definitely feel so alone right now struggling with this. I feel like my life has an expiration date, but with therapy i am getting better

    • @jayroman
      @jayroman  2 роки тому +1

      I'm extremely happy to hear that you are getting better! If you want some support, we have a whatsapp groupchat of about 20ish people with pseudodysphagia. My lovely friend who also struggles with it created it, if you'd be interested and maybe feel less alone. I know it helped me when I was struggling

    • @Bluey1996
      @Bluey1996 2 роки тому +1

      @@jayroman omg i would love that. thanks so much!!

    • @Litterature.Histoire
      @Litterature.Histoire 2 роки тому +1

      ​@@jayroman Hello, I hope you are doing well ! Could you please tell more about this WhatsApp groupchat ? I would really like to join

    • @jayroman
      @jayroman  2 роки тому +1

      @@Litterature.Histoire Hi! Yes we still have it, I'm so sorry for not seeing this comment; DM me on instagram @mvgicbaby and I'll add you!

    • @Samah-lh1eq
      @Samah-lh1eq Рік тому +2

      how are you now?

  • @Umaril100
    @Umaril100 2 роки тому +2

    i got the same problem for years and when i decided to search for a therapist he looked me weird and said try eat this or that. just this in my country seems i'm the only one with this phobia every doctor every therapyst never heard of this phobia before -.-

  • @nathangarza131
    @nathangarza131 2 місяці тому

    Mine started when I did have a choking episode in slowly it got worse in worse notice what foods go down easier in everything I notice when I'm alone I eat fine but around people no matter who it just gets worse it's like a panic attack just to sallow it's the worst and I know how you feel about drinking to get relaxed in just eat but it's that way . Great video I enjoy it

    • @samia6888
      @samia6888 2 місяці тому

      I am the opposite, when I am alone I have a hard time cause I am scared I will choke and no one will be around to do Heimlich on me.

  • @kaanulusoy3992
    @kaanulusoy3992 5 місяців тому +1

    need an update please

    • @jayroman
      @jayroman  4 місяці тому +2

      Promise I will film one very soon! Been caught up with life & moving around a lot 😩 but all is well! I will post an update

  • @zubair717
    @zubair717 2 роки тому +1

    This was super helpful and gives me and others hope

  • @ramonfollowerofjesuschrist847
    @ramonfollowerofjesuschrist847 2 роки тому +2

    Thanks for this video! It's a struggle.. That God may bless you!! (John 3:16).

  • @19powpow91
    @19powpow91 Рік тому +1

    Cant wait to see your next video. Your video has inspired me to call my local ED facility.

  • @caro6308
    @caro6308 Рік тому +1

    Thank you so much for posting this … this is a real thing any more tips that u can give ?

  • @vernonwhisler2610
    @vernonwhisler2610 2 роки тому +2

    it is a phobia or an anxiety disorder ive been going through this for probley 50 yrs after choking on a peice of cake when i was 10 and have choked on watter and it scared the hell out of me im doing better now but its always in the back of my mind

    • @jayroman
      @jayroman  2 роки тому +1

      It is a complex phobia but anxiety also is a major cause of it

    • @Samah-lh1eq
      @Samah-lh1eq Рік тому +1

      how are you now?

  • @luv-tsa3692
    @luv-tsa3692 2 роки тому +1

    Hey I am a 19 years old malnourished boy I'm suffering from same problem 😞 please help me,🙏🙏🙏 it hart me so much in my feeling & I was suffering from this phobia for about 8 years. exact the same feeling everything same like you...ohhh my god.... I can't believe this. The Different is that I don't have nobody to recover me from this psedodyspagia.

    • @Greg4g63
      @Greg4g63 2 роки тому +2

      It is anxiety based so therapy and/or medication will help. In the meantime get a blender and make smoothies. Bananas, peaches, blueberries, protein powder mixed with milk and egg substitute make great morning drinks. Sweet potatoes, mixed vegs, beets, mixed in apple juice with protein powder is very nutritious too. Of course you can come up with all sorts of smoothie options yourself.

