Treatment for Myxoid Liposarcoma | Laini's story
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- Опубліковано 24 жов 2019
- Laini saw a lump on her leg and knew something wasn't right. Laini and her family found care close to home in Virginia and then learned the news about her diagnosis of a low-grade sarcoma to her thigh. Laini's mother looked for a sarcoma center to seek further care for her daughter's tumor. In their search, they found the Johns Hopkins Sarcoma Clinic and saw Dr. Adam Levin from Orthopaedic Oncology to help treat Laini's myxoid liposarcoma. Now, she is sharing her story with others and spreading hope for all those who face a cancer diagnosis. #Sarcoma #JohnsHopkins
- Наука та технологія
My father passed away in July of 2019 from Myxoid Liposarcoma that originated in his leg and ended up spreading into his spine and bones. He was my best friend and the best father, he even allowed the hospital to use his tissue and medical information for studying this type of cancer in hopes to improve treatment and maybe even a cure one day.
Love you dad, miss you so much.
Thank you for sharing your father's story with us. You're in our thoughts.
How is your father mam
I had myxoid lyposarcoma in my right leg when I was 12. I went under surgery when I was 13 and it reoccurred when I was 16. So then again I had to undergo a surgery when I was 16 and had to cut out my major artery and replace it with vein. I used to be very athletic but I’m not anymore because the second surgery made my leg very weak. I find this story really inspiring! And I pray for everyone who’s going through this phase.
How are you now ? 🙏🏻🙏🏻🙏🏻
How are you bro
I was diagnosed with myxoid liposarcoma in my right pelvic region and thigh. I had the same surgery you had. It hasn't reoccurred, but I still don't have feeling in my right thigh. You are an amazing young woman, keep going strong survivor, and I will too.
How are you mam
How are u doing now? I have a lump being biopsied next week, it’s in my right grown/inner thigh area and I get pain in the back of my thigh. I’m really worried.
One of my favorite videos for sure keep going
Stay strong, I had liposarcoma too. Mine was in my abdomen and my 1st one was 30lbs, 2nd surgery this year and it was 15lbs.
I pray for you I just found my husband has it and didn’t know nothing about this cancer trying to learn
It keeps coming back? Anyway to prevent that?
And how are you now?
How are you
@@AshishKumar-kv4hrhow are you bro
I’ve just been diagnosed with myxoid liposarcoma in my left thigh and it’s been really frightening journey so far. I’m waiting to get a surgery date, but I just wanted to thank you for sharing your journey and this video. It gave me a lot of hope and positivity that I needed to hear.
How are you
How are you mam
I hope you stay strong for ever, I wish you the best of luck and the best in life 💞💪
way to go, Mom! And you both are so much better off for what you did together. I wish you both well, because you went through it together. Laini, you're a cancer conquerer! I went through it with three all at once, and I had two Basal Cell and a Squamous Cell Carcinoma. The Basal Cell carcinomas were removed with no other treatment needed, but the Squamous Cell Carcinoma was already itchy and bloody and watery, so I asked them to not even wait after they removed it to perform radiation which I knew would cause some side effects, but I didn't want even one cell to remain after they operated on my nose. Thank God the insurance covered both, and I did suffer through eleven months of side effects from the radiation. I used alternative therapy with heavy doses of Vitamin C which helped even more, and that was back in 1988. I'm still cancer free, and I pray that I'll remain free of it for the remainder of my life. God's Will be done.
Thank you for sharing your experience! I was just diagnosed with grade 2 Myxofibrosarcoma 3 days ago. I never heard of this cancer before. I have learned so much about sarcoma from google and youtube within last 3 days.
Hi souyang, I just received the result I got liposarcoma last week, I still have no idea what I can do, how about your right now?
@@fw6942 how are you
How are you bro
@@fw6942how are you bro
Just got diagnosed with myxoid liposarcoma 6 weeks ago. 9.8 cm high grade. Just got my ct. tomorrow is mris
What kind off tast to do to find out if I have it
How are you doing today, Luke? Hope you are well my friend.
@@darkl3ad3r how are you dear
Diagnosed with Liposarcoma (Myxoid round cell) last year after surgery to remove what was originally thought to be an epididymis cyst.
I'm doing fine , remaining optimistic and upbeat enjoying life.
No obvious signs of metastasis and in good hands with Royal Marsden.
I just got diagnosed with myxoid liposarcoma. It's in my left hip area. I'm 30, and I let this go for a few years because i thought it was just a big muffin-top or something. I meet with my oncologist for the first time in a few days
Any update? I am in a similar situation
Diagnosed with liposarcoma in right retroperitoneal region. Had surgery, recovering now. Now I just wait for a CT scan to establish baseline.
My dad is diagnosed with prostate cancer 😔 😟
Je voudrais savoir si après une opération, on pourra guérir de Lyposarcome myxoide ?
My father has the tumor removed from abdomen couple of days ago and it was 1.7kg. The round cells are
Much love to you and your father. I hope all is still well with him 6 months on.
How are your father now
Yo también tuve liposarcoma mixoide. Me gustaría encontrar a alguien con mi misma enfermedad ya curada para compartir la experiencia. Pero no encuentro o no se dónde buscar a alguien que hable español. Soy española
Gracias por vuestra atención 🙏
A mí me acaban de quitar un liposarcoma mixoide en muslo derecho y estoy asustado
@@enriquegonzalez4856 how have you been ?
@@AshishKumar-kv4hrhello bhai how are you
@@kumarAmbuj151 I'm good
@@AshishKumar-kv4hrwhich type cancer you have bro