a day in my life with pots | dysautonomia awareness month

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  • Опубліковано 2 сер 2024
  • Join me on a day in my life with POTS in honor of Dysautonomia awareness month.
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КОМЕНТАРІ • 58

  • @lexitaylo6166
    @lexitaylo6166 3 роки тому +56

    It's really nice seeing someone with pots live a healthy life, I was just diagnosed am I'm bed ridden

    • @ellaneilson1287
      @ellaneilson1287 2 роки тому +2

      Me too

    • @nobody___knows
      @nobody___knows 2 роки тому +2

      @@ellaneilson1287 same here

    • @alexiasmarie9778
      @alexiasmarie9778 2 роки тому +2

      Same :(

    • @RebaMiran
      @RebaMiran 2 роки тому +6

      Me too, it’s really depressing I’m trying to stay positive

    • @jenniferw1595
      @jenniferw1595 Рік тому

      Same. It’s from Covid. Just think how many people who aren’t masking will be joining us on this horrible journey soon?

  • @urbanpicasso919
    @urbanpicasso919 Рік тому +7

    Does anyone else with pots feel like sleep “resets” you… I feel good the first hour or two of the morning. As soon as I eat, it’s back again. 😏

    • @caleidoscoop77
      @caleidoscoop77 5 місяців тому +1

      This could be because a food intolerance. My Dr told me to try a low histamine and gluten diet for example, I know the case of a woman who had a very light lactose intolerance, which she didn't notice and once she removed dairy from her diet she was much better

  • @TimeTraveller2054
    @TimeTraveller2054 3 роки тому +25

    Thank you for talking about your life with POTS. It's a good reminder that I will one day get my life back on track, work again, and have energy to drive and leave the house again! I found your other POTS videos and your channel a few months ago while researching as I'm new to all of this. My symptoms started earlier this year after getting Covid. My life will be so much easier once I'm on meds. I'm still waiting for my doctor to give me the green light on salt tablets - I wish I could enter your giveaway but I will look out for this brand in the UK! For some reason I'd been imagining 'salt sticks' as being long sticks you have to suck on or something 😂

    • @faith_over_fear8896
      @faith_over_fear8896 3 роки тому +1

      I'm going threw the same

    • @beccascraps8141
      @beccascraps8141 Рік тому +1

      I got mine from Covid too

    • @muchancie
      @muchancie 10 місяців тому

      @@beccascraps8141. I got the symptoms after I had the Covid-19 Vaccine

  • @tayroberts4481
    @tayroberts4481 2 роки тому +5

    I recently got diagnosed with pots and I am glad I stumbled on this old video. I have no idea what I am doing.

  • @ashleyofnaath
    @ashleyofnaath 3 роки тому +26

    Zofran is a LIFESAVER for POTS. Great video as always. You give me hope💙.

    • @ChronicallyLindsay
      @ChronicallyLindsay  3 роки тому +3

      Omg yes it really is!! Thank you so much 😊 💙💙 keep fighting!! 💙✨

    • @nasseralraeesi6845
      @nasseralraeesi6845 2 роки тому +1

      Vitamin b1 and magnesium 🙏

    • @makenziekersten9593
      @makenziekersten9593 2 роки тому +1

      Definitely bringing up zofran at my next appointment

    • @Maggie-ey3hv
      @Maggie-ey3hv 11 місяців тому

      @@nasseralraeesi6845what kind of magnesium

  • @haileybelle7700
    @haileybelle7700 2 роки тому +3

    thank you so much for his video im almost 15 and my cardiologist diagnosed me awhile ago and it been a process but u give me so much hope so thank u for being open everybody can agree this makes me feel less alone

  • @karly_ongrowth
    @karly_ongrowth 9 місяців тому +3

    My Mum just ordered me the Vitassium chewables. I'm broke as well as chronically ill.
    I've been seeing Vitassium a lot recently and have been hoping to try it. Thank you for sharing :)
    Fellow Potsy girlie here 💕

  • @poppygardner681
    @poppygardner681 2 роки тому +2

    hi lindsay, i was very recently just diagnosed with pots so i really appreciate this video and all the awareness for it

  • @paigerohde6117
    @paigerohde6117 3 роки тому +6

    I love salt sticks! I take more than two a day. I take 8, which makes me wish they made them with more salt in them!

  • @EvaAntonia1
    @EvaAntonia1 3 роки тому +2

    Interesting video 😊 I don't know if I could sleep elevated but I guess you get used to it 😊

  • @JoStotts
    @JoStotts 3 роки тому +1

    Uhh 1. Ur gorgeous & 2. Ur videos are so CUTE!!! I hope my videos are this cute one day! 🦋

  • @andy6877
    @andy6877 3 роки тому +1

    That's a really good looking wedge pillow, where did you buy it?