    • @luv-tsa3692
      @luv-tsa3692 2 роки тому +1

      Thank you so much

    • @seti6272
      @seti6272 2 роки тому +3

      Seek Jesus He will help if you truly seek Him

    • @Samah-lh1eq
      @Samah-lh1eq Рік тому

      how are you now?

  • @Chris1878e
    @Chris1878e 2 роки тому +1

    I've been struggling with eating since Christmas... since I quit drinking as I was doing the same to bottle up the fear of choking I'm currently just living off smoothies atm due to the sensation of a lump in my throat due to the anxiety and stress of it all

    • @Sarahhhox123
      @Sarahhhox123 2 роки тому

      I have this too. I found that acid reflux for a big factor in the feeling of a lump in my throat. Because i was only eating tomato soup for the first six weeks. Gaviscon and an omezperzole has helped a lot with the lump feeling if that helps x

    • @Samah-lh1eq
      @Samah-lh1eq Рік тому +1

      how are you now??😢

    • @Anubis_920Models
      @Anubis_920Models Рік тому +1

      @Samah-lh1eq I've only just started to eat toast the last week... its been a battle

    • @Samah-lh1eq
      @Samah-lh1eq Рік тому +1

      @@Anubis_920Modelswish you all the happiness 🤍

    • @samia6888
      @samia6888 2 місяці тому

      @@Anubis_920Models have you recovered?

  • @henryuchiha02
    @henryuchiha02 Рік тому +1

    My baby 😍❤️

  • @icyrobloxproductions255
    @icyrobloxproductions255 Рік тому +2

    Did it got bad to the point you were scared of swallowing your saliva?

    • @Samah-lh1eq
      @Samah-lh1eq Рік тому +1

      how are you now??

    • @jayroman
      @jayroman  4 місяці тому

      Sorry for the late reply. Yes, I got to that point as well.

    • @jayroman
      @jayroman  4 місяці тому

      @@Samah-lh1eqstill doing well!

  • @Butterpuppy2022
    @Butterpuppy2022 Рік тому +1

    Hi Jay! Were you ever on anti anxiety medication like Ativan or Klonopin while in treatment to help with the phobia?

    • @jayroman
      @jayroman  Рік тому +1

      I was prescribed diazepam at the time and hydroxyzine while coming off of the diazepam

    • @Butterpuppy2022
      @Butterpuppy2022 Рік тому

      @@jayroman thank you! My 7 year old daughter is getting outpatient therapy for her ARFID and just started hydroxyzine. I’m hoping it’ll help her.
      Your story really help shed light on ARFID for us and gave us hope. Thank you!

  • @bekb293
    @bekb293 Рік тому +1

    Did you struggle with the feeling of food being stuck in your throat?
    I often when eating am left with a feeling of the food being stuck to my throat and slowly moving down.

    • @samia6888
      @samia6888 2 місяці тому +1

      yes but I wash it down with water, for me it is the fear of it going into the windpipe.

    • @ayanbiswas7656
      @ayanbiswas7656 Місяць тому

      @samia688 hey , how are you right now ? I’m also facing same problem

    • @samia6888
      @samia6888 Місяць тому +1

      @@ayanbiswas7656 it’s a lot better now, as God willed, I distract myself while eating by watching vlogs and walking city videos. The key is to distract yourself.

    • @ayanbiswas7656
      @ayanbiswas7656 Місяць тому

      @@samia6888 exactly same thing I’m doing right now to get rid off it.

