Living with fibromyalgia in India | Fibromyalgia Conference | International Fibromyalgia Advocates

Поділитися
Вставка
  • Опубліковано 29 вер 2024
  • We connected with Arushi Lohiya and Janeema Najeeb, two fibromyalgia and chronic illness advocates from India, as they shared their health journey at the Fibromyalgia Community Conference 2022. Stay tuned for future interviews with them.
    Arushi founded the India Fibromyalgia Foundation

КОМЕНТАРІ • 10

  • @Stanno1168
    @Stanno1168 7 місяців тому

    I am from England and have suffered Fibromyalgia since 2011. It was great to listen to your stories and I absolutely loved the poem from Arushi .

  • @arbinmatin7241
    @arbinmatin7241 Рік тому +2

    hi mam . I am from India. I am suffering from fibromyalgia from past 4 months. I am 25 yrs old. mom of 2 small kids... it's unbearable cronic pain of 24 hours daily... getting very difficult to do daily activities of life with children's. .. plz suggest me something mam???

  • @CarrieKellenberger
    @CarrieKellenberger Рік тому +1

    Loved this chat so much! I haven't been able to find Janeema, but Arushi and I connected right after their presentation.

    • @fibromyalgianational
      @fibromyalgianational  Рік тому

      She is mostly on Instagram. Glad we could get these videos up! More this week!

  • @johnathanabrams8434
    @johnathanabrams8434 Рік тому

    How do people get diagnosed with fibromyalgia?

    • @Truerealism747
      @Truerealism747 11 місяців тому

      Diagnosis of exclusion

    • @johnathanabrams8434
      @johnathanabrams8434 11 місяців тому

      @@Truerealism747 aren't there an infinite numbers of diagnosis ? Seems like you'll be excluding forever.
      What's the cure for fibromyalgia?

    • @Truerealism747
      @Truerealism747 11 місяців тому

      @@johnathanabrams8434 yes it is linked to hypomobility heds Asperger's add then a trigger I have them all had to find it out myself autism causes SPD 60 percent I've found are in the spectrum with hypomobility being the link to the triggerpoints etc but took me until my son's diagnosis at 43 get diagnosis ime getting a jaw splint next even though I don't have tmj nowadays it's hypermobile atlas as a child I had severe cracking pain there to trial and error.