  • @danielkaz6280
    @danielkaz6280 3 роки тому +3

    Hi Lindsay I love yr vids 💕💕

    • @ChronicallyLindsay
      @ChronicallyLindsay  3 роки тому

      Hii!! Thank you so much! I’m glad you enjoy them ✨😃

  • @user-hi6nm9od2l
    @user-hi6nm9od2l 2 роки тому +5

    This is really hard when you have a demanding toddler 😭

    • @78jgvincent57
      @78jgvincent57 Рік тому +1

      I feel this. I have a 3yr old, 1yr old, and wife is about to give birth any day now. Just got this after Covid a few months ago

  • @TrinityTrin-fs5ns
    @TrinityTrin-fs5ns 5 місяців тому +1

    I have POTS .. I can barely stand without 170:(

  • @riley9038
    @riley9038 3 роки тому +5

    Do the salt sticks work better for you than the other sodium pills you used to use? I use the ones you used to use, and it seems like they are not doing anything

    • @ChronicallyLindsay
      @ChronicallyLindsay  3 роки тому +4

      I personally think these work better than the other ones I used to take!! Since they are made for people with POTS in mind I’ve noticed them helping me more. However not everything works for everyone so keep that in mind as well! And sometimes the effects can be subtle! Wishing you luck on your journey 💙

  • @sophiewww46
    @sophiewww46 2 місяці тому

    I don’t know if i have pots but i have all but like 3 of those symptoms ( idk about my blood volumes, or bp)

  • @funeraltomcat6839
    @funeraltomcat6839 3 роки тому +1

    She's really sweet !

  • @CaseyJackson447
    @CaseyJackson447 3 місяці тому

    I have POTS too spoonie friends

  • @dominikbenz8349
    @dominikbenz8349 3 роки тому +1

    greatr vid i enjoy love it verym cool youa re so prety stunning queen

  • @susanmargaretwills6432
    @susanmargaretwills6432 3 роки тому

    Thanks for these video snaps in the midst of ur pubblicity vlog

  • @troublezmalone8591
    @troublezmalone8591 2 роки тому +2

    Do you have issues with food products that are not organic? I can no longer have anything with soy, msg, and gmo items. I used to love Domino's but they bathe their pizza in soy butter now and it makes me so sick it's like I went through chemo.
    Do you have issues regulating your temperature? This didn't just pop up but it wasn't a big deal until this year. I literally do not feel the cold until my body temp is way too low. I try dressing warm and I get too hot. In the heat we get triple digits and after fifteen minutes, my body is going way too hot. After getting heat exhaustion four times last summer, I had to stay inside until it cooled down outside. I had a cool rag on my neck and cold water and the ac running and still I couldn't handle it.
    I'll try those salt supplements.I wonder if that is why I get so woozy sometimes because I am that low on salt. Going organic on all foods probably didn't help.
    I just need some suggestions on how to adjust to this new normal. I've lived with this for a long time and it was gradually progressing but the past couple years it seems like my body is out of control. And my doctors either do not take it seriously or take forever to decide if they want to send me to a specialist or not..but they can't help me in the meantime. I feel like calling all the doctors around to see if they have ever dealt with Dysautonomia before because if they haven't, they won't be able to help me.

  • @Makechekvanfart
    @Makechekvanfart 3 роки тому +1

    She's beautiful!!! 😉

  • @liztatecanrelate
    @liztatecanrelate 3 роки тому +3

    Just got diagnosed today.🤦

    • @liztatecanrelate
      @liztatecanrelate 2 роки тому +1

      @Lowkey i got diagnosed my my cardiologist and I first noticed my heart rate was a lot higher than the average person and I was getting dizzy, light headed and tired all the time.

    • @liztatecanrelate
      @liztatecanrelate 2 роки тому +3

      @Lowkey i personally haven't fainted yet (knock on wood lol) I do get dizzy randomly or if I get up or if i haven't had enough salt and electrolytes that day. I bought a heart rate monitor from Amazon and I use my fitbit to track my heart rate.

    • @liztatecanrelate
      @liztatecanrelate 2 роки тому

      @Lowkey i would find a cardiologist and see your primary care physician first . headaches are a symptom too

    • @liztatecanrelate
      @liztatecanrelate 2 роки тому +3

      @Lowkey if they think it's anxiety then they aren't the right doctor for you. Dont give up and make sure your parents know what's going on with you. A lot of doctors are saying that they are getting POTs after covid too.

  • @kklife8784
    @kklife8784 6 місяців тому

    Twinnnnnn

  • @camicleveland6842
    @camicleveland6842 2 роки тому

    Have you ever been on a beta blocker? With pots

  • @jessicamyers1282
    @jessicamyers1282 2 роки тому +2

    Hi post ♥️

  • @The-edit-girl
    @The-edit-girl Рік тому +1

    😲your cat is identical to mine but he is a boy but it scares me how much alike they look

  • @monkmary3262
    @monkmary3262 2 роки тому

    Is it weird to ask what you do for work…?

  • @amyjpatria4471
    @amyjpatria4471 2 роки тому +7

    Prolotherapy IS THE answer! You most likely have cervical spine instability which is pinching your vegul nerve causing ALL of POTS symptoms