  • @Kyojei
    @Kyojei 2 роки тому +1

    Thank you so much

  • @slxppyjoe
    @slxppyjoe 2 роки тому +2

    Hey, thank you so much for sharing your story. I’m suffering with the same problem and I’m 19 years old. I also live in Florida and honestly I’m willing to drive however long to get to that mf facility. Fortunately, I’ve been blessed and work hard so money is not a problem for me in regard to this phobia. Can you please give me the name of the in-patient place you went to? My pseudodysphagia is not as bad as yours was, but I’m really scared it will be cause it’s just getting worse and worse by the day. Sorry that this is so long I just really need help :/

    • @jayroman
      @jayroman  2 роки тому

      Hey! I can give you more info on the facility! they also offer virtual ! Dm me on Instagram if you have it, mvgicbaby is the name

    • @slxppyjoe
      @slxppyjoe 2 роки тому

      @@jayroman Hey I actually dmed you a couple hours ago outta desperation but thank you 😭

    • @jayroman
      @jayroman  2 роки тому +1

      but before the DM, the name of the place is Viamar Health in West Palm Beach. I def recommend looking at their programs and getting in touch with administration; usually theyll text with you and call you while you make a decision. The care there is *amazing*.

    • @slxppyjoe
      @slxppyjoe 2 роки тому

      @@jayroman thank you so much I just sent another dm to confirm 😭😭

    • @bluenomadbruh
      @bluenomadbruh 2 роки тому

      ​​@@jayroman thanks for the info. I live in Broward county so, if I don't improve, I will look into them.

  • @maxmeier787
    @maxmeier787 2 роки тому +1

    Thanks for the video! How are you today?

    • @jayroman
      @jayroman  Рік тому +1

      i'm doing well! i still consider myself to be in recovery, but i've been keeping it up. i will be making an update video! & you're very welcome, im glad it was able to help people, truly.

  • @borisantonov149
    @borisantonov149 2 роки тому +1

    Sorry for the odd question, but how do you drink from a bottle? I can only manage drinking tiny sips at a time. If I pour the water down to the bottom of my tongue, does it get automatically swallowed?
    I am very afraid of this leading to choking.

    • @jayroman
      @jayroman  2 роки тому +1

      At the time, I felt unable to. Now I just am able to drink it freely; my advice would be to relax your muscles and breathe deeply beforehand and just let it go down naturally. You can do this. It's hard, but it is possible.

    • @Samah-lh1eq
      @Samah-lh1eq Рік тому +1

      how are you now ??💔

    • @borisantonov149
      @borisantonov149 Рік тому +1

      @@Samah-lh1eq Much better, thanks for asking. Due to meds plus therapy

    • @Samah-lh1eq
      @Samah-lh1eq Рік тому +1

      @@borisantonov149please tell me what help you? I’m so sad 💔

    • @Samah-lh1eq
      @Samah-lh1eq Рік тому +1

      @@borisantonov149 can you tell me your way of swallowing? I know it's a strange question🥲

  • @luv-tsa3692
    @luv-tsa3692 2 роки тому +2

    Hey can you give us some updates of your life please.....

    • @jayroman
      @jayroman  2 роки тому

      yes! i’m planning on making a follow up!

    • @luv-tsa3692
      @luv-tsa3692 2 роки тому

      @@jayroman waiting

    • @jayroman
      @jayroman  2 роки тому +1

      @@luv-tsa3692 Sorry, been very busy, thank you for the reminder. Check up within the week, I know lots of people want a second video. I'll film tonight and upload.

    • @luv-tsa3692
      @luv-tsa3692 2 роки тому

      @@jayroman ❤️

  • @shearel3
    @shearel3 2 роки тому

    Did you ever consider going on anti anxiety medication?

    • @jayroman
      @jayroman  2 роки тому

      i’ve been on anti-anxiety medication since age 19.

  • @Boredzter
    @Boredzter 2 роки тому +1

    Good vid

  • @zerdizerdi2876
    @zerdizerdi2876 Рік тому

    12:05 me too

  • @sarahmichelle3222
    @sarahmichelle3222 Рік тому +1

    Would love a follow up video if you’re able 🥹 Thank you so much for making this video! 😭❤️

    • @jayroman
      @jayroman  Рік тому +1

      absolutely will film one!! i promise! i just have to make the time & stop procrastinating, hahaha. you're so so welcome, i hope you took at least something from it!